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Hi everyone, Hi Randy & Cindie, & Karen, & Corie,
& Nell, & Murat, & Donna, & Carolina--I sure hope I
didn't leave anyone out--if I did please hit me over the
head with something, anything you like! :>) Ed & I
spent a few days on Mackinac Island near the UP of
Michigan--what a beautiful place. There are no cars allowed on
the island so virtually every road is w/c accessible,
plus there's an 8 mile bike trail--M185--which is
billed as the only highway in the US never to have an
auto crash--course having only horses for
transportation presents certain OTHER problems if you know what
I mean--lol--good to be back and hope to chat with
you all tonight...Betty

Ok, I had spasms so bad it would take me an hour
to cath and completely wear me out. I felt like the
doughnut man except I was always getting ready to cath or
just finishing. In September 95 I went in to have the
Baclofen injection and at first we didn't think it worked,
then I got up in my chair and the results were
amazing!!!!!In November, we had some problems because with my
activity level, I am extremely active, the cathetor to my
spine got twisted and I wasn't getting the meds.
Several people suggested I go back to the oral and I
absolutely refused. The pump has been a gift from God for
me. I have virtually no spasms unless I hurt myself
or have a UTI. I would recommend it to anyone and
everyone who has difficulties with spasms. Hope this helps
someone!<br

Hi Corie and all,i too have pain bad,i take 1
Ultrum and 2 Advils a day,sometimes more.A lot of my
pain seems to come from my back or belly spasms.I need
to get the spasms taken care of,just affraid of
another operation to have the pump installed,that seems
to be my last hope.I haven't tried the Baclofen
injection yet,so don't even know that the pump will work or
not.Karen is right about keeping the mind busy,but
sometimes that is not enough,only real fast cure i have
found is a couple stiff drinks,mellows everything
out.Well good luck and maybe see everyone tonite,It's
FRIDAY !!!!!,later,Randy

Hi Carolina,were about the same distance from our
dealers,i figured you lived near the big city.Sounds like
we both had the same ordeal with our venders.The one
i bought my fold up chair from was ok,but not much
on service or having loaners.Right now i'm set for a
couple yrs before needing a new chair.But will keep a
eye open for a good dealer.You are correct about
worse than a car,i'm still kind of new to this new
life.I like the bigger casters myself,seems you don't
have to pop so many wheelys to get over things with
them.They say the frog legs help with obstacles even more.I
doubt i would ever go smaller than a 5 inch caster
now.Our tractors that have taller tires ride much better
than the ones with smaller tires,so using my farming
background to help my choosing.the ETX sounds good so
far,I'm going to have to dig my chair info out on the
Triumph chair,don't recall what it looks like.Well have a
great day,Randy

Hi, I'm new to this group and have done a couple of searches on the
subject of my query but to no avail so i am hoping someone will be
able to help me.
I was in a serious RTA at the beginning of Sep'03 in Spain. My worst
injury was a burst fracture of L5 - the whole L5 vertebra completely
disintegrated and left a huge gap in my spine. I had posterior
fixation surgery in Spain before returning to the UK ten days after
the accident.
Upon arrival in the UK I had to wait 3 weeks in a local hospital
before being admitted to the Spinal Injury Unit at Stanmore for two
further operations.
I suffered spinal cord nerve compression from fragments of bone that
wedged themselves in the spinal canal and started adhering to the
dura (some fragments of bone had to be chipped off with a knife).
However i have been told that the nerves are intact.
I have no feeling in my feet (and the L5 dermatome) and have
completely lost the plantarflexor (tip toe movement) in both feet and
i must use sticks to aid my balance.
My questions are:
1) Is there anything i can do to aid the recovery of the
plantarflexor movement?
2) I believe the chances of my recovery are reduced due to the delay
in operating in the UK, how much will this affect my recovery in
terms of speed and extent of recovery.
3) If the delay is responsible for a reduced recovery, what are my
options legally?
I appreciate the unusual nature of the questions but hope that
someone can shed some light on them for me. Any advice is
appreciated.
Thank you, Matt

Yes, my husband Chuck has a problem with the
chronic pain too. It is the worst part of all this. He
had so many injuries along with the SCI. It has been
a long road but it does seem to be getting better.
We have tried all sorts of things. But I guess the
docs are right and it just takes time. I hate that
word...TIME. If the pain would just stop I think I would see
Chuck doing a whole lot more. Keeping your mind busy
does help. I know that Chuck says he forgets a bit
about it when he is at work cause he is too busy to
think about it...LOL<br
suggestions for it. But maybe someone else might.<br
a great weekend and try to make the
chat<br

hi thomas. thanks for your reply. If you are interest i can send
you the questions. they are just interview questions like when are
you diagnose, ur signs and symptoms, what diagnostic tests they did
on you, what were ur emotion like when you were diagnose,etc. i use
the interview questions to write a response to ur situation. Again
if ur interested please let me know.

Hi everyone,<br
so delighted to know her. I'm a 28 year old C5-6
quad, complete and i sustain a SCI since 1988. Just
like our new member, Corie, my major is Psychology;
though I decided not to work in that field. <br
way, do we have any other members from across the
Atlantic or is it just me? To answer Cindiers' question,
Istanbul is 7 hours ahead of NY time; so I won't be able
to attend the chat on Friday night. Nevertheless,
I'm happy to join the club.<br

what r the several questions ?

hi phil. My name is Na. I am working on an empathy project about
spinal cord injury. I need to interview someone with the disease.
I was wondering if I can interview you. if you are interested
please let me know. My email is whitecallalilies@...
Thank you!

Hi my name is Na and I am a level I nursing student. I am currently
working on empathy project about spinal cord injury. I need to
interview someone with the disease, but I can't seem to find
anyone. Can someone who have the disease before help me out. I
have several questions that I need to ask you guys. Please let me
know if you are interested. I would really appreciate it. Please
email me at whitecallalilies@... if you are interest or have
any questions. Thank you.

The casters on this are 4 inches, and that's all
I've ever tried. I should try the larger ones before I
decide. As far as not having a rep close by, I am 60
miles from Raleigh, and 55 from both Durham and Rocky
Mount. My rep is in Durham and comes to me or has things
delivered. I am taking alot more time and effort choosing my
chair than I ever have with a car. You're in the chair
a whole lot more. How many people do you know that
spend every moment, from the minute they get out of bed
until the minute they go to sleep at night in a
car?!The rep I had coming out of rehab was a piece of work
too, so I found one that is. They are alot like car
dealers and need to compete. Work them against each
other, call a new one and imply that you've had delivery
or loaners in the past...you'll see, they'll try a
lot harder to accomodate YOU.<br
Quickie Triumph and I've had it for 2 years. I also have
a Action Pro-T. The XTR is actually seems to be
easier to break down and get into the car. It's lighter
for one thing. <br
tell alot. I'll keep you all updated.

Hi Phil,
Neorontin worked wonders for a friend of mine with the same problems.
Call your Dr.'s nurse and request this medicine.
good Luck!

Hi everyone,<br
interested in this. <br
Research bills passed. These bills use a portion of monies
collected from traffic fines to fund research. NY has one
called the Richter bill and NJ just passed the SCI
Research bill, but we're still waiting for the Governor to
sign it. Anyway, I have some contacts for anyone
interested in helping out in other states. All that was
required of me was writing letters to state legislators.
I've noticed there's a few Ohio people in this group
so I'll post those contacts. I also have addresses
for CO, SC, DE, MD, MN, MO, OR, NJ, RI, SD, & TN. Let
me know if anyone wants the information for one of
these states.<br
co-chair<br
45601<br
Massieville Rd<br
45601<br
about these bill go to
<a href=http://www.spinewire.com target=new
click on the news section.<br
Noreen (nell)

I was diagnosed with 2 bulging disks in my C5-C6 / C6-C7 virtabre.
I am experiencing tremendous pain on my spine down by the shoulder
blade of my right arm.
I have a pinched nerve which is causing my right hand and arm to numb
up. I am on pain killers but can still feel the pain. I have been
icing it.
DOES ANYONE HAVE A REMEDY THAT THEY CAN SHARE ON EASING THIS PAIN
UNTIL I GO BACK TO MY DR.
Nothing seems to be relieving the pain except for laying down.
HELP!

The Chair sounds great,how big of casters do you
have on your loaner and your current chair?Wahty is
your current chair?.I'm running 6 in on the A-4, and
8x2's on my fold up MVP.I like the big castters best
for outside.How hard is the XTR to transfer out
of?,and also to tear down?.Yep i'm full of questions.<br
My rep they gave me in Rehab is a joke,he has lied
too me,gave me wrong items,basically the run around
and i will never deal with him again.Locally i don't
have any dealers,closest one is in the big city 50
miles away.I could order things through a drug
store,but no loaners or anything.<br
Frog legs out before,i got into a problem of not
knowing if i could still run 6 inch casters without
raising the front end up 2 inches.I am already to tall in
front to get under tables easy.Again a local dealer
would be great.<br
new chair,about like getting a new car,actually this
is true as much as a new chair costs,later,Randy

Dear Sir,
I am currently trading as Consequential Ideas, producing and
designing T-Shirts and greeting cards aimed at Wheelchair users,
advertising this is an attractive new website, which I would ask you
to browse.
I am also writing as I am interested in advertising this site within
your publication/website and would be grateful if you could forward
details of this.
I am keen to associate and forge links between my business and with
other companies that service wheelchair users at the address below.
If you would like to peruse the site and contact myself, I would be
grateful for your response.
There is a link to my email address on the site, so if you have any
questions/queries or suggestions please don't hesitate to contact
me.
www.consequential-ideas.co.uk
I look forward to hearing from you,
Yours Sincerely
Mr S. Challenger

Hi there I can relate with you, I am a T4 and T5. I am a single
mother of 3 ages 4,8,11 I have my hands full but I enjoy every bit of
it. It is hard to have to sit when I could be doing something. I
don't have any help accept for my godscent boyfriend he is
wonderful. He has a 15 year old boy who lives with us and we manage
sometimes it gets tough but our relationship is so strong that
nothing can stop us. My children are wonderful they have taken on so
much responsibility but yet they still are children and they still do
many things even though I am in a chair. I am planning on getting my
drivers license this month and I am excited it will open up a whole
new world for me. As for family being around they all live out of
state but they are there for me as much as they can be. I know one
thing you have to do is keep a good attitude about things. I know it
can be depressing sometimes and it is okay to cry because I do but it
is also to be mad. I don't take any prescriptions other than my
warafin. I do take herbs though. I am a firm believer in vitamins
and herbal remedies. I know recently I have taken this vitamin
called Luminex it is from a company called Melaleuca. It has done
wonders for my emotional well being, even my boyfriend commented on
how happy I have been lately and it is nice to see me laugh again. I
am not saying vitamins are for everybody but I do believe they help.
I would rather be taken herbal stuff then medicated stuff to help me
through every day life. If you would like to chat I am here to

Ok everyone, they delivered the loaner today and
I am absolutely thrilled!!!This is like driving a
Porsche, it is extremely comfortable and smoooooooth.I
have 66 acres and I am in the yard all the time. You
all know how difficult it can be on unlevel surfaces
and this STILL is smooth. Randy, I think I'm going to
have them put the Frogs legs on the front casters as
well! <br
the loaner, I would think any distributer could do
this. Being that this decision has to last you for many
years, if you can try them this can leave a consumer
very uncomfortable. It's not as cheap as a pair of
uncomfortable shoes?! Ask your reps in the area or write to the
company direct. My rep is very helpful and told me any
chair I wanted to try he'd get for me.<br
is only day one, I'll keep you all posted. Hope to
talk with you all tomorrow night.<br

Hi Erica,
It's good to meet you, although obviously it would've been nicer to meet on better ways! I have to say though, I love your attitude!
I'm Sarah aka Smurf and I'm 20 from the UK. I''ve got damage starting at T6 but the worst of my damage is at L5 S1 which happened just over 2 years ago.
I'm sure you find great comfort in the group here, they are as mad as mad hatters but fantastic friends when your feeling low! To me they are like my "SCI family", and there are loads of different ages here so it's suitable for all which is another thing I love about it here!
Take care,
Love Smurf xxx

Hi there Erica and welcome to the group. I don't post much but read
your post and am just angry enough at my life to write. i get so angry
at the things I'm unable to do, especially because the person in my
life has to take up so much of the slack. It's Spring and there's a
whole list of chores to do when you own a house. The lawn is almost a
foot high, the house is a wreck and I can't do much of anything about
it. I always get so angry at my friends at times like this. Neither I
nor my partner have family who live close by or give a damn for that
matter. our friends are our family, and they just don't seem to get
that we need help. I have asked and get a non-committal "sure anytime"
. And others are so busy they refuse to even respond when we suggest
we might need help. Our biggest help is a person who volunteers once a
week to help me. She came to me through a program called Volunteers
express and is a godsend. We've become very close friends. She comes
every week and I think she really gets how hard it is for us as a
couple.
Anyway, I read your post and wonder how on earth you manage? Is your
injury incomplete? I can't imagine a complete quad at level c-3
managing with two kids on her own. I would love to hear more about you
and your kids, rehab etc... You have a tough road to hoe, know that
there are others here who have been there and done that, and we can
lend a listening ear and perhaps a word of wisdom now and then.
Thanks too for the poem.
peaceandlovingkindness,
River
www.hodohio.com

My name is Erica, I am 22 and a mother of 2 small children. I was in
a single-car accident in July of 2003. In the wreck I fractured C-2
and C-3, and broke C-4 thru C-6, and C-7 burst. I always joke about
it and say that if I was gonna do it then I might as well have done
it right. But truthfully I have had a real hard time dealing with
it. Adjusting from being a Restaurant Manager working 55 hrs a week
and a self-sufficient single mom to suddenly having to depend on
everyone else and losing important ground with my boys has been a
real strain on my feelings of self-worth. I can not tell you how
good it feels to have a group like this to turn to, well I guess most
of you allready know huh.
I have pulled thru very well I think, but my recovery is far from
over. You see, I am not disabled, I am not handicapped, I am just
simply injured.
This poem has had very special meaning in my life and I would like to
share it with you all...
DONT QUIT
When things go wrong as they sometimes will,
When the road you"re trudging seems all uphill,
When the funds are low and the debts are high;
and you want to smile but you have to sigh,
When care is pressing you down a bit;
Rest if you must but dont you quit.
Success is failure turned inside out,
The silver tint on the clouds of doubt,
When you never can tell how close you are;
it may be near when it seems so far.
So stick to the fight when you're hardest hit,
It's when things seem worst that you must not quit.
God Bless You All, I look forward on talking more with you all.
Erica
mommeeeerica@...
mommeeeerica@...

Welcome to the group Carolina,from what i have
seen and read about the the XTR,it looks comfy,i kind
of like the idea of suspension.But as for actually
seeing one in person to try,can't help you any.I have
been thinking of adding Frog Legs to my Action A-4,but
would like to try them before buying.Like Karen says it
is hard to try things out specially after you get
out of rehab,and that wasn't the best for trying
things out.They would stick you in different chairs and
they would be set up completly wrong,and then not know
how to adjust them,they loved me there ,being a
farmer and having to figure the mechanics of everything
out.Good luck on your loaner and post back what you think
of it,Randy

Glad to have you aboard. Hope you enjoy it here.
<br
chair. My husband is a T-12 and we just got a Quickie
Competition model. He likes it alot. Really pretty light and
moves around real well. We too looked at the XTR but
afraid we bought this one before they had that one out.
What exactly are you looking for in a chair?
Lightness, ease of use? Buying a chair is the hardest thing
in the world. There isn't anywhere you can go to try
them for a while. So the one you get you are stuck
with. If they can get you a loaner that would be great.
At least that way you can try it out first. Wish we
had aplace like that here. Enough running at the
fingers...LOL<br
have started trying to get together in the chatroom
every friday at about 9 eastern time. Hope you can make
it!!!<br

Hi everyone! I am also new, I am a T-8 para and
have been since 1/95. I hope to get to know everyone.
I am interested in any feedback you all have about
the Quickie XTR. I am shopping around for a new chair
and I looking heavily at this one. They are going to
try and get a loaner so I can try it out. Look
forward to your replies.

Hi Corie,love the nickname,pretty cool.Glad you
decided to check it out here,kind of slow this week,but
it picks up,then slows down.Yesterday the 20th was
my 2 yr annivarsy,just another day.I did do some
searching on here and found my accident report off of the
news archives from the county i wrecked in,now that
was weird reading that.Well welcome to the group and
ask any questions you wnat,someone will probably have
a answer,take care Randy

HI!!! And welcome to our group. You will like it
here. My name is Karen....DAH...and my husband Chuck is
a T-12 complete. People here are really nice and
helpful. We have a chat going on Friday night at 9 eastern
time. It would be great if you could make it. But be
patient. Some of us are a bit late getting there but we
will be there. <br
ask. We will do our best to help you. What kind of
hobbies do you have? Hope to talk to you
soon.<br

Hi everyone!<br
me about this list. I'm a C5, incomplete quad. I
have been injured for 6 year..anniveary was Sunday
actually. I live in northern CA. I'm 28. I gradated with my
BA last April & am starting my Masters degree in
Psychology in January.<br
everyknow!<br

Hello Murat,<br
on in tonight and see you have joined the area. Was
a surprised to say the least. I would of been
telling you about this place but guess you beat me to it.
Either way so happy you are here.:-) <br
like it here I'm sure, alot of wonderful people in
here and the site is growing fast. We also have a chat
on this Firday night at 9pm Eastern Standard time.
That would be the time for like New York,Ohio,PA. I
dont know your time zone difference from ours.
Hopefully it wont be to late for you or too early. You will
have to tell me the time difference if you would be so
kind?:-)<br
you. Take Care.... Hope life is treating you kind and
love and happiness are with you!!!<br
Wheeling!!! Cindiers

My name is Luis. We all need to be one voice in this
fight to get back upright again and in any form of way

hello everyone. just thought i'd say hi. i was looking thru the many
profiles and things from many of us.
i am interested in hooking up with a male, disabled, wheelchair,
catheters, diapers, quad or para, ventilator, (i am perfectly able to
care for a ventilator), etc is perfectly fine. i am open to any
relationship from a friendship to romance (hopefully) and we can go
from there. contact me at the following email address:
boogermandude@..., NOT the one linked to this account. i have
tried to change it and it wont change yet.
i'd like to hear from some others soon.
i am having trouble emailing due to outdated addresses, etc.
we need to update the system with our email addresses and statistics
if we are ever going to hookup or chat with very many people.
many of the profiles have email addresses marked private or are not
current causing bounces.

Hello everyone,Funny Betty about the corn
police,i am hiding now lol.I'm all for meeting up with
everyone,think it would be great.Yep me and Chuck would be
exchanging Harley stories for hours.Nice picture Karen,and
why would we not be nice?.Is that your son in the
gown or what ever you call those things?.I also seen
we have some other new pics there now.Thanks for the
Garth compliment,now if i could just sing,i would have
it made.Well think i covered all the new posts,takes
too much time to reply to each post.Oh Betty have a
fun trip tommorow.Later,Randy

Ed and I are leaving tomorrow for a short trip to
Mackinac Island in northern Michigan, be back in a few
days...Randy, yes the corn police is on its way to arrest you
for not planting sweetcorn, better hide if you don't
want to be tortured! :&gt;) And yes Randy sooooo true,
the older you get the faster time goes--that keeps
getting truer and truer...Karen, Hope you and everyone
can make it next summer if this comes about. And yes
I have thought for a long time that a New Mobility
"reunion" at a different place each year would be a great
idea, Disney sounds perfect!!!--I should have been born
a Disney! lol...Betty

Just updated the photo Gallery. Figured it was
time to get a newer one on there...LOL Had a balst
looking at all the new ones. I forgot we had those. you
all look great. And Randy...you shouldn't have any
trouble getting a girl. I think you look like Garth
Brooks. She's out there. And you will find
her.<br

Cindie, don't know if you know this but we are
going out west in September, meeting up with two other
couples on a houseboat trip in Idaho, and we're planning
on meeting Larry and Linda on the way home. BUT--we
haven't checked out our route out there yet, seems to me
we would be going right past the Mall of America,
the freeway literally goes practically over it, and
I've already started hining to Ed to stop there, got
to eat somewhere, right?? We are leaving the day
after Labor Day I think so don't know how long it will
take us to get to Mall--how bout e-mailing me your
phone and if it's possible we can talk it through and
maybe meet, I would LOVE that!!...And Ed will be happy
to give Harley Rides next summer lol--I too would
like Joseph to come, I've already suggested twice that
he come out here and he says maybe, so we'll
see...Betty

thank you Luis, I will first thing monday morning. It is on my priority list. Your attachment didn't come through though. so ya know.

I am all for that trip to Ohio. That would be a
blast. And as you know Betty, I have family in Ohio and
Indiana. So I would just love it. We have to work on this
and get it going. Then maybe once a year we could try
and find a place we could all meet. Or every other
year. Have to leave time for the other trips we all
want to take. Maybe even one year we could all meet
here in Florida. Go to Disney. Bet we could get a
group rate!!! Something to think about. I was sad that
I couldn't get the time to meet with you when I was
up there this last June. But it was a whirlwind trip
for sure. Now I am excited. Can't wait to chat about
it more with you. I know it would be great for Chuck
to meet with Randy and they could talk. I think
talking to someone that understands is so important. OK,
enough ranting...LOL<br
chat this week and who knows maybe by then I can
figure out the mac so chuck can join. Everyone take care
and stay well<br

G;
1) check out the attachment
2) I have done research and heard that in some cases
people have used acupuncture to calm down their
burning sensations, look into it please.....

Boy Betty Ohio is so far away,don't know if i
could make that long of a trip LOL,heck were neighbors
compared to the rest of our western friends here and
NM.Seems all my friends are from the west,but there are
several east of me too.I would love to have a family
reunion someday and meet up with all of you,maybe we can
get NM to foot the traveling bill?Hey it was a
idea,LOL.One of these days i will make up to see you Betty and
Ed,that or we can all go to the boat someday and win our
first Million?Tired of corn already,hey buy it
anyway,support our fellow farmers,just kidding,i never get tired
of corn til late in the summer.I haven't had any
since that last i bought,still think it's a crime that
i'm a farmer and didn't plant any sweet corn.Well
tommorow is my 2 yr injury date,thinking i should throw a
party,haven't decided on what to do,actually it hard to believe
it has only been 2 yrs,but somedays it feels like
5.Seems the older i get,the faster time flys.Well let
y'all go,still no rain in Fayette county,Randy

OH BETTY,<br
forget I live in Minnesota 169 miles from the mall of
america. And I have never been there. And to top it off I
always wanted to meet you and Ed. Ohhhh now I'm sad for
sure. I just read your other post and saw those words.
boo hoo<br
come back into Minnesota, after I tell my buddy the
governor. You should call me and I will fly down there to
say Hi.Even if your plane is to be delayed somewhere.
Let me know ahead of time the layover time and I will
come on down to say Hi. I really mean that too.. Oh
and also Quadzilla from NM he lives on the outskirts
of minneapolis. Bet some other ones also do to. Dont
forget me now..;-( Dont think I could survive another
shock like that one again in my life. Ohhhhhh thats if
you are allowed to come to Minnesota again.. Hmmmmmm
I have a feeling thats a toss up. <br
soon Betty Boop. Take Care,now I will go and cry in my
beer.. ahhhhhhhhh<br

Hello Betty,<br
more time. It never fails, just when I'm just about
finished with my post. Something happens where I lose
every thing, it froze up that time. Grrrrrrrrrrrr So
I'm back.<br
invite. Sounds like a wonderful idea. I dont know if I
would be able to come, for sure. Mainly if I get to
Montana this next summer. I would of been out there a
couple of months at least. I miss the mountains. :-) I
have so many old friends who live there. As well as
all my new friends I've met online. Wish I had a
motor home then I'd travel all year. ;-)<br
to think about it and if I make it there I'd also
have to head on up after to visit Joseph eh in PA. And
then theres another two friends in Ohio and a sweetie
in NY. Whew wonder if I could take up truck driving,
so I can see everyone. :-) I do know I sure would
love to meet you and Ed. And all the new faces I have
met in this chat area. Wonderful for sure. <br
Thank you very much for inviting me also. I will think
about it and see what happens. okay <br
and hope to see you soon.<br
Cindiers<br
ride on his cool Hog? And he would say giggling his
head off, if I come maybe he would let me see the hog.
hehehehehehehe

Hello Donna,<br
mean there. LOL My brothers name is William, all his
young life he was Billy then Bill and now William. I
often call him Billy. giggling He will always be my big
brother Billy. ;-) <br
James. wont happen again. ;-) Oh by the way Billy's
middle name is James.. LOL And his son was James growing
up and now is 23 and says Jim. So I call him Jimmy
and he just crys, Auntie Cindie its Jim not Jimmy.
Only reason I call him that is because its cute and
then we bug eachother and play fight. ;-) Alot of fun
for sure.. <br
;-) Also wouldnt want Jim to run you over for calling
you that in chat. ;-) For Shame, your as bad as me.
LOL.<br
soon.<br

Speaking of meeting people I'd like to invite you
all here to central Ohio next summer too, been
thinking about it for weeks. What do you think?--there is
a great park near our house where I go all the
time, would be good to meet there. I'd like the New
Mobility people that don't post here to come too--it sure
would be great...Betty

My mother just got webb tv this week and
absolutely loves it, and it's also driving her crazy. I just
got off the phone with her and that's all we talked
about--she's discovering the world of computers, reminds me of
our first few days, such fond memories...lol...Karen,
yep just put on a shirt and ride ride ride, feels so
good. With Ed working nights the rides have been cut
down but we'll get out again. Sorry Chuck couldn't
make it on the screen, think we would like all the
nutz here?? :&gt;)...Randy, Yes I do know McGuffy
Lane, they play around here, a really good group. You
know we've had so much corn lately we're actually
getting tired of it--ain't I awful--how does one get
tired of good sweet corn¿...Nell, there's NOTHING wrong
with malls, as far as I'm concerned you can't have to
many!! :&gt;) Went to the Mall of America in May, now I
think I could live there!...Donna, glad I got to talk
with you and I will call your brother Jim. Sometimes
it's hard to get started I know...Take care, Betty

On June 6th, 2004 hundreds of people on a mission will converge upon
the World Financial Center Winter Garden in downtown Manhattan. They
are coming from many different places and from all walks of life.
Only, many of these people cannot walk because they have been
paralyzed with spinal cord injuries.
They are coming to "Rally for the Cure," an event to raise money for
spinal cord research. Christopher Reeve is scheduled to attend as
their honored "Hero of Hope," joined by other celebrities who believe
that although fate may have temporarily restrained those with spinal
cord injuries, science holds the key that will set them free.
Rally for the Cure is a grassroots event organized by those with
injuries, their family members, friends and supporters. Their first
group fundraiser was held in 1998 at the same location and raised 1.7
million dollars in a single evening, setting a new record. Today,
they have more members and a website (www.rallyforthecure.org), where
people can get detailed information about the event.
The money raised will go to The Spinal Cord Injury Project at Rutgers
University. This world-class research center, headed by Dr. Wise
Young, is focused on finding practical breakthroughs, and expediting
progress through collaboration with other research centers. It is
estimated that there are over 1,000,000 people in the world with
spinal cord injuries, 250,000 of them in the U.S., with over 11,000
new cases each year.
It is especially meaningful that this year's fundraiser is
returning
to the Winter Garden, which was almost destroyed in the September
11th attacks on the World Trade Center. The Winter Garden withstood
a terrible tragedy, was repaired with care and passionate commitment,
and now stands again in its original splendor. Those coming on June
6th believe that the same fate awaits people in wheelchairs.
EVENT DETAILS
Date:Sunday June 6, 2004, 5:30 to 9:30 pm (optional scientific update
1 to 4 pm - please see website for details)
Place:the Winter Garden, 220 Vesey Street, NYC
Tickets and event details available at www.rallyforthecure.org, or by
calling 732-445-6573.

Hi Wendy,
Thank you for your response....and to all of you who are tolerating
my venting process here.
What you describe is very similar to what my friend goes through with
her legs. I will pass on this information to her for sure. I agree
with you about the pain meds, I won't take them until I can't stand
the pain anymore. I don't want to get hooked and I physically feel
worse from them the next day. I hate feeling like its the worse
hangover of my life especially when I had no fun getting it! My
burning is worse in my head and I end up taking Ultram which knocks
me out and putting ice packs around my neck and top of head. One of
the strange things I find now is that I am allergic to just about
everything and Ultram is the only pain med I have been able to
tolorate. Things I could take preaccident I can't even touch now. We
have also gone through more than half of the list of antidepressants
so far and I'm allergic to them too.
I have tried an occular block accross the base of my skull and it
made things worse for almost 2 months. My last option now is a
similar block but this time going under the skull and I am really to
afraid of that.
I feel like I should seek another opinion since my docs have pretty
much given up. I see a doctor that is in a PMR group (Physical
Medicine & Rehabilitation) but just wonder if I shouldn't see someone
that specializes more with spinal problems. They tell me I have no
nerve damage but can't explain the burning or the fact that my hands
shake now. When I still question I am told that I have to pretty much
live with it and that I have passed the 2 year mark where they say is
where you will be at from now on. I am to stubborn to accept this
though.
I just don't know which type of doctor to turn to but my thoughts are
a good neurologist. It seems when I ask a doctor I get stonewalled
with a lets wait and see (I'm going on 3 yrs and I am tired of
waiting) If anyone has another suggestion pinpointing a specific type
of neruologist or anything else I would certainly appreciate it!
I also want to pass this information on and that is that I have had
success with my shoulder pain after my surgeries with a procedure
called prolotherapy. This isn't limited to the shoulders. It is to
help with the healing of ligaments and muscles. Sounds to simple to
be true but hurts like h--l to have it done. It is a series of shots
of glucose around the nerve meridians in the effected areas. You get
the shots every 6-7 weeks. I started with 22 shots a session and am
down to 14 in my last visit which was the 6 month mark of this
treatment. Simple explanation is that it makes your body think there
is a wound in those areas to create collegin that would normally be
scar tissue in a fresh wound. Since there isn't one it bonds to the
ligiments and muscles to help repair. Most insurnace won't cover it
because its still considered experimental and my understanding is
there aren't a lot of docs that do it. I just know that it is helping
me and with the outer pain addressed finally I can pinpoint exactly
where I hurt now in my spine because the pain dosen't blend together
anymore.
Sherry

Cindie, was really sorry to miss chatting with
you Friday, but I have overslept so many things that
I understand--looking forward to next Friday. I had
strict instructions by Ed--the tyrant lol--to wake him
at 10:00 and don't be late! He goes in to work at
11:30 and gets home a 7 or so. That trip to Seattle
sounds like fun--I also have visions of meeting people
we've met in cyber space, that would be so
wonderful!!...Take care, Betty

Hi Sherry, my nameis Wendy. I am c-6 since november of 02. I can totally relate to the burning sensation. Mine starts @ my level of injury all the way down to my toes.Even under my arms and my legs. They burn and ache to the point I sweat profusely from it and my body gets real stiff from fighting the pain. I take pain meds and they still burn very badly.

My one doctor put me on elavil?that helps sometimes but when my body gets used to the drug I stop taking them for a little and then start taking them again so they help. it is actually is an anti-depressant, I am not deppressed but it helps with the burning alot.I would suggest it to your dr.

I too was in a car accident in 02, flipped my truck,was ejected, crushed my spinal cord.c-567.Got surgery, they put pins in my neck to stabolize it. But immoble, got my arms back right away, just waiting for the rest.

My guess is extensive nerve damage...I also feel nerves tingle all throughout my body all the time.and sometimes I twitch alot when tryinng to get some shuteye.keeps me up alot at night.I am sorry about your pain but glad I am not alone. ya try to describe this to a dr. and they think your nuts.lol I do notice rom helps, so maybe try to excersize. the only pain killer that really helped is morphine. but I don't wanna be wacked out all the time. I try to enjoy whats left of my life. if you find anything that helps let me know.asap good luck and welcome to the group

uh o....don't let superquad see u calling him
James.....he's get balistic....anyway....he has been going by
"Jim" ever since his accident, but I just cant get used
to calling him that after calling him James for 19
years...he say's James is dead, but not in my eyes.....its
hard to explain, anyway, for my safety....call him Jim
ok? heheh...he will kill me otherwise....LOL...chat
with u soon....Donna

Subject: Interesting Parallel

Interesting Parallel

I bought a bird feeder. I hung it on my back porch and filled it with seed. Within a week we had hundreds of birds taking advantage of the continuous flow of free and easily accessible food. But then the birds started building nests in the boards of the patio, above the table, and next to the barbecue.

Then came the poop. It was everywhere: on the patio tile, the chairs, the table...everywhere. Then some of the birds turned mean: They would dive bomb me and try to peck me even though I had fed them out of my own pocket. And others birds were boisterous and loud: They sat on the feeder and squawked and screamed at all hours of the day and night and demanded that I fill it when it got low on food.

After a while, I couldn't even sit on my own back porch anymore. I took down the bird feeder and in three days the birds were gone. I cleaned up their mess and took down the many nests they had built all over the patio. Soon, the back yard was like it used to be...quite, serene and no one demanding their rights to a free meal.

Now let's see . . Our government gives out free food, subsidized housing, free medical care, free education and allows anyone born here to be a automatic citizen.

Then the illegal's came by the tens of thousands. Suddenly our taxes went up to pay for free services; small apartments are housing 5 families: you have to wait 6 hours to be seen by an emergency room doctor: your child's 2nd grade class is behind other schools because over half the class doesn't speak English.

Corn Flakes now come in a bilingual box; I have to press "one" to hear my bank talk to me in English, and people waving flags other than "Old Glory" are squawking and screaming in the streets, demanding more rights and free liberties.

Maybe it's time for the government to take down the bird feeder.

Hi rich ,

You always bring good news..thats great.

I'd like to hear or read more about this research, if you could provide some info. it will be great, appreciate that.

thanks Adrian.
richwelsh63 <wwelsh@...

SCI cure is coming soon!!! 2004
I just heard some great news and wanted to share. Dr. McDonald is
working on Somatic Nuclear Transfer. You can read about it on the
internet. It has to do with taking an individual's own cell, and
removing the nucleus. Then taking an unfertilized human egg and
removing that nucleus and inserting the individual's own DNA into
the unfertilized egg. Then the unfertilized egg is stimulated (sperm
is never used)to produce embryonic stem cells. Scientists are able
to use this process to develop specialized cells for heart,
kidney...etc. Dr. McDonald will be developing cells specific to the
nervous system that belong in the spinal cord.
His plan is to make this procedure available on an outpatient basis.
If he gets the funding, he will start human trials as soon as this
summer!! If you have any question you can email me.
wwelsh@...
Rich

Hello everyone,still no rain here,thougght we
might get one last ntie,radar showed some coming our
way,but they disapeered as they got to us.One farmer was
saying he thought the corn smelled funny,well i had
noticed it to,it smells like sweetccorn when you cook
it,but i'm talking about the fields smelling,scary.Went
to a small town festival last nite and saw a band
playing,Betty you probably have heard of them,Mcguffy Lane,a
country type local band,was a good time.Several of the
guys are going riding today,i'm going to follow them
in my truck,beats setting here.Well stay cool and
have a great weekend ,Randy

Hello everyone, I have been scanning the posts in hopes of finding
out information about burning sensations in different areas of the
body. I saw that mentioned in a previous post and thought I would
inquire. I have not posted before because even though I have an
injury to my spinal cord I did not feel I was really in the right
place. Most information to be found deals with those that are
paralized and I'm not and neither is a friend that I talk to on one
of the other groups. However, this burning thing has brought my
attention up.
I was in a bad car accident back in 2001 in which at the time I was
only diagnosed with closed head injury and torn rotor cuffs in both
shoulders. I have always been ambulatory even though my balance is
very poor. Last fall an mri was done of my neck at the request of the
pain clinic. I have terrible headaches all the time and nothing has
helped. That mri showed that I have an injury to my spinal cord in
c5,6,7....the cord is now an oval shape (squashed) and disks are
bulging (great news after 2 and a half years). I don't fully
understand what this effects or if there are any treatments to help
me and at this point I'm not getting a lot of answers from the docs
either. The burning sensations I get are in two areas.....one is my
brain...sometimes it feels like it is on fire and nothing will put it
out, the other is my left arm above the elbow where I had come in
contact with the tire of the truck that hit me.
The friend I met on a different group had a disk blow out and
required surgery. She is now walking with a cane.....I can not tell
you the level the injury was right at this moment. Anyway, she gets
these terrible burning sensations in her legs. She also has had no
help understanding this from her docs or therapists.
Is there anyone out there that can shed some light on this for us?
Any help would be appreciated.
Sherry

SCI cure is coming soon!!! 2004
I just heard some great news and wanted to share. Dr. McDonald is
working on Somatic Nuclear Transfer. You can read about it on the
internet. It has to do with taking an individual's own cell, and
removing the nucleus. Then taking an unfertilized human egg and
removing that nucleus and inserting the individual's own DNA into
the unfertilized egg. Then the unfertilized egg is stimulated (sperm
is never used)to produce embryonic stem cells. Scientists are able
to use this process to develop specialized cells for heart,
kidney...etc. Dr. McDonald will be developing cells specific to the
nervous system that belong in the spinal cord.
His plan is to make this procedure available on an outpatient basis.
If he gets the funding, he will start human trials as soon as this
summer!! If you have any question you can email me.
wwelsh@...
Rich

Hi Donna.<br
you as well as Superquad- James. Look forward to
chatting with you both again soon. Take Care, see you
soon.<br

Hello Everyone,<br
so sorry for being late last night in chat. Crummy I
overslept, laid down for a couple hour nap and didnt hear my
alarm go off. I often sleep under a pillow. I usually
hear it, so I must of been beat. <br
little of an hour late. I know I must of missed alot of
you. :-( I did meet up ith alot of you when I came on.
Had a wonderful time for sure. Theres alot of
wonderful people in here for sure.. ;-) Next week I will
have to come on earlier to make sure I'm on time..
hehehe<br
had another storm towards the end of the chat, well
for me. It poured again, and did also the night
before also. So far we are all singing the old Johnny
Cash song.. How highs the water Mama, its two feet
high and rising. How highs the water Papa, its 4 feet
high and rising. If we make to the boat for its the
only thing that floats.. mmmmmm LOL <br
get a good amount to save the crops. The crops here
are so wet, that the farmers say they have to add
protein to the hay. To bring up the quality to even be
any good. A large added burden for sure. Not good at
all. <br
a wonderful time. Hope others will put down a day
and time and then can come on in on other days.Some
one will urly drop in and say Hi. <br
life is treating you all kind.. And happiness and love
are with you. :-) Take Care..<br
Wheeling!!! Cindiers

Hi Larry,<br
and Linda are having a wonderful summer.
Congradulations on the<br
like alot of fun. Glad you also saw the rattler on the
last day. Poor Linda I would of dropped dead right
there.. Yuck hate snakes. <br
in MT. I hiked every mountain they had I think.
Spend many months each year in the Bob Marshal
Wilderness camping. Loved the place and wide open places.
Well anyway never seen a rattler but heard many. YUCK
and of course if I had I wouldnt be here today saying
Hi. I'd still be froze to that spot. LOL Miss
Montana. <br
visit friends. Also maybe go up to Seattle to meet the
gang up there. Dowdy is coming from Austraila and
guess more are coming in. I would like to meet some of
the gang I've come to know. Its a dream of mine,
maybe it will be so.. Havent got a chance to meet
anyone yet so maybe then. Save my pennies.
;-)<br
myself overslept, taken a late nap. I was a little over
an hour late. ohhhh my, felt really bad. I'm glad
everyone just came on in and chatted. I love meeting
everyone and talking about life. Will do it next firday as
well. Maybe everyone will just get use to meeting on
firdays to chat. And then others will post other chat
days they want to get together on. Sure have alot of
fun chatting, A wonderful bunch of people in here.
<br
veg'd out. ;-) Wish I was there. Take Care..
<br

hey there, i'm pretty new here to this web site also. i found it for my brother who is a para t 7,8,9 he also has tbi so he got hit with 2 major injuries. he had a 4-wheeler accident 1 year ago last week. his wife left him in a nursing home. hes 33 and has 2 young kids. so my husband and i brought him home to our house and he's doing much better. he goes to day programs for his mental health but there is really nothing in or around area as far as the spine goes.

talk to ya soon
mkanayo2020 <mkanayo2020@...

hello everyone, not very sure what to write here. Well i guess first
things first. My names michael, 24, male. I happened to stumble on
this site/group quite by chance and to say the truth it's quite
amazing to find out that the things i've been going through all
along is nothing new -the spasms, jerkings, crazy burning
sensations, sleeplessness, etc... well in any case i know there aint
nothing new under the sun, i guess it has a better feeling to it
when you actually know or communicate with someone in like
situations. I have read the various postings being put up and i'm
glad i found this group.
I had an auto crash back in 2001 and had an injury at T10 as well as
internal injuries. Now unfortunately for me i come from and live in
a 3rd world country where the medical facility is zero or less, and
at such the doctors couldn't do much for me, so much that they were
not even united in their prognosis. It ranged from full to partial
transection, then along the line another group comes and says it was
just spinal shock. Well this is almost 3 yrs later and i'm still
here, there have been improvements though, such as better balance
while sitting, some degree of sensation in my right leg and perhaps
a few others, and this all came about from no medical help
whatsoever. I guess i can only be grateful to God and i do have this
firm belief that i will walk again- with or without medical help,
though i have a feeling it would be the latter. And i'm sure somehow
we all will get there, SOMEDAY.
One difficulty i'm having in following through with discussions in
here is the various terminologies you'll use in here, so i hope
someone out there would be so kind as to put me through some of the
comonest ones used. I'm sure somehow i'll know a lot of them b'cos
i'm sure i experience them as well, but it's just i'm not familiar
with a lot of terms.
Well i did say i wasn't sure what to say, i guess i just felt the
need to say something, and since i've said it i'll be off then. So
folks do keep your heads up wiil ya- though i'm not sure how much or
often i do that.... Later

hi thomas, my name is tracey and my brother is 1 year post t7,8,9

this is all new to us but i can see if i can help any.
twd2002 <twd2003@...

hello all
my name is Thomas Dolan
my best fend has a C5 Spinal cord injury
and we r looking for sum help.
thanks
Thomas Dolan

hello everyone, not very sure what to write here. Well i guess first
things first. My names michael, 24, male. I happened to stumble on
this site/group quite by chance and to say the truth it's quite
amazing to find out that the things i've been going through all
along is nothing new -the spasms, jerkings, crazy burning
sensations, sleeplessness, etc... well in any case i know there aint
nothing new under the sun, i guess it has a better feeling to it
when you actually know or communicate with someone in like
situations. I have read the various postings being put up and i'm
glad i found this group.
I had an auto crash back in 2001 and had an injury at T10 as well as
internal injuries. Now unfortunately for me i come from and live in
a 3rd world country where the medical facility is zero or less, and
at such the doctors couldn't do much for me, so much that they were
not even united in their prognosis. It ranged from full to partial
transection, then along the line another group comes and says it was
just spinal shock. Well this is almost 3 yrs later and i'm still
here, there have been improvements though, such as better balance
while sitting, some degree of sensation in my right leg and perhaps
a few others, and this all came about from no medical help
whatsoever. I guess i can only be grateful to God and i do have this
firm belief that i will walk again- with or without medical help,
though i have a feeling it would be the latter. And i'm sure somehow
we all will get there, SOMEDAY.
One difficulty i'm having in following through with discussions in
here is the various terminologies you'll use in here, so i hope
someone out there would be so kind as to put me through some of the
comonest ones used. I'm sure somehow i'll know a lot of them b'cos
i'm sure i experience them as well, but it's just i'm not familiar
with a lot of terms.
Well i did say i wasn't sure what to say, i guess i just felt the
need to say something, and since i've said it i'll be off then. So
folks do keep your heads up wiil ya- though i'm not sure how much or
often i do that.... Later

hello all
my name is Thomas Dolan
my best fend has a C5 Spinal cord injury
and we r looking for sum help.
thanks
Thomas Dolan

[INLINE] [INLINE]

hello everyone,i`m a c5 c6 quad for 9yrs. now and it don`t seem to
get any easier.i`m looking for someone to talk with that can relate.
i`m 33yrs. old,male and currently live in okla. although i went to
school in hollywood ca.i love ladies,music(former drummer)muscle
cars,fast lowered trucks,looking for one now.i prefer a chevy.i like
to drink with friends occasionally and i would say i`m an adrenalin
junkie since i love xxtreme sports,that`s how i was
injured,freestyle motocross.if anyone would like to talk about SCI
or anything in general e-mail me.and for the ladies i`m single,pic
available on request.
hope to hear from you, michael

Hi Karen,i think we have talked before now,i
rember reading about the trike now,maybe i just read it
and didn't reply before i joined here,hard to
tell.Dyna wide glide was what i was working on getting,i
found the sporty and was going to run it and order a
wide glide.I have to work my way up,can't stand going
in debt real fast,so i had a 81,then the 97,then was
thinking of a 99 wide glide.Well didn't make it that
long.Chuck had a lot more injury than me,but glad he can
make use of the braces,i was told it was a waste of
time at my level and i aggree.I'm taking 1 Ultrum a
day for pain and 2 advils,usally that keeps me
bearable,but sometine do take 2 ultrums and 2 more Advills a
day.I can tell when i haven't had my Ultrum,it don't
block the pain out,but makes it tolerable.Waht all does
Chuck take?.My Dr. thinks i shouldn''t have to take
anything,well i think i do great with no more than i take
compared to what i have read about others.Teh Dr.s just
don't know.I'll tell what works well for my spasms is a
stiff drink,wish they made a pill to do the same,the
spasm meds don't work well for me at all.Well take care
and see you later on,Randy

HI MY NAME IS WENDT C6, I HAVE A SUPERPUBIC AND NEVER HAD A UTI.....YOU PEOPLE NEED TO DRINK MORE FLUIDS AND FLUSH IT ALL OUT.

No Chuck can't feel anything from the waist down
either. But the braces will allow him to stand with the
aid of something to hold onto. It is good to stand.
Great for the muscles and for the circulation. Chuck
had just bought a Dyna Glide. Beautiful bike. I have
a Trike. Neat bike too. I love it. He was out doing
errands on it, the trike, cause I was out of town with
the car. Anyway, something happened and he popped the
front end going around a corner. He got it down but by
that time he was too close to the curb. The back tire
caught the curb and threw him off. The bike then came
down on him and broke his back. He had a lot of other
injuries too. Blew out both lungs, broke his heel,
shoulder, and 15 ribs, dislocated his right hip. He was a
mess and it was touch and go for a few weeks. But he
is a strong man and came through it. He has a lot of
pain and spasms too. We still work with all the meds
trying to find something that will do the trick. Never
ending. Will try and get to the chat. It sounds like fun.
But not sure I can. If I don't make it will just keep
checking in here. <br
<br

hi nev;

best choice since becoming c4/5 quad. 17 years ago. don't believe doctors when they predict more uti's for you. I hav'nt been hospitalized in 9 yrars, never take antibiotics unless temp reaches 103, then cipro [3 years ago]. Good luck and try to enjoy your f***ked up life.

george r

Hi all, this is just a short note to tell everyone friends, family, far away friends, and just about anyone who was on my list , my little brother John Edward Butler has a web site for cajuns or anyone wanting to try cajun food, check it out. Thanks, hope all had a good St. Patricks day. Take care, Theresa,(Tesa )http://www.eatcajun.com Iff the site doesn't work or come up e-mail ,usa409@..., thanks John's e-mail

any one w/ info plz
let me know your expirance w/it.
supposed to get 1 on 3/18
metallikat1@...
thanks!
nev

Thought you might like to read this SCI story!
-Michael
Webmaster
www.theSCIzone.com

This group is mainly for all that has physical disability..more like a
datebase so all groups can use to find members for there groups..only
rule is you must have information on your profile...

Hey everyone,i will try to make it to Chat
tonite,depends on when i leave to go out,it is Friday nite
hunting time,might meet the girl of my dreams
tonite,doubtful,but i won't know if i stay at home,lol.Well Dorla,i
kind of sleep in every morning unless i'm working in
the fields,not my typical farming hours anymore.The
good ol days i guess.Well have a great weekend,Randy

DOES ANYONE KNOW WHERE OR IF YOU CAN GET LIFE INSURANCE AFTER YOUV'E BEEN DISABLED?

Hello Everone,<br
all for the Chat tonight at 9pm. EST. Hope to see
everyone tonight. Take Care and hope life is treating you
all kind.<br

MARK AND I JUST WANT TO SAY THANK YOU TO EVERYONE WHO HAS BEEN GIVING
US ADVISE. EVERY WORD HAS BEEN TAKEN TO HEART. I'M SORRY THAT WE
CAN'T GET ON THE E-MAIL VERY OFFEN, BUT I DON'T WANT ANYONE TO THINK
THAT WE DON'T CARE WE DO. AND WANT TO SAY THANK YOU TO ALL AND WILL
GET ON LINE AGAIN SOON!

Ron <parapowered@...

Hi Tracey, Ron Here, I am a T4-5 complete, 20 years and 5 months post
injury. I am curious as to what rehab facility your brother was in.
I only ask because WHAT rehab facility you "attend" makes ALL OF THE
DIFFERENCE in the world. I suggest you investigate what level of
rehab your brother recieved.
Just a tip from an "Old Timer" at 39, Ron

Hello Donna,<br
from you. Its wonderful you also are interested in
SPI's and support your brother. Glad you are a strong
supporter for your brother. Look forward to meeting
Supequad. <br
people in here, alot of others as well. I have seen a
wide bunch of people in here and hope it keeps
growing. <br
there. Having a close family member who was injuried and
suffered a Spinal Cord Injury. Its often more so a harder
time for the family and friends to go through the
experiences, then the one who has the disability. I'm glad you
are there completely for your brother.. And that he
is there for you.<br
the injury is calming the others down. I'm glad your
brother has the suport he does need. And is adjusting to
life with a SCI which often is hard to overcome. Hang
in there okay. ;-) We have SCI's as well as others.
Also alot of caregivers who also come in here like
you. ;-) <br
meet you and your brother soon. Take Care. Hope life
is treating you kind.<br
Cindiers

Hi Tracey, Ron Here, I am a T4-5 complete, 20 years and 5 months post
injury. I am curious as to what rehab facility your brother was in.
I only ask because WHAT rehab facility you "attend" makes ALL OF THE
DIFFERENCE in the world. I suggest you investigate what level of
rehab your brother recieved.
Just a tip from an "Old Timer" at 39, Ron

Hello Superquad9 and Nell
10_99,<br
I have been here a few short months and WOW, what a
nice group of people. Special thanks to Jam Jam for
started this web page. Our group here is expanding
daily.<br
hopfully we will be here for several hours. So please come
on by and say Hi. ;-) Hope to see you both on
Firday? Take Care...<br
Cindiers

I suppose all the farmers are up or almost ready
to get up. We always were when we were on the farm.
Now I stay up til that time and then go to bed lots
of times. If I get to sleep in I'll see everyone in
the chat. If I don't get to I'll either be here
blurry eyed dozing or passed out in my reclliner on
front of the boob tube. Dorla

Me Me Me Me!! I love Photography and I'm good at it also. I have both Color and Black and White. My color is in both prints and slides that can be made into prints. I'd like more information about the Expo. Feel free to email me.

Brian

HI LUIS,

MY NAME IS MARK AND I'M TRACEY'S BROTHER.

I DON'T HAVE MUCH TIME ON THE COMPUTER, BUT I WOULD LIKE TO TELL YOU MY STORY. I BROKE T-7 WITCH LEAVES ME PARALYZED FROM THE CHEST DOWN.AND I HAVE A SMALL AMOUNT OF BRAIN DAMAGE (MEMORY LOSS) SO I WOULD LIKE TO TALK WITH YOU SOME MORE IN THE NEAR FUTURE ABOUT HOW YOU DO THINGS AND GET AROUND. (I YOU DON'T MIND)

JUST WANT TO SAY HELLO AND HOW ARE YOU!

HAVE A GOOD DAY

E-MAIL SOON

MARK
Luis Torres <dakidwonder@...

Hi Tracy;
My name is Luis. I am a T-5 complete, 21 years
old, 2 years post, and honestly I have to say that our
situation is not that bad. I am fully independent,
and do everything for myself. I can still do anything
and everything, just different but it can be done.
Tell Mark not to get down. Honestly I feel a cure is
close therefor tell him to take care of his legs and
keep them in good shape. Use a standing frame and
a.p.t, and also stretch. I have to go but if u have
any questions feel free to ask
Luis

Hello to the group. It's been awhile since I posted. I have been
real busy getting ready for the United People With Disabilities
Country Affair EXPO and request your help. Please help if you can.
We are offering FREE booth space to artists with disabilities. If
you know of someone (any medium... paint, drawings, photography,
jewelry, poetry, or anything else) please let them know. Please help
us find Artists.
This September 3, 4 and 5, in Lindley, New York, rain or shine, we
will be holding our UPWD Country Affair EXPO. This three day,
outdoor event for people with disabilities will be held on 150 acres
of private property. We are already expecting 80 plus vendors and
thousands of attendees.
There will also be free wheelchair accessible hot air balloon rides.
Free glider rides. (There is a turf landing field on property.) Free
horse drawn covered wagon rides. Vendors demonstrating, displaying
products, services and latest technology for people with
disabilities (try before you buy). Free numerous daily workshops.
Free nightly concerts, performances, guest speakers. Daily drawling
to win valuable prizes. Join us for the entire time.... camp sites
available on property. Plus a lot more!
Thank you.
Sincerely,
Diane
United People With Dis"abilities"
http://upwd.net
dianeaustin12@...

Hi Karen,sorry i missed your earlier post
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had<br
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I am a family member. My daughter is sci 5/6. I get a lot of help just reading
the messages. Ideas and just knowing others have the same problems and feelings
helps my mental attitude. Dorla

Superquad I sure like your name. This is a wonderful site. Hope you get as much
enjoyment out of it as I have. Seems I learn something every time I click in
too. Dorla

Hi Donna and Nell--welcome and good to hear from
you! Cindiers is right, New Mobility has some great
people there even though the boards sometimes drive you
crazy with their mechanical problems...Randy, goats eh?
The shrubs still need trimming and goats are sounding
better and better, send up a couple and will try it out!
lol Yes fair food can be the best--last year at the
Lancaster Fair there was a booth of elephant ears that said
"voted best fair food in Ohio"--I don't know who did the
voting but they were pretty darn good!...Dorla, I agree
this site is great and the people are the
best!...Cindiers, I will try to make it tomorrow night and barring
any stomrs I will be there--don't know if there are
any in the forecast or not, but if there are I will
personally kick whose ever butt is responsible!
:&gt;)...Karen, Hi and good to see you! Good luck looking into
the electrical device that may help Chuck walk--every
day is a new story it's so true, just when we think
we're as up to date as we can get we find it isn't
really so, there's something lse new out there...Take
care, Betty

Hello Nell,Welcome to the club.Whats your story?I wrecked my Harley a couple
years ago,left me a T-6 para.Take care Randy

I'm new to the club and wanted to say hello.<br

Actually, Im not the one with the injury, my
brother is and I told him about this club, I think he
joined, his name is superquad, and it's been 5 years
since his accident. He jumped off a swing and his is a
C6-7. After hearing of how u incurred your injury, I
know what I hate motorcycles. Hope to chat with you
soon, bye

Hi Tracey welcome to the group. My name is Wendy. sounds like you have your hands fullThat was great of you to do that for your bro. I would have done the same. being the same age and c-6 since nov 02. nursing homes suck at our age.

Hi Cindy...thanx for the warm welcome and I sure
hope my brother, Superquad, Checks out the messages
posted and then he will see this one. I don't know if I
mentioned its been five years since his accident and I
still have a hard time dealing. Noticed that I said
"I", he seems to have dealt just fine. Are all the
members SCI or any family members as well? Talk to u
soon. By the way, my name is Donna.

HELLO, MY NAME IS TRACEY AND I KNOW THIS SITE IS FOR PEOPLE WITH SCI
INJURIES. BUT I NEED TO FIND A SITE THAT I CAN INTRODUCE MY 32 YEAR
OLD BROTHER WHO HAD A 4 WHEELER ACCIDENT BACK IN MARCH 2003. HE
SUFFERED TBI AND A T7 COMPLET FRACTURE. WENT TO PHILLY HOSPITAL AND
THEN TO A REHAB CENTER. THEN CAME HOME FOR 1 MONTH AND HIS WIFE
COULN'T HANDLE THE SITUATION. HE WENT BACK INTO THE HOSPITAL FOR A
MAJOR UTI AND THEN TO A NURSING HOME. HIS WIFE SAID THAT SHE CAN'T
TAKE CARE OF HIM AND WAS GOING TO LEAVE HIM THERE, I SAID NO WAY AND
MY HUSBAND AND I BROUGHT HIM HOME DEC.14TH 2003. HE IS DOING VERY
WELL BUT THERE ARE LOTS OF THINGS THAT HE HAS PROBLEMS WITH, LIKE
GETTING DRESSED AND HIS BOWEL ROUTINE. AND I WAS TRING TO FIND A SITE
THAT COULD HELP HIM, LET HIM KNOW THAT HE IS NOT THE ONLY PERSON OUT
THERE THAT IS IN A WHEELCAHIR. AND LIFE CAN BE BETTER IF ONLY HE CAN
FIND THE WAY. IF YOU THINK YOU CAN HELP AND WOULD LIKE A NEW FRIEND
HIS NAME IS MARK AND HE'S 32 YEARS OLD AND HAS A WIFE & 2 CHILDERN
(THAT HE DOES NOT LIVE WITH) OUR E-MAIL IS MUDTOWN1@...

Not sure we have met. But think we talked a bit a
while back when you first got here. Was just reading
your post to Hillbilly. Sorry being
nosey...LOL<br
Harley...mine. He is a T-12. But getting back to life. He was
injured in November 97...sounds like about the same time
as you. Hope all is well with you. And hope to talk
with everyone friday night. <br
well<br

Haven't been around lately. Just getting back
into things really. Welcome to everyone new and hope
to meet everyone soon. Hi Betty, sorry I haven't
been very good at posting lately. But as you know I
have been a bit busy. <br
gets his braces in about a week and then he will be
able to at least stand. Also my daughter said she has
a friend whose father had an injury similar to
chuck and he had a doc that put in some kind of
electronic type thing and he now walks. Not sure what that
is about but figure we will check into it.
<br
again. And for a change the weather is being
nice...LOL<br
better with the posts. I miss talking with you all. For
the new ones that don't know me....I will be glad to
introduce myself to you. Just ask. But Some of the guys
here don't want to read through all that again. So let
me know and I will be glad to catch you all up.
<br

Its a good idea to take vitamin C when you have a UTI..I take 2000 mg
of C when I think a UTI is coming on.Cranberry juice is a good thing
to drink,also another good supplement is Echinacea
Goldenseal,Capsules or Extrect will help build up your Immune system
so its harder to get a UTI.Make sure your caths are clean and use a
surgical lubricant sterile free bacteriostatic.The lubricant is
called Surgilube and is made by Fougera.you can get it at any
pharmacy,I get mine at Rite-Aid and its only $1.40 a tube.DO NOT USE
a LUBRICANT when Cathing unless its STERILE.Most lubricants are not
sterile and the one I use "FOUGERA SURGILUBE" is Sterile.
Any other questions about UTI and how to prevent or help with a UTi

Howdy,<br
to come on over to chat area. Firday July 15, at 9pm
Eastern Standard Time. (Ohio,PA,NY)<br
to see everyone.. Pretty Please with sugar on top...
:-) See you on Firday. Sure hope life is treating you
kind and happiness is your shadow.<br
Wheeling!!! Cindiers

Sorry, I think I need a new calender or something. Or some new glasses.
<br
Wheeling!! Cindiers

Hello Hillbilly,<br
see you. Please tell your brother Hello and that we
all look forward to meeting him. <br
Cindie aka Cindiers. I'm a paraplegic T11 & 12.
Incomplete. Post 23+ years now. I'm from Duluth,
Minnesota.<br
standard time. (Pa,NY,Ohio,etc, time zone) Maybe he can
come on over and say Hi. Sure like to say Hi and get
to know him. <br

I haven't been to a lot of sites but I know this
is a nice one. People are so friendly and very
helpful. Of all the sites I have seen this is the best one
I've found. Hope he gets as much enjoyment as I have
found here. Dorla

I receive the digest version... so I'm sorry but after reading all
these messages I'm not sure who originally brought this up. I have
two things to say though (BTW - I'm a T-9 complete to the doctors who
do the pin test and a T-1 to those who actually look at where the
damage occured).
1. blood in the urine: I had some aweful blood in the urine.... used
to make me throw up. However, I switched to a hydrophilic catheter
from the Mentor straight self-cath with Lubricating Jelly and I have
little to no problems. Actually I have none if I keep using them,
however a few times I've had to go back to the Mentors because I've
been out of the hydrophilic and the Mentor straight caths were
available. (At the time of the switch I had two Mentor boxes left.)
If I use a regular catheter, the blood comes back and it takes a few
uses of the hydrophillic before it returns to normal. If money and
availabilty were not a problem I would never use anything but the
hydrophillic. I never knew how much friction existed with a regular
cath until I tried them and the manufacturers were nice in sending me
samples so I could make an educated decision. I can't prove this,
but I think the regular catheter and gel is too rough for me.
2. hunger: I was amazed that someone said they feel hungry... maybe
it has to do with the level of injury, but I have not felt hungry
since before my accident. I feel thirst, but not hunger. I though
it had something to do with the lack of feeling down there in
general. However, I've lost 50 lbs. since my injury and only eat
because it's mealtime and I know I should eat rather than because I'm
hungry.
Shelley

Liz,
Blood in the urine occurs in people who are bleeding in some part of the
urinary system. The blood gets flushed out along with the urine. Common
causes include urinary tract infections, injuries to the urinary tract,
kidney or bladder stones, tumors growing in the urinary tract, or defects in
blood clotting. Basically, you have damage to tissue which results in
hemorrhage. Even though I am not fond of the traditional medical
establishment, I would suggest your husband is in an emergency situation and
not wait. Go to the emergency room.
An indwelling Foley is terrible at causing irritation and possible
infections. It will be an ongoing battle till the very end for him.
Certainly fever and loss of appetite can be symptoms for a UTI. The constant
blockage of a catheter does not sound good. Naturally, urine will contain
crystals, but probably not to that extent. He needs to drink plenty of water
to keep his urine diluted and perhaps a change of diet for starters. Has he
had any history of urinary calculi?
In the final analysis, I really feel that there is not one urinary tract
infection which proper herbal medicine cannot fix compared to the modern
anti-biotics which at times are somewhat dubious over the long treatment
haul. Let me also say that when dealing with any herbs and that includes
cranberry juice or extract--that dosage is all important! If it does not
seem to be working for you, you probably are not taking enough. One glass of
cranberry cocktail did nothing for me. Two kept me clean. Each individual
has individualistic needs. Experiment. The beauty of herbal medicine is that
it is not rocket science and overdosages generally will cause no harm. If I
were you, Liz, I would make him eat several cloves of raw garlic per day,
NOW! I know he may hate it, but it can be a life saver. Note that raw garlic
cloves, crushed in the mouth is the only way to go. Store bought extracts
are very impotent and useless in treatment. Go to the store and buy the
freshest garlic you can, peel the clove and chew and eat it. Also, note that
some people may have stomach irritation from eating too much, so play it by
ear. Nevertheless, garlic is an excellent anti-microbial!
good luck,
doug

Hello Betty,got those 2o sheep lined up and ready
to go,guess i'm too late LOL.Don't know about the
shrubs,but a goat will take care of that hehe.Glad you got
your hay field mowed and baled lol.Didn't know you was
a farmer did you lol.Oh trust me,i will eat lots of
fair food,probably regrett it the next day,but oh
well,i love to eat.Fayette county fair has the best
food,Cattle feeders has Ribeye steak sandwiches,pork
producers has tenderloind sandwiches,worht the trip for
those 2 things.Well have a nice day,looks to be warming
up now,oh well it is summer time.Randy

Must be all the country music Betty causing the
Y'all thing,i use it a lot,must be a real redneck
lol.Still working on the sheep,20 or so should work
fine,what do you think ?,LOL.So your draging Ed to the
movies,Good Luck !!!,if he is like me a ride on the bike
sounds better,must be a guy thing,have fun,looks to be
another nice day here,but no rain forcasted til
Saturday.Going to the Clinton County Fair tommorow
nite,Tractorpull nite,Yipppeee !!!!!!.Have a good one Randy