Standing wheelchairs

2007-03-31 19:34:38

I was wondering if anyone here has ever used, or had experience with
a standing/reclining wheelchair. I'm looking into getting one, and I
am just trying to do some research, before I spend $30,000.... If
anyone can help me out, I would appreciate it. My e-mail address is
never_surrender82@...
Cheers, Sean Katz

good morning out there is there any females that like good looking quads

2007-03-31 15:01:51

Just woundering if there is any female quads out there
or paras or well lets say walking ..lol any one lol ... iterested in
a semi quad para guy not bad looking 31 one year over the hill lol
but id do in a pinch say hi if you like

Re: LAURA: hang in there

2007-03-31 04:58:56

Hi Dominique,Boy what your husband said is so
true.In most ways i'm still the same,but i did change,i
put on a good front around friends or when out,but
inside i really hurt and am angry.Just like when all the
guys are going on a bike trip,i get sad because i
can't ride.But i'm thankful that i can get out and see
them.In my honest oppinion in my short 22 months of this
new life,i feel it is harder on our familys and loved
ones than it is us.My father is having a very hard
time dealing with this,he is so used to me working my
butt off,now to watch me as he is helping me onto the
tractor hurts him bad.I wish i could help more,hopefully
i am helping.Randy

Re: Diet, digestion and elimination

2007-03-31 03:18:56

Hi Geri and All,My program seems to be more
normal for me now,i never went everyday before,unless i
ate something that didn't agree with me.most the
times it would be on Friday nite before going out,and
not again till monday nite,then maybe again
Tuesday,then not til Friday.But this was 2 yrs ago before
injury.I took Imoduims then too,i'm your typical male,i
ate and dranks things i shouldn't of had,i love food
and lots of it.I do see your point about getting rid
of toxins,makes sense to me.My dad goes twice a day
everyday,i think were all a little different in our
bodys,laso it seems from what relationships i have been
in,girls are more prone to constipation than guys?.Just my
observation from my 2 serious realtionships.For me i feel
lots more comfy knowign i have waht i call a plug till
i'm ready to get rid of it.Maybe one of these days we
will get body functions back,i would be very happy
with just that,but like everything we all want
more,the american way.Geri,thats a great idea about a
health care aid or caretaker to come in and help,i know
this from exspierence,My gal told me several times she
felt more like a nurse,than a girlfriend,did i
listen,no.There were all kinds of signs and i missed or ignored
them all,like they say hindsight is 20/20.Well think
i'll qit on that note,Take care,Randy

Diet, digestion and elimination

2007-03-31 02:01:00

ow! What an exciting topic! I thought about
posting this morning, but just had breakfast, and
couldn't.<br
"process of elimnation", a few ideas mentioned concern
me.<br
medications (homones, for one) are inserted rectally, and
absorbed into the system. For this reason, keeping the
toxins that the body is trying to rid itself of, for an
extended period of time is NOT a good idea. Although they
may not make you sick, they cannot add to good
health, and an energized system. Also, I belive cultures
that have been studied where elimination occurs at
least once a day (sometime more) the incidence of
colo-rectal cancers is greatly reduced compared to an average
American high protein diet. Also, the moisture in the
stool is often absorbed leaving a much more difficult
stool to pass.<br
and ask this organ to hold more than intended, you
stretch the bowels, and over time, as we all lose
elasticity, you create ballooned type areas that are then
very difficult to empty. (requiring much gloved
extraction) something I do NOT want to have to look forward
to. We were designed with a "down and out" system.
Not a reservoir with exteneded holding capacity.
Taking an anti-diarhea med is probably not a good idea,
unless you have really experienced diarhea. ( will your
insurance co NOT pay for bowel care, even if the Dr.
prescribes?)<br
healthy, for lots of reasons, most of which we have heard
for years.<br
Randy. Fortunately, I am able to handle the task at hand
by myself, use TherEvacs, and go every
morning.(average 20 min)<br
least we eliminate WHAT we eat, I am very dedicated to
a few things. Every morning I have a generous
helping of high fiber cereal. I prefer mine with yogurt,
obviously milk is more common. I eat lunch out, so I
usually order salads. Dinner is either a piece of grilled
chicken, or serving a vegetables, or often a "myoplex"
shake. One of those packaged health food store items, I
blend with water and ice. My wewight is a huge concern.
While I weigh less than when I was hurt, I don't LOOK
like it. So, I keep trying to keep calories and
carbohydrates to a bare minimum (but will not budge on my fiber
cereal) and try to ride my bike as much as possible, and
always park VERY FAR away from buildings so I get as
much exercise as possible.<br
DIFFERENT! and what works for me may not for you. But when I
know my system is empty in the morning I can go to
work, get on an airplane, do just about anything
without serious worries. I have found, since I do not eat
alot, and eat smaller meals, that if I do splurge, and
have a big dinner, I will probably have to go within
two hours. So, not a good idea if I am away from
home.<br
Dominique???<br

I cannot believe it, found these hawt ppl here

2007-03-30 13:50:49

found this cool place, actually, not even sure I want to share my secret
source hehe. But you know what, Im a generous guy so i guess ill help you out,
plenty of potential partners on there to share around i guess. anyway
http://www.enjoyeverysecond.info/peol is the spot im talking about. ive only
been on there bout a week or two, already met up with two ppl and talked to
tonns of hotties on webcameras. heap of fun.

LAURA: hang in there

2007-03-30 09:24:23

t sounds so unfair when such a tragedy happens
in a marriage. Six months with a new love is not
even long enough to know if you want to spend the rest
of your lives together.<br
described the situation the following way: "You died; I
lost my best friend". Of course, I feel I still am the
same person, but then again, I'm not. My patience runs
pretty thin and I am not as nice as I used to be. Tom
also gets the brunt of my frustations. And it is VERY
frustrating not to be able to do the things that you did on
automatic pilot before.<br
needed for the both of you. There always are sliding
scale counseling available, where they look at your
income and charge accordingly. I can't think of where to
get info on that at the moment, but you could try a
University Psychology program: they sometimes need patients
for their graduate students who want to become
therapists.<br
handicapped one, (s)he has to shoulder a lot of burden. And
the relationship so radically changes if you become a
care provider. Is there any way you can get an aide to
come daily to help with bathing, bowel program and
foley changes ? If Dave is on Medicare, this might be
an avenue to consider.<br
write too much, the server hangs, and my post is
lost)<br

Imodium and things

2007-03-30 01:34:33

ello Laura,for me the imodiums sure help me,at
least i have a little peace of mind that i will not
have a accident,and if i do,i must of been really sick
or ate something bad.I wouldn't go over board on
them at first,could cause constipation,for me they are
causing no problems so far.This weather is getting
scary,our crops are withering away,and no relief in
sight.Just false promises of rain,is to cool off Monday i
think now.Yes my fiancee left me after a yr and a
1/2,just too much for her to handle,we were living
together for the past 3 yrs,and to be married the yr after
my accident,but were on hold.I don't blame her for
leaving,i did in the begining,til i started thinking of her
instead of me-me.Now i think it was the best thing she
could of done for me by leaving,it made me a lot more
independent.I got very emotional when she left,just about
called it quits,counseling for both of you i think is a
good idea.I still have a long ways to go.I wish she
would of left me earlier,but just temporary,all i
needed was a wake up call.I was depressed too,this
internet has been great in some ways,but i also got
addicted and spent way too much time on here,still do i
guess.Also a lot of my problem was the Dr. gave me a 2-5%
chance of walking again,well we held onto that hope and
just waited for some return,well it never happened.I'm
not sure how you life is compared to mine,so i'm not
telling you to stay or go,thats something you have to
figure out on your own.I think it's great you are
thinking of counseing,we waited too long.If we would of
went things may of been different?.About being mad,i'm
still mad,maybe not as bad as a year ago,but it's a
tramatic loss for us,not only us but our loved ones,i
never thought of anyone but me and my loss,but my
family loss something too.The old saying we hurt the
ones we love is so true,I'm sure Dave don't meen to be
mad,but we all have to vent sometimes,and he is venting
to you.Boy did i write a book here.Hope i haven't
confused you more,i think talking about it with other
people helps me,i need to vent myself sometimes.One
thing that has kept me going is that there is someone
always worse off if you just look around.Sorry to hear
of another SCI near you,it can happen to anyone.It
might be good for Dave to talk to this boy,they can
yell and complain together,Dave is probably more ready
than the other boy for visiting.I didn't want to
accept my injury,just too much stuff to deal with at the
time,denial,why me ,you know.Well hope i never got out of line
here,been setting here debating on hitting post or not.I
just hope you and Dave don't make the same mistakes i
have made.Email if you want to talk some more.Hang in
there,Randy

Me again Laura

2007-03-29 21:58:46

i Laura,i should of read the other posts before
replying.I see now Dave is really angry,more so than i ever
was,or at least what i recall or want to remember.To me
it sounds Dave is releasing the only way he knows
how.This may sound crazy,but if he could write you a
letter or something on that order,then read it to
himself,he might figure something out,it's hard being a man
and showing our feelings.I have wrote several letters
but never gave them a way,it gives you time to
vent,then read how angry and mad you are.Then you don't
take as much anger out on your loved ones.Nicci says
it well,we feel we are too tuff to go to
counseling.You need to talk to other better halfs in your
shoes.They have been there and survived it.I'm just rambling
on here,but know wee are here for you to vent your
anger.Maybe sometime i could come down and visit with
Dave,maybe i can wake him up?.People tried to tell me to
calm down and be nicer,but it went in one ear and out
the other,boy i wished i would of listened.Hang in
there Laura.

Re: Terrible pain my feet

2007-03-29 19:36:17

Julie,
I am also using baclofen. It helps to keep my spasms under
control. However, I have not had any experience with Botox. I've
never heard of it being used for the sphincter muscle. I'm sorry to
hear about your brother-in-law. But, unfortunately I don't have any
answers either.
If anyone else out there does, please clue myself and Julie in.
Thanks,
Frank

RE: [Spinalcordinjury] Terrible pain my feet

2007-03-29 14:28:21

Frank-I'm new to this group. I don't have a SCI, but my bro-in-law does. I just sent my first message yesterday, and it's on this topic of pain (subject: need help for brother-in-law). Unfortunately I don't have answers, but have similar questions as you.

Dan (bro-in-law) is a C5/6 quad (i think) with no brain injury. Over the past several months has had chronic, severe pain particularly in his lower back/hip area but he gets it in his remaining leg too (other was amputated after the car wreck that caused his SCI, 7 years ago). He gets the "prickly sensation" and has had rapid and steady decrease in muscle tone. He describes the feeling as "bone on bone". Dan's on some of the same meds as you I think. Neurontin and the MSContin sound familiar. He's also on Balofen and in April or May had 3 botox injections in his sphincter muscle. Dan's pain didn't start until shortly after the Botox injections. Which makes us, his family, VERY suspicious that the symptoms are related to Botox, and the Dr's WILL NOT look into that and rule it out! Have you had experience w/ Baclofen and/Botox?

Has anyone explained to you how/why a quad even feels pain?? I don't know and would like to hear why. Dan (and you?) shouldn't even feel pain, should you? If I understand the levels of quadraplegia right, the higher the #, the less mobility and feeling right? My husband Michael is Dan's durable power of attorney and is VERY involved in Dan's care. My involvement kinda goes in "spurts". When Dan calls the house several times in one week complaining of pain and muscle loss I tend to get on the internet more to find some answers. This has been one of those weeks. I'm sorry to hear your in a similar situation as my brother-in-law, and hope God will provide us all some answers and provide you and Dan some relief from the pain!

Sincerely,

Julie Hawkins

Terrible pain my feet

2007-03-29 02:08:33

Hi Everyone,
I wanted to see if anyone else experiences this really bad pain that
I have in my feet. I am a C4/5 quad. Every evening around 5 pm,
after the edema has shifted down to my feet, I start to get pain my
feet. It feels like someone is pricking me with needles. I am
taking Neurontin and Keppra. I also have a prescription for MS
Contin, but I haven't taken it in over 3 months because I don't want
to become dependent on a narcotic.
Has anyone else experienced this kind of pain and conquered it?
Thanks to anyone who can provide some advice.
Frank Blankson
www.frmedicalsolutions.com

Need help for brother-in-law

2007-03-28 15:22:45

I do not have a SCI but my brother-in-law does and WE NEED SOME HELP
FROM OTHER SCI'S that may have been thru what he (Dan) is going thru
now! Dan suffered a SCI in 1995 as a result of a car wreck. He is a
37(?) year old C-5 or 6 quadraplegic: paralyzed from chest down;
right leg amputated; no fine motor skills in arms hands; no brian
injury. This past April, after having been on Baclofen for a while,
Dan received 3 Botox shots to help his sphincter muscle and thus his
bowel program. Shortly after the Botox injections he started having
tremendous pain in his lower back/hip area and complains about the
sensation of "bone on bone". Sometimes the pain spreads throughout
his body. He's had convulsions on a couple occassions. I
witnessed them one day. His Dad simply tried to open up Dan's
clenched hand and his body reacted by spasming in pain. Can anyone
relate to these symptoms??

jed here no theres not trust me lol

2007-03-28 11:37:42

lol

is there any females out there lmao had to try

2007-03-28 08:07:48

lmao

Good ol BM's

2007-03-27 23:26:20

ello Dave and Laura,i don't have any real good
advice,still learning myself.I used to do my program every 2
days,now i'm going every 3-4 days and it seems to work
better.If i have ate a lot i go every 3 days,if i didn't
eat a lot,i go every 4 days.Main thing i have found
is watch salads and things that made me go befroe my
injury.Also,i take a few Imodium tablets befroe going out,in
fact take them fairly often,it has reduced accidents i
think.I have no idea when i need to go,don't know if i
want to,if it only gives you a slight warning,sounds a
lot like when i get a spastic bladder,it's too late
by the time i feel someting weird.I use the
Theravacs about every other time,just depends on how hard
or soft the stool is.Sorry to hear of your trip
accident,scares me on traveling,probably why i depend on the
Imodiums so bad.If i go away from home for a long timei
usally have a travel bag fixed up,it has a pair of new
undies,sweatpants,wetwipes chux under pads etc.It is packed up inna bag all
the time so i just grab it and go.I was spoiled
too,and mine left,so i had to learn quick,still can't do
the bowel program myself yet,just can't find a chair
that i think will work,my current toilet chair will
not work at all for me to balance myself and try to
do things on my own.Well good luck,hopefully someone
will have some real good advice for us,take care
Randy<br

Hello again

2007-03-27 21:47:30

Thanks again to those who have helped me out in this situation. I
have learned a little more since Tuesday. I saw the Neurosurgeon
again and was told that the tumor is called a "Small Blue Round Cell
Tumor". It is positively Cancerous. We still have to find out
exactly what type Cancer it is. Please keep me and my family in your
prayers. Thanks again and God Bless you all.
~Ronda~

New Screen Name

2007-03-27 15:14:41

Hello everyone,
This is to those of you who have contacted me or plan on contacting

Looking for friends

2007-03-27 10:49:40

Hello People,
My nam is birju, I am 28 year old man that had an accident in dec
2002. I have T3 spinalcord injury, ever since i have been a
paraplegic. I am looking to make friend my pics are on this site
http://helios.acomp.usf.edu/~bnpatel/pic7.htm thiese are b4 my

Have you seen this?

2007-03-27 07:47:14

Hi,
This test is funny:
What's Your True Color?
http://web.tickle.com/invite?test=1108&type=t
You can see how I scored at the end.
Houston

Brown Sequard ??

2007-03-26 20:57:15

i,I not really sure what the sydrome is,have
never heard of it myself.But i'm paralized at the T-6
level.So i might be able to help you in some areas,i'm far
from a expert,i'm just a newbie myself,only been
injured 22 months.Welcome to the board,i'm sure you will
find some help,if not there is good support here,Take
care Randy

Wheelin On--bowel care

2007-03-26 14:56:45

ave has a horrible time controlling his bowels.
He has those little enemas and does dig stim but
nothing comes out most of the time (unless I do it for
him while he's lying in bed and we're trying to do
away with that method). Does anyone have any tips on
what if he just goes when he feels like he needs to
poop instead of a routine? He knows when he needs to
go, but he only has a few minutes to get to the potty
or it goes everywhere! I'd say he probably has
enough warning to deal with it and get there before the
big blow-out happens IF we are at home or near a
bathroom. But the bad thing is that it frequently happens
when we are NOT near a bathroom! We drove from
Louisville to St. Louis for a little jaunt last week and in
the middle of Illinois, he felt the urge. We got to a
bathroom but it was already too late, it was all over his
pants and his chair. Needless to say it was all over
the bathroom at the gas station and people were
banging on the door wanting in because it took us so long
to clean up. I took care of the banging men and they
understood after I told them we had a problem. I had to wash
his clothes in the sink, etc. then mop and clean the
whole darned bathroom before we could continue our
journey. Of course, we had no extra clothes or anything--I
keep telling him to put some in the car for
emergencies and they never get there. I know I can do it
myself but it's time for Dave to start taking
responsibility for his own care--I've got him too
spoiled.<br

Awesome trip....

2007-03-26 06:47:14

i Guys!<br
have had for three days! Have been on the ground since
7:30 (1 hr) and first thing I do, of course, is check
e-mails, and this page.... (thanks James!)<br
gorgeous! Had a touch of rain the first day, no big deal,
saw lots of rye grass fields, and lots very expensive
farm equipment,( Randy.) one grower had six brand new
John Deere combines, Impressive...<br
cocktails, friends, & conversation, most of these guys (24
of them,total) I have known for man years, some are
customers, co-workers, bosses, and suppliers, They all take
such good care of me! We have found that airports or
other places with uphill walkways, two guys, one on
each side, hold my hand and off we go. Much more fun
than BEING PUSHED!!! I took my push handles off long
ago, when people try, and ask where they are, I tell
them, it is NOT a stroller...<br
and out of airports, rental cars, etc. <br
The White Salmon just about and hour outside of
Portland. This was more white water than I had done before.
Most were class 4. Our rubber boat had four of our
guys with paddles, and a guide (driver) in the rear.
They nestled me on the floor of the boat, perfect. and
comfortable,too. I had almost a level view of the
rapids.<br
and tons of water splashing on us! (Snow melt, way
cold!)<br
Well, it was a narrow trail, rocky, muddy, and with
moss on some of the rocks, and was switchbacks for
maybe a total of a city block!<br
piggyback. What a guy!<br
fall, same routine, only they tried a two man fireman
carry, it worked well, just that it was narrow in some
places, so they had to pass me around a bit, and try
everything!<br
ASS!<br
little more beer than I usually drink, which is about
1-2 per week) so I need to get back on track, and get
a good nights sleep for a change.<br

Re: [Spinalcordinjury] Is finding supplies a hassle?

2007-03-26 04:05:56

Hi, Frank
I am L 1 paraplegic injured 1996. Fortunately for me, I live in Seattle and
rehabbed at the University of Washington Medical Center (#2 rehab in the
country). They connected me with good local suppliers. I order catheters and
other supplies from Choice Medical and they are delivered to my house. I
don't know if Choice is national but you may want to look online. One thing
I have learned, though, is that the minute any product is labeled
"disability" the price is jacked way up, which makes no sense since most of
us are on public assistance and can't afford much. It's a crazy world we
live in. Your idea sounds like a good one, especially if you can offer
products at reasonable prices.
I have also found products through publications like New Mobility and
Paraplegia News.
Best of luck,
Anne

Human-buttons

2007-03-25 16:40:38

This message is about Human beings, Democracy, UNHCR, Refugees, The Iraqis,
Islam, Kurds, Human rights, Respect, Money, Donations, Angelina Jolie,
Pavarotti, Giorgio Armani, Donors, Peace, History, Campaigns and about you if
you care about these words.
Hi there,
I am SAM, an Iraqi refugee living in Lebanon at the moment; I have spent the
last 10 years of my life as a refugee registered with the UNHCR in Beirut. The
last 4 years, I have spent as an activist for peace and human rights (especially
refugees and asylum seekers) on the Internet; I'm also books author and ebooks
publisher. I have launched many campaigns to improve our situation as refugees
in Lebanon and hopefully bring more understanding to our problems worldwide. I
helped make many changes and improvements at the UNHCR office in Beirut; I used
the Internet as the field for my activities (you can read more about that in my
free ebook 'MY CAMPAIGNS'). All my ebooks are free and could be download from my
sites.
This is my newest campaign, it's about the illegal and humiliating actions of
the UNHCR, who using photos of refugees as banners and human-buttons to collect
money. This is an abuse of the dignity and humanity of the refugees and must
stop immediately and a clear public apology present by The United Nations High
Commissioner for Refugees. My friends, I am talking about the pictures you can
see here: http://www.souptown.com/humans
Where you can read the rest of this message as web page.
Also you can read my new campaign 'Urgent, we need smile' here:
http://unhcrlebanon.arcadepages.com/smile.html
For more info about UNHCR and life of refugees you can read my free ebooks. I
invite you as fellow humans and members of the world community to support my
campaign by reading my article on my site and see the human-buttons. The
campaign is to support and improve the UNHCR http://www.unhcr.ch especially
after the last scandals in the UN and UNHCR, just for example: The refugees
allege that UNHCR staff is selling most of the food items they are supposed to
be supplied.
"They aren't supplying sufficient food to us because they sell most of the food
items," they allege: http://allafrica.com/stories/200503140214.html
Here is another example: Burmese Refugees Withdraw Protest Against UNHCR
http://www.mizzima.com/archives/news-in-2005/news-in-april/12-April05-22.htm
"We make demonstration and fast because the UNHCR office in Cairo did nothing
for our problem..." http://news.bbc.co.uk/2/hi/africa/4440730.stm
Together we will build better world.
You could reach me fast via this form:
http://free.hostdepartment.com/u/unhcrlebanon/email_me.htm
and if you like to know more about me, you can google for my name 'osam
altaee'.
Thanks
THE TRUTH WARRIOR
http://unhcr.fbhosting.com

Is finding supplies a hassle?

2007-03-25 15:08:32

I am a C4/5 quadriplegic. I was injured in an automobile accident
two years ago. I had only one semester of nursing school left. It
has been difficult to adjust to living life with a disability. But,
I made the decision to keep fighting, and live my life to the best of
my ability.
When I made that decision that life must go on, I decided to start a
medical supply business. Personally, getting the things that I
needed for my care was not easy. I was sent home from the
rehabilitation hospital without any idea where I could purchase
supplies. My wife would have to drive all over the city to find what
I needed. Because of that, I thought offering this service online
would be a great help to many in the same situation that I am in.
I was wondering if many other people have experienced the same
thing. If so, how have you dealt with it? I think this would be
valuable information for others and would help me as well as I reach
out to try to make life easier for others.
Thank You,
Frank
www.frmedicalsolutions.com

Re: You're Invited: Conference Call on FY2007 Federal Budget

2007-03-25 03:56:34

FYI
[INLINE] [INLINE]

http://www.familiesusa.org/

Dear Dana,

Conference Call on FY2007 Federal Budget

http://ga3.org/familiesusa/events/budget_call_020906/register.tcl?member_key=wgkn7udrq5btmwd&

Following Congress' approval last week of a deeply flawed and callous budget that included $16 billion in Medicaid cuts, on Monday morning the President released his FY2007 proposed budget. The budget provides more detail about the Administration's health policy goals for this year than were revealed in the State of the Union address, and will shape the congressional budget process that will take place over the next month.

On Thursday, February 9th at 3:00 PM Eastern Time, Families USA will hold a conference call for advocates to discuss what's in store in this year's budget process. Topics include:
* Associated Health Plans (AHPs) Health Savings Accounts (HSAs) and other dangerous private market trends
* Medicaid
* Medicare

Click Here to RSVP for this call

You will receive an e-mail with the call-in information (including the toll-free number) on Wednesday afternoon. After you've RSVPd, please share this invitation with all your networks using our Tell-a-Friend feature.

Thank you in advance for your participation.

Luis Hestres
eAdvocacy Coordinator, Families USA

Re: [DisabledOfAmerica] Fwd: MiCASSA Co-sponsors by state -- an update

2007-03-25 03:46:26

HI Amy,
How do I send list and eliminate you? I'm sorry you think I'm spending too many? I thought it might be beneficial to someone that needs to contact their representatives or Senator. . Or are you speaking for the entire group? If so I will or just not send to DisabledOfAmerica. Thank you for telling me. I just delete if they don't interest me.
Dana

[INLINE] [INLINE]
would you please stop sending so many....thanks

I found link

2007-03-24 19:35:15

i everyone,i found the link under the catagory
heading at top this page,looks to be a nice place
Wayne.It's Hot in Ohio also Teri,been hi 80's all last
week,and 90's last 2 days and all week here,way too hot
and no rain,not looking good here for the crops,were
burning these poor little young crops up.,sickning
watching and can't do a thing.Sounds like a fun trip
coming up to Oregan for you Geri,have fun !!!.Your lots
bravver than i would be on those rafts,but i can't swim
either.Well got a go,have a great week everyone,Randy

me, too

2007-03-24 18:22:08

ey, welcome Wayne, I also tried your link, got

Re: Need input on behalf of my dad.

2007-03-24 10:30:53

Hi Dina,
I don't know too much either. I do know that about 9 years ago my
sister fell and broke her back. It was the lower part, but they did
put some kinda shunt in for support. I don't really know anything
else, but if I talk to her, I'll ask some questions.
Your Dad will be in my prayers.
God Bless,
~Ronda~

Thanks

2007-03-24 03:10:12

Thaks Mike for your care and help. I am suppose to see the
Neurosurgeon tomorrow and get the results of all the testing they
have done for the past week on the tumor. I'll let ya know what they
tell me.
God Bless,
~Ronda~

Link didn't work Wayne

2007-03-24 01:48:01

keep getting a error message when using your link Wayne,i 'll try messing with
it,Randy

Will check it out Wayne

2007-03-23 20:48:27

i Wayne will check your page out too.I sure hope my new lifts works ok,should be
getting it anyday now,have only seen a video and pictures of it myself.Well got
a go,Saturday nite,going out,Randy

Re: [Spinalcordinjury] Need input on behalf of my dad.

2007-03-23 08:35:34

I have mostly heard of shunts being used for people with clogged arteries to their hearts. They usually use them when someone has suffered a heart attack. I've enclosed a link to Medlineplus Dictionary, maybe you can find a little more there.
http://www.nlm.nih.gov/medlineplus/mplusdictionary.html
Main Entry: ^1shunt
Pronunciation: 'sh&nt
Function: transitive verb
: to divert by or as if by a shunt ; especially : to divert (blood) from one part to another by a surgical shunt

Fwd: MiCASSA Co-sponsors by state -- an update

2007-03-23 06:16:50

FYI Do you see your Representative or your Senator?

Please contact yours and urge them to support MICASSA!

Dana

Re: [QUAD-L] Fwd: House Approves Budget Bill

2007-03-22 22:47:50

You did not see my next one I read it wrong. The next e-mail to you was I read it wrong and I gave you a list of all this representative and which way they voted so you can write them or call them and give them hell.
It was late and I was tired. check for my next two e-mails please, explaining that was duh.
I was so hoping it would not pass our read it wrong.

So sorry I was error now we have to go to our state legislature about the way they impose or enforce these new laws? We still have work to do.
My representative voted against the cuts but I'm sure my senators will vote for them in Kansas as they are Republicans. Is a sad day for people with disabilities and the elderly who needs this.
The Medicare D is not much of a resource for all those cuts

, BUSH will be giving more tax cuts with this savings, which won't help us at all unless you are higher income which many of us are not. And of course no health care in his State of the Union talk, which we already knew would not come to pass. He does not care for the person with disability or elderly. He doesn't need the money so why should you worry .

Dana

Need input on behalf of my dad.

2007-03-22 17:40:55

Hello, I am not a patient with a spinal cord injury, but this appears
to be the best place for me to find some answers. You see, 38 years
ago my father suffered a broken neck in a diving accident. Luckily he
did not suffer any devistating long term effects. He is 65 years old
now, and has been diagnosed with Alzteimers. His doctor is asking if
he had a SHUNT placed in during his surgery. I have no idea, also what
I really want to understand is....what is a SHUNT and how does it
work. They seem to think that this may be part of the reason for some
of his problems medicaly now. If anyone care shed some light on this
for me, I would be very happy. I want and need to know everything that
the doctors want to do and are doing with my dad. He is currently in a
nursing home.
Sincerely,
Dina.

Hi Wayne

2007-03-22 14:49:06

elcome. I am a T12-L1 injured in Dec 98. I am
back at work fulltime, have a van to get around and in
the process of remodeling my home so that it is
accessible. I am married and originally from France.

Re: [Spinalcordinjury] This is all new to me

2007-03-22 05:07:08

Hi Ronda, although I'm a spinal cord injury and para I can relate to the instant change you are experiencing. When I broke my back there was no other trauma involved, it was like I woke up not being able to walk. It took some getting used to. You just need to work as hard as you can at your physical therapy, believe in yourself, and in God. My sister in law was diagnosed with breast cancer almost the same time I broke my back, they operated and today 2 years later she is doing great. My dad's wife is a 2 time survivor of ovarian cancer she has good days and bad days but she still leads a very full life. Just have patience and faith. Thankfully your tumor hadn't spread, 2 weeks is a short time when dealing with the spinal cord, yours might still have some swelling. I'm almost 19 mos post and I feel my level of sensation is still changing. Hope things go well, let me know how things go. I also have a website dealing with SCI http://aminorinconvience.netfirms.com/index.htm
Stop by for a visit. Sporto! [LINK]

New member Welcome !!!

2007-03-22 01:53:38

i Wayne,welcome to the board,hope we can help
you some.I'm a T-6 para from a Harley accident
7/97.I'm 35,from southern Ohio.Farmer,i guess that about
covers me.It's a great place here,glad you joined.Randy

This is all new to me

2007-03-21 10:00:45

Not sure if this is the place to come but I could use some friends
who can help and understand all that's been going on for the past
week.
My name is Ronda. I'm 32 and from VA. I've been married for 12
years and have two wonderful children. Cody 10, and Mandy 8.
I have had Epilepsy practically all my life. Just this past week
though, I went to the ER for the third time within the past 8 weeks
and was finally told that I had a tumor on my spine. They had to
remove it and are still waiting on results of the testing on it.
They did check and could find no more tumors on any organs. I do
have loss of feeling in part of my lower back and left leg, but I am
able to walk.
I'd like to find someone who can associate with me and understand
what's going on. This was all a big surprise and has had a major
affect on my family here at home. It's nice to have someone else to
vent it all out on.
Well, I hope to meet you all sometime. Until then, God bless you all.
~Ronda~

Re: 1 800 797 9794 How to get medications not covered on on Medicare drug plan

2007-03-21 05:36:18

Subj: Re: the procedure for getting medications
call the toll free number on the back and request an over-ride on the blocked perscription. That number is 1-800-797-9794. After I got done dealing with them, they had me call my pharmacy, and ask the pharmacy to call the toll free number also, to let them know that an over-ride had been authorized.
I then had to call the doctor's office and request them to call the toll free number and Fax a copy of a prior authorization over to them. The toll free number will tell you all this, and give you a Fax number for your doctor to send the prior authorization form.

Once sang no

a little about me.

2007-03-21 02:38:51

Hello
My name is Nyree. I live in Virginia. I'm 5 years post injury,
quadriplegic c4/5 complete. I have daughter named Nina that is 9. I
have no idea what I would do without her. She's definitely keeps me going.
Before my accident I was a LPN. Now I am going back to college to
study computer information systems.
Nyree

Re: See if your Representative voted for the $16 billion budget cut

2007-03-21 02:28:36

FYI : Did your Representative vote for the cuts, I would let him know that you are not pleased. My Representative in Johnson County, Kansas voted against the cuts. Dana

FINAL VOTE RESULTS FOR ROLL CALL 4

(Republicans in roman; Democrats in italic; Independents underlined)

H RES 653 YEA-AND-NAY 1-Feb-2006 5:11 PM
QUESTION: On Agreeing to the Resolution
BILL TITLE: Relating to consideration of the bill (S. 1932) to provide for reconciliation pursuant to section 202 (a) of the concurrent resolution on the budget for fiscal year 2006 (H. Con. Res. 95)

Yeas Nays PRES NV
Republican 216 13 2
Democratic 200 1
Independent 1
TOTALS 216 214 3

---- YEAS 216 ---

Aderholt
Akin
Alexander
Bachus
Baker
Barrett (SC)
Bartlett (MD)
Barton (TX)
Bass
Beauprez
Biggert
Bilirakis
Bishop (UT)
Blackburn
Blunt
Boehlert
Boehner
Bonilla
Bonner
Bono
Boozman
Boustany
Bradley (NH)
Brady (TX)
Brown (SC)
Brown-Waite, Ginny
Burgess
Burton (IN)
Buyer
Calvert
Camp (MI)
Campbell (CA)
Cannon
Cantor
Capito
Carter
Castle
Chabot
Chocola
Coble
Cole (OK)
Conaway
Crenshaw
Cubin
Culberson
Davis (KY)
Davis, Jo Ann
Davis, Tom
Deal (GA)
DeLay
Dent
Diaz-Balart, L.
Diaz-Balart, M.
Doolittle
Drake
Dreier
Duncan
Ehlers
Emerson
English (PA)
Everett
Feeney
Ferguson
Fitzpatrick (PA)
Flake
Foley
Forbes
Fortenberry
Fossella
Foxx
Franks (AZ)
Frelinghuysen
Gallegly
Garrett (NJ)
Gibbons
Gilchrest
Gillmor
Gingrey
Gohmert
Goode
Goodlatte
Granger
Graves
Green (WI)
Gutknecht
Hall
Harris
Hart
Hastert
Hastings (WA)
Hayes
Hayworth
Hefley
Hensarling
Herger
Hobson
Hoekstra
Hostettler
Hulshof
Hunter
Hyde
Inglis (SC)
Issa
Jenkins
Jindal
Johnson (CT)
Johnson, Sam
Keller
Kelly
Kennedy (MN)
King (IA)
King (NY)
Kingston
Kirk
Kline
Knollenberg
Kolbe
Kuhl (NY)
LaHood
Latham
Lewis (CA)