Good for you Kathy. I hope you enjoyed it. I'll
bet it's a lot of fun.<br
couple of years, (very poorly!), but I've never tried
basketball. I think I would be even worse at that!<br
luck with the new hand controls.<br
great Randy. I'll watch for the pictures.<br
didn't Murat mention he was from Istanbul? I hope he's
okay after the earthquake.<br
Hi Mary,
I am 27 year old.
I am complete. But burning sensation and skin turning to red when i sit for long time is there.
I put water so that it helps in moving the body easily. I have tried using only air also. I will try to change the cushion.
I do not take any medicines except for one vitamin tablet each day. I have never tried Baclofen or any other drugs.
Hi Erica,
I will ask my doctor about nuerontin. this is a new word to me.
Hi Robert,
Thank you , I thought those were stones.
Thank you
Regards
Ajith.
Thanks Karen. It seems to have cleared itself up. I'll try your suggestion if it
happens again.<br
Hi Ajith,
I understand your concern. I am a T10 incomplete. I do
not believe suspended particles in urine are stones. I
have this too and according to my doctor, a lot of
others do as well. I usually see some particles at the
end of a cathing session.
Sincerely,
Robert
Hello Everyone,got my lift yesterday,had to drive
3 1/2 hours to Cleveland Ohio to pick it up.Works
well so far,haven't tried it out on getting on the
tracotrs yet,will be doing so soon.I test rode it
yesterday for about 15 20 minues,if your scared of
heoghts,it wil scare you.It works pretty neat,but needs a
few adjustments.Hopefully have some new pictures by
next week of it.<br
well Kathy,price is not bad either compared to what
they charge for them at the mobility places.Waht kind
of car did you get?.<br
the chair,never did do any sports,so doubt i do
now.Water sking would scare me,could swim before ,probably
even worse now.Did talk to a guy at the tractorpull
last nite that was pulling,he didn't have any legs and
used handcontrols to drive the tractor,wished i could
of talked to him more,but he was busy getting ready
to pull.<br
get a little storm,but very little rain.Well See y'al
later,Randy
So glad to hear that your lift is there and you
love it. Must make things a whole lot easier for you.
Sorry you haven't gotten any rain. Wish it would stop
here...LOL You can have it. I saw the picture of your old
lift you made and it looked a bit scary too. Can't
wait to see the new one. <br
well<br
You are more than welcome, Kathy. Glad I could be
of help. <br
water skiing!! Make sure you let us know how it goes.
And GET PICTURES!!!!! We will want to see them on our
photo album. I can't wait. I have a feeling you will do
just fine. Just relax and know that no one will let
anything happen to you. TRUST in the people who are asking
you to do this. It is a great adventure. Wish chuck
would do some things like that. But guess he is still a
bit new to this for such an adventure.<br
sitting on pins and needles waiting to hear from you.
Have FUN and ENJOY!!!<br
Hi All,
I am Ajith. T9 complete paraplegic from India. I am new to this group.
A road accident inJanuary 2000 damaged my spine.
I have few doubts regarding kidney stones and pressure sores. All suggestions are welcome.
How to find whether I have kidney stones or not. I do intermittant catherization 6 times a day.
Are suspended particles in urine are stones?
I want to sit for very long hours and start looking for job. i am sitting for just 3 hours at a stretch now. please help me in this . I have heavy burning sensation if i sit for long hours and skin turns red.
I use scooter tube inflated with air and water to sit.
all suggestions are welcome.
Thank you
Ajith.
Hi
Please click on the link below and enter your birthday into my calendar. It's
quick, easy and you'll be helping me out:-).
http://www.BirthdayAlarm.com/bd2/28541162a867320278b280323813c118561536d904
Flint
Hello Everyone,<br
Chat, On Firday Night at 9pm Eastern Standard Time.
(NY,Ohio,Pa,etc.) <br
to get together and visit with friends old and
new..<br
First of all, thanks Karen! Yes...the box to
remember my password got changed, who knows, it was the
Gremlin in my computer that changes the spelling on
words, and generally messes things up.<br
somehow I have been convinced to go water skiing and jet
skiing tomorrow. Anyone else ever done this? Some
company is looking for SCIs in order to get some
advertising photos. I seem to get talked into these things
every once in a while. Last time it was swimming for
the news, and before that basketball for the electric
company?!?!<br
before the chair, ok I admit I'm probably more than a
little nervous. Keep your fingers crossed for
me...exciting, but scary.<br
water***<br
Hi there...the chats start at about 9:00 eastern.
I am not sure where you are so can't tell you what
that breaks down to but I guess you would know
that...LOL Hope to see you there. <br
well<br
hey Mary, i had kidney stones last winter and had to get them removed...they go in with a scope its a very simple procedure, talk to a urologist asap bacause they can cause major infections. also, baclofen works great for my spasms...at least until they're removed..hope this helps......Erica
mmchmc1 <cooperm1@...
Hi,
I just joined your group. I am a t-10 complete. November 20th will
be 4 years. Have had every complication imaginable and not
imainable. Have been hospital free for almost a year. Have been
real healthy since last winter. Forgot what it feels like to not
feel good. Right now have started passing kidney stones. Since I
can't fell pain I don't know thye are coming out (this is good)
except for leg spasms. Have not changed diet or fluid intake. Has
anyone else had this problem?
Before this stared I was one of the lucky ones who did not have
spasms. Now they happen several times a day. Only med is coumadin,
and vicodan for pain as needed. All comments and suggestions
welcomed.
mary
I keep seeing mention of the chats on Friday. But I still don't know what time
to come to the chatroom. Have a great week, everyone
Hi,
I just joined your group. I am a t-10 complete. November 20th will
be 4 years. Have had every complication imaginable and not
imainable. Have been hospital free for almost a year. Have been
real healthy since last winter. Forgot what it feels like to not
feel good. Right now have started passing kidney stones. Since I
can't fell pain I don't know thye are coming out (this is good)
except for leg spasms. Have not changed diet or fluid intake. Has
anyone else had this problem?
Before this stared I was one of the lucky ones who did not have
spasms. Now they happen several times a day. Only med is coumadin,
and vicodan for pain as needed. All comments and suggestions
welcomed.
mary
Thanks all for the info on the hinges--it really
is a relief to know this won't become a massive door
widening project. We will be doing that plus putting up
new wallpapaer that is separating and new curtain
sheers--sure wish all this was free of charge :>) Will
remember the chat Friday although I may be late getting
there--our son Kurt and his fiance Misssy are coming over
for supper--they are getting married Oct. on some
island, Ed and I won't be going, we are very disappointed
to say the least but we are counting our blessings
too...Take care, Betty
About the only thing I can think of is to delete
it and download it again. Maybe it all didn't get in
the first time. It will keep your list. Just have to
sign in again. Hope it gets fixed for you.<br
care<br
reading all the messages I missed. It sure was
fun to read about my old friends. I did get through
the showers stories and special hinges. Here are my
two cents on the shower. My husband, Tom, redid the
whole master bath and made me a roll-in shower. It's
way cool. I take 2 or 3 showers a week, depending on
my energy.<br
doors and made new ones in different walls. The new
kitchen is almost done (I can now cook, access the sink,
the oven, microwave, the fridge and the dishwasher. I
have started cooking again, albeit
sporadically.<br
reunion ? wow... that sounds like a huge project.
<br
Sorry for being so slow to get back to you on
this. I just remembered you had asked about the
controls. I have found a place that does carry them. The
name is Automobility. They have a website...
www.automobility@...<br
<br
Again sorry it took so long to
respond.<br
Hey, Betty. Think I might be able to help you
there. There are hinges that will help to get the door
out of the way. I found some in NM magazine. Also,
check with Home Depot or any other hardware store. They
might be able to help. The ones that I saw are called
Swing Clear Hinges....1-800-776-1461. Hope this
helps.<br
What can anyone tell me about the special doors,
or door hinges that allow you to have more room to
go through a doorway?--I'm not even sure what they
are called but I remember hearing about them a while
ago. Now I can just barely make it into one of the
bedrooms that we will be converting when our son moves out
but if the door can be changed so it doesn't block
the entrance at all then we wouldn't need to knock
down any walls to make it larger. Thanks...Betty
Hi, My name is Cevi. I am 21 years old. I was in a near fatal car
accident in 99. I had several areas of trauma. I crushed C-1 and C-
5, shattered C-7, fractured T-1 and T-2. I lost my spleen and a
kidney. I am a partial quad. Right now I am dealing with
syringomyelia. I am looking for support and to learn about resources
for this condition. I have two syrinxes. One from C-6 to T-1 and
then another from T-5 to T-11. I have not met anyone after my
accident that I have been able to relate to. I hope that this is a
group that will help me and teach me new things. Thank you.
I was severely injured in a car accident 4 years ago,I am fused from c1 to c3 without full cord injury and have several breaks the main one at t10 making me a para.There are several sites aimed at syrinxes. I use webferret to get info, if you need help I can try to send you sites.Condition is caused by trauma due to your accident.Its not enough to be paralyzed its the side issued that ruin our lives.
ID LIKE TO HERE MORE ABOUT YOU TELL ME ABOUT YOURSELF AND WHAT YOU CAN AND CANNOT DO.I've been to a lot of top rehabs but find we can often teach each other things that the experts don't know. Kevin
hey all
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I posted this on spinalcordinjury, if you dont want to be a member anymore just
Hey Lois, the Reunion is August 6, 2000 if I
remember correctly...but Betty will probably be able to
give more details. It's in Ohio, where are you?
<br
again...WELCOME<br
Kathy and Karen, you are so right, laughter is
the best medicine and any time there's a chance for
some we all should grab it--nothing like a good water
fight to get it going...Welcome Jasper, and yes as
Noreen says did you see the eclipse, was there a lot of
hype in London?...Well I had a brain fade and totally
forgot the chat Friday after attending the previous two,
will try to smarten up, but that could be a major
chore :>)...Betty
Betty, I am with you on the Brain fade...I completely forgot about Friday until
about Midnight. Hope to remember this week. Hope everyone had a good
chat!<br
Hi all, I'm a newbie to this lubs lark, so be gentle.
Welcome, Jasper...<br
forum for anyone, we have paras, quads, family
members...recent injuries as well as long termers, I am a 5 yr
para, accidental gunshot. What's your situation? I have
gotten a lot of information and support from this site.
<br
With Halloween nearly upon us, I've put a new T-Shirt on the site.
What do you think?, Any good?
http://www.apparelyzed.com/forums/index.php?showtopic=100
Thanks
Simon
Betty,<br
prove, we all make it work the best we know how. Not
meaning any harm....it sure makes me more thankful for
what I do have!!Although, that may be the best time to
get him back. It can also be a lot of fun I would
imagine. :-)<br
Kathy, know just what you mean about taking it
slowly, and eventually things do get easier...Well as
long as you beg I'll tell you all, you did beg didn't
you??--well someone asked politely I think. :>) Anyway we
have a shower chair which I use and Ed helps me into
the garage--we have a hose hooked up to the kitchen
faucet for hot water. There was a time with my disease
that I so so weak I could not lift my head and Ed had
to be careful with the water pressure etc--now I am
doing much better and he pretty much tries to drown me,
at which point I grab the hose and get even
lol....This system is very make shift and eventually I hope
to get a whole new bathroom with a roll in
shower--it is a dream I have anyway...Betty
Boy do I ever know what u are talking about, I am a para , 30 years now, but will write more to u Saturday. Take care, Theresa
Michael <mrhatton78@...
I am a C 6 quad. For about two months I have been running a low-grade
fever (99.8 being) the highest and higher that usual heart rate and
blood pressure. Also my lower back has been hurting to the point that
I have to take up to six hydrocodone a day. I have already been to
the doctor; after a two week stay in the hospital and four MRI'S they
told me that they could not find anything wrong with me except that I
have arthritis in my lower spine. Has anyone had this problem or
advise? I would greatly appreciate it.....
I am a C 6 quad. For about two months I have been running a low-grade
fever (99.8 being) the highest and higher that usual heart rate and
blood pressure. Also my lower back has been hurting to the point that
I have to take up to six hydrocodone a day. I have already been to
the doctor; after a two week stay in the hospital and four MRI'S they
told me that they could not find anything wrong with me except that I
have arthritis in my lower spine. Has anyone had this problem or
advise? I would greatly appreciate it.....
http://www.wwwebsbysusie.com/Special/Christopher_Reeve/
Hi,<br
shower chair is scary too.They put in a shower for<br
it has a wooden bench,so needless to say I use<br
shower chair it has alittle bit more cushion.<br
have found nice is I got a shower brush.I<br
my back and my feet,without anyone helping me.They
teach you in rehab to transfer<br
bath bench and it didn't seem<br
home and it's a whole different<br
for me it was.<br
with the<br
Donna
Hi Kathy,i started a new post on showers and then
i come across this one LOL.I used to live in one of
those old houses your talking about,a big ol brick home
built in 1865,beautiful old home.I know the tubs your
talking about,the thought of a transsfer to one scares me
bad.but i;m sure you added grab bars and things like
that?I aggree on transfer getting less scary with
time,but i still get a rush when i begin to slip or fall
forward.I too get in a hurry at times and thats when i goof
up.<br
Karen,tell us more,i have all kinds of thoughts about
this,one is a carwash LOL.I'm also picturing a drive
through lol.Well i'm quiting while i'm a head,take care
Randy
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I posted this on spinalcordinjury, if you dont want to be a member anymore just
Hi Karen,my shower is a stall tub combo,same
thing that most AB's have.My shower chair is a bench
with one arm on it,part of sets inside the tub and
part out of the tub.What we have been doing is pulling
the chair out of the tub,getting me on it,then
pushing it back in,real pain.I would love to get a roll
in shower someday,but thats out of the question
now.I don't own my home,so it would be wasted money to
spend it here,plus i have a upstairs that i heve not
seen in over 2 yrs.I need a accessable home bad,but
you got work with what you have and go from there.One
of my friends just built a new home,he added a
accessable bathroom,no shower though.He also added a ramp in
his garage for me to get in.Now is that a good friend
or what?.He did this not just for me,but for the
reason you just never know when it could happen and for
when he grows older,thats what i call thinking
ahead.Well need to read more posts,Randy
Fortunatly for me, my bathroom is approximately
18 ft x 10 ft. Some bedrooms aren't as big as my
bathroom. In the old days, 100 yrs ago, if you were lucky
enough to have indoor plumbing they beleived that room
should also be very large. I also have a four legged
tub, so it sits up very high and is basically a direct
transfer... the bench has to sit in the tub though, not half
in half out like it was designed to be. <br
first got out of rehab, that was my scariest
transfer....I had no help. I think in time even that transfer
just gets easier and you get more confident...Remember
when you first came home, how scary everything was,
how long it took to use the bathroom, get dressed,
get into or out of bed....the confidence level gets
higher and the tasks get easier. <br
my only advice is don't push it, I can honestly say
two things....I always messed up when I rushed (and
still do sometimes) and if you don't feel safe, you
probably aren't. Usually when I felt unsafe, I ended up on
the floor. Don't let anyone convince you your safe if
you don't think you are.<br
commodity, don't waste or rush it,<br
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This email was sent because you joined our group.
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Hello,everybody<br
posted anything I<br
sale,It's un-<br
do my stretches everyday to.I even still wear those
stupid foot braces at night but before morning I take
them off.<br
daughter I most be getting old these clothes kids<br
today are some what out there!!!<br
go,still pretty dry here in Pa.<br
rain!!!<br
Yes I missed a few days and there are over 500
messages to read---wellll maybe not that many, but that is
the sign of a healthy board which is great. As Randy
says on some boards people do not get along quite as
well as others--like NM for instance right?--still it
makes it very interesting...More about what I call
Reunion 2000--It started in NewMobility but includes all
here who would want to come to Ohio and meet--August
6, 2,000 in Blacklick Park, exit 112 east of
Columbus, Ohio. Thanks Randy and Karen for your positive
responses, sure am looking forward to meeting you
both!!--anyone else interested please e-mail me:
railone@...
You have made me feel very welcome here,thanks.My time zone is 14 hours ahead of
EST,thats probably why I never see any of you -you are all in bed when I check
in!
Sounds like you are pretty limber to me. I help
chuck with his stretching in the morning. Takes about
15 minutes or so. Not too bad. Then he always puts
his own shoes on and that really stretches the
muscles. After he gets home at night he stands in his
standing frame for about an hour or so. That is very good
for his bones. At least that is what they tell me.
But more than that it is good for his self esteem. He
enjoys standing up and it is kind of nice to get that
hug when he is upright. I admit it I am selfish
there. I guess everyone kind of has to do what is right
for them. Working the little things into your routine
is great. And if it works for you.....then it has to
be right. Right? Gotta do what ya gotta
do.<br
takes a shower in the morning. I don't really do
anything but stand there while he transfers. The bathroom
still makes me nervous. All that hard tile and sharp
edges. So, I just have to BE there. <br
day tomorrow and everyday. Go out and conquer the
world. Learn something new everyday. And just plain have
fun with life. <br
well<br
Geri,<br
really believe that if you are active enough, your
everyday activities stretch your muscles more than enough.
I, too, end up with swollen ankles and feet if I am
sitting still too much. Usually happens after sitting
through class, but as soon as I get out of class and
start rollin' the swelling goes down. And to add to our
similarities, Diet Coke is my only vice now, I gave up drinking
alcohol, smoking and coffee since I've been in my chair.
The alcohol and coffee make me have to pee to much
and the cigarettes...well it was a great time to
quit. <br
the ICU, with a chest tube in my lung...laying flat
on my back three days after being admitted, oxogen
every few hours, a nurse tells me (me having said
nothing) that I can smoke in my room if I want because I
can't get outside. Some people have NO common
sense!<br
exercises, almost none since my release five years
ago.<br
I don't really do much ROM,but i do bend over to
pick things up quite a bit,so does that count for
bringing your knees to your chest?.I think it does,well
hope it does is a better way of putting it.Also by the
time i get dressed,getting my socks,which come up to
my knees,then my jeans and boots on,i think i
stretch a good bit.Really only thing that don't really
get moved much is my hips and feet.I try to lay down
flat on my back for a while each day.Am i doing
enough?Most the time i seem pretty flexable,but do get tight
sometimes.<br
still chew my Skoal,ya i know bad habit,still drink
some,did cut out my caffine,used to live on Pepsi and
caffine pills,now if i take 1 Exedrin pill,i'm wired for
sound.I tried to slow up on my Skoal,but i needed it,i
just could not function without it.I did cut back to a
can every 2 days,instead of a can a day.<br
headed for bed,nite everyone,Randy
heavens, NO!<br
Usually just if people treat me like I am:<br
or b) helpless. Otherwise. No. <br
business of all that stretching is a waste of time. Yes we
need to maintain the flexibility. Heck, I can put my
foot in my mouth (literally!) and I couldn't do that
before. Often, whe sitting on sofa or chair, I sit cross
legged, and stretch and massage on my aching (usually
swollen) feet and legs.<br
idea! maybe I'll grad a diet coke (my only vice) and
take a break!<br
Hi Rod,<br
Welcome to the group.<br
Sorry didn't mean to offend anyone. Guess the
Pt's scared me to death w/all these things to do. I
was told (and believed for I didn't know any
different)that you must put a stretch on the muscles and
maintain if for 3-5 minutes everyday and better yet twice
a day or they would become stiff and twisted. We've
struggled through this for 17 years. Lez's rehab sounds
like most of the others. Been better off without it.
She has had three types of ranges done always once a
day and quite often twice a day. When if ever we did
skip one of them I always went to bed worried and
ashamed to have not taken the time to do it. Sure wish
I'd known this long before now. That's what is so
great about this place. Always learning something and
it comes from people who really know. Sounds like a
good Idea to tilt the feet. Lez's foot pedals are
tiped up in front some but not sure if it is at the 25%
angle. Thanks for the information. Dorla
I have had TERRIBLE pain for 11 months. Just recently,
my massage theripist has eased my pain. I also take
NEURONTIN. http://www.neurontin.com/. My pain is
always there, except for when I sleep, but it is much
better as I am able to deal with it.
Hope this helps.
Rob
I wish I knew. If you do find out something let me know b/c I know exaclty what you're talking about...........
Revis
Gina <ginats@...
I.ve been searching for years to find a Dr. who understands the thst
results from an SCI, to no avail. Addiction is not a problem, pain
intervering with daily living activities and a matter of maintaining
independence. Does anyone out there have any solutions or suggestions?
dixie_darlin
Ginats
Glad you joined our little group. I think it is a
great place to talk to people and get some answers. My
husband, Chuck, is a T-12 complete also but only for close
to 2 years. Still getting things worked out and on
with things. I am going to check your profile but just
in case...Where are you from? Hobbies? That kind of
thing.<br
and Stay Well<br
Hey, thanx for responding<br
all this, anyway I have been<br
yrs. I fell off a waterfall<br
ga. So, tell me 'bout<br
crip88@...<br
I.ve been searching for years to find a Dr. who understands the thst
results from an SCI, to no avail. Addiction is not a problem, pain
intervering with daily living activities and a matter of maintaining
independence. Does anyone out there have any solutions or suggestions?
dixie_darlin
Ginats
Sorry Lance,i had forgot your name when reply to
your welcome to the group.Don't know how i came up
with Nathan,oh well i'm allowed to mess up a few
times.Anyways Welcome to the club.I don't know of any parts for
your chair,but did think of some help,Maybe check out
Wheelchair Underground,he seems to be really up on his
chairs.I think there is a link in the link section
here,Good luck,Randy
Hi Sandra,
That's a wonderful project you have going there. It
is definitely helpful for us to have a place to share
our experiences and make new friends who would be able
to understand the struggles we go through as a person
with a disability.
I'm a person with a disability myself. When I was 13
I had a spinal operation to correct a mild form of
Spina Bifida. I was fully able-bodied at the time.
But the operation didn't go as planned and I came out
partially paralyzed below the waist. Then over the
years my spine became unstable and broke in half,
causing more nerve damage. I had a spinal fusion done
in my early 20s but the fusion didn't hold...
So now I'm in a wheelchair. I don't trust doctors
anymore because they've all lied to me. They all told
me before each operation that I would be better off
than before...but that never happened. I always ended
up worst. My doctor even said to me, exact words -
"we thought we'd make you better but I guess we made
you worst." Oh gee, thanks!
I managed to get on with my life and graduated from
University. I now work as a Diversity Hiring
Coordinator for a placement firm where I help people
with disabilities find employment with our clients.
My boss and I go out to train our clients on the
benefits of diversity hiring and disspell any myths
they may have about hiring people with disabilities.
I have successfully placed several people but not at
the rate I am hoping. Employers here in Ontario,
Canada are still very relunctant to hire people with
disabilities. Although there's an Employment Equity
Law, it only requires that employers make an effort to
hire people with disabilities who are qualified for
their job opportunities. So employers make it
extremely challenging to find a suitable candidate for
their positions by demanding job requirements that are
difficult to find in such a finite pool of qualified
candidates. Or employers ask me to fill a position
for them but then tell me they've decided to terminate
the position - after I have sent my candidates through
multiple job interviews for this position! Or they
pass my candidates from one department to the next for
interviews and in the end not offering the candidate
anything, just so they could record in their records
that they've "made an effort" to hire people with
disabilities. It's just horrible.
To their credit, there are some employers who are more
humane and are honestly eager to hire qualified people
with disabilities. They have support system in place
in order to smoothly integrate people with
disabilities into their workforce. But unfortunately
they are few. I get really frustrated at times
because I don't want to give my candidates false hope.
They don't deserve that.
Then there's another challenge. I'm too inexperience
in this staffing industry. It's my first job coming
out of school and I am not assertive enough. I was
trained in Human Resources Management, not in Sales.
The staffing industry is really Sales. So I'm
learning as I go. Perhaps with more experience I will
have more success.
Donna
--- Sandra Villanueva <salimacatwoman@...
=====
Hello everybody,I am almost new here, due to too much work and other
stuff I hadn't had the opportunity for posting.
I find this forum really great with very interesting topics.
My real name: Sandra Villanueva,I am 33 years old,disabled due to a
car crash when I was a baby,I am an English Teacher and Translator.My
life has never been easy for me but I have grown up being a strong
and hardworking woman who never stops.
I'm an advocated for the disability issues,I have been working on it
since 1993,but just this year I created Wheels for Independence.
Wheels for Independence is a project for talking/helping and
supporting disabled people,sharing ideas,experiences and all
resources availables for people with special needs,there is no a
specific disability topic,nor age,all people Disabled and Non
disabled can participate,we just need being aware that nobody is
excluded of being a disabled person,and if we try to put ourselves in
other people's shoes we can understand how hard life can be
sometimes.
One of the main objectives of Wheels For Independence is showing
people that despite our disabilities we can be hardworking and
productive human beings,also that we can develop a very and almost
normal life in the sense of living a life with all what it offers us.
If you simply want to share ideas with us please join us and share
your life experiences.
Thanks.
www.WheelsforIndependence.biz
Alot of talk about UTI here. Brutal at times. However, this sounds
almost perverse but, any corolation between loss of hair and not
getting uti? Reaction to drugs cost me about 80% of hair (all over)
but didn't get infection until it came back. Using inter. cath. Just
odd or odd coincidence?
i used these guys to make my bills alot more manageable, it was free so what the
hell, why not?
http://placedebt.com/?partid=rcc2
If you dont want to be part of this group, you can leave by mailing
Hi guys! <br
alone, which is nice. The first thing you NEVER do, is
let them take your chair until you are at the end of
the jet-way (little tunnel??) and you "gate check"
your chair. Then yes, there is an aisle chair to get
you to a seat. I usually fly Southwest, so am able to
stay in my chair(which gets only to the FIRST row) and
sit in the bulkhead (facing backwards) without using
an aisle chair. Usually friends, or the flight
attendants lift me ( one gets the knees the other gets me
under the arms, and I go OVER the arm rest.) Like
someone said, there are usually 2 aisle seats on most
planes where the arm rest lifts, and transfers are a
breeze. I can't imagine there EVER being enough room for
a rigid chair inside the plane. Always keep your
cushion with you, even if it velcroes. If you fly an
airlines with assigned seating, request the rows with
lift-able arm rests. Many of my friends get upgraded to
first class often, even when I fly the longer flights,
I haven't been so lucky.<br
about ROM, (I am NOT a doctor!!!) But this is my
opinion (the only opinion ANYONE can possess!) ROM means
exactly what it says. Range of Motion. If you NEVER bend,
straighten or move a joint, it will stiffen over time (4-6
weeks even) and will take alot of stretching to get
back to that point. However, if joints are moved as
little as a few times per day, they will still retain
their "range". I lift my knees to my chest every day,
they will always be flexible enough to get to my
chest! Unless I go 6 weeks wihout doing so, I don't have
to do it over and over. So if you go thru a quick
"ranging" and nothing is getting stiff, you should be good
to go? right? I refuse to lay in bed and be
manuipulated for up to an hour a day! Life is too short. As
far as foot drop, I take this very seriously. There
are a few things I do to work on preventing. 1) have
a platform footrest installed on my chair at about
a 20% incline (heels down) this way my feet sit
with heels down. When I have to sit still for awhile,
I strap (or belt ) my knees together so the legs
and fieet sit straight and the heels are forced down.
2)I also made a platform on my shower/commode chair.
Instead of the swing out foot rest, I use a plastic
cutting board to make a platform (25% angle, heels down,
duct taped the sh__ out of it)) so when I am in the
ladies room, or shower, my feet sit at that angle.
2)also, while in the bathroom, I pick up one foot and
rest on the other knee. This forces the heel down, and
then I rotate the ankle of the foot I have up. (then
change feet) <br
C's would have difficulty, but some of this could be
accomplished. maybe.<br
t-i-r-e-d.<br
Hi Dorla:<br
purchased 2 tickets to the Brian Setzer Orchestra to the
Fillmore Auditorium in Denver. The show was last night.
Although I knew when I bought the tickets that it was
first come first serve (e.g., no reserved seats), I
must have had a brain fart or something.<br
night, Tom and I are driving towards the concert place,
get there and it's about 1-1/2 hour before the
concert and there's already a line, and Tom wonders "How
are you going to see with everyone standing ?", "hum"
I thought, so after thinking it over for 15 minutes
(still stubborn), I finally gave up, cause yes "peoples'
butts ain't that appealing". So we tried to sell our
tickets to a guy that had a sign "need tickets". He
wanted to pay us $10 for $35 tickets (and maybe for both
of them), so we just gave them to the sponsoring
radio station.<br
restaurant, and had a great evening anyway.<br
think that's really nice how you stay seating down and
honor your daughter when the national anthem is
sung.<br
read all the posts I've missed yet but will get
soon.<br
I know this will sound pretty negative but
couldn't help sounding off a bit. I will tell you my side
as family care giver. After you decide to go,
mentally go over the list of things needed and to be done,
check to see if it is even accessible, make the
arrangements, then the big day arrives and off you go..It is
particularily annoying that we can't sit as a family. If only
one can sit we have to choose which family member
gets to sit and be seperated from the rest of the
family. Thank heavens some places let at least one sit in
the wheel chair section so our daughter doesn't feel
like a complete outcast. When we go to activities that
are situated so that we can all be in a group it
still ticks me off when they rise to sing to old glory.
I can understand and tolerate it but then the anger
starts to seep in and by the time they start standing
and Yes, that's all we see is butts..I get down right
infuriated. We never get to see the exciting parts unless
people's back sides are exciting. lol..A lot of times our
whole family stays seated and people will begin to
notice and turn around and look and then sometimes they
will stay seated..(sometimes) Of course when they look
around they see my angry glare on my face and I'm sure
they get the hint. If I stand also I feel so
disrespectful to her also. So I prefer to sit and endure the
distress as she does. Since we are from a small community
most of the seating is clear in the back where they
have removed a seat or have the seating just behind
the last seats. Your eye sight had better be good to
for the participants look like ant on the stage or
playing field. I will say that two schools have ramped
the bleachers and have a section in the middle
recessed back so chairs can be placed there. Then peole
will come and stand in front of that place and lean on
the railing. I am always respectful when I tell them
that this section is reserved for chairs and would
they mind moving so we can see. They always do without
any remarks. Nothing drives the hurt into my heart
any quicker than having to have my daughter
experience these situations. I become a very angry explosive
momma..lol...Sorry for the sound off but just had to let you guys
know that those types of inconsiderations are felt by
others too. Dorla
This group has been around for almost two years and have been active
since the beginning with around 1400 members..
The unique thing about the group is you will not see web porn sites or
and spaming...The membership profile almost all have information on them..
We try to keep the group with a upbeat feelings..Yes at times we all
get depress but in times we get ourself up and move on with our life.
Intimacy is not just about sex,Intimacy has much more meaning..
As said you need to have information on your profile to join and would
like you to be active with the group...
NOT INTERESTED JOE.
YOU BLOCKED ME FOR DISAGREEING WITH YOU.
KEEP YOUR LIST.
DAVE
In a message dated 9/9/2004 11:41:09 AM US Mountain Standard Time, chris1h23@... writes:
This group has been around for almost two years and have been active
since the beginning with around 1400 members..
The unique thing about the group is you will not see web porn sites or
and spaming...The membership profile almost all have information on them..
We try to keep the group with a upbeat feelings..Yes at times we all
get depress but in times we get ourself up and move on with our life.
Intimacy is not just about sex,Intimacy has much more meaning..
As said you need to have information on your profile to join and would
like you to be active with the group...
OK......Here we go...
My name is Luis Torres, 22, T-5 paraplegic
complete (meaning I will not walk or just an
assumption!)... My accident happened 2 years ago when
I was only 19... I am only replying to this because I
became furious when you said, "I am looking for
someone who suffered a spinal cord injury and who
will not walk again to work with me and one of the
mediums."
That got me angry because I AM going to
walk because I AM. My generation is the "Stem Cell
Generation". I will walk it is only a matter of
time. "Timing's everything, Patience a virtue". It
is only a matter of time before I walk.... Only to
complete the cycle for my great testimony of the power
of my lord.... so honestly I don't even need stem
cells to walk only faith but it shall be stem cells so
be it.
Here is my story in a short version...
My friend came up to New York on vacation from college
from Miami Florida. He flew up but was driving back
down". I decided to go back with him... He fell
asleep behind the wheel in South Carolina. I did not
buckle up because I wanted to sleep comfortable. He
went off the road 200 feet and crashed into trees. A
tree also fell on top of the car after we hit covering
it. I broke 3 ribs, shoulder blades, scapula muscles,
and a huge cut on top of my head from hitting the
windshield, and both lungs collapsed...
A passer by saw stem in the distance so
they pulled over. It happened to be an army medic
going home off of work. A second car pulled over
because they saw the commotion. It happened to be a
nurse going to work. The cop happened to be coming
off a break. The accident was around 12 noon. It is
also a blessing that there was not a lot of traffic on
I-95 S on a Saturday morning causing a pile up or
worse.
I spent 2 months in South Carolina hooked
up to every machine possible. When my parents arrived
and spoke to doctors and motioned my paralysis my
parents replied, " So your saying he will never walk"
"If he leaves here only not walking he is one lucky
kid".
I have no brain injury. Have my car.
Just got it 2 years later. Do nothing but "real"
therapy. Electro Stem stuff... The women love me. My
life is great. I appreciate and patiently wait on my
lord to provide for me. I just also have to be ready
for when it comes. So I work hard now.
I support and encourage new patients where
I do therapy. The energy you put out comes back and
revolves. I survived for a reason. This is a short
version of the story.
I am an author writing a book in the spirituality genre that explores
the deeper meaning behind life challenges.
In conducting research for this book, I am working with several
psychic mediums who have the ability to speak with Spirit. These
gifted individuals are able to uncover the "why's" behind the
challenges of life. By telling the stories of people who face
certain difficulties, and by offering spiritual insight into why
these things happen, the book will help people find meaning in
suffering that may appear to be arbitrary or purposeless.
I am looking for someone who suffered a spinal cord injury and who
will not walk again to work with me and one of the mediums. You will
have a one-hour session at no charge with the medium and myself by
telephone. I will then conduct a one-on-one telephone interview with
you at another time.
This is an opportunity to 1) acquire new wisdom and insight into a
difficult life challenge and 2) share that wisdom with readers who
face the same challenge.
It is my intention to conduct this research with the utmost honor and
integrity. Discretion and confidentiality are very important to me.
Please note that I do not need to use real names in the book. You
may remain completely anonymous if you like.
If you would like to participate, or for more information, PLEASE
CONTACT ME DIRECTLY at courageoussouls@...
In your reply, please tell me about yourself and your injury, why
you're interested in participating, whether or not you have had any
spiritual or metaphysical experiences, and where you saw this message.
Thank you.
Robert
Welcome to our group Lance. Glad to have you
aboard. I am not sure about the parts you need but will
do some asking around. Am sure some of the others
will have better advice on that than me. Hope to get
to know you better.<br
well<br
Welcome Jimmy!
Hello yall!<br
complete sci.<br
wanted<br
does<br
for<br
wheelchair? I have one and I am looking to get<br
"rebuilt". Any advice appreciated<br
Back from one month off work to spend 3 weeks
with my mom who came to visit and 1 week to welcome
Tom's 11 yr old son Timmy who is now living with us.
<br
a time.<br
can actually cook now and use the sink. It's awsome.
There is even tile on all the floors, except in some
corners (husband likes to stop projects just a little
short of completion, but hey, I love him just like
that).<br
file cause I'm tired of having to go in every time: it
seems that I always get nitrites positive. So hopefully
when it returns (like old faithful in Yellowstone) I
can let the nurse know that and can get the
antibiotics mailed.<br
read all the prose,<br
Hi jim here.......i just joined today
am goin to have surgery 9/ 20/ 04
have very very very bad c4/c5.............less than 1/16 of spine left
Dear all,
I am currently putting together a section on my website dedicated to the
"Wheelchair Traveller", and I'm looking to see if anyone out there has been on
holiday in a wheelchair, and has written about their experiences.
If you have written about your wheelchair holiday, and would be willing for me
to add your article, with good or bad experiences, please contact me.
The collection of articles published so far can be seen at:
http://www.apparelyzed.com/wheelchair-traveller.html
Many thanks
Simon.
And some day I will learn how to spell and use grammer
correctly....LOL<br
Well, today was a red letter day. They finally
got the automatic door installed at work for chuck.
Now he can get in and out all by himself. So after I
got him to work I announced that I QUIT!!! Well, soon
anyway. Still have to get him used to driving home at
night. He is doing great with the driving. His balance
seems to be much better now. He doesn't use anything
but the seat belt to hold him in and it is working
beautifully. I am so proud of him. He is making great strides
towards being independent. Now all I have to do is figure
out what to do with all my free time...LOL<br
reunion, Kathy, is going to be in Ohio. A bunch of us are
trying to get together so we all can meet and talk face
to face. Think it is a great idea. Hoping to have it
down here one year so we can all go to Disney. Let's
face it we are all kids at heart. And Randy, you can
bet I will get Chuck up there. Will save my annual "I
want to go somewhere" for that
occassion...LOL<br
Randy, did you ever get my message on ICQ? Sorry if I
offended you in anyway. It wasn't not my intention. Just
need a little help with that subject.
---Thank you all for your advice! I appreciate it. I'm currently
taking neruontin and have been for a few years now. Perhaps I should
increase my dosage, but my doctor is steadily trying to take me off
of everything. Pain means absolutely nothing to this man. Our
workers compensation call him "a pain management specialist". He
manages pain just fine because he does not feel any. I have had some
other pain issues in the past with one of my shoulders. He told me
use ice. Even if I am in a restaurant eating dinner with my family
are trying to enjoy a film. Ice works wonders. Can you believe
that? I ended up in the hospital to have some surgery done. Grit
your teeth guys because it was testicle surgery. The next day after
surgery to remove one of them, he wanted me to drive my chair across
the street through the construction zone and up the hill to his
office about a block and a half away. This man is the most
unsympathetic clown that I think I have ever been around. I'm not
looking for his sympathy or anyone else's. I would just like to be
relieved of my pain. I have had other major pain issues that were
not neurological with no help from him either. Thanks again for your
Hi Floyd,Thanks for the info on flying,hopefully
someday i will be able to use your advice.I have read
similur things about what you said.Sounds real good about
getting upgraaded to a better seat,you never know.I will
keep all your advice in my mind for when i do decide
to travel.Thanks Randy
I've flown ALOT since my accient, and have a
really helpful hint for you all. Normally they have you
transfer to an isle chair, and then they take you to your
seat (some planes have designated seating, but not
all). Getting onto the isle chair can be quite a task,
especially if you are a big guy like I am (6'2 250lbs).
Transfering from the isle chair and over the metal armrest of
the chair is not as cumbersome as you'd think.
Getting out is a little harder, but certainly not
impossible if your arms are ok.<br
worried about the isle chair, just ask them if there are
any extra seats in FIRST CLASS (wait until you are
shown the isle chair, it has a better effect). The cool
thing is that you can transfer into a first class seat
from your wheelchair (the isle is wide enough), and on
many planes the first class armrests go up so you
don't have to straddle it when you transfer. It's WAY
easier on them so they tend to love the idea, and first
class is almost (almost) never full.<br
coach maybe 3 times out of 20 flights, but always have
bought a coach ticket. The downside is that if you are
not flying alone the person with you may have to sit
in coach. I've only flown once with someone and they
didn't get to sit in fist class, but it was nearly full,
so that may be why (then again maybe not). The
airlines that I have flown using this technique are United
and American. <br
someone!<br
i was there joe, you moderated me for speaking my mind and not agreeing with you. no one here - or anywhere - needs your heavy handed moderation for having an opinion. be gone.
dave
In a message dated 8/12/2004 2:11:50 PM US Mountain Standard Time, chris1h23@... writes:
This group is one of the most active as far as support and understand
the needs of compassion and intimacy..We have over 1400 members and
get on average 500 messages per month..We try to keep to the main
subject and keep the idle chat down like most other groups.
Intimacy is not
just about sex alone...Sex is easy to find but Intimacy is much harder
to find..Your welcome to join but you need to have information on your
profile to join...So if your disabled and a person that really cares
about the disabled your welcome to join,Its not for people that see us
as just a fetish..Were human being and should be treated that way...
This group is one of the most active as far as support and understand
the needs of compassion and intimacy..We have over 1400 members and
get on average 500 messages per month..We try to keep to the main
subject and keep the idle chat down like most other groups.
Intimacy is not
just about sex alone...Sex is easy to find but Intimacy is much harder
to find..Your welcome to join but you need to have information on your
profile to join...So if your disabled and a person that really cares
about the disabled your welcome to join,Its not for people that see us
as just a fetish..Were human being and should be treated that way...
I was injured and went to rehab away from home so when I came home I didn't
have a docter familiar with sci issues yet. About a week after being home I
started getting tremendous burning pains in my feet...they hadn't warned me
about central pain in rehab. I ended up taking like 2 trips to the emergency
room both times the doctors kinda scratched their heads looked at me like i
was crazy for saying I had pain where i didn't have sensation. Both times
they got me loaded on morphine...the pain was still there but I didn't care.
after the 2nd time I got in touch with the Dr. at my rehab and he prescribed
nerontin. Some people it helps quite a bit but for me the amount of good it
did wasn't worth the side affects. I had been looking into alternative
therapies and decided to try acupuncture for me that seemed to be the
ticket. It keeps my pain and spasticity at levels I can live with. I'm off
all my meds now and that helps with everything else including my BP.
Acupuncture doesn't work for everyone but it did for me. I'm on workers comp
as well and thought they might have a problem with it especially since I'm
using it as maintaince now but they've had no problem at all. There are lots
of avenues to explore and nerontin is probably the main treatment right now.
Pain sucks I think if I had my choice between walking again but still having
pain or being in this chair painfree I'd take the chair! Explore all the
options out there! I have a website "SCI Info Exchange" that touches on pain
and alternative therapies with lots of links to more information the url is
www.msouza.net.............good luck
<html
>From: "Rick" <manetopics2000@...>
I was wondering if any of you can share with me anything about
relieving neurological pain. I was injured in May of 2002 and I am a
c-4 quadriplegic. I am getting and have been getting a lot of return
in feeling on my left side. Now it is getting to the point to where
it is extremely painful and sometimes almost unbearable. My doctor
which is a worker's compensation doctor is an absolute stick in the
mud. I'm not sure if there is anything he can give me for this pain
or not, but he is very unsympathetic and has poor bedside manner. If
anyone has experienced the same problems I am could you please share
with me your experiences. What can I do about this problem?
Sometimes it so intense that I'm losing sleep two and three nights in
a row. I appreciate your input. Thank you very much. Rick
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What will they do next? read on:
Welcome Shannon.
Hello folks
I ran across some information that could change you life.The sun
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hi everyone, my name is Shannon, I'm 22 years old
and I've been a c3-4 complete quad since I was 13
years old. I am hoping that I can meet other high level
quads on here, if that's you please e-mail me at
RollingGrl@...
Know what you all mean about seating--in most new
facilities they provide companion seatng but in some of the
older venues the w/c's have to sit by themselves in a
separate section--I hate that, want to be able to whisper
to my companion and so forth--and yes boy do I ever
get tired of seeing people's backs!!--of course it's
not backs we mean really, it's tired of seeing
peoples butts, right?? lol That's one of the reasons I
came to the net in the first place, to find people who
were as tired of looking at people's behinds as I was,
and I have found them--lol You all are wonderful
people--Hi Shannon, welcome to the club.<br
Betty
Tracey, get his docs involved. He needs help NOW!
Bob
mudtown1 <mudtown1@...
i thank you for giving me your thoughts and ideas, but he also has
trimatic brain injury not just a spinal cord injury. he is on all
kinds of meds to help with his memory loss and basil bleed that he
got from his accident. so i really don't know what other kind of
damage somking pot is gonna do.i don't want to get his dr's involved
cause he is in this program progressive health group thats he goes to
every day for speech therphy and pt and other things that help with
the brain. they might kick him out of the program OR they might try
to get the help that i really think he needs. don't get me wrong when
i was younger i was no angel either, but i did'nt have a brain
injury! whens he is smoking sometime he forgets to cath him self or
take his meds. forgets to call his daughters. its not just the spi
that has him down, it's life ingeneral.
thanks
tracey
Hi Kathy,you are correct about the seating being
good.This is only my second time to go to a function.First
was last summer to a concert at our State Fair,got
along great there too.I have read some horror stories
of concerts and bad seats,like way in the back and
then people standing so they couldn't see.I guess i
was a little nervous going so far from home and not
knowing what to exspect there as far as parking and
things like that.Same way about me flying,haven't tried
that yet either,but probably won't be for a while
anyways with the bad farming year.I would love to go to
Vegas to the Rodeo again someday.I have read that Vegas
is really accessable,should be with all the new
Hotels and Casinos.Have a great day,Randy
i thank you for giving me your thoughts and ideas, but he also has
trimatic brain injury not just a spinal cord injury. he is on all
kinds of meds to help with his memory loss and basil bleed that he
got from his accident. so i really don't know what other kind of
damage somking pot is gonna do.i don't want to get his dr's involved
cause he is in this program progressive health group thats he goes to
every day for speech therphy and pt and other things that help with
the brain. they might kick him out of the program OR they might try
to get the help that i really think he needs. don't get me wrong when
i was younger i was no angel either, but i did'nt have a brain
injury! whens he is smoking sometime he forgets to cath him self or
take his meds. forgets to call his daughters. its not just the spi
that has him down, it's life ingeneral.
thanks
tracey
Randy, One thing I have learned in the past five
years is that when you attend major funtions like that
in public venues, the handicap seating is usually
very good. The handicap seating at the concert
facilities in Raleigh are front row!!Most sporting events
are also the same. Here in NC you can generally pay
for the lowest cost seats and get the best in the
place. My friends invite my to quite a few events
(sometimes even pay me way) in order to get the good seats.
For certain events you are sometimes limited to how
many guests can sit with you though. Just one little
perk to the chair. :-) <br
Howdy Everyone,Race went well,had great seats
real easy to get into ,had seats for my buddies right
with me,was a great time.Boy was it crowded,your right
about trying to find me on TV,i was waving my red shirt
LOL.My John Deere #97 car crashed early on,Darn
!!!.Never really met any ohter Wheelers,saw quite a few
though.One guy a few seats down had Polio,and another guy on
down had been burned bad i was told and couldn't walk
well i was told.Oh Dale Jarrett won by a 1/4 mile at
least,he had a big lead on the rest,Jeff Gorden got 4th
place i think,he sure gets boo- dddd at a lot,didn't
care for that,if you don't like him don't say it is my
oppinion.I like them all.Well thin that covers all
there,would recommend it too anyone as far accessability
goes,they had things worked out great there.Later Racing
Randy
Yea its going to hurt resluting in lung cancer and
other smoking related diseases. Tell him to be a
man... step up his game and make an effort to live.
Weed allows to to live in a world of illusion. You
only temporarily escape reality. Honestly, weed is
not that bad what is bad is when you make it a
lifestyle. Instead of smoking a whole "joint" or
"blunt" only take like 3-5 hits and clip it. Get ypur
mind right. Everything in moderation. It is not going
to be cool when it takes you to your death bed. Tell
him to be a man and confront his problems face up and
do not try to run from them!!!
Tell him to try and only take a few hits don't over do
it. When you get a horrible disease do not a say "
God why"... You reap what you sow. Life is all about
decisions. You choose it remember you have to deal
with the consequences.
Some of you heard me ask about this in the chat
on Friday night, I am wondering has anyone seen,
used, heard of the hand controls that you install
yourself. They can be "popped" into any vehicle within a
few minutes. The only company who installs permanant
controls around here is such a rip off I am considering
the others. I have seen them in the magazines and on
different websites. They generally cost about $300.00, any
feedback is welcome.<br
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let him smoke on what is it going to hurt. it might help [INLINE]
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Hello everyone,<br
wonderful time in chat and glas so many could come. Did
miss several of you. sorry you couldnt come and say
Hi. Hopefully soon will see you . <br
will see you all soon.. Take care, same time , same
stations, next week. Be there or be square. ;-) .;-)
<br
Hi Randy,<br
the race went great for you? I watched some of it on
TV today. I was wondering was that you in the middle
section waving that purple harley shirt around?:-) I
couldnt believe the people, they said all 300,000 seats
were full. WOW looking for you was like trying to find
a needle in a hay stake. LOL <br
had a wonderful time and look forward to hearing all
about it. ;-) Who won by the way? I didnt get to see
the finish. Did you meet other wheelchair users there
by chance? Was it a good section you got to sit in?
Was the place accessible, like good,fair,poor ? Just
wondering.<br
care........................<br
Hello James,<br
and know you are alive and well. Was worried about
you. Use to visit with you now and then in New
Mobility. Got your addy to this here site and joined right
away. Thank you for making up this site,for all of us
to enjoy. Great bunch of people around here and
growing everyday.<br
having trouble getting on in here. I hope you will be
able to access this area more often soon.
<br
to see you again soon.. Were trying to have a chat
on Firday nights at 9pm EST. So far most of the
Firdays its been a good turn out. Its wonderful being
able to chat and get to know others in the same boat.
Hope some time you will be able to stop on by and join
in.. So wonderful you got to stop by. Take
Care.<br
HELLO,
I WOULD LIKE TO GET SOME INFO ON A PROBLEM THAT I AM HAVING WITH MY
BROTHER THAT HAS SPI AND TBI. HE'S BEEN IN CHAIR FOR 18 MONTHS NOW.
HIS WIFE LEFT HIM. SHE ALSO LEFT HIM IN A NURSING HOME, HE 32 YEARS
OLD. MY HUSBAND AND I BROUGHT HIM TO OUR HOUSE TO LIFE THE LIFE THAT
HE DESIRVES. BUT IN THE PAST FEW WEEKS HE HAS BEEN GOING OUT AND
TAKING LONG RIDES IN HIS CHAIR. WHEN HE COMES HOME HE IS STONED. I
HAVE FOUND OVER 300.00 WORTH OF POT ON HIM. HE IS ADDICATED AND WHEN
WE TALK TO HIM ABOUT IT THATS ALL HE CARES ABOUT POT, POT HE ESCAPES
REALTIY WHILE HE IS HIGH. BUT I HAVE A 5 YEAR OLD DAUGHTER AND SHE
ALL THE TIME ASKES WHATS WRONG WITH HIM, OR WHEN HE COMES OUT HE
FALLS ASLEEP AT THE TABLE, CAN'T FUNCTION FOR HIM SELF. I DON'T KNOW
WEATHER TO BLOW THE WHISTLE AND GET HIM HELP!! IN THE PAST YES HE DID
SMOKE POT EVERY DAY, THAT PART OF THE REASON HE HAD AN ACCIDENT ON
HIS 4-WHEELER AND IS THE WAY HE IS NOW...
CAN ANYONE GIVE ME SOME ADVISE, WE NEED HELP BUT I KNOW KNOW HOW TO
DO THIS WITH OUT HURTING HIM AND MORE, HE SAYS THIS IS THE ONLY THING
THAT HELPS HIM GET THREW THE DAY AND ALL HE HAS LEFT IN LIFE..
THANK YOU
MUDTOWN1
So glad to see you on. Everyone was worried about
you and wondered why you didn't post any messages. We
got a nice gentle rain today and it was steamy late
afternoon but this evening it is actually cool. What a
relief from the heat. Do any of you have streching
exercises and range of motion every day? Sometimes it seems
they are a drag and don't want to take the time to do
them when we are in a hurry to get up and get going
but have faithfully trudged throught them. This has
seemed to keep her from having drop foot and her legs
getting mishapened. I guess that is they way I can put
it.. I'm not to good with the correct terms at times.
Wonder how the rain affected the races..Missed Chat as I
had company come and then my puter acted up and the
electric went off. Hope to catch you all again...Dorla
Thanks, you did a good thing. Hope all is well with you.<br
Darn....did i miss Friday night again? Its been so hectic having family in from
out of town...I can't wait to get back to the norm...well....hope to chat with
ya all soon.....bye....Donna
I've moved and it's harder for me to get online now. I'm glad to see that all
of you have joined and are meeting new people threw this site. I hope everyone
is well, and I wish you all the best.
In a message dated 7/17/2004 1:27:26 PM US Mountain Standard Time, mkanayo2020@... writes:
so i don't get any help huh, figures. this only strengthens the
opinion i have always had about this group and a few others like
this based on one major underlying factor which of course i'm not
going to mention. Thats really sad. O well, i'll survive like i
always have no matter what. I wish this group the best and i'll have
nothing else to say buy .... see you on the other side.
bye.
what's your bitch crybaby? include your past post or leave quietly.
Cate, you know Jabberwocky was one of the first
poems I did, way back when in school. Still not sure of
the pronounciations of the words, even though Humpty
Dumpty gives strict explanations in "Through The Looking
Glass" lol Used to read that book to my fifth graders
when I taught school--all the best to you...Randy,
enjoy the race tomorrow. Times past Ed and his buddies
used to go to the Indy Time Trials in May every
year--but that was a looonnng time ago and he ain't up to
that pace now :>)...Betty
You might try looking for the Independent Living Resource Center in
your area. I doubt they will help financially but the could get you
off in the right direction
I hope you have a great time tomorrow at the
race. I will cross my fingers it doesn't rain, at least
there in Indy...LOL Sounds like you will have a full
day. I myself plan on sleeping til I wake up, or chuck
wakes me up ;) <br
tonight but have to say I might just go to bed and start
that sleep early. If I miss everyone have a great time
chatting and will be there one of these days. <br
care and stay well<br
so i don't get any help huh, figures. this only strengthens the
opinion i have always had about this group and a few others like
this based on one major underlying factor which of course i'm not
going to mention. Thats really sad. O well, i'll survive like i
always have no matter what. I wish this group the best and i'll have
nothing else to say buy .... see you on the other side.
bye.
Hello,
I am trying to find some of the folks I went to rehab with, looking
for anyone who went to rehab at Roosevelt Rehab Center in Warm
Springs GA. I was there in fall of 1989.
David
Howdy everyone,tommorow is my big race day at the
Indianapolis for the Brickyard 400.It starts at noon,but they
want me there to get my parking spot at 8am,it's a 3-4
hour drive for me there.Me and my friends are trying
to decide on what time to leave.We heard it is
really a traffic jam even at 8am in the morning.I treid
to get a room a long time ago ,but they were booked
up.Were thinking of still going out tonite and sleeping
in the truck somewhere nearby.Beat getting up at 3am
to go i guess,decisions decisions?.Now watch it rain
there tommorow and cancel the race,thats my luck.I have
never been to a Nascar Race before,sounds fun i
think.Bad thing is i don't have a favorite driver picked
out yet.Might go with Chad Little since he drives the
John Deere car,can't go with Earnhart or Jeff Gordon,i
would get in trouble then.Well i will try to make it to
Chat tonite,not going out tonite,need my beauty
rest,lots of it LOL.See y'all tonite,Randy
Hi Everyone,
I have a sort of unusual request, but I figure it can't hurt to ask and see if any ideas come to mind.
About 4 years abo I had a simple operation to clean up a herniated disc. Within 5 weeks massive infection had spread internally and they had to dig out a big area and leave it to close on its own. Then, 4 mos later, just after it closed, my legs started giving out. Turned out infection set into the bone, Once again they went in, removed the infected bone.
The result of all of this was to leave a tremendous amount of scar tissue and the arachnoid layer around my cord had been compromised. Now it is drying out as the csf is leaking. The scar tissue keeps growing and is literally choking off the rootlets. The outcome is inevitable. On occasion I have lost control of my bladder and my legs quit if I don't use my chair enough. I have been told that if they cut out the scar tissue it will grow back twice as bad. My Dr has me on palliative care as he says there is nothing they can do. No one will touch me due to the history of osteomyelitis (won't even tie my tubes).
So....right now I can't get any answers or guidance. Maybe there is a doc out there that specialises in this stuff, or someone else who is in a similar situation. I will be 41 in December and all of this happened when I was 36-37. I was pretty athletic and in good shape, now have gained weight, developed hypothyroidism, allergies to several antibiotics and just had like 20 teeth pulled- they all went at the same time. Oh, I also have at least 1 herniated disc and on one level the disc is gone entirely and below that half of it is gone.
Does anyone have any ideas or know any Dr's that specialise in difficult cases? I appreciate all suggestions.
Thanks,
Di in hot and steamy Fl
WOW!!! I was dumbfounded by the responses. There
are so many supportive and positive people in this
club that it feels so much like home. Thank you very
much for all of the suggestions.<br
right. I can use the computer well. I have some use of
my right hand but at the moment it has three huge
blisters. I must have burnt my fingers somewhere. It
doesn't hurt. The hand is numb. I am intrigued by the
burns and would love to know how I got them though. At
least there's no pain. I get a pension and I am
considered a self-funded retiree. Our government does not
give me anything. I do not live in USA. <br
be nice to be able to supplement my pension with any
additional income but I am really just looking for things to
do to keep boredom at bay. My speech is ok and I do
not need a respirator yet.<br
voluntary work. We decided at vocational counselling that
home-base voluntary work or short-term study would be the
way to go for me. I have been practicing reading a
book into a tape recorder. I speak too fast, so I need
to practice reading slowly. There are so many issues
concerning access and liability that doing volunteer work at
schools or anywhere else for that matter is like a mine
field. I also have a dummy portfolio of shares, not
doing too badly, and that is interesting. I do not feel
that confident though to invest real money in the
stock market. Thank you again for all of the
ideas.<br
accomplishment I think is that I have conquered my fear of life.
I now believe that life is worth living and
hopefully this belief will help create that fact. I think
you should get your poetry published. They are
good.<br
and don't want to go back there. I finished my BA and
did a Dip Ed to qualify for teaching I don't think I
have the commitment or patience to see a Master's
through. Mum always says "Do it well or not at all." It
would have to be- not at all- for a Master's. I have
looked into taking a few classes in "lifestyle" courses,
so that's a possibility. I used to love to watch
tennis when Stefan Edberg was still playing. Pete
Sampras doesn't do anything for me. Kathy, I'm sure
there's a list of conversation starters between the
able-bodied and the physically challenged being circulated
out there and sex must rate high on that
list.<br
be a ballet dancer. <br
trying to find something that I am interested in and
could be passionate about. Randy, post some of your
drawings and stay away from those dreaded donorcycles.
Noreen, love that idea. I'll wait and hope for things to
fall in place. I'll just have to be patient.
<br
"Jabberwocky". I used to memorize Shakespeare's sonnets and
being the good Catholic that I am, I have memorized the
Our Father and Hail Mary Prayers in Spanish. That
certainly stimulated the brain cells. But you are right, it
is enjoyable.<br
tomorrow. It<br
promised to take him out for lunch.<br
again to everyone.<br
HI Cate, <br
your dilemma. I thank God every day for the use of my
hands. However, it seems you use the computer well, and
at your level your speech is probably good?
Respiratory? <br
you are unable to collect a paycheck and still obtain
benefits? If so, how about volunteer work? You could phone
for donations Blood Banks, or any charity. Read to
the blind. Maybe even read the news right off the
net. Phonics to kindergartners? We all know kids need
to be exposed to "people like us". (Ha!)<br
headset phone, and voice activated computer, I bet there
are alot of things like that. here in Phx we have a
volunteer agency tha