hi jud,
how much are you selling it for?
cecilia
redride69 <redride69@...
Hi, if anyone is interested in buying a pretty much brand new Ergys
bike let me know. It has been used less than 10 times. Thanks.
Jud
In the path of our happiness shall we find the learning for which we have chosen this lifetime.
Hello all,
This summer my son's friend suffered a SCI. He is still in rehab. All I can do is pray and cry for a very young man I don't even know. His injury has impacted all of us and he doesn't even know.
How do my son, his friends and me him help? We want him to know there is hope and that we all care. I happen to be at the rehab every Tuesday and Thursday but I am afraid to go meet him because I don't know if he will appreciate a friend's mom looking in on him.
How do we help his emotional state? Isn't fair to say that even a SCI injury doesn't stop life and love? He feels as if he will never have a girl fall in love with him and that he will go through life alone.
It is my understanding that he doesn't have the use of his hands yet. Does this mean he will never regain the use of his hands?
Please anyone with any advice please write.
Thanks
Hey Larry, can I ask you a favor?? Tell ed and
Betty that I am sorry I missed them on the net. I
wanted to tell them to have loads of fun. And take lots
of pictures. You guys have a geat time and enjoy. I
am jealous!!! <br
well<br
Dear Amelia,
Thank you for your gracious response! I think it is so important to continue supporting each other on our individual journeys towards healthier lives. [INLINE]
I admire your statement that "it is still possible to experience some change in my body.....not knowing is what makes it difficult." Yes, it is. For me, the change (walking) happened in one week. I remember that week and the difference EVERYTHING made. Every meal, every song, every expression on a visitor's face was an event. I noticed and looked forward to everything in a way that I didn't in my fast paced life before.
Two months later, I was back in the classroom working with first graders again. I think that the experience shaped every part of me. I would like to think I was a good teacher before, but I think that I appreciated so many more "little things" that I might not have noticed in the past. I took a more wholistic approach to each individual.
Sorry, I am not pithy as you can see. What I am trying to say is that each of us has special gifts and observations that we can develop. We can use these challenges to help us in our relationships or artistic talents. [INLINE] I am learning so much about that reading these letters from the group.
On a side note, I went back to work today for a couple of hours. I was tired, but didn't hurt more than I would have anyway here at home. I explained that the brace was like a cast and the kids accepted it right away. They are more resilient than adults anyway! I am going to try to go in an hour or two a day and see how it goes.
Thank you for your support Amelia...and right back at you. Good luck with your school. What are you studying?
You remain in my prayers.
+JMJ
In Christ,
Gretch
Amelia Barragan <ac25ac@...
Gretchen,
I was not going to respond because I feel that we all tend to misunderstand each other and can sometimes get deffensive. It is understandable, considering our situations.
You have EVERY RIGHT to be in this group discussion. It means nothing if you are not "handicap" or disabled. However, it sounds to me like you are. If you feel you have something to share, then you should. If somebody disagrees with you, then they can say so. The point of a discussion group is to discuss, right?
I was inspired by your writting. You do it well. Of course it helps that you are a shcool teacher! :) I am also in school, like Shane, and one of my goals is to learn how to communicate my thoughts and feelings better in my writting. However, your writting also inspired me in a more important way.
You helped me remember that it is possible to experience some change in my body. I had forgotten that. I believed that this would be forever. Still, I should remeber that it might be forever. I guess not knowing is what makes it difficult.
So, Thank You for sharing. Please keep writting.
Amelia
Gretchen Mosel <gmosel@...
Dear Kcm,
I don't know what the true definition of "handicapped" might be. If you are talking about lack of ability to walk or use the arms, then I suppose I don't fit that category.
I have a spinal cord injury and lack of use/paralysis in parts of my body. I did an extensive search on the internet to try to find a group that fit my "category" and could not find one.
Like before, I do feel guilty for writing if it offends or upsets anyone. I simply could not find another site. I am in a lot of physical pain in the leg. I cannot work. I deal with bladder infections and I am on a bowel program. How minor. I cannot begin to compare to those who have significantly more damage. If someone knows of another group where I can get medication/etc. advice, then please let me know.
Again, I apologize for offending anyone.
+JMJ
In Christ,
Gretchen
kcm7114 <mallon@...
Let me get this straight, your not handicapped but are giving advice to sci. kcm
[INLINE]
+JMJ
In Christ,
Gretchen
Betty & Ed are supposed to be here in Montana in
the next few days. YEE HAA Hope they enjoy their stay
here and I hope they have time for Linda & I to show
them a few of the sites around here. Really excited
about meeting them.
Thanks so much for the info on bladder
augmentation. Especially Noreen and Lacie. Lacie, hope your
surgery is the answer to your infection problems. I know
my buddy is sure gettin' tired of all the infections
etc. I'll check thos other sites out too, Noreen.
REALLY appreciate the help.<br
I need info for a friend . Does anyone know one any one incomplete
quad for 18 months that had no movement below waist that regenerated
enough after that to walk? Second question for those who are
paralized then were able to walk where was the first movement.Example
legs, thighs, knees, feet toes etc. Please respond its important to
know.
It's <a href=http://www.mssm.edu/rehab/home-page.html
target=new
Hi, if anyone is interested in buying a pretty much brand new Ergys
bike let me know. It has been used less than 10 times. Thanks.
Jud
There's a new poll at
Hope you have a great time!!
Ed and I are gone on vacation for about 2 1/2
weeks, going to N Idaho for a week on a houseboat with
two other couples and two kids. We have been looking
forward to this for some time and sure am looking forward
to meeting Larry & Linda! Take care
everyone....Betty
Enter your vote today! A new poll has been created for the
Spinalcordinjury group:
For those of you doing intermittant
cathing, do you...?
o Use them once then toss them.
o Clean them well and re-use them.
o Use them and then store in plastic to be re-used without cleaning them.
o OTHER
To vote, please visit the following web page:
Larry, I sure wish I could help you but I am not
familiar with that surgery--I sure hate it when someone
asks for help and I am clueless, hope someone here
will be able to help...Everyone have a great weekend,
Randy--better just risk one eye :>)...Betty <br
Kathy, there's nothing more luxurious than those lovely
latex gloves lol
I have a friend (C7 quad) from San Diego who
comes home (to Montana) once a year. He has been a quad
for 20+ years, and has had a supra pubic and
indwelling catheter for almost all of that time. My
question: He is seriously considering having bladder
augmentation and colostomy surgery at the same time. He has
had several cysts and growths removed from his
bladder, and the docs tell him they are pre-cancerous.
It's just a matter of time, the foley is always
irritating the bladder, and he ALWAYS has a bladder bug.
He's thinking he would have enough hand funtion if he
had an ileostomy (sp) near his naval to be able to
intermittant cath himself, and also, if he had a colostomy, he
could do his own bowel care without assistance. Then,
the only time he would need a PCA was for showers,
etc. If anyone here has had this type of surgery,
please respond with how it went, how you like it now,
would you have it done again, and what kinds of
problems you experienced. Thanks BUNCHES!<br
lofat
Yep Jam Jam,it is picking up alot here lately,NM
is real quiet anymore.Hey don't worry about not
being here all the time,we all get busy.We do
appreciate the thoughtfullness of starting this site up.Take
Care Randy
Welcome to more new members!! Glad to have you
aboard BillB1956, lunareigns, toria_28202 !!!!<br
to get to know you all soon. <br
weekend and try and join the chat tonight at 9:00
eastern. With it being a long holiday weekend not too sure
how many will show up. But there should be someone in
there...LOL<br
Boy am I jealous!!! Hope you have a grat time at
the rodeo. <br
back, not adjustable. But think it is for an 18" chair.
But it could work. Let me know if I can help. Chuck
started out in an action so I know exactly what you are
talking about. I have one of those backs too. I might be
able to send it too you if it is wearing. Let me know.
<br
Sorry, we have four new members. Sorry I didn't
mean to leave you out mercury_2006, didn't scroll down
far enough...LOL Welcome and hope to get to know you
better real soon.<br
My back now is adjustable,both up and down and
the tightness across the back,like velcro belts is
how i would describe it.Thats not what is wearing,i
seems to be wearing aroudn where it hinges and
latches.Actually haven't investigated it real close yet.I have a
Action A-4 chair,16 wide,18 deep Karen.Next time i'm out
of it i'll try to pin point the looseness,might just
have to tightnen some bolts up?.<br
Welcome to the new members.welcome to the group.<br
need to scoot,need to get things reay for the big
Harley Rodeo,got my pass already too,one of my buddys
got me one yesterday,good to go now.Well have a great
weekend,Randy
I see that we have three new members today, <br
immelmann7, spike006_77, vtbear_98 <br
all to the club. Hope to see posts from you all here
soon. And don't forget we have a chat every friday
night at 9:00 eastern. Just come on in and join us.
Some of us oversleep and forget but there is usually
someone in there...LOL<br
soon<br
Thanks for the info...it sounds great. Will have
to give him a call. Is that made by Nordic track? We
have a store hiere in town and I thought I would check
it out. I saw the vera trainer it is costly. I just
can't believe that they are so much. But will call for
info for sure..Thanks again.<br
what you find out too. <br
Dear Shawn,
I hope that the new meds for spasms are working. I'm also glad that the Fibercon change is working for you.
I take Senokot at night before bed. I used to take 2, but don't need to anymore. Last spring I didn't need to take it at all, due to the diarrhea probs.
Regarding catheters....I have gone 'round and 'round on that one. My urologist told me to keep it in a plastic ziploc bag with a little paper towel. I leave the bag open a little to expose it to air. I wash it with extremely hot water after each use. I have used a mixture of alchohol and water in the past and I have also used vinegar. I have found that it really doesn't make a difference. He told me that the body gets used to its own bacteria and the catheter will never be sterile if reused. As long as you keep it clean and give it a little air to breathe it won't gather mold, etc. I go to a local medical supply store and buy the 14'' red in bulk. I never use one more than a couple of days. See if your insurance will kick in for the extra expense. Ha ha, mine doesn't, but I refuse to go through infections!
Are you on a maintanence antibiotic? I take Macrobid (100mg) every day to prevent bladder infections. It is a regular problem for people who self cath.
You have to be careful with those maintanence antibiotics though. It is good that you are taking meds to maintain the healthy bacteria in the intestines. Yogurt helps too. My gastroenterologist thinks that a loss of healthy bacteria also contributed to my intestinal probs last spring (similar to yours).
Stay on top of it all and don't give up the search for things that work! Sometimes it takes a little while to find the right balance of meds to keep things in check.
I often pray a prayer of gratitude that I am alive in a time when these medical options are available. We would probably all be addicted to morphine or opium 150 years ago! In fact, how many of us would even BE HERE able to use this incredible computer technology to communicate with each other? Now, if they would only find an ethical way to use stem cells.......
+JMJ
In Christ,
Gretch
Shawn Brasuell <shawndoe@...
Thats my question, what is a good technique for cleaning intermittent catheters for reuse? I used to boil them then realized that the catheters get damaged through boiling. I cleanse each catheter after I use and was washing them with antibacterial soap and water. I am now trying to use the technique of soaking them in water and vinegar. I just dont know how much of each I need to soak them in. I also heard that soaking them in bleach and water is good tooagain I dont know how much of each I need to soak them in.
Thanks for any input,
Shawn
[INLINE]
+JMJ
In Christ,
Gretchen
Hi Kathy,got ya on the pump,yep i got
confused,but that don't take much.Your just the opposite on
bigger thighs,my thighs and butt are next to nothing,but
i was skinny tostart with,except for my middle aged
belly i'm getting.I just need to transplant it
somewhere else.I understand on medicare now and your
chairs,i'm still on insurance so not any big troubles so
far,but i'm only 2 yrs into this.From what i'm told they
will buy a chair every 5 yrs.So i have 3 yrs left on
this one,hope it holds together,so far so good.But do
think my back on the chair will need replaced before
then.It is getting prettty loose and wobbly.<br
here today,but gets cool at nite,i think we had 50
last nite,no humidity so not too bad out.Well if i
don't get back on here any this weekend,everyone have a
great one,Take care Randy
That's my question, what is a good technique for cleaning intermittent catheters for reuse? I used to boil them then realized that the catheters get damaged through boiling. I cleanse each catheter after I use and was washing them with antibacterial soap and water. I am now trying to use the technique of soaking them in water and vinegar. I just don't know how much of each I need to soak them in. I also heard that soaking them in bleach and water is good too...again I don't know how much of each I need to soak them in.
Thanks for any input,
Shawn
Karen,<br
I had inquired about it a short while ago and had
some information sent to me. They too are kind of high
priced, but, I spoke to Brian Moroney about it today. He
is with Bowflex, and he told me there is a Versa
Trainer which is actually made for people in wheel
chairs. I mentioned there was some other interest and
told him I would forward his name to you. He can be
reached at 800-269-3539 ext 88. He is forwarding more
information to me and it should be here within a week. It
sounds really interesting and quite possible and they
have several payment options available. I will let you
all know if what I find out!<br
I don't want to be unkind...but you know the
doctors have told you that most men don't live a year and
William has been alive for 2 1/2, it just goes to
show...doctors don't know!! I pray for you and for him. Please
don't despair, enjoy the time with your brother and you
may be very surprised at how much you do have. Live
for today, not the gloom they are telling you to
expect. I have heard of soooo many people who live years
and years after doctors expected them to pass. Just
goes to show, it's all in God's hands!<br
know I am praying for you and your family!<br
Randy ,<br
spasms, however, I don't have it set to take all of them
out, some tone is a good thing and some of the spasms
help keep my legs from turning completely to FAT. On
that note, anyone have any suggestions on slimming
down thighs? Last year when I had a breakdown and was
laid up for about a month, I gained a lot of weight in
my legs..any suggestions?? And as for my chair,
medicare doesn't believe in buying chairs for SCI, they
will rent you one of those hospital chairs. Go figure,
and they certainly wouldn't pay anything for this
chair, this is certainly considered a luxury. Has anyone
any idea how they can consider latex gloves a luxury?
Not to get gross, but I'd like to have just one of
them here when I have to use the bathroom, if you know
what I mean! I don't think they would still believe
them to be luxurious?!LOL<br
for today. I have a sweater and jeans on..a little
cool. As for Dennis, we have only had the wind, no
rain.<br
A T-7 can transfer independently, can drive a car, can live
independently etc etc. He has full use of his arms, hands and
shoulders. He probably has sensation just below his nipple line.
He can play wheelchair sports, fish, hunt, roll races etc if he
wants. When they say that he's complete it means that right now he
has no sensation or function below T-7. Those things can change but
are less likely as time goes by.
I'll try to find you a website that explains it more.
I hope this helps. If not, just ask.
John C-5-6
So sorry, Cindiers. Life can be so unfair. Please know that we will be here if
you need us.
I'm t10 complete that basically means that your boyfriend wont walk again, without stemsell help.He can live a full life, I do if he takes back his life .His only limitations are in his mind kcm
Does anyone out there know what a T7 complete means as dealing with SCI? What are the probabilites of being independent and/or waliking again if possible? My boyfriend wants to know b/c doctors are not being specific enough. Thanks.
Hello Everyone,<br
this evening and decided to let everyone know how the
surgery turned out. William's surgery was later in the
evening tonight. While he was waiting to go in a SCI came
in for emergency surgery. It happened the last time
also.. Oh so many SCI's,so sad.<br
came out of it and everything fuctions. Hurray.. He
was in great spirits and happy. The way they lead him
to believe, that this time they would get it all.
Well as they told him what was what his whole world
fell. All of our worlds died right long with his. Ohhh
life is it even worth it..<br
came into the family room and explained that the
surgery gave William more quaility time. The tumor was
hugh, big as ones fist and their were two this time. He
had his last surgery April of this year. And already
this came back and bigger and stronger. He said that
each time you remove the tumor,it digs itself into the
brain deeper. <br
live much longer. I cant believe it I'm just numb. I
guess the kind of tumor it is and the type of cancer
hits mostly men. And if one lives a year after it is
found their lucky.. He has lived 2 1/2 years now.. So
the doctor, mind yah,said hes been living on borrowed
time for year an a half now. <br
turn to go in to see him. I told him all my wonderful
friends in here and other area's online are praying and
thinking good thoughts for him. And he got tears in his
eyes and said bless their hearts. He said to say Hello
and to thank you all so much. God bless you all he
said. <br
happy thoughts. I think this is what they call old age.
when you bury all your siblings and parents and
friends go one by one. I dont want it, this life we were
suppose to be givin, I wonder if I can trade it in, for
my money back. <br
you all in a few days or so. I think I will be quiet
for awhile and just hang in the back ground. I need
to go to the mountains but will settle for Lake
Superior and the forests. Take Care and Good
Night...<br
Helo Everyone,I can understand Chucks thinking
about not interested,i am kind of the same way,i would
love to ride again,but i want to be in control.I never
did like riding on the back and only did that
once.But like ou say Karen,there are all kinds of
possabilitys with the trike fro Chick to ride and maybe even
drive if you shift for him?.<br
tonite that Dennis is moving back south now,this has
been the wierdest hurricane i have ever watched.Only
thing i know is were in for more dry weather here til
he moves out and lets more fronts come in from the
west.with him there,the fronts are stopped.<br
surfing a bit on here,later,Randy
Sorry it's too cool for waterskiing, Kathy.
Weather can be uncooperative. :) I heard they had to
evacuate Kitty Hawk & some other areas. I hope you're not
in one of them. The chair sounds like its great. I'm
thinking it might be time for a new one so that's why I
asked about the weight. Thanks for the
info.<br
but it sure has made the surf rough. A couple of
beaches have been closed to swimmers.<br
changes his mind about the bike Karen. I can understand
how he feels though.<br
Hi Kathy,Was just reading your message again,Your
the first person i have read about that the pump
didn't take care of all the spasms.Well i guess most of
them.Can't beleive Ins wouldn't pay for your chair,seems
they should pay part of it even if is a Ultra lite,it
seems it would be better for them if it is better for
you to me.big business i guess.Glad your dog is
ok,they do like to get into things there not suppose
to,but lucky here,no vet trips.Thought i might have to
once,i gave my dog a steak bone,well instead of chewing
on it,she swallowed it whole,never choked,but
figured that might hurt coming back out.This dog has no
sense,a real cave dog as i call her.Well take care Randy
Hi, <br
worked on it all night) with my poetry, a short
biography, etc. Please feel free to check it out, and sign
the guestbook so I know you were there!<br
is the
link<br
target=new
paid for the premium service, so there should not
be any pop-up windows. <br
out, and take care!<br
Well, Randy, I would put it in the house but it
is too big. I have a trike. I put a pic on the
photos page in case you are interested. That is me and
my nephew on it. <br
trainer about three times a week. And just like you he
never used to do much of anything. But now he is real
good at working out. His upper body is so strong. And
it is very important to keep those legs in shape.
You just never know what they will come up with. And
if they should I don't want him to be out of shape.
He usually feels better after working out too. The
pain can get a bit bad but I think his mind is better.
Like he is getting somewhere. Still thinking on
looking at one of those bow flec things in person. Think
we have a place in the mall here. Might get some
ideas if nothing else.<br
day and have fun at the Harley Rally. Wish I was
there...LOL<br
hey everyone,<br
popularity and regularity of this board. Everyone is
genuinely concerned about one another. OK, now to answer a
few questions..No I haven't been hand cycling yet,
but I may be going this weekend, if not then next
weekend. As for Water Skiing this Thursday, it's down
right cool here today...This woman is not getting into
the water when it's this cold!! Maybe next week, we
also have Dennis heading this way again. The dog is
ok, why she wanted to eat a piece of HARD JAGGED
plastic is a mystery to me. (I do feed them. LOL) The
weigh of my frame I'm not sure, but I believe it's
heavier than my Triumph. It really isn't heavy though,
it's still considered an Ultra light chair, which of
course means insurance wouldn't pay for it!!But it
really is comfortable, I have a lot of spasms, even with
my pump, and this has really been nice for absorbing
a lot of the jarring that sometimes causes them.
All in all, in case you all didn't get this, I love
this chair!!<br
with 5 years ago when I was picking up my chair, he
really has sat in his house eating ringdings for all
this time, it's such a shame...I can't imagine staying
home that long...I get antsy after a day or a couple
of hours.<br
this William will have had his surgery...the only
words I have at this point are, We are all here for
you! God Bless!!<br
Hello everyone,Karen,you need to get that Harely
inside the house LOL.I did that a few times,mostly in
the winter so i could work on it and not freeze my
butt off.<br
155 lbs,now 4 ft tall and 175 lbs?.Need to figure out
how to weigh myself.Does Chuck use his poer trainer
much?.I seem to lose motivation to do any weightlifting
or exercises,never did do any of that before,but
guess i should be forcing myself to.<br
thoughts and prayers are with you today,hope and pray the
operation goes well.<br
know there are other people in the same boat and we
all can help each other out.A good laugh is real good
medicine for me too.Take care and have a great day Randy
Hi Denny,the uses of the new lift are
endless,thats the main reason i went with this type of lift.My
only other alternative was to mount a lift on like a
screw jack on each tractor i wanted to operate.I would
of needed 4-5 lifts then,this one cost a lot less
than 3 of the ohter type lifts.I'll probably be doing
a lot demonstrating it too,there is only 2 other
lifts like this in the US,mine being 3.None are even
close to me here,the nearest one is north Dakota.Take
care Randy
Thanks for the vote of encouragement, Cindie. We
do love each other and that makes everything easeir
to take. The ups and the downs. We have been through
alot in our 28 years together. Four kids, and let me
tell you thatis the MOST trying thing of all...LOL But
we always stuck together and worked it out. But it
wasn't without it's moments and arguments. Sometimes it
could get really loud around here. But things have
calmed down and we have settled into our lives together.
We are close and have always been close but now we
seem to be closer. Guess the thought of almost losing
him was more than I could handle. So now there just
isn't time for being mad. Want to make the most of
every day we have. Enough mushy
stuff...LOL<br
rides it about three times a week and the other days he
uses weights. We have been thinking of some kind of
workout bench for him. But room is at a premium
here...LOL Have thought of closing off the garage but then I
have no place to store the Harley. A bit selfish I
guess. And when I see the commercials on tv about that
Bow felx thing it looks really neat and easy to use.
I think I might go and look at one in person that
way maybe I can figure out a way to make it work. My
son has said that maybe we can fix some kind of a
seat on it for him. That way he will be more stable. I
call him my Weeble. He laughs at that. But I keep
telling him that weebles wobble but the don't fall down.
He just says he has a round butt. <br
was ever one thing of advice I could give...it would
be....LAUGH. And keep laughing. If youa re down, find
something to laugh about. It is the best thing in the
world. Chuck can be down in the dumps and I will make
him laugh and the next thing you know it isn't so
bad. So get out there and LAUGH, SMILE, ENJOY. life is
too short to be frowning all the time. <br
that is my sermon for the day. Sorry if I bored you
all to tears. Thanks for the input on the exercise
stuff. Oh yea forgot to tell you...chuck is 6' and was
150 when he got out of the hospital. Now he is at
182. He works so hard at it but the worst area is his
tummy. We just can't figure out anything to make it go
down. Any ideas? Thanks again for being such great
people. I truely consider all of you my friends. Don't
know how I would have gotten through this without you
all.<br
Hello,<br
tonight and wanted so much to thank you all so much. You
all are all so very loving and caring. <br
Bless you all. Good Night and I keep you all in my
prayers as well. Will post tomorrow night when I get home
and tell everyone how it went, ok Take
Care,<br
Hello Karen and Chuck,<br
treating you both kind? You know when I hear how you are
both doing. It makes me happy to know there are
couples out there who love each other through thick and
thin. You and Chuck, Betty and Ed, Larry and Linda and
so many others in here. Its wonderful that there are
couples, despite there disabilities. Hang in there and
keep their love growing. Wonderful!!<br
writting to mentioned I use a Power Trainer exercise bike
for disabled people. One hooks up the feet in a boot
and using your hands to peddle and that ways you move
your legs with your hands. Works great for sure. I
have just started using mine again. Weight loss, an
exerciser to keep in shape.. <br
exerciser with a bench and weights on pully. You could
change the weights and also the bench was level with
ones chair. So transfering was made so easy and worked
great for a complete workout. I cant remember the name
of it now. But went to a store and looked around for
one which could easily be used for all abilities.
<br
one also could work the legs as well. And unfortantly
it costed 900. But often you look around they are
often for sale. Just a thought, wish you all the best.
<br
weight comes on. I'm stuggling with my weight loss
program its so hard. I weighted 142 lbs when I was first
24 years ago come injuried and now its a terrible to
lose. Slowly but steadly.Night everyone take care and
God bless you ALL. <br
Cindiers
Dear Shawn,
Regarding bowels,
Are you seeing a gastroenterologist? There are meds out there that will help with the loose bowels....had a colonoscopy and endoscopy last April and May due to similar digestive probs. Sometimes there are additional medical reasons for the bowel probs that have been caused initially by the SCI.
Good luck!
+JMJ
In Christ,
Gretchen
Shawn Brasuell <shawndoe@...
This is primarily to the guysand any females familiar with male issues. FYI...I am 17 years post injury. Anyway, I have had epididymitis 5 times over the last 3-4 years. It flares up again when I get a uti and I have been getting plenty of them recentlyreally bad ones that have gotten into my blood stream. I think that I am getting a lot of utis largely in part due to the epididymitis I believe. The reason why I believe this is because the epididymis has remained hard and after I catha lot of the time there is a white substance in the urethra that I have to squeeze out. I think that whatever bacteria remains in the epididymis may be filtering back into my bladder because it is still inflamed and has nowhere else to go and I cant get it out through ejaculating. I am a T-4 para and I can ejaculateI have done it 2-3 times. I cant get the same results anymore even with Viagra because I push the blood out of the glans or head of my penis when I apply pressure to it. So I
am trying to find out how much a penile vibratory stimulation (PVS) device is and where I can purchase one so that I can clear out my epididymis. I also have a lot of back pain and am chronically fatigue where I just have to rest most of the time. I struggle trying to tolerate sitting up in my chair throughout the day at work and I cant get back to an active routine because of this. I rest a lot in bed or on the couch because the pain is so unbearable and thats where I want to stay when I wake up in the morning but I have to go to work.
Another problem that I am having is spasticity in my intestines that moves food through my intestines too quick which causes loose stool which is a mess and inconvenienteven when I use a magic bullet suppository. I have to manually remove what is there a lot of the times which I hateand like I said is inconvenient, messy, and can cause more harm. I do take meds for spasticity20mg of baclofen and 2mg of valium 3-4 times a day which reduces the spasms in my legs. I also take 2 tabs of Fibercon 2 times a day and acidolphilis and which still doesnt work. So, any suggestions on meds or other ways to manage this issue would be greatly appreciated.
Thanks for any info and please respond to me directly at shawndoe@...,
Shawn
[INLINE]
+JMJ
In Christ,
Gretchen
What's a purple nurple?
John
randy,<br
operational, a whole<br
do is opened<br
slow(????), there's always tree trimming or changing the
weekly special sign at the local supermarket...perhaps
rescuing kittens stuck in trees....i know it would make it
easier to clean the gutters on the house, climbing a
ladder is a real problem these days for me. it looks
like a great piece of equipment....i'm sure it will
work out real well.<br
use....great way to watch a parade.
Hello everyone,the lift is not actually that
scary i don't think.It seems to bother me less than
riding in a elevator.Thats about the only thing i can
think of on how to describe it.Speaking of
elevators,now that would scare me Noreen.glad there was no
fire.Sounds like you might get more rain and storms there
from Dennis?.<br
saying we don't get much snow here?I thought we had a
bunch down here this past winter?.I forget now for
sure.Hard to tell about the colors this fall,first time i
ever heard them say anyhting about the drought and
colors,guess we will find out soon.<br
i was trying to reply too now,didn't think i would
remember everything,but i tried.Well back to reading again
Randy
This is primarily to the guys...and any females familiar with male issues. FYI...I am 17 years post injury. Anyway, I have had epididymitis 5 times over the last 3-4 years. It flares up again when I get a uti and I have been getting plenty of them recently...really bad ones that have gotten into my blood stream. I think that I am getting a lot of uti's largely in part due to the epididymitis I believe. The reason why I believe this is because the epididymis has remained hard and after I cath...a lot of the time there is a white substance in the urethra that I have to squeeze out. I think that whatever bacteria remains in the epididymis may be filtering back into my bladder because it is still inflamed and has nowhere else to go and I can't get it out through ejaculating. I am a T-4 para and I can ejaculate...I have done it 2-3 times. I can't get the same results anymore even with Viagra because I push the blood out of the glans or head of my penis when I apply
pressure to it. So I am trying to find out how much a penile vibratory stimulation (PVS) device is and where I can purchase one so that I can clear out my epididymis. I also have a lot of back pain and am chronically fatigue where I just have to rest most of the time. I struggle trying to tolerate sitting up in my chair throughout the day at work and I can't get back to an active routine because of this. I rest a lot in bed or on the couch because the pain is so unbearable and that's where I want to stay when I wake up in the morning but I have to go to work.
Another problem that I am having is spasticity in my intestines that moves food through my intestines too quick which causes loose stool which is a mess and inconvenient...even when I use a magic bullet suppository. I have to manually remove what is there a lot of the times which I hate...and like I said is inconvenient, messy, and can cause more harm. I do take meds for spasticity...20mg of baclofen and 2mg of valium 3-4 times a day which reduces the spasms in my legs. I also take 2 tabs of Fibercon 2 times a day and acidolphilis and which still doesn't work. So, any suggestions on meds or other ways to manage this issue would be greatly appreciated.
Thanks for any info and please respond to me directly at shawndoe@...,
Shawn
Hey Billy: As far as nipple pain....nope on that one unless its a purple nurple ;) but I do have a small blatter------I think it is due to weak muscles, I use to have to go all the time but I notice now that I can finally take long trips and do fine. Now every once in a while I do have to pull over and being a girl thats not as easy but I live in west texas so its pretty bare on high ways.....I'll do it despite being busy- when you gotta go you gotta go! Doctors say with time the muscles get stronger but it is not always a 100 % case. I belive they have a new device that can be inserted but I could be wrong...i'll update on that.
~shane
William <jumping2902@...
Hello All,
All the messages that are posted are very helpful! Myself I have a
incomplete SCI. Still walking with the help of a cane, walls,
counters and such. My question is does anyone here have intense
nipple sharp pains? I get them as I am about to go to bed, and was
wondering if anyone else experiences this. Also, is it normal for a
person with sci to have to use the rest room about 5 times a day?
I really appreciate all answers, and wish you all a HEALTHY & HAPPY
LIFE.
Sincerely yours,
Billy
First of all, Cindiers, I will be thinking of you
and sending prayers out to your brother, William as
he faces surgery tomorow morning. Randy, really
liked the pictures of your new lift, would scare me too
much to be up that high, but I can sure tell you are
thrilled with it and that is all that matters, Betty, so
glad to see you got those hinges up and I know how
having more access can make all the difference. Have not
heard from you in a few days, glad to see your computer
is working okay. <br
mostly my husband,Kirk has been helping out my parents
at their house, painting their new shed, what a
project. Well, everyone take care and have a great week.
Donna
Midwestern: I would say either one is pretty hard- you wonder a lot about what ifs and whys. Which is pointless because there is no answer to either question. It is a hard transition to come to terms with mainly because there are no rght answers or specific yes or no answers. Your life takes ssuch a dramatic change so quickly something totally unprepared for. Everything you once knew is different and so are those around you. The unknown comes into play here. I think that is why people with SCI's are viewed diff. than those who have full control over their lifes. Will you offend the person, how much help is too much or to little, where do you draw the line? What do you say to the person that would uplift them or comfort themwithout being upsetting. These are all unknown questions because each person is different. As far as responsibility for the injury: Each person will take that differently. I caused my injury by not paying attention to driving: I think i was messing w/ a
stupid cell phone. I have a friend who was in the car w/ a buddy who fell asleep- he was thrown out the winshield, broke c2-c5 and t10-t12. He is an incredible man I love very much because despite his serious injury his buddy was unharmed yet he had no anger towards him. That was 8 yrs ago and I didn't know him at the time but he is currently working on standing and other things but he is such a joy to be with just an incredible, beautful, strong man. It just depends on the person's attitude.
Midwestern Yankee <midwesternyankee@...
So one day you woke up in Intensive Care with a
terrible injury and now you're back to living your
lives, only you have SCI. What's harder to come to
terms with? When you're responsible for your injury
(like, going skydiving and landing wrong) or when
someone else is (like a drunk driver)?
Hi Kathy,<br
your dog. Is he alright? Did you ever get to go
handcycling? If so, let me know how you liked it. I'm going to
try to get mine out this week. The weather cooled
down a bit so it should be nice. Good luck waterskiing
on Thursday-Noreen<br
frame of your XTR weighs?
So one day you woke up in Intensive Care with a
terrible injury and now you're back to living your
lives, only you have SCI. What's harder to come to
terms with? When you're responsible for your injury
(like, going skydiving and landing wrong) or when
someone else is (like a drunk driver)?
Hi Randy,<br
on it, not even a little scary. :) Do you use it to
get into the drivers side? Good luck with it, and I
hope you get some rain. We had quite a bit down here
(nj). I was in Baltimore last week and that got hit
with quite a downpour too. In fact, the lightening set
off the hotel's fire alarm and shut the elevators
down. I was on the 5th floor at the time so it was more
than a little scary until I found out there wasn't
really a fire.<br
Hello All,
All the messages that are posted are very helpful! Myself I have a
incomplete SCI. Still walking with the help of a cane, walls,
counters and such. My question is does anyone here have intense
nipple sharp pains? I get them as I am about to go to bed, and was
wondering if anyone else experiences this. Also, is it normal for a
person with sci to have to use the rest room about 5 times a day?
I really appreciate all answers, and wish you all a HEALTHY & HAPPY
LIFE.
Sincerely yours,
Billy
Cindy, we are all thinking of you tonight and
tomorrow, sure hope all goes well--know this is a hard
time--a lot of good people here with a lot of good
thoughts for William and you and your family...Take care,
Betty
Hang in there, Waquele. Like you, I have a loved with
SCI. My buddy's presently in a coma. I'm scared that
he won't come to and I'm scared that he will, because
then he'll learn what happened to him and he might be
where your boyfriend is, angry and depressed.
I don't know if I'll have the right things to say, but
maybe I can avoid the wrong ones. That's why I asked
this group what dopey things people say that only make
it worse.
Maybe this list can give you some of the hope it is
giving me.
Randy, seems like they say that every year about
the fall colors, but you know what--I think it's
actually sort of true every year lately. I can remember
years of the brightest red colors but that hasn't
happened for quite a while it seems. Liked you new
picture, looks real good to me, keep the pictures coming.
I have a graduation picture which I'm going to try
to post here...Kathy, have fun water skiing
Thursday, hope the weather is good for it--it is so
exhilerating, been a while but I sure do remember...Larry, Got
every AAA map in their store, trying to figure out how
to get three semitruckloads of "stuff" into one van.
Everyone, Ed and I are traveling west Sept and are going to
stop and meet Larry & Linda on the way home, sure am
looking forward to it!...Take care, Betty
Karen, got the new hinges through the 1-800
number you gave and they lay on a table for a few days,
then went to the park today and when I got back Ed
says, go see if there's anything new in Kurt's
room--and they're up!!--and I can get in Kurt's room for
the first time--I know Kurt will be thrilled with
that. Thanks again, now I can get on to the serious
business of totally redecorating the roomlol. I like
winter too, especially when I can escape Ohio and come
to Florida! :>) But I know what you mean,
watching the snow fall can be mezmorizing--unfortunately
it just doesn't snow near as much as it used to
here, don't know if it's global warming or what. Now
watch, we will have record snowfalls this winter!...Take
care, Betty
I think i do have a closeup pic in the photo
section,but not on the lift.Actually it is not scary up there
on the lift,probably because i am controling it.Plus
after my old lift,i have nerves of steel now LOL.Randy
hey I guess we have a lot in common, when I had accident I knew immediately that I was paralyzed,EMT, heavy emergency background. I was spared the denial and in my case, the false hope. I died in my helicopter ride but came back . When I came out of my coma , the guys just wanted to know if it was my first helicopter ride.I think you could app. the humor.
Going out tomorrow with them but not the same ,their support was tremendous but I kinda phased them out. To most of them I was their Captain and I didn't want to start to rely on them.
Joined the group to speak to others like you,I get more info from other sci's then mds and experts.Keep in touch.
Please tell me more about your friend , it might help mine. Kevin [kcm]
Dear Waquele,
I think it is wonderful that you are a positive influence for your boyfriend.
Make sure that you take care of yourself too...it is then that we are able to give our best to others.
Peace.
+JMJ
In Christ,
Gretchen
Waquele Holley <waquele20@...
Hello Everyone,
Thanks to everyone who responded to my message I was really feeling bad Monday because my boyfriend who has SCI T7 complete was very depress and I no longer knew what to say to him to try to cheer him up...Today was a ok day for him he had to go to outpatient rehab to work on his lower body so maybe and hopefully rehabilitation will give him hope again!!!
Personally, I cannot relate to any of you'll problems because I do not have SCI but emotionally I feel your pain because as stated earlier in my e-mail my boyfriend was shot which caused his injury but everyday in his voice I can hear his pain, his sorrow ,and his lost...I constantly ask why? but I know many of you'll question that also.....He believes in his heart that he will walk again even with a limp or with braces he is willing to take that, but life is what we make it so as I tell him we must deal with reality and pray for hope.. I know my e-mails are depressing but I trying to obtain a peace of mind about this situation in order to keep him believing. I am loyal to him and will not leave him because he is a friend before anything and I know if the table were turn he would have been there for me!!!!
So to everyone with SCI or knows anyone with SCI I have so much respect for you because it takes a strong-minded person to continue to love themselves and others despite the situtation... [INLINE]
mmchmc1 <cooperm1@...
Kevin,
I also have some friends who werr injured too young. One was injured
body surfing. He was 24 at the time. He is now vent dependent. He
lives at home now with his parents. He attends a local college and
takes two classes a semseter. I think he is doing pretty good in
school.
I was also a firefighter. I worked in a small town in
massachusetts. I was on for 15 years before my accident. I was also
a paramedic. I sure do miss work. I sometimes see the guys, but life
goes on and don't keep in touch as much as I would like to.
I remember everything about my accident. I always said that when I
left the profession I would go out in a blaze of glory. I thought I
was joking. During the time the tractor trailor was hitting me I
knew something was wrong. I knew immediatly what had happened. I
knew my back was broken. I was surprised it did not hurt. I called
for the helicopter, thru a friend who stopped. I knew most of my
rescuers. I knew the medics, and firefighters. I even told them they
would not get IV access, which they did not. I knew the flight
nurse. I knew some of the nurses doctors that took care for me in
the ER. Thank God I knew what was happening. I can not imagine
having no clue about ER's, MD and the system. That has been my
saving grace thru this life changing event.
mary
Nice pic but you can do better than that...LOL How about getting a close up so
we can really see you???!!! You look real comfortable up there in that lift.
<br
Well since everyone was complaining that my back was to the camera,i posted the
only front shot that we took that day,don't get too scared by me.Later Randy
You have such a great face you have got to show
it more. That smile is pretty nice too. The more I
hear about that lift the more I like. It sure is neat.
<br
has thoughts of his own. But thank goodness it didn't
come in directly. That would have been awful. Now I
sit and watch for the next one. This time of year my
eyes are glued to the weather channel. But so far it
looks ok out there. <br
an exercise machine like the Bow Flex? We are
thinking about getting one for Chuck but not sure I can
convert it for him to use. And the one they have for
paras and quads is huge and about 3 times the cost. Big
surprise there. Everything made for wheelchair people is
at least 3 times as expensive. I think that is a
sin. Can't figure out why things have to be so much.
Like a wheelchair...why are they so much? Not that
much to them. Oh well, guess they have us over that
barrel.<br
well<br
Hello Everyone,
Thanks to everyone who responded to my message I was really feeling bad Monday because my boyfriend who has SCI T7 complete was very depress and I no longer knew what to say to him to try to cheer him up...Today was a ok day for him he had to go to outpatient rehab to work on his lower body so maybe and hopefully rehabilitation will give him hope again!!!
Personally, I cannot relate to any of you'll problems because I do not have SCI but emotionally I feel your pain because as stated earlier in my e-mail my boyfriend was shot which caused his injury but everyday in his voice I can hear his pain, his sorrow ,and his lost...I constantly ask why? but I know many of you'll question that also.....He believes in his heart that he will walk again even with a limp or with braces he is willing to take that, but life is what we make it so as I tell him we must deal with reality and pray for hope.. I know my e-mails are depressing but I trying to obtain a peace of mind about this situation in order to keep him believing. I am loyal to him and will not leave him because he is a friend before anything and I know if the table were turn he would have been there for me!!!!
So to everyone with SCI or knows anyone with SCI I have so much respect for you because it takes a strong-minded person to continue to love themselves and others despite the situtation... [INLINE]
mmchmc1 <cooperm1@...
Kevin,
I also have some friends who werr injured too young. One was injured
body surfing. He was 24 at the time. He is now vent dependent. He
lives at home now with his parents. He attends a local college and
takes two classes a semseter. I think he is doing pretty good in
school.
I was also a firefighter. I worked in a small town in
massachusetts. I was on for 15 years before my accident. I was also
a paramedic. I sure do miss work. I sometimes see the guys, but life
goes on and don't keep in touch as much as I would like to.
I remember everything about my accident. I always said that when I
left the profession I would go out in a blaze of glory. I thought I
was joking. During the time the tractor trailor was hitting me I
knew something was wrong. I knew immediatly what had happened. I
knew my back was broken. I was surprised it did not hurt. I called
for the helicopter, thru a friend who stopped. I knew most of my
rescuers. I knew the medics, and firefighters. I even told them they
would not get IV access, which they did not. I knew the flight
nurse. I knew some of the nurses doctors that took care for me in
the ER. Thank God I knew what was happening. I can not imagine
having no clue about ER's, MD and the system. That has been my
saving grace thru this life changing event.
mary
Hello Gang,after looking at the pictures,i see i
was hiding,or well not showing my handsome face LOL.I
looked at all the pics that mom took,only one shows my
face,and i am holding my hand upto my ear trying to hear
someone talking to me,looks real dorky.I'll get a pic of
me from the front one of these days.Humm trying to
get rid of me by marrying me off LOL,don't know about
marriage,but a date would be nice lol.<br
missing most everyone,thye still don't know if he is
coming on land or not,last i heard he might hit New
York?.<br
thinking of you and yours.<br
different spots,then collaspes for putting it in the bed.I
want to add a telescoping seat to it someday.I think
that will help a bunch getting closer and not having
to be so precise on transfering.<br
great day everyone,Randy
Hello Kathy,<br
breaking.. Sounds like it was windy for sure.. Hope you and
yours will be safe. <br
he is 16 months older then me.. He is my only full
sibling. the rest are halfs. their all family to me but
William and I have always been so very close. Thank you
for your kind loving thoughts.. It means alot to me..
Oh Yah they have moved the surgery to Wensday Sept
1. in the morning maybe at 10 am.. Oh I pray it will
be okay.. will let you all know how it gos tomorrow
night when I get home. ok.. <br
thought your new lift Randy was very great as well. But
you know like Kathy mentioned here.. where is Randy..
just your head and one side view of you way up ,
hardly could see you.. hmmmm I wonder how we will marry
you off or get you a date if one cant see your
wonderful smile.. ;-) Seems like a great thing your new
lift.. hope it works great for you..<br
stop for now and hit the hay getting tired now.. Thank
you again Kathy for your loving thoughts and caring..
See you soon.. take care...<br
Wheeling!!! Cindiers
Hmmmmmm...let me see...is it spring??? LOL I
always liked autumn too. But really like winter. Ok so I
am weird. But I love the snow. When I visit my mom
in Indiana and it snows I have to sit in the window
and watch it until I fall asleep. It is the most
peaceful thing I can think of. Everything is so quiet when
it snows. I sure do miss it living down here. But do
manage to get up north once in a while just to get my
fix...LOL<br
be praying extra hard on thursday...all day. Please
let us know as soon as you can how things went. But
if you ask me he sounds like a fighter so I have a
feeling he will do fine. <br
too much trouble up there. Glad he missed us but hate
that he is hitting you guys. And now they say he might
sit there for a few days. Not good. But hang on he
will get tired and leave. <br
members. Sorry I haven't gotten a welcome off to you all
before now. This is a great place and everyone is very
helpful. <br
Hi everyone,<br
chat, my dog swallowed a piece of plastic and I had to
go to Raleigh (50 miles) to the vet...if it's not
one thing it's another. Still loving my XTR, what a
smooth ride. Randy, the lift looks great, I noticed we
didn't see you in any of the pictures except the back of
your head. LOL. BKSIMM1, do you ever go water skiing
with the group in Charlotte, I am suppose to be down
there on Thursday..weather permitting. As for Dennis,
we've seen a lot of high winds here. The wind was so
strong here today, when I can home from school, the wind
pushed my back door open which slammed my front door so
hard the glass shattered. I have to have it replaced
tomorrow. It also knocked some dead limbs out of my trees.
Cindiers, we'll all be thinking of you on the 2nd, positive
thoughts are surrounding both you and your brother (what's
his name?) Well, I am rambling again....keep smiling
everyone.<br
thx lady. i signed up.i'm in nc im me when ur on sometime
Hiya everyone, <br
years old and I live in the boring state of CT...lol. I
have Spina Bifida and use my SUW ( Sports Utility
Wheelchair ...heheheh) to get around....blah,blah,blah :-)
If you wanna find out more about me check out my
homepage
<a href=http://members.tripod.com/~Holly_Walker/Hollybrat/Welcome.html
target=new
<br
EastCoast-n-Disabled mailing list. <br
list is: I always find that it's hard to find and/or
meet other disabled people from the East Coast. So I
decided to start a list to get the people from the East
to start talking and meeting some cool people. Now
don't get me wrong...everyone is WELCOME. But I
definitely wanna hear from you East Coasters...lol. Anyways,
this list is for all kinds of people. Any race,
religion, background, or even if you are not disabled...you
are more than welcome to join. Let's talk about life,
love, health, SEX, money, discrimination,
relationships, when you're having a crappy day....anything at
all. Bring it on :-) <br
going to the following web page:
<a href=http://www.onelist.com/subscribe.cgi/EastCoast-n-Disabled
target=new
<br
please ignore this message. <br
care,<br
any questions...feel free to email me at
Hollybrat@... or Brat-Face1@...
Hi, My names Anthony and im a c5,c6 quad...I had a dirt bike wreck on
March 18, 2000 when I was 15. I just wanted to introduce myself as I
will be a member of this group now.
Thanks
Anthony
Hi Karen,thank you for the compliments on the
lift,it is a differnt item thats for sure.I can use it to
get in the truck or out,but most thetime i probably
won't use it for that.The truck has a Ez Riser seat
lift also,so that is what i will use most the time to
get in the truck.People who have seen say they want
me to clean there house gutters out,a new job?I made
the comment the first time i rode it that i would
have to be the one who changes the light bulbs in our
barn LOL.<br
like it is going to miss the whole coast now?.Boy you
have been lucky on the huricanes missing you.<br
sure was a nice day here too Betty,It is getting that
time of year for the colors to be changing.The
weathermen said the colors this yer may not be as bright as
normal due to the drought?.Had you heard that yet?.Well
i'm going to bed,need all the beauty sleep i can
get,Nite Randy
Randy, took a look at your new lift pictures and
it really is awesome, hope you "fiddle" with it till
it is just the way you want and all the best to
you...<br
Park (so what else is new¿) and there are signs of
Autumn everywhere--trails are half leaf-covered, yellow
and purple blooming something flowers
:>)--goldenrod getting ready to bloom, even the poison ivy is
changing colors--Can you all guess which season is my
favorite???...Betty
Hi Mary ,We have similar injury and post injury for about the same time.I see that you have taken back your life congratulations. I only let a few people in my life touch my chair.I only take a few meds ,mostly ditropan for bladder control.I have a sore so take protein drink and lots of vitamins, you cant heal if protein level is low, or so they say. unbelivably my hair is growing in, slightly bald now almost a full head of hair.Its not walking but I'll take it.
Some meds actually can weaken your muscles and to move around we must have strength. When I refused a med in the hospital they put in my chart that was angry.My only question was am I angry about being depressed or depressed about being angry.
I have a young friend ,25, c5 incomplete whose was loaded up on antidepressants because if you had a bad accident you have to be down. He wasn't and removed himself from at least that drug.Good talking to you. Kevin
Ok Randy, looked at the pics and it is really
neat. But guess I have a question...you knew I would
right...LOL Does that lift work for getting you in the truck?
Or is it just for the farm machinery? Sure is neat
though. Bet you can reach just about anything in that.
Too bad it won't go in the house...LOL Bet you feel
freer than ever now. So happy for you. Dennis missed
us. Knew it would. We haven't had a hurricane come in
here since 1923! north or south but never here. Guess
we are lucky. Well, have to run. <br
and stay well.<br
off that thing!!!<br
Howdy everyone,I just added 5 picctures of my new
farm lift in various positions for your viewing
pleasure,lol.It needs a a few refinements specially in the
seating area,it is kind of bulky and needs to made
smaller to access my tractors closer for a easier
transfer.The lift moves fairly slow,is very smooth and is
pretty easy and safe to operate.Any questions ,feel free
to ask.Hope everyone is having a nice weekend.Hope
Dennis the Mennace stays away.Later Randy
Hi everyone,
I am somewhat new to the group. I have been reading all the recent
posts. Everyone has an important thing to contribute. I am a T-10
complete for 4 years. I have lost friends over my accident. They
did not know how to deal with my injury. My brain still works, my
personality is the same, but my legs don't work. I still enjoy the
same things. Still love music, camping, travel, and white water
rafting. Still do all these things. Still hate skiing. Some friends
when I have not seen them in a while act as though they know what is
happening with me. They act like I am some kind of baby. They want
to push me (which I HATE), it's a control thing. They try to wait on
me,without asking iof I need help. I am a competent person. I live
with my 7 year old daughter in my house. I cook, clean, drive, and
raise my child.
I think that people coming into this group who are concerned about
their friends is great. These are true friends.
The only bad thing I can say about rehab was they love to medicate
me. I had my first anxiety attack there. So instead of working
things out drugs is the answer. Also, if i was in such a bad accidnt
I must be depressed. So DRUGS. If I bucked the system, the nurses
would get upset. When I came home from rehab I was on at least 10
different meds. Immediatly took myself off the stuff. I need to
find out what I need to take not the MD's. Now only on coumadin.
Drugs is not the answer (for me). I am allowed to get angry. Don't
walkers get angry sometimes. This is my experience, everone is
different and reacts differently to situations. Before anyone thinks
of stopping their meds talk to their PCP. I have a medical
background and am very familair with what meds I was taking and how
they affected my body.
thanks for listening.
mary
I am 10 complete 4yrs post. A t7 can live a relatively full life.Jumping legs are spasms and not a sign of return. Felling of hot and cold and the need to urinate etc. are signs of incomplete or retro feelings.
The spinal cord is a mystery so its probably to soon to tell. Hope for the best and prepare for the hard road "home".
At 21 youth is on his side, stem cell research is accelerating abroad and there is a cure so hang in there.My hope and prayers are with you kcm
I do not know if I am in the right spot but I sure do hope so. I
personally do not have a spinal cord injury but recently my boyfriend
has been diagnosed of having a spinal cord injury. He was at the
wrong place at the wrong time and got shot at a club which caused him
to become paraplegic.
He is only 21 and not dealing with this at all. Is has been to one
of the best rehabilitation center in our city and is continuing going
to rehab but he has yet to accept the fact that he may never walk
again:(
The doctors told him that is a 95% of a chance that he will not
regain his mobility again but we want to believe otherwise. Now, i
do not know if we(meaning th family) are in denial about his injury
but I want to beleive that his injury in the hands of a high power.
I guess what I want to know what is the probablity of him walking
again? He was diagnosed a SCI T7 complete. I have done several
research on this but nothing says anything about mobility..He says
his legs jumps continously but like i told him they are spasms...He
aslo said he feels pressure in his penis as if he has to urinate like
actually get up and go urinate but due to his injury he cannot. He
also said he feel his legs being cold but I do not know if that is a
mind thing or if he really feels that sensation...
What to do? What to say? He does not have the physical support like
he thought he was going to have which gets him really down and me
being not in his situation I continually say the same thing over and
over which I know he gets tired of hearing...
Do you'll have any advice I can tell him or rather a reality that I
can give all of us? Please help me!
Just wanted to say thanks for the Welcome,
Cindiers, although I am new to this club, you might
recognize my nickname from the NM board, I use "ladyheart"
there now. I wanted to also express my concern for your
brother and will keep him and you in my prayers. You have
sure had to face some rough times recently and it is
natural to feel down, remember that there are those who
care about you and sharing can and does help during
these difficult times. Please take care of yourself and
keep us posted. Donna
Hello Betty, Karen, Randy,<br
for your kind words and for the prayers and your
thoughts of well wishes. One thing my brother is a fighter
and a survivor. I pray so hard for him to be
alright.. I do know we all need him in our lifes. He has 8
children who really need him. <br
you all for your kind words. It has brought me a
peaceful feeling inside.. To know I'm not alone is a good
feeling. Thank you all.. <br
posted. Thank you for your prayers, need them bad.. Take
Care and God bless you all.. <br
Wheeling!!! Cindiers<br
into chat and visit tonight. My heart just wasnt in
it. More or less been quiet in spirit lately.. I sure
hope you all had a wonderful chat tonight.. Hopefully
I will make it next Firday.. Take Care, night
Hi Kathy,don't know if this will help any,but
about adding websites to here,i have had good luck by
highlighting the loaction section,then copying and pasting it
to the message here,for me it works and i end up
with a clickable address.But some other places it
won't work ,example NM.<br
stuck me in a handcycle,it was fun,but took some
getting used to at the time turning it by leaning,at that
time i was only 2-3 post injury and had very little
balance.Also they had to pick me up to get me back in my
chair,i'm still not good at getting back in my chair from
off the ground,lots different doing it at home with
no one to hold the back of the chair down.I think
the handcyclying would be fun if you had places to
ride.Glad the XTR is working out well for you,sounds
comfy.Well maybe see you all in chat tonite,too early to
tell if i will make it or not,suppose to go to town to
eat at a Farm suply customer appreciation day,hard to
pass up a free meal hehehe,later Randy
It's Friday and I am looking forward to the chat
tonight, but more importantly...no school for two days.
Classes just started up again and there is so much
studying, it's going to be a long semester.<br
Quickie XTR isn't power, I am not too good with inserting
websites, but www.sportaid.com has the XTR, it's a rigid
chair with a shock absorber. For me, it's a much more
comfortable ride.<br
about your brother, I'll keep him in my prayers. Maybe
the fact they are getting him in so quickly will
bring positive results...they have made great strides
in technology.<br
people at the chat, has anyone been hand cycling. My
chair rep is raving about how much fun it is and says I
need to try it. I think he'll probably get me out
there next weekend, and has anyone heard of a guy named
Dave Kiley? He was out water skiiing with us last
weekend...Didn't know he was such a SCI celebrity.<br
hope to see you all tonight...til then<br
Thanks Jam Jam for the advice,i don't think i'm
addicted to them,nor will i become addicted to them.My
self i see no problem with one a day if it helps get
my pain bearable.I think a lot of it is my Surgeon
doesn't want to keep prescribing them since i don't vist
there very often.I'm pretty sure my local Dr. will let
me have them.<br
you Karen,but now hit the Carolinas,hope all our
members from there will be ok.Sure glad i live in Ohio
now,don't get those nasty storms like that.<br
Cinders,sorry to hear about your Brother,your in my thoughts
and prayers.Hope the hivves get better too.Talk y'all
later,Randy
Hello Carolina,<br
here for the chat last firday. At present I am
suffering from a terrible case of the hives. Went swimming
a few times last week and used their soap in the
shower and I think that may of been the problem. The
hives are horrible. Also nerves are shot so that doesnt
help with the hives either.. ;-( <br
out tonight my brother who is suffering from brain
cancer, has to go under the knife maybe the 6th of Sept.
This will be his 3rd surgery on that tumor maybe in
little over a year. All I know its still not good. He
went to Rochester, Minnesota 3 months ago and had
laser surgery on it at the Mayo Clinic. <br
exrays show another tumor, so doctor wants him in fast
again.. Life sure can suck big time.. My sister died in
93 so not looking forward to my brother dying so
young either. Just starting to feel not so heartbroken
over LeeAnn and now this. My Mom also just got out of
the hospital 2 weeks ago. So I'm having my share of
trouble lately. My brother is so weak to go through
another surgery so soon. I'm scared, what else is new I
guess. <br
loved one.. Hopfully theres one more blessing left up
there for my brother.. Can only pray it will be okay I
guess. Sorry didnt mean to go on like that..<br
to hear about your new chair coming finally and you
really like it.. I'm very glad for you. I was suppost to
get my new chair today as well. But the fellow never
showed up. I ended up picking out the Quickie 2, this
time. I had the Quickie XTR for 2 weeks and didnt like
it for what I needed. I have heard great reviews on
It But some who didnt like them at all.I was just
happy they took it back and exchanged it for me.
<br
controls. Will be a big break through to help SCI people to
easier mobility. Well best got to bed, very late night
tonight, not so good. Maybe will see you in chat tomorrow
night. If I dont come I'm sure you all can do great
without me.. ;-) Take Care...<br
Wheeling!!! Cindiers
Hello everyone,<br
others about the Chat on Firday night at 9pm EST. Its
always wonderful to get together with old friends as
well as new. So stop on by and sit a
spell.<br
have a wonderful time.See you all Soon. Take
Care..<br
You've got the story all wrong....here's the article....
Gretchen,
Don't feel quilty- you made a huge step by just writing the whole point of this web site it to get support and questions from others. You have been through just as much as any other and for all the surgeries and pain you try to work through both physically/mentally I admire you. You have been through a lot and I hope this email helps you in some way because you have helped me realize things. I am not one for giving up or having no hope I know things happen for a reason but I take it as it is and spend my time focusing on the important things and not what ifs or whys that would be pointless. I have looked at people who steal cars, wreck, and walk away and wonder "what the crap" but I suppose being a prison +++++ in jail would be worse. I have much more compassion for disabled people like myself and I find them more down to earth and loving. Perhaps because we see things from a different perspective I am not to sure. I do know I sometimes look around and see other people I
know that despite the fact that they have full mobility, control, and a life in general it sux....they are either on drugs, have 6 kids and no job, get beat, drunk, waste money, steal/lie and I think I have it easy. There is always someone who has it worse than I. I cannot believe that one individual could not cope with it. How does that make you feel what a horrible thing, It really hurts to read about individuals being so shallow. I don't understand if its fear or selfishness or the unknown. I understand though it does put a dark cloud over a persons self esteem. My limp and arm not working makes it easy for me to excuse dating by saying I am too busy with therapy and school. I don't reall know what level of pain you have I am sure no doubt it is more severe than mine but all I take is Tylenol 3 and at times a muscle relaxer. I take Baclofen for muscle tone which is not painful just annoying. Do you try hot tubs or massages? Swimming helps at times w/ back pain and
muscle/joint pains. I am not sure about jobs- I currently am finishing college courses and do physical therapy no job yet but if you find out let me know. You hang in there and keep writing ok. Thank you
~Shane
Gretchen Mosel <gmosel@...
Dear Amelia and Shane (and all),
Hello. I feel guilty for even writing here after noticing the amount of quad/wheelchair bound kin. I feel blessed and lucky to have the use of my legs...albeit with tremendous pain. The stories and support shown here are inspiring...and the "false hope" emails led me to write.
Due to degenerating/herniating discs I lost feeling in the saddlebag area 3 1/2 years ago and down to my knees. Strangely enough, I could still walk with a limp (my right leg didn't work right). However, I lost function in that "invisible line" area written below. The doctors said it could be 6 months, then 12, and then 18 months. After that, they gave up hope that I would ever regain function again.
As a first grade teacher in a Catholic school, that summer of 2001 was a challenge. I managed to get back to work...and had another surgery 6 months later (another disc).
I felt somewhat hypocritical listening to friends and coworkers talk about my faith and cheerfulness, knowing full well that they weren't there for the quiet moments of anger and despair. Knowing that I "looked okay" the embarrassing "accidents" were hard to explain at work or in public.
I attempted to date, but eventually had to share my condition. It was more than that individual could cope with. Oh well!
I came to accept that God's will for me was out of my hands. I could cope and try to continue to live a life of faith or muddle around. Besides, kids (students) keep you busy!
Last summer I was blessed with a miracle. I regained function after 3 years and 1 month. There were many tears and prayers of joy!
8 weeks ago the bottom fell out again when I experienced the most tremendous pain in my right leg and side. Function left AGAIN.....and I had my 4th surgery.
Why do I write after reading so many inspiring stories from people with more burdens than I have? I guess because I had it, lost it, had it, and lost it again. Now I'm in more pain than ever and unable to work. I'm on Soma, Vicotin, and Neurotin. The pain management doctor can't see me for a month. Hmmmm....wonder how he would feel with the incredible burning and cramping 24 hours a day? God, grant me the grace to forgive! After seeing your stories of insensitivity, I feel some kinship with you.
The questions: What medications have helped? What job opportunities are available for those with slight (in comparison) disablilities? Even when (or if) I go back to work full time, practically my whole year's salary goes to pay off these bills. What helps with the physical pain??????? Waa waa waa...here I am complaining...it's like preaching to the choir, huh?
I haven't given up hope...don't you either Amelia! I suppose we all have a way to share our gifts, even if it isn't in the way we envisioned it. Look, you inspired me to write! You influenced me!
If anyone has words of wisdom to share, please do!
My mother recently just got on e-mail and she has
been giving me an hour by hour report on the
hurricanes. (Well not hour by hour but very frequently--she
loves her "new toy") She is down s of West Palm and
probably out of the direct path of Dennis but n Florida
may not be, will be hoping everything is
alright...Love the internet shopping, it's just hardest the
first time, then it gets easier and easier :>) Betty
In china there using stem cells from aborted fetus.There getting some results.Again I ask where is the morality of allowing 1,000,000 babies to be aborted, but the discards are to sacred to use to save lives.
I am basically pro life but abortions will never be stopped in us.It shouldn't be a political issue. Also there is plenty of money in this country for all types of stemcell research. So lets move forward. kcm
Hello Everyone,<br
Welcome to all the new one in here lately. So wonderful
to see alot of new ones coming on over.
<br
SCI t11&12 incomplete. paraplegic. Post almost 24
years come October 10th. A long time for sure.. Sure
hope to get to talk to everyone soon and meet you.
Take Care..<br
Dear Amelia and Shane (and all),
Hello. I feel guilty for even writing here after noticing the amount of quad/wheelchair bound kin. I feel blessed and lucky to have the use of my legs...albeit with tremendous pain. The stories and support shown here are inspiring...and the "false hope" emails led me to write.
Due to degenerating/herniating discs I lost feeling in the saddlebag area 3 1/2 years ago and down to my knees. Strangely enough, I could still walk with a limp (my right leg didn't work right). However, I lost function in that "invisible line" area written below. The doctors said it could be 6 months, then 12, and then 18 months. After that, they gave up hope that I would ever regain function again.
As a first grade teacher in a Catholic school, that summer of 2001 was a challenge. I managed to get back to work...and had another surgery 6 months later (another disc).
I felt somewhat hypocritical listening to friends and coworkers talk about my faith and cheerfulness, knowing full well that they weren't there for the quiet moments of anger and despair. Knowing that I "looked okay" the embarrassing "accidents" were hard to explain at work or in public.
I attempted to date, but eventually had to share my condition. It was more than that individual could cope with. Oh well!
I came to accept that God's will for me was out of my hands. I could cope and try to continue to live a life of faith or muddle around. Besides, kids (students) keep you busy!
Last summer I was blessed with a miracle. I regained function after 3 years and 1 month. There were many tears and prayers of joy!
8 weeks ago the bottom fell out again when I experienced the most tremendous pain in my right leg and side. Function left AGAIN.....and I had my 4th surgery.
Why do I write after reading so many inspiring stories from people with more burdens than I have? I guess because I had it, lost it, had it, and lost it again. Now I'm in more pain than ever and unable to work. I'm on Soma, Vicotin, and Neurotin. The pain management doctor can't see me for a month. Hmmmm....wonder how he would feel with the incredible burning and cramping 24 hours a day? God, grant me the grace to forgive! After seeing your stories of insensitivity, I feel some kinship with you.
The questions: What medications have helped? What job opportunities are available for those with slight (in comparison) disablilities? Even when (or if) I go back to work full time, practically my whole year's salary goes to pay off these bills. What helps with the physical pain??????? Waa waa waa...here I am complaining...it's like preaching to the choir, huh?
I haven't given