Hi Kathy, yes believe it or not David was there.
But he wasn't at breakfast. It was such a great time.
I still can't believe it. I have a great time every
year when I go. But this year had to be the best by
far. Can't wait til next year though...LOL You live
pretty close you should try to get down here when they
have that. It is a blast and the stars are all so
nice. <br
Ok I put a couple of the pics up from the
weekend. I know you guys won't really care about them but
maybe some of the gals will. Hope you like them. Might
start my own album with some of the others if you all
want to see them. Let me know.<br
take care<br
Hello Everyone,just was watching TV and a
commercial for Ditropan XL came on ,said only one pill a day
lasts 24 hrs.Anyone else heard anything or tried
it?.I'm taking just plain ol Ditropan and some
Detrol,just depends on the day.<br
Sterling Ohio,does that count?.Anyways i looked up the
location in KY,it's about 3-3 1/2 hrs from me.My Ex went
to school in Lexington and it looks like a 1/2 hr
west of Mt Sterling.I'm good shape on dog leashes,are
yours like harness's or just the leash?Good idea about
being nationwide with them.<br
coming along?.Haven't seen much on the news the last
couple days.Well thats all from here folks,later Randy
Cindy, it's great to see you back and to hear
your great news. It sounds like you and your brother
are in for a wonderful adventure. <br
truly jealous..I watch all the ABC soaps, and you had
breakfast with Eric, was "David" lerking in the
shadows?<br
newest, Snickers, is only 1o weeks old. <br
you that have dogs, say over 10 pounds that put them
on leashes to walk them at any time, whether to get
a hand or just to walk the dog, e-mail your
address,(kathy@...) and color preference, the size of your dog and I
will send you a leash. I have a small business making
leashes and I will send you cards in case anyone asks you
where you got them.....you know that routine. I'd love
for you all to see them, then I can boast about being
nationwide, LOL.<br
chat, I had the flu..anyone go? And does anyone live
near Mount Sterling KY? I have a show in October
there.<br
Cindie, read about your news at NM this morning
and am still bubbling for you! I checked our paper
and we get the show on WGN so I will begin watching
it--and I want to say again just how great it is--you all
have a safe flight and we'll want details detail
details when you get home :>)...<br
only thing I want from you regarding your soap weekend
is the same thing I just asked from Cindie--details,
details :>) Like what is Susan Lucci like, what did
she say? I want exact quotes mind you..lol She is
probably even more beautiful in person than on tv--I hate
her of course----no way, everyone likes Erica, you
just can't help it...<br
pictures and yes of course you must have a gun rack--then
a tattoe...lol..I meant to tell you Ed got me
Harley stickers from Chillicothe, then he forgot he had
them and got them out on our last day of vacation and
I put them on my bike--I mean
chair...<br
will be by shortly to arrest you. Why she's the queen
of soap stars, quite wicked but ya gotta love her. I
will be sending you a recent copy of Soap Opera Digest
so you can catch up!--something to look forward
to..lol<br
stand it--(that's an Ed quote)...Betty :>)
I just thought I'd add my 2 cents worth, since I'm comming from the other side
of the fence. When my boyfriend got in his accident, it was definately a trying
time for both of us. Our relationship was pretty good before, but illness of
any kind is a stressor. I would visit him every day in the hospital and even
took a new job close by so I could see him at lunch. But there were times he
was just down right rotten to me. Some of my friends and even the nurses told
me I didn't have to stay and take it, But I loved him and wanted to make it work
out. I found out later that the only reason he did that to me was to push me
away. Give me every reason to leave and not feel guilty. If I was to stay in
the relationship, he wanted to make sure it was for the right reasons, and not
becuase I felt sorry for him or felt I had to stay with him. I remember going
home and crying every night for weeks. But eventually we got over it and now
have an incredible marriage. So I really think you have to look deep down
inside and decide what you want. Realize that he is going through a lot of
anger over his loss, and he's probably pretty confused. It takes time to get
over these things and start looking nat life again. But chances are he'll end
up being the same person he was before, especially if you can give him the
support he needs. But if it's too much and he isn't willing to respect you,
then you need to make sure to take care of yourself. I hope things work out the
way you want them to!
Liz
--
That is so wonderful!!!!!
Hello Everyone.. <br
and share with you all the wonderful news with you
all. My dream for my brother William is coming true..
Heres the story, its long but hope it will print.
<br
you all again for all the great advice on some of the
most important ways to travel. I copied all of it and
will be keeping this paper close to me. Wonderful tips
and advice and feel more at ease. Thank you all!!!
<br
brother William has brain cancer and he is hanging on and
fighting all he can. Guess one can hope for a miracle, but
think hes all out of those. So my brother is taken care
of the last things he wants done before he dies.
Cant think of this too much or I dont make it through
the day. <br
familar who Richard Simmons is. He has a new show on TV
now called Dream Maker.. Well a year ago I send in my
dream for my brother. <br
William and how he always had a dream of packing up the
family and going to the Black Hills of South Dakota. He
wants to say prayers to his God and feel closer to the
earth and his God. And at the same time go camping with
the whole family.<br
trip, no extra money as well as no transportation which
all could travel in. There are 8 kids and two adults,
Oh cant forget the Dog Bear. ;-) They often take 2
cars to go anywhere. But no way he could afford this
at all. <br
go on this quest and also take a nice vacation with
the family all together. Strong memories for them
all. <br
helper called and said Richard read your dream for your
brother and wants to fullfill this for you. So for a few
months I had to keep it to myself. (and they said I'd
never make it.. Ha no sweat..) Yah it killed me but I
made it.. LOL <br
down. The fellow called me the other day and said we
want to bring you and your brother to LA. Calif. to
meet Richard and have lunch with him.. Then Richard
will tell William my dream for him.. I cant believe
it, my dream will come true. I'm still walking on air
and cant seem to come back down to the ground. Heck
someone pinch me, LOL <br
California we told him that I wrote to Richard about my
dream to meet him and he has granted me my wish. I can
bring two people with me.. So I wanted to share this
with him and his wife. Told him we havent ever went on
vacation together and would be the best memories for
me.<br
Firday night. Whew fast trip. But they said Richard
always wants to meet the people who asked for the
dreams. Before even making the plans for the show, to
tell others about my dream. Wont know for now when we
will go back to Calif for this. Or perhaps if there is
enough time for William. But this is what the goal is to
come unto his show and fullfill my dream. WOW
<br
chance to have ones dream come true. This is all by the
kindness of Richard Simmons the Dream Maker. So if any of
you have a personal dream for yourself or a loved one
or friend. Check it out at his web site. All it
takes is an email about what you dream for and why I
guess. You got nothing to lose, and your dream may come
true. Did for me and I still cant believe it. (
www.richardsimmons.com.)<br
there
and never have seen the ocean. And of course always
been a dream for me to meet Richard,to me he's one of
the kindness, caring person I've ever known.
<br
LA,Calif. ? I wonder if there is still any gold in them
there hills?? hmmmmm LOL Thank you all for all the tips
on flying and all your love and kindness and prayers
and happy thoughts for my Brother William and family.
<b
In a message dated 17/01/2005 00:53:20 GMT Standard Time, waquele20@... writes:
Hello everyone:
I have bad news, my boyfriend and I decided to go our seperate ways. I tried all I can do to be there for him but somehow I can no longer reach him anymore. I guess it is for the best, I do not know but I hope now that I am no longer in his life he can now begin to heal and accept his injury (T7 complete). I will be checking on the group from time to time but I wish everybody well in their funture endeavors. God Bless!!!! [INLINE]
Hey,
I'm really sorry to hear about the break up. Like you say, maybe it's best that way for the time being. I'm a big believer in "if it's meant to happen, then it will do at some point". In the mean time, be free, single and HAPPY!
Love Smurf xxx
Boy what a weekend. It was great. We had a
wonderful time. Chuck was great with the whole thing. Not
too much for him to do. But he said at least he got
to get out and get some exercise!!! He watched his
fair amount of girls too...LOL<br
how nice some people are. One of the stars made a
special trip over to see chuck. Thought I would die. It
was great. Of course chuck had no idea who this guy
was...LOL But it was neat. <br
your back has been acting up on you. Is it better now?
And how is your Dad doing? <br
and get with you soon and tell you all the gossip. It
was great! Had breakfast with Susan Lucci and she was
so nice. Will fill you in later. Too much to tell
and not sure where to start...LOL<br
everyone is fine and well. <br
Welcome home Karen & Chuck. Linda says she would
LOVE to meet people like Susan Lucci. Who is she???
LOL Glad yo had a great time. We sure had a great
visit with Betty & Ed. Thinking about pulling out for
the Black Hills sometime this week, but the
weatherman isn't cooperating. Oh well, when/if the weather
straightens out, we'll take off.
Hello everyone:
I have bad news, my boyfriend and I decided to go our seperate ways. I tried all I can do to be there for him but somehow I can no longer reach him anymore. I guess it is for the best, I do not know but I hope now that I am no longer in his life he can now begin to heal and accept his injury (T7 complete). I will be checking on the group from time to time but I wish everybody well in their funture endeavors. God Bless!!!! [INLINE]
I'm a C-5-6 SCI as a result of a car accident on September 1, 1973.
I was on a stryker bed, with tongs, for 6 weeks before being
transferred to Younkers Rehabilitation Center at Iowa Methodist
hospital in Des Moines, Iowa. I was in rehab for 7-8 months until
late May.
After rehab, I moved in with my mother and brother. In 1982, I
decided it was time to do something with my life other than work
parttime at the local hospital library. So, I went back to college
and got my BA in accounting in the spring of 1986.
In July of 1987 I landed a job with the IRS as a Revenue Agent. I
moved to a city about 60 miles away. I got my own apartment and
lived by myself with a HHC person coming twice a week for 2 hours to
help with my bowel program.
In 1997 I was in another accident. This time I broke my leg which
required surgery and a rod. This accident apparently jarred a cyst
that was growing on my cord. I began sweating profusely 24/7.
That's when they discovered the cyst.
In late April of 1998 I flew to Denver to have my cord untethered
and the cyst drained and shunted. I was in Craig until late May
when I flew back home to a local rehab to get built back up.
When I got back to the local rehab, I promptly got meningitis. Oh
yeah!! Needless to say, I survived.
I finally got out of the hospital after 6 more weeks. I wasn't back
to my old strong self but I was out of rehab. I moved back in with
my mother and brother to work from home.
I never fully recovered so I retired from the IRS in 1999 and the
rest is history.
You can't make this stuff up folks.
John
Thanks for the links Randy. I'll have to check them out.<br
the aftershocks Murat. I hope they subside soon.<br
hope you dry out soon Justme.<br
heavily moderated is more like it. if you disagree with the owner and try to explain your point - he blocks you. this group would definitely not like that treatment.
dave - ex-member
In a message dated 1/14/2005 1:18:37 P.M. US Mountain Standard Time, chris1h23@... writes:
This group is now going on its 3rd year,and have been active over the
time the group been around..So if your disabled and looking for
support and understand then this group is for you...There are devotee
but only looking for people that see us as human being and not just a
fetish thing..To join you MUST have information on profile to
join.On this group over 99 percent of the members have information on
there profile...
This group is different then most...You won't find spamming of the
group or flamming of its members...Yes the group is moderated and most
like it that way...Also how many times you join a group and your
reading a message and not sure what your reading cause there many
messages attatch to that one message...This group you only have to
read one message and maybe the one it is answering to...No other group
does this, so its easy to read..and also the adds are deleted also...
Well like my moma allways aid u take things out on the person u love the most.. I had a hard time excepting my injury also i was in denial for many years i would tell myself im not in this chair and i lived my life that way in my mind.I put on a smile and acted lke i was happy when i was dyeing inside and one day i hit rock bottom.My family is very religious and i was told by them from the get- gothat i was going to walk again i was going to be healed and i belived it because they said so deep down i really had no feeling i was numb on the inside.I shut alot of people i loved out of my life but they presance was stll there.Just dont give up on him no matter what he says to u .When peopleare hurting they sometimes say the opisate how they feel.Just reasure him u love him the way he is and let him know u mean that.But never give up hope ..... god works in mysterious ways!!!! and try to talk him into getting online.........
This link shows more pictures<br
href=http://www.venturepro.com/300-gallery.htm
target=new
I've been a quadriplegic for almost 10 years without too many "major" problems
(knock on wood). I recently have noticed that by body temp has been pretty low,
ranging from 91-95 degrees. I did get checked by a doctor who thought it
could've been from a urinary infection, which has since cleared.
Other than the low temp, my blood pressure is low (around 98/50) which it's been
low for years. I'm just curious to know if anyone else has experienced anything
like this and/or if it's something to worry about.
Any thoughts would be greatly appreciated.
Thanks,
Larry
Here is a link to info on my Ventrac 300 3
wheeled scooter,i would recomend it,works well for what i
need.Not real bad priced either,around 3 grand,butcompared
to a electric chair not bad.Goes well in rough
terraign too.Later
Randy<br
target=new
Hello everyone,
Well things are not going well between my boyfriend and I. He is in a very depress state about his injury (T7-complete). He has shut me out complete and constantly complain how I am not there enough or point out my faults on what I am not doing but what else can I do? He is so umemotionally attach to me and life. He just registered to an outpatient program that will start him on an rehabilitation program emphasizing on his legs. I think he has not come to closure with his injury and he feels that until he walks again he life is not complete. What to do? I have done several research on his injry being that he is a T7 complete but the doctors constantly tell him not to give up that it is a possibility that one day he will walk again but who knows...I try to believe and have faith I even offer to walk away until he feels that when he think he can handleour relationship but he says that he fells that I am not here. What can I do to rest assure him that no matter what
our status is I am here. He refuses to get online to talk to other in this situation . Please enyone out there who know what i am going through or who knows any positive outcomes please help!!! [INLINE]
In a message dated 12/01/2005 18:57:51 GMT Standard Time, headcutter75@... writes:
Hi midwestern, I've e'd you before. My first question would be "why only the right hand?" but then you said there is some left side paralysis. I didn't feel a thing for a long while below my chest, and couldn't tell I had a cath in at the time. However, knowing how they keep them in there, one tug and you'd realize the effort is futile. Could be scratching at phantom itches too. I did rub my sides raw. Thought it itched but couldn't feel how hard I scratched. Was odd...
I am sooo pleased that I'm not the only one who suffers with phantom itches, I get them too, but to be honest I was beginning to think that there was something psychological going on with me.
Our of curiosity, who else get's phantom itches?
Love Smurf xxx
Hello Everyone,welcome back Betty,glad to have
you back in Ohio.<br
talking about a drought here and you being
flooded,specially no farther apart than we are.I have to admit, a
flood is a lot worse than a drought,amazing how we
depend on Mother Nature if you set and think about
it,she can make you or break you.<br
little better today now,but still touchy,but managable
now.I found taking Aleve is helping some,better than
the Advils i was taking,maybe i have got immune to
Advils?.<br
nice weekend,Randy
Ed & I got back from vacation last night--a very
special and beautiful vacation for sure. We spent a week
on a houseboat with two other couples and two little
ones, Michael, 5, and Emily who will be three in
November--those two kids may be two of the bestest in the whole
wide world--I wanted to take them home with us. What a
gorgeous lake--Lake Pend O'Reille in N Idaho. Ed and I saw
our first eagle--and even beat back an attacking bear
in Glacier NP---well we saw one from the safety of
our van. On the way back we visited with Larrry &
Linda (lofat), a super nice couple--but we already knew
that. We were lucky and met Tacer their 20 month old
grandson who is also as cute as they come!! Had a very
very nice visit with them, hope we can do it again! I
haven't read any posts yet or even most of our e-mail.
Just wanted to say hi and we're back and hope everyone
is doing well. I DID miss my computer though, but I
quit shaking after a couple of days :>)...Betty
Hey there,
Did they mean his IV Cath? They call them catheters also when they have been put in, in a more permanent way instead of just a vein in the arm or hand. My grandmother was in chemo and they put one into her chest and they called it a catheter, it was obviously not a urinary catherter but still a catheter.
Since my accident I have seen, heard, and spoke with many, many, brain injury patients. One of the most common things was for them to start pulling on tubes and lines. Sometimes vent tubes, IV lines, and I guess catheters. The husband of one of my nurses had a car accident and a brain injury. They tied his arms down because he was very stubborn to pull out anything he could get a hold of. She explained, being a nurse, that he did it without really realizing what he was doing. The brain injury prevented him from being rational. She also explained that he eventually stopped doing it.
This man was also in a comma. He now has short term memory loss. He has to write things down in order to remember to do them. When she leaves the house in the morning for work, she writes down the things he needs to do (take out the trash, change the air condition filter, etc.) because if she just asks him to do it, he will not remember what it was he needed to do. He had to learn to walk, talk, dress, eat, all over again. It was like he was a baby again and he had to relearn everything. She was relieved that he still remembered who she and everybody else was. She said that the most difficult thing for her was his anger and desperation. He would get really angry and anxious to do things for himslef. He would also get angry at her when she was trying to help him. I relate with that kind of anger because I think of myself as pretty independant pre-d-day. Still, Nora my ex-nurse, was proud of her husband because he worked so hard at everything and contradicted what the doctors
said about the things he would not be able to do anymore.
So, I also agree that the human body is a mystery. You should just remember to try not to figure out why everything dose or dose not happen. Also, let your friend know he is not alone. You and all of us are here for him.
:)
Amelia
t-6
Independant Driver
Full-time Student
Wife
Sister
Aunt
Daughter
One day Mother
Midwestern Yankee <midwesternyankee@...
Hi, all,
Most of you know I joined this group because one of my
best friends was seriously injured in an accident last
fall. He has a brain injury and a T-7 spinal cord
injury. He is still in a coma. He has sleep-wake
cycles, a variety of facial expressions, and is now
moving both hands and arms. At first, it looked like
he had left-side paralysis in addition to everything
else.
The good news is that last night when I was reading to
him, I parked myself right in his line of sight. At
one point, mid-sentence, I swear he looked directly
into my eyes and gave me a big, relaxed smile. Maybe
he would have done that even if no one was in the
room, but he did it more than once. He seemed so
present that I blurted out, "Well, THERE you are!
Hi!"
Today's mystery is this: the nurses bandaged up his
right hand in gauze because he was pulling out his
catheter, or so his ex-wife told me. I read that you
don't feel much below the breastbone with a T-7
injury. Given that he is unconscious, how would he
feel enough discomfort with the catheter to try and
remove it?
Hi all,<br
Monday AM. Had a really nice visit with them. Hope they
enjoyed it as much as Linda and I did. Randy, sorry to
hear you're under the weather. Take care of yourself.
Karen & Chuck, enjoy the soap fest. Linda watches the
Young & Restless. She tapes it and then she can FF thru
the commercials and boring parts. LOL It's been
absolutely beautiful here for the past week, but the wind
has come up and it's going to blow and rain for a few
days, I guess. Hope all is well with everyone.
I hope you don't have a bug. But get plenty of
rest and hopefully you will feel better tomorrow.
<br
too bad though. She plays Erica Cane on All My
Children. Should be a blast. Think the weather should be
great. Might have a shower or two but then this is
Florida...LOL<br
he goes. But think he will have fun. Will try and
get a decent picture to put up when I get
back.<br
you and your Dad<br
Hi everyone. Thank you for all of your advise on the UTIs. You all had such helful tips. God bless.
Carrie
Hello Karen,got ya on the super soaps,bet Chuck
will have fun girl watching,hope it's a nice warm day
hehehe :-),I would join him if i lived closer.Myself i
watch Young and Restless if i watch any,watch it once a
week and can keep up LOL.Which Star is your daughter
having breakfest with,if she is single send her my way
LOL.Thanks for the wishes for my dad,it has been a real pain
knowing something is wrong,but can't pinpoint
anything.Hope he feels better tonite than i do,i'm beat and
didn't wheel very much either,i wonder if i don't have
some kind of bug or something,usually don't get this
tired.Well have fun,gets lots of autographs,Randy
Hi everyone. Thankyou for all of your advise on the UTIs. You all had such helful tips. God bless.
Carrie
Hello Everyone,just got home form the farm
show,saw lots of new farm equipment we can't afford,but
was nice to look.The drought was the big talk amongst
everyone there.Back was ok yesterday,but sore again
today.Sure glad i took my gas powered 3 wheeled scooter i
drive from chair,too much loose gravel to wheel
through.<br
that,but didn't,learn something new each day.Sure seems
weird talkig about drought here and flooding there,and
only what 500 miles apart?.<br
weekend Karen,again i'm lost,don't take much to loose me
LOL.Glad Chuck wnet solo on his drive to work,bet he felt
good about that?.<br
my dad,still don't know anyhting yet,but he was in a
good mood and felt good today i think.Farm shows are
his vacation and seems to perk him up.He never went
last year,and was supprised he went this year.I think
it did him good.Well going to go lay down and
stretch out,later Randy
Warmest1, I was in the other club & saw a few
messages you had psted. Please dont think this strange of
me for asking, but by any chance do you chat in the
Well, my big weekend is coming up. Yes, I am a
soap opera fan...LOL Well I am off to Orlando for the
big Super Soap Weekend. Dragging chuck with me. He is
not happy about that. But since that was where I was
when he had his accident, I am not taking any
chances!! He will have fun. He can girl watch til his eyes
fall out. <br
week.....He drove solo to and from work. It was really great.
He did fine. And now I have so much time on my
hands. Guess I won't have an excuse not to get things
done now ;>) But it is a big step towards that
independence he really needs.<br
dream....LOL<br
on tuesday when I get home. <br
stay well<br
Hi midwestern, I've e'd you before. My first question would be "why only the right hand?" but then you said there is some left side paralysis. I didn't feel a thing for a long while below my chest, and couldn't tell I had a cath in at the time. However, knowing how they keep them in there, one tug and you'd realize the effort is futile. Could be scratching at phantom itches too. I did rub my sides raw. Thought it itched but couldn't feel how hard I scratched. Was odd...
Midwestern Yankee <midwesternyankee@...
Hi, all,
Most of you know I joined this group because one of my
best friends was seriously injured in an accident last
fall. He has a brain injury and a T-7 spinal cord
injury. He is still in a coma. He has sleep-wake
cycles, a variety of facial expressions, and is now
moving both hands and arms. At first, it looked like
he had left-side paralysis in addition to everything
else.
The good news is that last night when I was reading to
him, I parked myself right in his line of sight. At
one point, mid-sentence, I swear he looked directly
into my eyes and gave me a big, relaxed smile. Maybe
he would have done that even if no one was in the
room, but he did it more than once. He seemed so
present that I blurted out, "Well, THERE you are!
Hi!"
Today's mystery is this: the nurses bandaged up his
right hand in gauze because he was pulling out his
catheter, or so his ex-wife told me. I read that you
don't feel much below the breastbone with a T-7
injury. Given that he is unconscious, how would he
feel enough discomfort with the catheter to try and
remove it?
Hi well the reason your doctor wants you to wait to take antibiotics is becuase if u are take them very often your body becomes imune to them meaning u could get any kind of infection and no antibiotics will help because u are imune to them. And may i sugest when u get a Uti the is a pill called azo it works very well for me and it is over the counter they have a few varities to choose from the cranberry is the best for me only one sraw back it turns your pee orenge but it works really fast for me. May i sugeest cut out as much suger as u can drink extra water and try drinking picle juice or vinger seems to help :)
Hi. I just have a question about UTIs. My doctor says that I should not get on antibiotics until a UTI brings on a fever. I mean I would like it to not have to take antibiotics as often as I use to. I'm pretty sure that that takes a toll on your body. I'm just wondering if it could also be bad to wait the UTI out. Say you have a UTI but you are waiting till it gets bad enough to have a fever. Could letting your body have the UTI affect your body later in life.
Carrie
Hi Kathy,<br
your nocturnal visitor-good thing you were awake.
:)I'm sorry to hear about your roof. How's the rest of
the house? My basement got completely destroyed. I
have to gut it, sanitize it, and start over. It has a
kitchen, living room, and bathroom so it'll be a pain but
I feel lucky because a couple of neighboring towns
fared much worse. Also, I never lost power, just phone
service which was fixed by Sunday night.<br
with everything. Stay dry and watch out for floating
hogs! (I keep hearing about them on the news. I know
it's not really funny but I couldn't resist.) I hope
the next storm, (Bret I think), misses you. Take
care-Noreen
Hi, all,
Most of you know I joined this group because one of my
best friends was seriously injured in an accident last
fall. He has a brain injury and a T-7 spinal cord
injury. He is still in a coma. He has sleep-wake
cycles, a variety of facial expressions, and is now
moving both hands and arms. At first, it looked like
he had left-side paralysis in addition to everything
else.
The good news is that last night when I was reading to
him, I parked myself right in his line of sight. At
one point, mid-sentence, I swear he looked directly
into my eyes and gave me a big, relaxed smile. Maybe
he would have done that even if no one was in the
room, but he did it more than once. He seemed so
present that I blurted out, "Well, THERE you are!
Hi!"
Today's mystery is this: the nurses bandaged up his
right hand in gauze because he was pulling out his
catheter, or so his ex-wife told me. I read that you
don't feel much below the breastbone with a T-7
injury. Given that he is unconscious, how would he
feel enough discomfort with the catheter to try and
remove it?
As a token TAB (temporarily able-bodied) on this list
and a folk-dancer, I've danced with wheelchair users,
blind people, deaf people, and a woman with a
neurological illness that causes constant spasticity.
In a mixed group (people on wheels, people on feet),
the Virginia Reel and New England-style contra dances
accomodate dancers in wheelchairs surprisingly well.
For more about contra dancing, see:
http://www.sbcds.org/contradance/whatis/
Hey Guys,<br
some rain, the say we can expect between 1 and 2
inches, it's really kinda sad that during the summer
Randy couldn't get a drop and now we have way more than
we want. Mother Nature can really be kinda cruel!!!
But I count my lucky stars that I didn't have it a
whole lot worse than I did. And it was so nice to see
how much people care, I didn't mean to worry you.
Randy, maybe we can bottle some of this for you next
year, LOL. Well, I think we'll all escape Harvey, what
the next one?<br
everyone!<br
In a message dated 07/01/2005 05:10:40 GMT Standard Time, scarlettshell27@... writes:
Hi i am kristy T12 l1 Para incomplete for 12 years now.I have been married for 11 years now and i was in a wheelchair when i met him.Our wedding was beutiful and simple we had these nice high chairs stools and after i was rolled down the isle my hubby picked me up put me on stool so we could light candles and be face to face . I did sing to him 2 songs ro him and we had other music in the ceramon .After the i do and the kiss and the pronoucing man and wife he carried me to the back of the churh to the other stool so i could greet everyone and it was a wonderfull day for me and everyone said it was the most beutifull and sweet wedding it was if u need some hints on some songs let me know i am singer/songwriter.Just remember that is you and your other halfs special day dont over plan or over decorate i had wildflowers all over the place and candles just be creative Let it go with the flow good luck [INLINE]
Hi Kirsty,
Your wedding sounds so lovely, it bet it was the best day of your life!! It all sounded soooo romantic,!! I'm pleased you enjoyed your day though!
Love Smurf xxx
Thank you so much. I think the hardest thing about planning it is how much is to much. And also I do think about having music and dancing and yes it does make me sad. We use to dance so well together it was like floating on air in his arms it didn't matter who was around to me it was just him and I on the dance floor. I have thought about singing him a song instead of a dance. Does this sound korny? Thank you again Kelly
Liz Sanders <delicate_rosebud@...
My only suggestion for planning a wedding is be creative. Hubby and I were married just days after he was released from the hospital. Unfortunately he had a bed sore so didn't do any real therapy and had only been in his chair a max of an hour a day. So we had no idea what to expect and what to plan. But looking back at it I've realized a few things.
Don't worry about what others think. It'll be your day and you should enjoy it. If you want to dance, then dance. Don't worry what it might look like (I would sit on hubby's lap). If seeing others dance reminds you too much of what you can't do and makes you sad, eliminate it from the planning. Focus on the things you can do, like cutting the cake, writing your own vows, exchanging rings. Since you have both been married before, you'll have a good idea of what you like and don't like. Just communicate a lot to each other. Good luck and Congrats!
liz
--
Hi i am kristy T12 l1 Para incomplete for 12 years now.I have been married for 11 years now and i was in a wheelchair when i met him.Our wedding was beutiful and simple we had these nice high chairs stools and after i was rolled down the isle my hubby picked me up put me on stool so we could light candles and be face to face . I did sing to him 2 songs ro him and we had other music in the ceramon .After the i do and the kiss and the pronoucing man and wife he carried me to the back of the churh to the other stool so i could greet everyone and it was a wonderfull day for me and everyone said it was the most beutifull and sweet wedding it was if u need some hints on some songs let me know i am singer/songwriter.Just remember that is you and your other halfs special day dont over plan or over decorate i had wildflowers all over the place and candles just be creative Let it go with the flow good luck [INLINE]
My only suggestion for planning a wedding is be creative. Hubby and I were
married just days after he was released from the hospital. Unfortunately he had
a bed sore so didn't do any real therapy and had only been in his chair a max of
an hour a day. So we had no idea what to expect and what to plan. But looking
back at it I've realized a few things.
Don't worry about what others think. It'll be your day and you should enjoy it.
If you want to dance, then dance. Don't worry what it might look like (I would
sit on hubby's lap). If seeing others dance reminds you too much of what you
can't do and makes you sad, eliminate it from the planning. Focus on the things
you can do, like cutting the cake, writing your own vows, exchanging rings.
Since you have both been married before, you'll have a good idea of what you
like and don't like. Just communicate a lot to each other. Good luck and
Congrats!
liz
--
Hello Karen,i thought maybe Harvey might be going
to get you,but they never gave him much coverage,in
fact i never even heard anything about him til
yesterday.I hope he don't go north also,Kathy don't need
anymore rain there it sounds.Well stay dry,Randy
Hello Kathy,glad you weathered the storm ok.As
you can tell we all was worried about you.That was
nice of the Sheriff to keep i look in on you,but had
to laugh when he came up to your window,but not much
other choice.Same way at my house,i would never hear
anyone even on a calm nite at my door.<br
dry out soon,was you very dry there beofre the last 2
hurricanes?,or was the drought norht of you?.Talk to you
later,Randy
hypermobility syndrome and quite a bit about EDS. As you have
probably found about both those conditions have links with a
neurological disorder called RSD, which is what I also have. I've
got hypermobility so anything you want to know about that ask me
away!
Hi Smurf
I have not had much time to invesitigate the EDS. Can you send me
some information about the RDS? I would really appreciate it.
Thanks.
Becki
Hey Everyone!!!I am ok, we had a LOT of high
winds and flooding. My phone has been out until about
5pm monday and the electric was also out for some
time. The sheriff here in my county had sent a deputy
to check on me several times, the funny part now is
that the first time he can to check on me was 3:30 am
on Thursday at the height of the storm. He came up
on my porch and right to me window, I was watching
the tv coverage and the only thing you could hear was
the wind and rain, he nearly gave me a heart attack.
The dogs and I all almost fell off the bed. But I am
ok, a lot of limbs down and I think I need a new
roof, but everyone is fine. Thanks for the good
thoughts!!!<br
In a message dated 04/01/2005 18:00:52 GMT Standard Time, bigblueeyes1971@... writes:
I am a T4,T5 para due to a car accident 2 years ago. Recently my
boyfriend of 3 years asked me to marry him, of course I accepted but
now I am a little worried about how to plan a wedding in a chair. I
have been married before, we both have we have a total of 4 children
1 his and 3 mine. I guess my thing is I want it special especially
involving the children which age from 5 - 15. If anybody has any
ideas and comments please let me no. I would appreciate it.
Hey there,
I've never had to plan a wedding as I'm only 20, soon to become 21! But what you could always do is plan the wedding in exactly the same way as you have done in the past, then once you've completed it go through it all again and make the changes to suit your needs today. Just an idea from a blank mind!
Love Smurf xxx
Have been watching the tv and all the flooding in
North Carolina. I also wonder about Kathy..I found her
on the map (Map Blast) and it looks like she is not
to close to the coast but then they say the rivers
are flooding from the rain and interstates closed.
She is close to two interstates that come together.
Hope she is alright and we could know. Guess I'll surf
some more to see if I can find any info on just where
she is at. Dorla
I am a T4,T5 para due to a car accident 2 years ago. Recently my
boyfriend of 3 years asked me to marry him, of course I accepted but
now I am a little worried about how to plan a wedding in a chair. I
have been married before, we both have we have a total of 4 children
1 his and 3 mine. I guess my thing is I want it special especially
involving the children which age from 5 - 15. If anybody has any
ideas and comments please let me no. I would appreciate it.
That's me on the blue beast. That is my
motorcycle. It is also the thing that my hubby crashed and
ended up in the chair. But we go on. It was just one of
those things. It is alot of fun to ride. <br
everyone is doing well. I haven't been on much. Think it
is my turn for some flu bug or something. YeaH!!
<br
Early last month, some of you talked of nipple pain. I kind of
chuckled and laughed it off. I noticed that those who commented on
it had a t or l level of injury. My injury is up in the C level but
symptoms are going to lower level. Well they must be in the t/l
level as now I'm getting those sensations. OUCH! No scratchy
sweaters now!
Have a good day y'all.
In a message dated 31/12/2004 15:13:32 GMT Standard Time, klasyjo@... writes:
Hi everyone.
I'm a new member to this group.
Little tid bits about myself...
In the last year, I've been diagnosed with two herniated disks T8 &
9, spinal cord effacing, osteoarthritis C5, 6 & 7, reverse spine
curvatures, spinal stenosis, carpal tunnel syndrome, Ehlers-Danlos
Syndrome type 3 - hypermobility, facet joint changes at L4, L5 and
S1, acute sciatica and Spina Bifida.
I also have vitamin B1, B6 deficiencies and low carnitine.
I'm big into research about my conditions and would like to learn
from and help others.
Happy New Year!
Becki
Hey Becki,
Great to have you on board!!!!! I'm Smurf and I'm 20 from the UK! I've been a para for 2yrs 10months after a combination of a car accident and a fall.
I don't know about all your conditions, but I do know heaps about hypermobility syndrome and quite a bit about EDS. As you have probably found about both those conditions have links with a neurological disorder called RSD, which is what I also have. I've got hypermobility so anything you want to know about that ask me away! As for EDS, I know plenty of people who have got it. Wanna chat to some of them as I'm sure they wouldn't mind!
Write soon,
Love Smurf xxx
Who is on the blue beast? Look's like your having a great time.
I have been anxious to hear what your corn was
making..Glad you let us know. What is the moisture testing? I
worked 10 years buying and selling grain so I'm always
interested in the particulairs. I would assume it is very
dry but then you said you were drying it so it must
be wetter than 16%. Let me know. Dorla
Welcome back Murat,hope things are getting back
to normal for you over there.I haven't heard a thing
on the news about the conditions there for a long
time now.Floyd is the big news here,it hit North
Carolina pretty bad,plus all up the eastern seaboard,lots
of wind damage and flooding.Sure hope Kathy is
ok,like Karen says wished she would reply so we know she
is ok,i bet her electric is out,they say lots of
outages there.<br
here,making 55-61 bu so far.I ran the combine all week,except
for yesterday and today,our dryer is broke down and
waiting on a repairman to fix it.<br
here,hope everyone is ok,later Randy
Hello Gang,<br
many things seem to have happened here. First of all,
I'd like to express my gratitude once again for the
support you provided during the earthquake tragedy we've
had; as individuals and on governmental level as well.
Thank you for your prayers and for sharing our
pain.<br
because of Floyd. I hope it misses you all, and i'm glad
to hear Karen & Randy are O.K. Nevertheless, I'll
feel much better when I hear from Kathy, too. This
time, my prayers are with you.<br
all<br
Kathy, please if you can just get on and let us
know that you are ok. We are all sitting here worried
to death about you. I am praying that you are fine
and just might have a power outage. But please even
if you know somebody who can post for you. We are
all very worried. <br
you safe<br
Hi Karen,Glad you weathered the storm ok,me too
on worrying about Kathy.I looked up her city on my
map,can't find it,so don't know if she is on the shore or
not.It sounds like NC got the direct hit
again,scary.Were getting winds from Floyd here,around
25-30mph,nothing compared to theree,but it is windy here.I think
the last i heard was 115 mph winds in floyd now?.I
don't think were to get any rain here,don't need it now
anyways with harvest underway.<br
send us rain up north,too bad it didn't work.I ran
some awful corn yesterday,basicaly all i did was knock
the stalks down,big stalk and no ears,expensive
bushogging or mowing.<br
the combine soon,dad don't start me too early,he gets
everything started then i take over.Hope and pray that you
are ok Kathy.Hang on tite,Randy
Hi everyone.
I'm a new member to this group.
Little tid bits about myself...
In the last year, I've been diagnosed with two herniated disks T8 &
9, spinal cord effacing, osteoarthritis C5, 6 & 7, reverse spine
curvatures, spinal stenosis, carpal tunnel syndrome, Ehlers-Danlos
Syndrome type 3 - hypermobility, facet joint changes at L4, L5 and
S1, acute sciatica and Spina Bifida.
I also have vitamin B1, B6 deficiencies and low carnitine.
I'm big into research about my conditions and would like to learn
from and help others.
Happy New Year!
Becki
Actually, we got VERY LUCKY!!! It made that north
turn just in time. But I worry about Kathy. They have
said it has lost it's punch but not sure if it did
before it hit her. Alot of rain. I had everything ready
and it wasn't bad. We have had some thunderstorms
that were worse than that. But I am very thankful it
did not come in here. It would not have been good.
<br
friends out on long island. They are getting very bad
rain. And it looks like GERT will not be a problem. So
think we are out of the woods for this season.
<br
so sorry about the corn. I hope next year is better
for you. I tried and tried to send that rain up
there. <br
Hi Cevi...I had gone through the blocks but in my case, they worked for approx 30 days. Each patient responds differently than another. I had 28 Lumbar & Cerival plus two Occipital injections.
I wish you the ebst of luck!
Cevi <lilgirl4brl@...
Hi... I was wondering if anyone has gone through Spinal Nerve
blocks or epidurals and could help me out. I am starting to get
really nervous and anxious. I am starting the procedure on Monday
January 3. I have been praying about it... but I would like to talk
to someone if anyone has gone through this. I am getting nerve
blocks into T7 T8 and T9. I have a syrinx in my cervical spinal cord
and then a longer syrinx from T5-T11. It would really help me out to
talk to anyone that has experienced this procedure. Thank you.
Hi Kathy,<br
of course you are okay. <br
Please check out www.gimpsgonewild.com for more info!
Ok everyone, weather has never been something
that has even scaredme, however, this storm does.
Maybe it's because I am aloen with the dogs for this
one, maybe it's because my house is sooooo old, or
maybe it's just because this is suppose to be a real
bad on. Well, if you can all just keep a good
thought, prayer or any other positive vibe...and i'll
thank you in advance. Not sure if we'll lose power
hear, but if it's like Hurricane Fran from three yrs
ago, I could be w/o electricity for the better part of
a week. I had 12 planters and 36 mum plants on my
porch waiting to be planted this weekend. My house
looks like a greenhouse. Well, if you don't hear fromme
for a while...keep me in your prayers,(:-o)<br
I got a question for ya......how much wood could a woodchuck chuck if a woodchuck could chuck wood??
redride69 <redride69@...
HI EVERYONE, HOPE YOUR ENJOYING YOUR HOLIDAYS. I WENT AHEAD AND PUT
THE PICTURES OF MY ERGY BIKE IN THE PHOTOS SECTION FOR THOSE WHO
ASKED. IF YOU HAVE ANY QUESTIONS PLEASE ASK. THANKS
JUDSON
Hi Randy,<br
harvest. Here's that address for the bill. I went to the
signing for ours on Monday. It was pretty interesting
because I've never been to anything like that before.
<br
Road<br
<br
Rd<br
45601<br
Hi, everyone,
I joined this list after one of my best friends, who
I'll call B., was almost killed in an accident. He
has a T7 injury, which he doesn't know yet because he
also had a serious brain injury and has not "come to"
yet.
Here's the good news. B. progressed enough to leave
the trauma unit. He went to just plain intensive
care, and is now out of intensive care. He has
sleep-wake cycles, makes a variety of facial
expressions, and will open his eyes on command, or so
the nurse told me. If you hold his hand, sometimes he
squeezes it.
It looked at first like he had left side paralysis,
but he is starting to make small movements with his
left hand. His right arm is really active--he reaches
for his ventilator and other medical stuff. But his
left eye still doesn't respond to light the way his
right eye does.
I am too scared to ask the nurses their opinion of his
prognosis. Not being family, they don't have to tell
me much anyway. When I see B.'s family members, I
learn bits and pieces. They had never met me before
his accident and I am trying to be a regular, helpful
presence so they know I am serious when I say he's one
of my best friends.
When I visit I read to him. We are midway through the
first Harry Potter novel. Lots more Harry Potter to
read if he continues in this state for a long time.
Then I'll do Lemony Snicket.
Before and after my visits, I feel chewed up and spit
out. I finally realized what was going on--grief. It
is like a death. B. is gone and I don't know if he
will ever come back. He has passed the point at which
most people come out of a coma. I miss him
dreadfully. I have dreams that he bounds out of his
hospital bed, fully healed and energized. I feel like
I am crying inside, even though the tears hardly come
anymore.
If any of you have stories about recovery from brain
injury, I'd like to hear them.
to all the new members. I think you'll enjoy the
club. There are a lot of really great people here. The
members here have made this one of the better SCI sites
that I have found on the web. I hope you make some new
friends.
HI EVERYONE, HOPE YOUR ENJOYING YOUR HOLIDAYS. I WENT AHEAD AND PUT
THE PICTURES OF MY ERGY BIKE IN THE PHOTOS SECTION FOR THOSE WHO
ASKED. IF YOU HAVE ANY QUESTIONS PLEASE ASK. THANKS
JUDSON
Hi... I was wondering if anyone has gone through Spinal Nerve
blocks or epidurals and could help me out. I am starting to get
really nervous and anxious. I am starting the procedure on Monday
January 3. I have been praying about it... but I would like to talk
to someone if anyone has gone through this. I am getting nerve
blocks into T7 T8 and T9. I have a syrinx in my cervical spinal cord
and then a longer syrinx from T5-T11. It would really help me out to
talk to anyone that has experienced this procedure. Thank you.
Received a post card from Betty & Ed today from
Idaho, they sound like they are having a great time,
soon to be on the houseboat. Actually I found out
about this club through Betty who told me that folks
here were so friendly and helpful. I have had polio
since the age of 16 months, now age 45 and use a power
chair full time, would be interested to know if any
other members have polio. Am looking forward to getting
to know folks as time goes on. Take care. Donna
Waquele,
Hi. I'm 23 years old and am a t 10. It has been almost 9 months since my accident. When I hear you talk about your boyfriend it makes me think back to when I was first getting use to whole idea that my life had changed drastically. I was also very depressed and at many times I still get depressed. It is so wonderful that he has support from you because that does help. My husband was also there for me. I really don't know the perfect things to say, but things will get better with time. I hope that you two have find some joy through all of this during this holiday.
Carrie
Waquele Holley <waquele20@...
Hello everybody,
I have been out of the country so I have not been able to communicate via internet. However, my boyfriend is doing fine but since it is around the holidays he is a little depress. As stated before, my boyfriend is a T7 complete (due to a gun shot wound) and he desperately wants to walk again, oh how bad I would want that also. We never know why things happen but they happen..We always question why me and what ifs but we cant...He recently says that know one cares because that he has to sit in the house all day and know one comes to see him or pick him to take him anywhre but I try being that but I just graduated from college in another city that is 300 mile aways I could not get him to take hime out all the times. He stop going to oupatient rehab because he feel like they was not helping him because they were not working on his legs but his nurse told him the reason they was not working on the legs because they have no movement and they see no change on the xrays..He
feels pressure when he sit down for a long period of time like he has to move but I do not know if that because of his injury of some feeling is coming back? He also feels pressure in his ankles only is his ankles and not his legs?What is going on? I need advice bad, I do not know what to do he is only 21years old. I know like is unfair but isnt this unfair? to all who suffer from SCI? I tried to get him on the internet to talk to someone but he refuses? I cry all the time, I miss the old him I know things have change and I am willing to accept the change but he is not....:( He said that he know one day he will walk again and maybe he will but someone once said in this support group that is so true we are Godīs timetable and not mans timetable...I once knew this guy who was in a bad motorcycle accident and doctors said that he will never walk again he only went to rehab to adjust to the new life as SCI in the wheelchair and on occasion he will get in the heated
waterpool but months to a year later he was walking again and he even works at a furniture store lifting furniture and he could not feel anything beneath his stomach I think he wa a T7 or a T10 not sure...Anyway just needed to get this off my mind....I hope everyone has a MERRY CHRISTMAS!!!!!!!! Sorry, to sound so sad on a wonderful day.
Robert Lamb <theocrat@...
Howdy Tex,
I am an Ex-Tex! Ft. Worth. Now live in Kentucky. Had my accident Oct
22, 2003. I'm a 46 yr old male and in constant pain from my T10-12
incomplete. I CAN'T walk. On Neurotin, an anti-depressant, and other
things. I was a very healthy up-beat person before my fall and am
adjusting to things now. Slowly SLOWLY things are improving. I go to
a massage therapist once a week. she uses a technique
called "Bowen". Really seems to help. I'm also going to check into
accupuncture therapy. I forget who, but a SCI patient once told me
that it helps him. Hope this helps a little. Nerve pain is difficult!
Rob
Welcome to the club. My daughter is 21 and my son
is 25, does that count ?<br
accident Dec 97. Married raising my husband's 11 year old
son. Work part-time as a Network Administrator/Analyst
(Hi Floyd) and in remodeling nightmare (1 year and a
half now, getting closer every so often)<br
Hello everybody,
I have been out of the country so I have not been able to communicate via internet. However, my boyfriend is doing fine but since it is around the holidays he is a little depress. As stated before, my boyfriend is a T7 complete (due to a gun shot wound) and he desperately wants to walk again, oh how bad I would want that also. We never know why things happen but they happen..We always question why me and what ifs but we cant...He recently says that know one cares because that he has to sit in the house all day and know one comes to see him or pick him to take him anywhre but I try being that but I just graduated from college in another city that is 300 mile aways I could not get him to take hime out all the times. He stop going to oupatient rehab because he feel like they was not helping him because they were not working on his legs but his nurse told him the reason they was not working on the legs because they have no movement and they see no change on the xrays..He
feels pressure when he sit down for a long period of time like he has to move but I do not know if that because of his injury of some feeling is coming back? He also feels pressure in his ankles only is his ankles and not his legs?What is going on? I need advice bad, I do not know what to do he is only 21years old. I know like is unfair but isnt this unfair? to all who suffer from SCI? I tried to get him on the internet to talk to someone but he refuses? I cry all the time, I miss the old him I know things have change and I am willing to accept the change but he is not....:( He said that he know one day he will walk again and maybe he will but someone once said in this support group that is so true we are Godīs timetable and not mans timetable...I once knew this guy who was in a bad motorcycle accident and doctors said that he will never walk again he only went to rehab to adjust to the new life as SCI in the wheelchair and on occasion he will get in the heated
waterpool but months to a year later he was walking again and he even works at a furniture store lifting furniture and he could not feel anything beneath his stomach I think he wa a T7 or a T10 not sure...Anyway just needed to get this off my mind....I hope everyone has a MERRY CHRISTMAS!!!!!!!! Sorry, to sound so sad on a wonderful day.
Robert Lamb <theocrat@...
Howdy Tex,
I am an Ex-Tex! Ft. Worth. Now live in Kentucky. Had my accident Oct
22, 2003. I'm a 46 yr old male and in constant pain from my T10-12
incomplete. I CAN'T walk. On Neurotin, an anti-depressant, and other
things. I was a very healthy up-beat person before my fall and am
adjusting to things now. Slowly SLOWLY things are improving. I go to
a massage therapist once a week. she uses a technique
called "Bowen". Really seems to help. I'm also going to check into
accupuncture therapy. I forget who, but a SCI patient once told me
that it helps him. Hope this helps a little. Nerve pain is difficult!
Rob
Howdy fellow Texan: Incredible story doctors can be such jerks 99% of the time but I suppose its because a lot of people are dependent upon medications/attention and what not that they overlook those who are seriuosly in pain. I am a 23 yr old 10 months post injury. (shattered c3-c5- severely bruised cord- no halo no breathing machine) so I like you am blessed with the ability to walk. I have a limp and I have minimal use of my left arm but I am still working on both and hopeing for a full recovery.I don't know anything about the pain you have I just wanted to ask you how long it was before you were able to walk or how much function you lost? My left hip tilts down and my foot dexterity is not to grand so it causes a nasty limp do you or ANYBODY have any insight on how to help these problems? Glad your doing better and I hope you find out some info.
~Shane Jones~
music_as_a_refuge <motown_classics_man@...
Hello all! I am a 47 yr old male, living in Central Texas. Back in
1998 I used to drive a very dangerous road for work. While driving
back and forth I would have this vision of me having a head-on
collision. I had quit work and looked for work closer to home. I was
over qualified for employment in my area and had to find work again,
taking that same road I feared.
On 4 Jan 99, I was hit at 70mph head-on on THAT road. I was
paralyzed while in my car. I knew I had a SCI, was in and out, but
had the ability to ask a lady to please hold my forehead or I would
die. She argued back and forth and finally believed me. She held my
head for 45 mins until I was removed from my car. I was an Army
Medic and managed at PT Clinic which gave me some insight.
Once removed from my car, with the brace on and all, I was able to
move my limbs slightly. I was off to a Community Hospital, diagnosed
with a C1 displacement, C2 Fracture, closed head injury, other
somewhat minor injuries. I was air-evac'd to a Level 1 Trauma Center
where I was placed in a HALO...NO surgery, I was discharged from the
hospital after only 4 days. With each passing day I had terrible
headaches and unbearable pain. I was having up to 15 petit mal
seizures per day but my Ortho Dr didn't want to listen.
Once they removed my halo, I had shock waves go through my body, 24-
7. He still didn't listen to my complaints so I called my PCM and he
referred me out to Nuerosurgeon. A total of 7 months after I had my
accident, I had a Prof of Neurosurgery in SA, Texas fix the problem.
It turns out that the C2 Fx had healed but it healed in a way that
part of the Odontoid was in my Cord at the C2 level. He corrected
the problem and the Headaches were gone (leaked for 7 Months) and
the shocking through my body was gone. He had said I had tethering
of the Cord and was lucky to be alive and walking.
My problem is that I have chronic to acute pain 24-7 with headaches
of course because of the brain injury and leak. I am looking for
people who may understand and have had an experience with up-to-date
pain management. I have tried to talk to SCI Patients in clinics and
hospitals, but they become upset because I had a more severe inj
than most but am able to walk, talk, etc..
I am just looking for SCI patients who may understand where I am
coming from. For whatever reason it may be, God left me able to care
for myself.
Hope to here positive communications in the future. THANK YOU for
YOUR time.
Howdy Tex,
I am an Ex-Tex! Ft. Worth. Now live in Kentucky. Had my accident Oct
22, 2003. I'm a 46 yr old male and in constant pain from my T10-12
incomplete. I CAN'T walk. On Neurotin, an anti-depressant, and other
things. I was a very healthy up-beat person before my fall and am
adjusting to things now. Slowly SLOWLY things are improving. I go to
a massage therapist once a week. she uses a technique
called "Bowen". Really seems to help. I'm also going to check into
accupuncture therapy. I forget who, but a SCI patient once told me
that it helps him. Hope this helps a little. Nerve pain is difficult!
Rob
Your in Texas.......no way? ;)
Welcome Allison,<br
I am a t-7, post 5 years, gunshot. I am in NC,
about to be hit by Floyd..looks like it's going to be
pretty bad, I am restoring a huge OLD farmhouse, hope it
holds up. I am also going to school and raising boxers,
if you don't mind...tell us a little about you, we'd
love to hear. Everyone is real nice in here and we
have an informal chat on Fridays at 9:00pm est.
<br
hi everyone, i just joined. my name is allison i'm 23 and my injury is at c5
from a car accident in 1994. i hope to meet other sci people around my age
Hello all! I am a 47 yr old male, living in Central Texas. Back in
1998 I used to drive a very dangerous road for work. While driving
back and forth I would have this vision of me having a head-on
collision. I had quit work and looked for work closer to home. I was
over qualified for employment in my area and had to find work again,
taking that same road I feared.
On 4 Jan 99, I was hit at 70mph head-on on THAT road. I was
paralyzed while in my car. I knew I had a SCI, was in and out, but
had the ability to ask a lady to please hold my forehead or I would
die. She argued back and forth and finally believed me. She held my
head for 45 mins until I was removed from my car. I was an Army
Medic and managed at PT Clinic which gave me some insight.
Once removed from my car, with the brace on and all, I was able to
move my limbs slightly. I was off to a Community Hospital, diagnosed
with a C1 displacement, C2 Fracture, closed head injury, other
somewhat minor injuries. I was air-evac'd to a Level 1 Trauma Center
where I was placed in a HALO...NO surgery, I was discharged from the
hospital after only 4 days. With each passing day I had terrible
headaches and unbearable pain. I was having up to 15 petit mal
seizures per day but my Ortho Dr didn't want to listen.
Once they removed my halo, I had shock waves go through my body, 24-
7. He still didn't listen to my complaints so I called my PCM and he
referred me out to Nuerosurgeon. A total of 7 months after I had my
accident, I had a Prof of Neurosurgery in SA, Texas fix the problem.
It turns out that the C2 Fx had healed but it healed in a way that
part of the Odontoid was in my Cord at the C2 level. He corrected
the problem and the Headaches were gone (leaked for 7 Months) and
the shocking through my body was gone. He had said I had tethering
of the Cord and was lucky to be alive and walking.
My problem is that I have chronic to acute pain 24-7 with headaches
of course because of the brain injury and leak. I am looking for
people who may understand and have had an experience with up-to-date
pain management. I have tried to talk to SCI Patients in clinics and
hospitals, but they become upset because I had a more severe inj
than most but am able to walk, talk, etc..
I am just looking for SCI patients who may understand where I am
coming from. For whatever reason it may be, God left me able to care
for myself.
Hope to here positive communications in the future. THANK YOU for
YOUR time.
Sooo funny, and true!
Howdy Everyone,well Harvest 99 has begun,i even
ran the combine today,felt pretty good up
there.Didn't get to use my new lift,we never got the
modifications done,so i used the tractor lift we made.Corn is
not any good at all,75% less than normal.<br
about the Bill 700 being pushed by someone near
Chillicothe,had contacted them,but lost the addy.I'm only 25
miles northwest of there.<br
Karen,last i heard from Florida to the Carolinas,Sounds like
a big one,hope it misses you too Kathy.<br
normal,i try to reply to all posts and forget most of the
subjects.Well need to get ready for tommorow,back in the
combine.Everyone have a great week and chase Floyd back east,later
Randy
Hi all,
I just wanted to wish you all a merry Christmas, and a happy New Year.
Don't get too drunk, or stuff yourselve's with too much turkey, it makes
transfering real pain in the ass!
Have a good one :-)
Simon
http://www.cafepress.com/apparelyzed
Just wanted to say that it is nice to "see"
another "Donna" here, and that I totally agree with you
about this club,I have not posted much yet. Met a
couple of nice folks in the chat room on Friday night,
and have known "Railone" Betty for some time now, she
and Ed came to visit my husband, Kirk and I in
August, we had a wonderful visit. Well, that is it for
now, mainly wanted to just say Hi. take care. Donna
(too)
I know it's been said a billion times this is a
great club,But I have to say it again,I have been
looking at other sites and some of the people are not
real nice thank goodness this club is great place to
come to!Okay so I said my peace. <br
Hi cyn201. Welcome to the club. I know nothing
about Ohio but Chillicothe sounded familiar and
eventually I remembered why. It's where Ohio Hope is from.
Have you ever heard of it? It's a group that's trying
to pass SCI legislation to allocate a % of traffic
ticket fines to SCI research. Many states are passing
these types of bills. I posted a couple messages about
it a while back. Message 770 or theeabouts if you're
interested. Anyway, the NJ bill (where I am) is being signed
tomorrow so it's on my mind and that is probably why I
recognized Chillicothe. <br
your friend passing away.<br
Hi, No, I have never heard of Ohio Hope. I have
heard about some states and their bills on traffic
ticket fines percentage to go to spinal cord research. I
will look back and read the messages you posted.
Thanks! Cindy
Hi Dominique,<br
but my sister has a Cigna PPO and she says it's
pretty good. She says the company is relatively
cooperative although they're big on requesting documentation.
(aren't they all?)I know the Cigna choice you were given
was for an HMO but I thought any info might
help.<br
Tractor pulling? YEAH! LOL We used to have
tractor pulls here, but they're popularity seems to have
wained somewhat. Couple of brothers from Big Sandy used
to pull. Back then, they used Alison aircraft
engines. My favorites were the big diesels though. When
they start 'em up, don't look like the exhaust pipe is
big enough for all that black smoke. LOL But then
watch out when those turbos kick in! Cindy, and all
other new members, welcome to this place. <br
here last night. 34 degrees. Fall is here.<br
aka lofat
We also have a select confort bed. One of the best parts is it has a 20 year
warranty. The air cells are pretty think material, with a layer of foam then a
pillowtop cover. I can't imagine any pet or other instance being able to
puncture this. We did, however end up having one of the cells (it's a queen
size bed) leak, probably due to letting the nieces and nephews jump on the bed
too much. We had a new one within days of reporting it. Very great customer
support, but yes, a little pricey.
If you don't want to spend the money, I've heard others just using a really good
pillow top bed. When we go traveling and visiting family, this is often what we
end up sleeping on, and they seem to work really well. I would say try a few
out if possible, maybe stay at a friends or families house and see what feels
best. The biggest thing I would consider is how comfortable is it for a long
time (because someone as high quad as my husband rarely moves once in bed), and
make sure it isn't too firm so there isn't extra pressure on your skin. This
probalby means those $100 mattresses advertized isn't going to cut it. But
spending a little extra money to prevent pressure sores, definately well worth
it!
liz
--
Hi, I am from Springfield, Ohio. Not far from Chillicothe. I am a c-2-c-3 sci
due to an automobile accident in June of 1992. Cindy
Thanks John,
This is a good idea. Hope my rehab counslor can let me do it!
Take care,
Amelia
aguythatslonely <aguythatslonely@...
Hi Amelia,
When I decided to go to college on campus, I took 1 or 2 classes the
first semester so I could get used to the new routine and
environment. After that I took full loads. You'll enjoy it and I'm
sure you'll do just great.
Good luck!
John
Welcome to the club Cyn,i see your from Ohio
also,where at?.I'm in southern Ohio,near the outlets malls
and Chillicothe,well in between the 2 places to be
exact.I'm a T-6 para since 7/20/97,from a Harley
accident,my fault.Well nice to see new members,Randy
Howdy all,Well were tied up here 2 for
tractorpulling and 2 against LOL.Larry should of added his 2
cents in LOL.I know he likes them.sorry don't know a
thing about the Botox,have read a little on it,but
can't recall a thing.<br
JD,there pretty rare around here,might be 3-4 real ones
and not pullers in a 50 mile radious.They make good
pulling tractors because of the Big motor and heavy
rearends.Whats the name of the tractor Donna?.I know of River
Rat,Gang Green,Constant Agravation,a few others but forget
right now.A lot of the old 6030's have new sheet metal
to look like the new tractors.I always look for
where the shifter is,if it's on the dash,it's a older
tractor.Ok enough BFT (Boring Farm Talk)LOL.<br
drying up Kathy,but not to scare you,but i think another
is on Dennis's heals,they say Floyd is headed your
way by the end of next week,hope he misses.<br
Larry,Has the Ohio Travelers made there yet?.Tell them
howdy for me,and make sure Ed gets lots of Harley
shirts from out west,Betty will kill me for that
LOL.Well think i covered all the posts.Have a great
weekend,Randy
Hey Randy,<br
every year to the county fair to see the tractor
pull.My brother use to pull the farm tractor,back in the
day.They are having one tonight at a fair ,they have
semi's and trucks tonight.Going have to miss it
though.One local guy he has pulling tractors he takes them
to all the fairs.My son says he pulls a John Deere a
6030.Thats it for now.<br
Hi Kathy,<br
botulism. The docs inject it into the offending muscles or
nerves and it temporarily kills the nerves, so the
muscles relax and no more spasms, for awhile. It's also
used on certain types of dystonia. <br
helped ya,<br
Hi Dominique,Betty or Railone was the one looking
for hinges,she found them and got them
installed,loves them.She is on vacation now out west,going to
stop in and see Lofat while there.<br
talking about Sturgis,but forgot to answer,getting old
here too.<br
with surgery too,hopefully someone or even her will
post her condition :-).<br
had a Pulling tractor,never could afford it.My
neighbor and now farm landlord had one with 3 engines
several yrs ago,i used to go every weekend pulling with
him as part of the pit crew.Boring for you,but
extreemly exciting to me,i love my power LOL.I sure do miss
my satalite,used to watch pulls and stuff like that
all the time.Oh by the way i did pull 4wd trucks for
a couple years,just stock class,it was my farm
truck,i got a couple 2nd places and tropheys,a few 3rd
and 5th places too.Not bad for a stock Chevy lol.Tell
Tom i'm on his side and keep control of the remote
LOL.<br
one,Randy
Those are so subjective. One mans bed of nails is another mans matress. I'm a c5/c6 incomplete. Use regular matress, however friend of mine is complete and loves his waterbed. Likes the heated part of the deal. But he has no pets that could screw that up. Another friend has the select comfort matress where you inflate it to your own desires. Pricey but at least they let you get your money back after a 3 month "test rest"
How can you go wrong with that?
mmchmc1 <cooperm1@...
Hi everyone,
You guys always have a lot of good info. I am looking to buy a
mattress. Right now I have a air mattress on an electric bed, full
size. The mattress has been getting a couple of pin prick holes and
leaks. I called to see about a new one and was told that it was a
lot of money (they would not give a price). I was thinking about a
regular type mattress and I have no idea what to get. Any
suggestions???
thanks
mary
Hi everyone,
You guys always have a lot of good info. I am looking to buy a
mattress. Right now I have a air mattress on an electric bed, full
size. The mattress has been getting a couple of pin prick holes and
leaks. I called to see about a new one and was told that it was a
lot of money (they would not give a price). I was thinking about a
regular type mattress and I have no idea what to get. Any
suggestions???
thanks
mary
I seem to remember that a few weeks/months ago
somebody was asking about hinges to make doors wide
without rebuilding a new door. Well, among the zillions
of catalogs I receive (don't we all now more than
ever ?) I saw some: They can be found in the
"adapAbility" current catalog (Code:802835), bottom of page 6,
$24.95 for a set of 2. Phone number:
1-800-288-9941.<br
one of my many senior moments ! I'm getting more and
more of those, it seems. I'm even getting pain in one
of my joints in my ring finger... Yikes, getting
old.<br
for you.<br
must say: meaning Tom had control of the remote)
Dragster Tractors ! Is that something you get involved in
or have in the past ? I was thinking some people
have WAY too much time on their hands (that includes
Tom who somehow thinks that this is fun to watch
!).<br
Now this i need to hear,a French redneck LOL,i'm
still trying to imagine what you sound like?.Me i sound
like Dwight Yokum-Hank Williams Jr.Ok that out of the
way.<br
late to help us,beans and corn are already dead and or
dying.I'm guessing a 70-80% loss in yileds here.We are
going to start our harvest here sometime next week.Lift
is ok,needs some refinements done to make it work
like i want.The main thing is it is awful big where i
set at,well it needs to be made smaller so i can get
closer to the tractor cab.I will get to use it some this
fall,but the modifications won't get done til this
She's scheduled for her surgery tomorrow. I think
a few of you know her from NM. She's taking her
laptop with her so she'll still be on the net. Just
thought I would let you guys know. <br
doing well. Nice to see Dom again:-) Bye gang.
Now you know a French Red Neck Woman...<br
that's me. I'm glad I'm coming out of lurkdom.<br
to the South Dakota Harley Rally once (can't
remember the name of the place). It was way fun.<br
think I would enjoy so much now.<br
get your rain ? How are the crops ? Are you enjoying
your new lift ?<br
previously mentioned abominable Kaiser HMO<br
Healthcare HMO<br
Care HMO<br
plan.<br
Good seing you back on Dominique,been a while
since seeing you on.Sure is a lot of new members
now.Your internet hook up is lots faster than mine,i'm
only getting 24-26 k speed here.Need to try some new
servers out.Can't help you much on Ins,mine is
Nationwide,so far been ok,but not perfect,lots of confusing
paperwork etc,but that is the way most of them are
probably.I do get more caths with mine so thats good.Well
got a go,good seeing you Randy
Howdy everyone,seems like the burning off of the
toenail is ver populur,so far mine is healing up ok,knock
on wood.But sounds like i had better get the rest of
them checked out someday.<br
grow faster now,then 1 or 2 don't even grow at all.My
finger naiils sure