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Hello, my name is paul and i was wondering if anyone here has had
spinal fusion.i am about to get that done to myselfand i was looking
for some feedback on it. thanks

i Dorla, Sorry to hear about your loss. My uncle
was killed in a tractor accident in 1942, at age 16,
I found this poem in my grandmother's scrap book
from that time. I have had to, unfortunately, copy it
for several friends who have lost children, at any
age. I put it on really pretty paper with angels at
the bottom, will copy and paste so it may not come
out really well. God Bless. Geri<br
PARENTS<br
said.<br
he's dead.<br
twenty-two or three,<br
take care of him for Me?<br
gladden you, and should his stay be brief,<br
his lovely memories as solace for your
grief.<br
return,<br
this child to learn.<br
over in MY search for teachers true<br
throngs that crowd life's lanes I have selected
you.<br
labor vain,<br
him back again?<br
say, "Dear Lord, Thy will be done!<br
Thy child shall bring, the risk of grief we'll
run.<br
we may,<br
forever grateful stay;<br
him much sooner that we've planned,<br
the bitter grief that comes<br
understand."<br

e also don't know what to say or do. The
pregnancy wasn't far enough along to have a funeral and
they sent the baby away for extensive testing. With
Mothers Day upon us, We don't want to do anything to
deepen the hurt and also don't want to ignore it and
leave the impression we don't acknowledge she was going
to be a mother. It's hard to know just what to do. I
never thought there would be this much grief with a
miscarriage. Sometimes my grace doesn't exactly grow so
smoothly with the greater burdens. Dorla

In Ohio we lead the country in hiding as many people in nursing homes as we can get away with. It is those nursing home dollars. To hell with patients' rights. It is certainly not about doing the right thing. I am looking for an insurance company to take away the money that I get from social security. I've talked to so many uncaring people. Maybe this isn't a good time to live if you are crippled and poor. I'm going to see how it goes. sSI bragged how people like me will get the largest increase since 1992. The medicare plan D means I'll have the same amount of money that I got in 1985. In 30 years I have never dealt with such mean spirited people. Not 1 single politician I've talked to is responsible for any of it, either. i'm so depressed. Christmas..pffffffft.what a joke. I'm usually tolerant of these pagan rituals. I just don't have it this year. I hope God looks kindly on all of you, because nobody in washington will.

Save the Rich!

johnny

FOR your information
Dana

A free calendar. It's hard to get free calendars nowadays, so I thought you might be interested. You can also get a DVD or video about help with spasticity. There's a very brief questionnaire to fill out,
Dana

Don't email me anymore. You don't know how lucky you are. If you have a sci...you don't now the whole part of it. Try having "accidents" all the time...try not having any sensation.........ummmm hello...YOU CAN WALK!

You have a husband, that means people don't treat you like you have some sort of contagious disease. No wheel chair. So you are pretty lucky in my book.......
michele shank <shanktrist@...

Hi, my name is Michele. I'm a 31 happily married mom of 2.
I can not believe I'm about to write this... but I'm so tired of being
"alone" when it comes to my spinal injury.
When I was 21 I fell out of a four story window. It was awful,
recovery took forever. I had metal rods in my back and wore a
brace that stayed on for over a year while my pelvis and back
healed.
After extensive physical therapy I did learn to walk again. My
sacrum grew in lopsided so I am most definitely deformed, and
it bugs me everyday, tempered mind you by the fact that I am so
grateful that despite my figure flaws I was able to attract my
wonderful husband, and my body let me have two beautiful
children despite what it has been through.
Since my injury going to the bathroom has become increasingly
difficult. Urinating has always been something I needed to do by
pushing and squeezing my bladder to get it out. Now this
apparently has caught up with me because I am finding that I
have now damaged my tush muscle. It's unbelievably the most
scariest, most horrible feeling to think one may fart at the wrong
time!! OH and god forbid I have diarrhea, I am totally SCREWED
if you know what I mean. I realize it's a form of incontinence
and I only see it getting worse. I also have urinary incontinence
issues, I get spasms, and if I'm not constantly making sure my
bladder is empty I may have an accident.
It's all just awful.
I've been going to a urologist, but he's turning out to be such a
jerk. When I was explaining about the bowel thing, he smirked,
and it turned me off, as if I don't have enough shame to deal
with.
So I'm looking for any information I could possibly gather. If any
of this sounds familiar I plead of you to share what you know
with me. I researched a type of operation where they can
actually replace your shincter muscle with a muscle from
another part of your body, has anyone heard of this?
I just want to be a good mom and not an embarrasment.
Thanks for reading.

nyone else, but it's strange that this club has so many
members, yet I only see postings for Randy, Dorla, Geri
and Dominique. It is truly a wonderful club for
healing. All postings of wisdow are
appreciated.<br
can't phathom the pain such a loss must bring. My
prayers are with you.<br
advise on the "electric impulse" question. My father
says it's not so much a burning sensation, or spasms,
but a electrical sensation. No biggy. Just
interesting.<br
a mesh netting and hosed down for a shower. Images
of "Free Willy" flashed in his mind. This aquatic
feat was performed by "Juice", who took care of Chris
Reeves. Fantastic guy, and by his own affirmation was
born to do this work. Catch an interview with him on
CNN, May 18 at 8:00pm EST. I guess they're doing a
story on Chris Reeves and they wanted to interview
him.<br
legs searching for bloodclots. This is a big concern
for my father. He's quite anxious about them. They
doubled his Heprin just to be safe, but they can't be
certain for 24 hrs. <br
brace doing some morning rehab. He experience some
excruciating pain from the brace pushing against his staples
which were digging into his back. After a lunch break
and some high tech adjustments to the brace (foam
padding taped to either side of the stapled scares), he
was up and about for his afternoon session of PT,
which went very well.<br
friend of a friend who was in Kessler last year for an
auto accident. Shattered T11,T12 and crushed L1,L2,&
L3. He was in a limo, the driver fell asleep, the
cruise control was left on, and car spun out of control
across six lanes of traffic, the median, and flew off a
30 foot overpass. He was awake thru it all.
<br
my father need to see and talk to. He was back on
the go with a sleek wheelchair and lots of positive,
sound advise.<br
the day, listening and encouraging. I can see his
frustration, but his nurses are pushing him towards
independence. <br
Geri, thanks for the "adapting the home" offer. I'll
pass both emails along. I hope to get him on-line
soon. Checking out the Sony Vaio Slimline Notebooks,
very nice, light computer.<br
the advice. Maybe I can give something back
soon.<br

FYI Dana

hanks for the information Randy. I had thought
and thought about how you were going to use a lift to
get up on that big tractor of yours. <br
rains it pours refers to our youngest daughter lost her
baby this morning. It was her first and we were so
anxious and excited. Always makes us feel like we're the
only one that has tragic in our lives but I know we
aren't and this Club helps me keep a better prespective.
Dorla

Texas HHSC Expands News Service

A new subscription e-mail service will make it easier for the public to keep up with the latest news and information about health and human services. The new service allows users to select items of interest from a menu of categories covering all five Texas health and human services agencies. When new information is posted to the Internet about those topics, the user will receive an e-mail notice. Clink on "To subscribe" at: http://www.hhs.state.tx.us/

With Love,

CtrlAltDel aka Dave
C4/5 Complete - 29 Years Post
Texas, USA

FYI
Dana ( C4-5, 31 years post, 52, KC)

ello Dorla,my new lift will work like a electric
company boom truck.I will have a boom lift in the back of
my pickup truck and i will transfer over onto it,and
it will lift me up and into the tractor.After i'm
in,i will use a remote control to put it back into the
truck and off i go.With this lift i will be able to get
into several tractors,this way i don't need a lift
mounted on each tractor or combine.<br
Vocare system,i do see your point about it for a
female.Cathing would be easire.I would like to know more about
it fri bowel programs.I haven't had time to go to
the web site yet,been really busy in the fields.Randy

Hey MJ, jusst read your letter on med you're writing about, never heard of it. Now whenever I had a pressur sore, been 14 years, since I've had one, I have always cleaned good with bedadine, probably spelled wrong , will correct later, my soaps coming on, and then I cover with neosporin, cover with bandage, let air when possible, hope this helps, if you are having problems. Will write later, Theresa
mjhoppercarver <mjhopper@...

I am interested in anyone that has used Regranex for pressue sores
and if Regranex healed your pressure sore.
I am going round and round with my insurance company trying to get
them to pay for my prescription of Regranex which is by the way over
500 dollars.. I call it a miracle gel.. it is a growth factor and to
use it you must follow instructions to a tee. The unfortunate thing
is that the information concerning the product states it's for
Diabetics with unhealing sores.. It has been used for pressure sores
on Spinal Cord patients but my insurance does not see that... They
did pay for it twice in the last several years since the life span
of Regranex is short and has to be kept in the refrig.
My agent is appealing this for the second time in the meantime I am
trying to find SCI people that have used it and have had sucess with
it.
Any information would be greatly appreciated.
Mary Jane Hopper

Hi Dana,

We had a day of family, friends, food, and fun here. It was truly a day of thanksgiving! I hope everyone else had a wonderful day, and continue to be thankful for all we do have. We always have each other!

Dave Kelmer,
Wichita Falls, TX

orla and Randy, thank you for your good words.
My husband and I went to counseling yesterday
afternoon. It was not a pretty sight. The end was there. I
wanted to end it.<br
was too.<br
different vehicles) and he was there: we had a few more
words, although civil. I then left to go to a meeting
and on the way over, I was crying so hard, I had to
stop on the side of the road. I called home and told
him I could not go through with this. We both started
crying and this was another crisis in our marriage that
somehow we weathered.<br
but somehow it looks like we are both willing to work
at it. I am glad we have turned this chapter and are
ready to go to the next.<br
you are getting your lift. I am thrilled for you. One
of the best things that happened to me is when I was
finally able to get in and out of the house and drive
anytime, anywhere. The freedom was just so great. Not,
that I go all over the place now. But it is MY
choice.<br

Hi Michelle,
You must meet my friend Brian Carter, in Kentucky. He
thought that he was born with mild
CP and discovered late in life that it Spinal Bifida
instead. Brian is also the owner of a company
that matches his website address, www.abaip.com
I invite you to visit his website and email any
questions you may have directly to him. He also owns
the website for incontinence as well. You will see it
in his links.
Best Wishes
W

I am interested in anyone that has used Regranex for pressue sores
and if Regranex healed your pressure sore.
I am going round and round with my insurance company trying to get
them to pay for my prescription of Regranex which is by the way over
500 dollars.. I call it a miracle gel.. it is a growth factor and to
use it you must follow instructions to a tee. The unfortunate thing
is that the information concerning the product states it's for
Diabetics with unhealing sores.. It has been used for pressure sores
on Spinal Cord patients but my insurance does not see that... They
did pay for it twice in the last several years since the life span
of Regranex is short and has to be kept in the refrig.
My agent is appealing this for the second time in the meantime I am
trying to find SCI people that have used it and have had sucess with
it.
Any information would be greatly appreciated.
Mary Jane Hopper

Everyone can use a little prayer, God Bless all. Theresa ( TESA) [INLINE]
Note: forwarded message attached.

THERE ARE SEVERAL OF US IN THE STATE OF INDIANA. THE
REST OF US ARE IN
THE STATE OF CONFUSION. WHO ARE YOU LOOKING FOR?
RESPOND TO: Wheelchair@...

To the last message the guy posted..most times the chats on these
group are not active..unless someone sets up dates and times for chats...

I hope you're safe and having a great Thanksgiving!

Huggss Heather

t's funny how the universe works. I just logged
on during my lunch break today, and read all these
posts about relationships. My husband and I are going
through some serious problems and I am not sure we will
reach the other side together. I immediatly e-mailed
Gerri and asked her if she broke up AFTER her accident.
(LOL) Sorry Gerri ! But, kidding aside, Gerri, thank
you so much for your very good words. I was talking
with a friend on Sunday and she suggested that I call
on my church, talk to the Boy Scouts etc. for
help.<br
progressing, it's taking a very long time. (We moved in May
98).<br
It's the only time that I am actually aware that I
have feet. They come in every 30 to 60 seconds. I also
have a TENS Unit, so I have electrical shocks in
quadraphony ! (Better than stereo !)<br
this site. Bless you all for
participating.<br

Hello. I have been trying to make contact with the group for several months
now. I am a member, already, but I do not know how to get to the chat room.
I would appreciate some assistance and directions
tom1_au

Medicare web site for questions and information:
http://ssa-custhelp.ssa.gov/cgi-bin/ssa.cfg/php/enduser/std_adp.php?p_faqid=1435&p_created=1120841334&p_sid=SxMMhiVh&p_lva=&p_sp=cF9zcmNoPTEmcF9zb3J0X2J5PSZwX2dyaWRzb3J0PSZwX3Jvd19jbnQ9MzgmcF9wcm9kcz0mcF9jYXRzPSZwX3B2PSZwX2N2PTEuMTAzJnBfcGFnZT0x&p_li=&p_topview=1

800 numbers that you can call for information about Medicare in each state , if you can't get through to Medicare.

SHIPS

ello Dorla,i found a web address for the Vocare
system,it is actually from Ohio.I saw there add in New
Mobility magazine,it is (www.neurocontrol.com)ph
#(888-333-4918)I got to run,need to head for the fields,i worked
all day yesterday,trying to get more corn and beans
planted before it rains again Wednesday.Have a great
week,Randy

This group has been around now for 7 months and been very acive with
over 700 members..This group is unique cause your not going to be
seeing spam or advertising for porn group or web pages when you have
to pay for.
To join you must have information on your profile or send me your
information to my email..
This will probable be my last pitch for this group cause coming the 7

i Michael,<br
bubble, but the tingling and burning is not necessariy
any kind of "good sign" IT is just the neurons going
crazy and causing trouble. In an incomplete it is very
common. Things will settle down at about 90 days. I
didn't have any burning till I got thru the "spinal
shock stage" About 60% of SCI's experience it. It is
very uncomfortable and downright distracting. It took
me a long time till I could learn to ignore it, even
to carry on a coversation. I tried neurontin for it,
no effect. But then did find that it helped my
spasms. Another thing that didn't relaly act up till
after spinal shock wore off. IT got really bad at about
5 months post. When they could no longer do any
range of motion. That was when the "pump" issue
started. I held out till 11 months post, when I could no
longer safely transfer due to rigidity in my legs. <br
am glad he is going to Kessler. I "met" another
person on the net whose nephew went, and got the same
guy Chris Reeves had, who I guess is GREAT! When it
comes to adapting the house, have your dad e-mail me, I
have done ALOT. and have good ideas, pro and
con.<br
done by a student at KSU, Clayton Lewis ? If not,
please check it out. Lots of great
info....<br
target=new

FY I
Dana (C4-5, 31 years post, 52, KC)

Wishing you all that your Thanksgiving Day will be a day that you will have to spend with your family or friends and be able to Thank God for the gifts that we have, but also pray for his continued blessings with the problems we face daily. If you don't have family or friends that are available, I hope that you can connect with one of us online to share. I often wish I could meet all of you as we become friends through this web site to help each other.
Dana (C4-5, 31 years post, 52, KC)

In a message dated 11/22/2005 3:21:27 PM Central Standard Time, ctrlaltdelakadave@... writes:

[INLINE] [INLINE]

I would like to wish all of you a Thanksgiving Day filled with joy and happiness.
Even though we can't be together, I appreciate your sincere friendship.
May you all have a safe Thanksgiving.
With Love,
CtrlAltDel aka Dave
C4/5 Complete - 29 Years Post
Texas, USA

I would like to extend to all of you a Thanksgiving Day filled with joy and happiness.
Even though we can't be together, our DOA family has grown and I appreciate your friendship.
May you all have a safe Thanksgiving Day!

Dave Kelmer,
Wichita Falls, TX

his support, and on a stinky little computer like
this. It's true about life being th best teacher. I
want to thank all my on-line teachers who are sharing
their lives.<br

f deaf ears. That is the tricky balance we as a
family must walk. You want to be hopeful, yet pragmatic
at the same time. <br
king of pragmatism. He will not sit idly waiting for a
cure. He's already talking of how to convert his house
to make it more SCI user friendly. He's off to
Kessler next week after a week of recovery.<br
received a call from him yesterday at 1:30 am (10:30 pm LA
time for me). He was trippin' on the morphine and
having wild dreams of running, and his legs moving and
floating. He had to call someone to talk him through. He
also mentioned that he was feeling rapid pulses like
electrical charges around his feet, ankles and up his lower
legs. I'm not sure if this is good, bad or common. Any
thoughts?<br
further discussions.<br

is anyone in INDIANA? Please email me.

FY I call your senators and write them at 1-800-828-0498 tell them to vote against anything that will hurt the Medicaid program and recipients.

find out how to your representatives vote on this issue!
Dana

hio Farmboy I sympathize with you. Most all our
SCI friends lost their parners and some even their
families. Just like the new wears off anything. Some we
know have been placed in rest homes and that's a good
reason to become as independent as you can. After a
certain amount of time peopletend to get on with their
lives. At first we had so many visitors I felt like our
home was a shopping mall and now none of her friends
of that time ever come around. Thank heaven she has
made man new friends and friends that are disaabled as
well as able bodied ones. We were warned about this
happening in rehab but didn't believe it. We are still a
close knit family but the sisters have their own family
growing up and are very busy with their own things and
our daughter has made a life for herself so she isn't
the center of attention as she once was. Sounds like
everyone in this club have went on and made the best of
what they got dealt. I know of others that have not
and they are very despondent most of the time. When
you tell them that they can accomplish things they
just don't believe it or don't want to put out the
effort. I am on a calling list at the hospital for
counseling parents of newly injured SCI's. At this time they
really aren't prepared to be thinking about the long
term disability. My daughter also counsels and we
always schedule a time to meet with the parents together
just before they are dismissed to go to rehab so they
can see the possibilities that can be attained. They
may not grasp the direction at this time but later
they reflect and many has contacted us for information
after the initial shock as worn off. My daughter
counsels but mine input is more of a visiting/listening
session. Keep in mind these are just my opinions and
experiences. I do have a question. Has anyone heard about
Vocare Bladder System? It is supposed to eliminate the
necessity of catherization. Wheelin On is a perfect name
for this club. Dorla

i Randy.<br
this, even when we COULD WALK! At least it's not
fatal.(and id happens to the BEST of us!) I have been
divorced since 86,. (SCI 96) People are always asking me
if I got divorced AFTER the crash. Like it would be
logical... Personally, I am often glad that I am alone. Yes,
it forced me to be extremely independent from the
begining. First year my daughter was a senior, so still
home, but not much. Then they both went away to
school.<br
I am grateful that nobody is around. Hopefully you
can get your bathroom taken care of. It has been one
of my BEST things!<br

FYI please call and write ASAP your senators and representatives, this is horrible!
Dana

FYI I don't know if anyone is in this location, where this this conference will be and are interested?

thanks for that it was really good..........
theresa hebert <Rodalways70512@...

Forgive me for forwarding this to all, I know not everybody likes to get these things, but was to moving not to pass it on.
Note: forwarded message attached.

i Dominique,i guess i should of said single.My
fiancee left me Feb 14th,ya how romantic.I live by myself
now.Oh well was a lot of things i should of done
different,wasn't all her fault.I guess what i meant about being
more independent was my personel care stuff,i need
help transfering in the bathroom and doing the jobs
there.My bathroom needs major help.Other than that i'm
independent.Yes i have accomplished alot,but still need
more.Thanks for the concern.

Hi Dana,

I agree. This is a very important matter. We need to fill as many gaps as we can before people fall through them!

Dave Kelmer,
Wichita Falls, TX

Forgive me for forwarding this to all, I know not everybody likes to get these things, but was to moving not to pass it on.
Note: forwarded message attached.

egretful. You say that you should have been more
independent earlier in your recovery: well, I am so impressed
that you are farming. Obviously you are not afraid of
making up for lost time. Just think of all that you are
accomplishing especially with the odds stacked against
you.<br
you were living with family ? Keep talking Randy, we
hear you.<br

FYI : probably a good idea to write your congressman about this important issue.
Dana (C4-5, 31 years post, 52, KC)

i Michael,glad the sugery went well,Thanks for
keeping us updated on your fathers progress,hope and pray
everything continues to go well.Good luck on your search for
regeneration.Just my oppinion,don't do what i did,i kept holding on
to hope that something would come back,the Dr. gave
me a 2-5% chance,well i'm a gambler and i gambled
that i would be walking by now.I guess what i'm trying
to say is that i got caught up in the dream world
and never faced reality.I still think they will find
a cure,but not setting around waiting.I should of
been more independent a lot earlier than i was,i had
help and i took advantage of it,now i'm alone.Don't
let your father fall into a rut,keep after him to be
independent.Take care Randy

I had several treatments of Botox for clonus not for abdominal cramps which I have.. I did not see any change at all. I also was trying to relax my big toe.. I kept having pressure sore under my big toe because of the tension it was causing.. My insurance did pay for the injections which can be quite expensive... I personally don't think it's worth it.

MJ

No, this is not about my wrinkles!!!

Just wondering if anyone has tried Botox injections for muscle tone and spasticity?? I know it can also be used for bladder spasms.

My boyfriend is incomplete SCI and has awful muscle spasms in his abdominals, which make him double over and he can't even sit up when having them. He also has clonus (shaking) in his right leg and high spasticity in quadriceps and foot muscles. I am wondering if Botox could be an option to relax his muscles and allow a bit more mobility.

I would love to hear your experiences if anyone out there has tried it, and your recommendations as well.

Corinne Davies

corinne.davies@...

But the freedom that they fought for, and the country grand they wrought for, Is their monument to-day, and for aye. ~Thomas Dunn English
As we express our gratitude, we must never forget that the highest appreciation is not to utter words, but to live by them. ~John Fitzgerald Kennedy

I salute all that serve our country so we may know freedom. ~ David K. Kelmer

With Love,
CtrlAltDel aka Dave
C4/5 Complete - 29 Years Post
Texas, USA

WHAT IS A GRANDPARENT?
YOU'VE GOT TO READ THIS...IT IS PRICELESS!!!
(taken from papers written by a class of 8-year-olds)
Grandparents are a lady and a man who have no little children of her own. They like other people's.
A grandfather is a man grandmother.
Grandparents don't have to do anything except be there when we come to see them. They are so old they shouldn't play hard or run. It is good if they drive us to the store and have lots of quarters for us.
When they take us for walks, they slow down past things like pretty leaves and caterpillars.
They show us and talk to us about the color of the flowers and also why we shouldn't step on "cracks."
They don't say, "Hurry up."
Usually grandmothers are fat, but not too fat to tie your shoes.
They wear glasses and funny underwear.
They can take their teeth and gums out.
Grandparents don't have to be smart.
They have to answer questions like, "why isn't God married?" and "How come dogs chase cats?"
When they read to us, they don't skip. They don't mind if we ask for the same story over again.
Everybody should try to have a grandmother, especially if you don't have television, because they are the only grown ups who like to spend time with us.
They know we should have snack-time before bedtime and they say prayers with us every time, and kiss us even when we've acted bad.
A 6 YEAR OLD WAS ASKED WHERE HIS GRANDMA LIVED. ''OH,'' HE SAID, ''SHE LIVES AT THE AIRPORT, AND WHEN WE WANT HER WE JUST GO GET HER. THEN WHEN WE'RE DONE HAVING HER VISIT, WE TAKE HER BACK TO THE AIRPORT.''
Send this to other grandparents. It will make their day

nd info.<br
and I was told it went very well. Traumatic surgury,
but he's still with it. My sister, Lisa, had to
donate some blood.<br
been working on rehabilitation and regeneration
research. There are some wonderful things going on around
the world. In Gainsville, Florida they are seeing
some "interesting" (a conservative word) results with
spinal cord regeneration.<br
sent prayers. Mine are with you.<br
dates on Big Fred's progress.<br
Michael

FYI
Dana

y daughter really limits her fluid intake and
foods that she has found that causes her to require
more cathing such as milk. She wears a foley from
around 11:00pm until 8:00am that is plugged off with an
adapted clip that allows her to drain her bladder herself
throught out the night. She says when she lays down she
thinks her body releases the fluids it has collected all
day. Her legs and feet swell some and at times quite a
bit but go down during the night. Then a caregiver
comes intermit caths her at 12:00 noon and again at
5:00pm. Between 10:00 and 11:00pm another caregiver comes
and helps her in bed and inserts the foley. I haven't
agreed with her limiting her fluids as drastically as
she does and all the Doctors advise against it but
she hasn't had UTI's very often and it will be 17
years this July. So she must be managing it ok for her.
Even though it appears it is right for her I'm not so
sure it would be right for most of the people. It's
been long enough she should have had a serious problem
by now if it wasn't right for her. I guess Mothers
aren't always right..lol<br
Mike. I've spent many long hours at the Hospital and
the waiting is never easy. I don't know much about
the new treatments for SCI. If I ever get my daughter
connected to the internet she might be more informed as she
keeps up on all the information about SCI and it helps
that she works in the SCI department at the hospital.
Best of Wishes for you all. Dorla

reat getting your messages filled with advise and
experience. <br
town it's Big Freddy, not for his size, but for his
big <br
around for support. <br
beneficial site to listen to ideas and talk about
possibilities. And I <br
that every injury is different. That gives me hope
that <br
people who suffer from SCI. <br
last night with Satya, a woman who injured C1 in a car
crash in 1984. <br
She had the smarts after she heard her neck break not
to <br
brain stem damage. Although her paralysis was <br
extensive the injury did effect equilibrium and motor
skills. The doctors wanted to fuse <br
spine so as not to move her head. She opted not to do
this. Being a very <br
work on herself, setting up an obstacle course in her
house. <br
Didn't tell her family for a long time, she felt <br
mother, who lived in Florida, couldn't handle it. Satya
lives in L.A, as do I. <br
world of yoga and Sat Nam Risayan, an esoteric healing
method. <br
wife and I have been taking Kundalini Yoga for 6
<br
from the same instructor has my wife <br
didn't even realize we were in the same class. She is
also teaching yoga now. <br
walk. <br
Masters in Psychology, studied and worked with
<br
back to L.A., started teaching <br
involved with esoteric healing, and works for a financial
investment firm. <br
may appear convoluted, but I going somewhere with
this. <br
to alternative methods of healing, people contact
her <br
<br
friends of a woman, strangely <br
Dancer, mother of 3, no insurance, involved in a car
crash that left <br
was incomplete. The operation was performed right
after the accident. The doctors said she would never
walk again, nor regain any function <br
<br
accident, and Satya and partners started working with
Katya, doing Sat Nam Risayan and other healing
techniques. Months later they started acupuncture The first
thing she regained was her bladder
control.<br
no longer uses her wheelchair.<br
the phone with her and her story is inspiring. She is
still on the road to recovery with a strong positive
mind. The one thing that has helped her was always
receiving positive affirmations for friends and family, and
maintain her own internal hope.<br
info. My father is going in surgury Tuesday morning.
All the prayer you can muster will be deeply
appreciated.<br

% of SCI injured persons go back to full time
employement. The main problem of course is the medical
insurance. Sounds to me like your daughter is taking care of
herself by volunteering and keeping with her area of
study. I saw her picture, she is beautiful: she looks
like an angel.<br
one day in August, 2 days in September, 3 days in
October, and finally full-time in January. I need the
money, because my insurance does not pay for much. The
van I bought and adpated was our cost. The
renovations in the house are all our cost. I owned a house in
a good area of Denver, which I was planning on
passing on to my kids (now adults). The kids said for me
to sell it so that I can have an accessible house.
My husband and I have been in this house since last
May, and it's changing and becoming
comfortable.<br
most handicapped accessible cities in the US (and
probably the world). I don't have too much trouble
accessing anything. When I go to a new place I call ahead
of time and ask them if they are accessible.
Sometimes they say 'yes' because they've told it is, until
I get there and it's not accessible at all.<br
husband has become better at not leaving a trail of stuff
on the floor, and leaving the remotes by me. Once,
after coming back from the hospital, he left and the TV
was stuck on the weather channel (LOL). Now I am way
more mobile than then.<br
twice a day ? I cath at least 4 times, and I measure my
drinking carefully. I figure 500 mL of liquid per 4-6
hours. For some people that's not enough fluids, but if
one drinks more, one caths more often. Of course, it
is a problem, if she cannot cath by herself. The
hyperflexia should be watched obviously: there are so many
problems with functioning as a disabled person. It's good
that she is living on her own with you close
by.<br

Theresa,
Baclofen is a medication commonly used on the spinal cord injured to
relieve muscle spasms and muscle tonus (rigidity) which is common with that
type of injury. If you do not suffer from that, then you would not need to
take it. Feel lucky you are not cursed with this! It would be so much easier
in life, if our muscles did not shake and shimmy and, also, in my case, that
terrible "restless leg" syndrome that comes on every now and then.
Electronic muscle stimulation will help at times. Manual stretching of the
leg muscles will help. Standing with the aid of a stand will help. Baclofen
is nasty stuff and I would like to be rid of it.
You may want to go to alternative medicine for gall and kidney stones.
There seems to be various cleanses out there that will help in those
conditions.
The mind is a funny thing when it comes to pain and allergies. I am not
saying your pain is mind related, but you might want to investigate this
concept more. A superb book that opened my eyes to pain and allergies is
"Healing Back Pain" by John Sarno, MD. Cheap copies can often be had on
ebay. I would recommend those of you interested in the topic and health in
general to devour this book. It is unique!
doug

Hi all, my name is Theresa , I am from Louisiana, USA and after
reading a few post I am puzzled, can anyone help?? I have been in a
wheelchair for 29 years ,due to a car accident in 1974, broke back in
2 places , neck in 3,docs said they don't know how I have use of my
armss, but thank God I do, have gone on and have had a great life,
(so
far),HA, but my question is , what is Baclofen?? I have been on
several meds since my accident, but never that, what does it do??
Also for the women in group, do any of you suffer from pelvic pain??
I have had this since 1988, and docs don't know what to do, pain
pills and Dilantin seems to be the answer for now, and has been.
Don't get me wrong, I do not take pain pills everyday, try to cope
with pain without, but Dilantin, gave me to try to and take that
daily, tried to get off , but pain seems to get worst. I had one doc
tell me that the pain was in my head, hey if I am going to invent a
pain, it sure won't be there, HA. I have changed docs and took ct
scan the other day , found arthritis in my pelvic area, could that
cause bad pain?? Don't know, doc says yes. Also found sis on kidney,
do nothing for that, gall stones in gall bladder, nothing for that
now. Oh my God, didn't mean to write so much, sorry. I am 50, 3
children and 4 grandkids, that keep me going, live in the coutry,
raised in city, but would never go back. Write whenever about
Baclofen. Also I have an indwelling cat, and change. it every 6
weeks , does anyone do this?? Bye forr now, sorry so long, Theresa

You guys want to know what the future holds...?:)
http://www.youtube.com/watch?v=3cwGv0pU-iw

orry about your dad. I have been paralyzed
for<br
me,<br
really<br
your<br
time<br
long<br
was<br
do<br
than<br
house<br
and<br
to<br
and<br
bit of<br
slowly.&lt;br&gt;I am<br
and laundry<br
work everyday: I<br
before my accident. I<br
insurance. My job is totally<br
administration & analysis. Now<br
floor anymore to fix<br
too much.&lt;br&gt;I have an<br
we have been training ourselves; he is<br
constant companion and protector. I take him to<br
and everywhere I go. He is an all-black
German<br
dog<br
and<br
I hope<br
therapy is<br
going.&lt;br&gt;Take<br

Hi Pat,

It's nice to be Moon-gazing in Denver because you're so close to it that you can almost reach out and touch it. I hope you are well!

Dave Kelmer,
Wichita Falls, TX

elcome, to our little group. I can't be much
help with all of the latest "cures", but you will find
lots of help here with all the of the REALITES. SOunds
like you are on the right track. My spinal
stabilization (injury T8 and T12) was done with Harrington
Rods. Seem to be the most commonly used. Mine are T1 to
L 1, almost 18 inches. They really don't give me
much trouble, although I do ALOT of bending to the
floor (200 times a day?) so I do get alot of lower back
aches, and think if the bend in my back was being
distributed over a larger number of vertebrae it might reduce
that a bit, but, O well. WIll look forward to your
keepingus posted. What is your Dad's name ?<br
Geri

Hi Everyone,
disablities
that
disablities I just started this group yesterday.

In a message dated 11/4/2005 3:11:12 PM Mountain Standard Time, ctrlaltdelakadave@... writes:

I just wanted to take this time to say "HIGH" to all of my friends in Denver! :-)

With Love,

CtrlAltDel aka Dave
C4/5 Complete - 29 Years Post
Texas, USA

Hi from Moongazer1

Pat c6-7 incomplete since 1968

i Micheal,Sorry to hear about your Father.My
guess on what there calling stabilization of the spine
will Harrington rods.My injry is at T-6-7,i have rods
from T-3- T-9.I think they cause me pain,but the Dr.
doesn't think so.But either way i still have lots of
pain.Also your father will most likely start getting spasms
here in the next few weeks,spasms are mixed signals
from the brain to you legs,they cause a a nervous leg
shake,to even a kick.I tried several medications for the
spasms,but none worked for me,some they do work well
for.Every one is different,even with same level of
injury.<br
truck with the 3rd door on drivers side,it works out
well,but you are limited to passenger space.But height
wise a 2wd is almost the same height as the chair,so
it's a easy transfer.I kind of wish i had gotten a
van,but i never really liked vans.At least i could haul
people with me,with out having them to have to throw the
chair in the bed.It boils down to personel
preference.<br
rehab they pushed me towards a rigid chair,for being
more durable,so i fell for there line.I use my rigid
most all the time,because i'm more comfy in it,but had
i started out in a foldup chair,i would like it
better.My oppinion is to try both and see what works best
for you.Another note on rigid chairs is storing the
chair in a car for travel,mine would not fit in my
trunk of my car,even with it tore down.<br
should be going to rehab after a bout a week out of the
hospital if everything heals up ok.I started rehab 8 days
after my injury,i feel it may of been too soon,because
of the plastic brace they make you wear,it cuts your
mobility down.In Rehab,they will teach him about bladder
and bowel routines,the bladder part is easy,but i
still can't do my own bowel program.A lot is because i
had help and relied on them to do it.My bathroom is
very small and not real accessable.My toilet chair is
not made for me,i have no balance at all in it.To me
a shower-toilet wheelchair combination would be the
best,but you need a roll in shower.Hopefully someday i
will move into a accessable home.I rent this one and
it's hard to remodel someone elses house.<br
questions about treatments for SCI,your guess is as good as
mine.Tehre are some new drugs out now that if put on right
away after injury seems to help preserve some
function.I was put on some kind of steroud right after my
injury and operated on with in 3 hours of injury,but i
got no further fuction than where i'm injured at.I do
know of one friend that was injuerd and he had to wait
a week or 10 days before operation,he can walk
somewhat now,just more proof that every injury is
different.<br
too bad.My prayers and good wishes are with you for
you and your family.Randy

ou certainly sound motivated to me. Getting on a
tractor and doing farm work is surely a large task for
you as it is a task for able bodied people. That must
be some transfer. lol..I would love to know how you
are going to fix a lift for the tractor. I put your
farm group on my desktop so I can keep up on the
latest. I think I heard of an organization here in Iowa
that was formed to help disabled farmers regain their
independence. I will have to research that and see if I can
find it. I didn't take much interest in it as we don't
farm but now I realize we could get ideas about
adaptations from this source. Best of wishes for you and how
I admire your attitude toward going on with your
farming. Dorla

I just wanted to take this time to say "HIGH" to all of my friends in Denver! :-)

With Love,

CtrlAltDel aka Dave
C4/5 Complete - 29 Years Post
Texas, USA

i Dorla,Ohio is farm country also,not as much as
<br
beans and wheat,no livestock.Don't really miss them.I
have been farming since 1979 staring with 9 acres as a
FFA project.I'm trying to farm,not doing as much as i
was 2 yrs ago,but getting there.Dad has to help me
into the tractor cabs,so it's time consuming.Will be
real glad to get my own lift so i can get in by
myself.<br
that way,i'm getting better,but this is still so new
me,i seem to learn something new each day.Well will
look forward o seeing your daughter in here.By the way
i have a simulur club for paralized farmers i
started a little over a month ago,not many menbers
yet,but i think it will pick up after the busy time
passes.There are several paralized farmers i have met or heard
of,really supprised me as how many.I have some pictures
there of our farm,tractors,my old Harley,etc.Stop by
and take a look,take care

Hi QP,

I sure hope you brought a #2 pencil and a legal pad! ;-)

Dave Kelmer,
Wichita Falls, TX

Hi everyone.
I am a 47 year old single mother of three.
At age 12 I broke my first and second vertabra falling on a skate
board.
I was slowly cutting my spinal cord which would have made me
paralized from the shoulders down. However, I am very lucky. They
were able to take two ribs and fuse them to my spine. I had a trake,
a halo, and a full body cast for six months.
Now my arms have not grown. I wonder if it's because of the neck
brake.
Anyway just wanted to say hi.
Paulette

hanks for the welcome lahodges..I live in a
small town population of 250 close to the Mississippi
river. Outside of our larger cities most all of Iowa is
farms or very farm related businesses. Born and raised
on a farm in Missouri and farmed ourselves when we
were first married. Farming wasn't to profitable so my
husband became a railroad man which led us to moving to
Iowa to be closer to his work. Raised our family here
and two of my three daughters live within 40 minutes
of us. The other daughter lives in Ohio.
OhioFarmboy1 sounds like you still farm. I really admire
people who continue to do things even if it takes many
adaptations to accomplish them. My daughter doesn't want to
give up anything and even finds things to do she
didn't do before and believe you me we have adapted our
selves silly. She has a laptop and is trying to get on
the internet but needs to purchase a pc that will
handle it. She is in the process of shopping for one and
saving the money if you know what I mean. She only has
an e mail account that we have found is much cheaper
to use than the telephone for we talk every day and
sometimes several times. I'm sure she will want to join if
she ever gets set up. She came and visited today and
we went mushroom hunting but didn't find any. There
is an old railroad track converted to a walking path
that she is able to get down and some even have popped
up in the trail itself so that she can reach down
and pick them herself. So much for my news today.
Thanks for your support. Dorla

http://wermbo.friendpages.com/
WE NEED YOUR KIND $1.00 DONATIONS ! ! !
New Surgeries Are Available In China To Help The Spinal Cord Injured
Regain Lost Abilities.
With Your Kind Donations Matt Can Have Surgery and Hopefully Regain
His Lost Physical Abilities.
Current Balance: $14,046.32
I Sincerely Thank You, Matt
* Please review my web site and you'll find the surgery information
and more.

Anne,
I am a incomplete T6-3 para and used intermittent catheters until the
last year. I managed to wean myself off of them and go naturally in the last
year. Anyway, when I did use them, I always desterilized and reused them. I
catherized myself three times a day and used a "stable" of nine catheters. I
would always have three soaking in a hydrogen peroxide solution over night
ready to use in the next cycle. My pipeline consisted of three soaking for
12 or more hours, three air drying for the same time in an enclosed plastic
tray, and three in my plastic sandwich bag ready for use for that day. I
also would drink two large glasses of 28% or higher concentration of
cranberry cocktail to help discourage any UTIs. With this regime, I never
developed a UTI. It worked for me.I would use these catheters for about 3-6
months and then retire them for new ones.
doug

i Dorla,Of course your welcome here,glad to meet
you.You should get your daughter to join up as well.Are
you in farming country in Iowa?.Have no idea about
your caregiver question,My ex girlfriend helped me,now
i have to rely on my mother to help me bath and do
the bowel program,i have yet to been able to do it on
my own.Well anyways welcome to the club,Randy

I have a question for the folks (especially the women) who use intermittent
cath. I am a low level para who has been using a new catheter every time.
It's been okay since my insurance pays for them, but I am wanting to try
reusing my catheters (if for no other reason than I hate contributing to
landfills). What methods do you use to clean and reuse your catheters?
Thanks in advance,
Anne
annie@...
http://www.jumpstart-services.com

orla, no one minds in the least. We are all here
looking for solutions. I am a caregiver to my husband
Michael and am always looking for a different idea or way
of doing something. That is what this club is all
about. Welcome!<br

hi,i built a web site 4 ppls with SCI ,This site is about Spinal Cord Injury
(sci) where ppl with sci or their family members/devotees can come
and make friends and get information on sci related topics (-:but
everyone is welcome:-).Includes news,links,poll,chat,forum and much
more...i hope you find the site useful.thx,bye :-)
http://www.sci-community.com

scoring _____ A+

Dave Kelmer,
Wichita Falls, TX

Hi Liz,

My name is Paulette and I'm new here. I just joined yesterday. I wasn't going to write yet, but when I saw your letter it made me sad. I had my first and 2nd vertabrae broken and slowly slicing my spinal cord. I had surgery but this made my arms short. This happened way back when I was only 12 years old and am now 47. LOL I too had to have help, but it came from my Mom mostly. Now both my Mom and Dad has passed away and I miss them boht. I have learned to be on my own and am doing ok so far. I want to send you a page where I got most of my stuff to help me.

I hope this new thing you're going to do is going to help. I also have RA with Scleroderma.

You are in my thoughts, and I am sure you will make it!!! Keep up the positive thoughts my friend and honey you will do very good.

Here's the web page.

http://www.dynamic-living.com/alternatives.htm I hope it helps.

I too was on a lot of Prednazone and I too have gotten real puddgy. LOL

Hugs,

Paulette

browneyes2694 <lizwiz94@...

Hello Everyone,
I am 26 years old and have lupus. In November of 2002 I became
paralyzed from the trunk down (T6). The doctors say it is Transverse
Myelitis. They said that if there is no improvement within 1-3 months
then there is a good chance I will be paralyzed forever. Well, I did
not see any progress:( I was teaching fifth grade before this and
living in a apartment with my sister. Now, I live at home with my mom
and dad. My sister also moved home to help take care of me. My mom
is the one that takes care of me the most. It is very difficult for
me to accept this but I am trying to stay positive. I am also on a
lot of differnt meds. Steroids (yuck), and Imuran. Steriods have
caused me to gain sooo much weight and being immobile makes it
worse. I am only on 5mg now but it was much higher before. I will
be going to India soon for alternative therapy (ayurveda treatment) I
feel like it is my last hope. Anyway, if anyone would like to e-mail
me to say and and to let me know how to start to become more
independent. byee :) Liz

new email Address: wheeler103x1@...

hanks for the welcome..Guess caregiving has been
heavy on my mind as I recently became disabled with a
lung disease. It has forced me to take medical
retirement but when I compare my disablement to the SCI's
limitations it almost shames me. I always knew that some day
I wouldn't be able to be a back up caregiver and
someone my daughter could always depend upon, I just
wasn't ready for it to be so soon as if ever I would
have accepted it. Have beem reading the past messages
but still have quite a few to go..Thought this would
help me get to know everyone quicker. Enjoyed the
pictures and posted my daughters picture. Hope no one
minds that I am just a parent interested in others
solutions. Dorla

Hello Everyone,
I am 26 years old and have lupus. In November of 2002 I became
paralyzed from the trunk down (T6). The doctors say it is Transverse
Myelitis. They said that if there is no improvement within 1-3 months
then there is a good chance I will be paralyzed forever. Well, I did
not see any progress:( I was teaching fifth grade before this and
living in a apartment with my sister. Now, I live at home with my mom
and dad. My sister also moved home to help take care of me. My mom
is the one that takes care of me the most. It is very difficult for
me to accept this but I am trying to stay positive. I am also on a
lot of differnt meds. Steroids (yuck), and Imuran. Steriods have
caused me to gain sooo much weight and being immobile makes it
worse. I am only on 5mg now but it was much higher before. I will
be going to India soon for alternative therapy (ayurveda treatment) I
feel like it is my last hope. Anyway, if anyone would like to e-mail
me to say and and to let me know how to start to become more
independent. byee :) Liz

oes anyone know of a place where I can donate my old motorized wheelchair?
Someone that can come pick it up themselves? PLMK<br

Latest update from Texas HHS on the Hurricane.

http://www.hhsc.state.tx.us/ENews/

With Love,
CtrlAltDel aka Dave
C4/5 Complete - 29 Years Post
Texas, USA

don't come in for a few days, and look at what
I missed! <br
house is going to be great! Congratulations! Let us
know how it goes!<br
little problem, it sounds like they have it fixed now. I
can't wait to hear how you do once you are on the
baclofen. It made a world of difference for Michael. Keep
us posted on your progess.<br
have you on the boards. Yep, finding good caregivers
is difficult. Most people on the list are cared for
either by a spouse or by family. Unfortunately, they
seem to be the only ones that are
reliable.<br
place, and I hope you enjoy it!<br
worried about you. It is not like you to be so quiet.
Tell us what is up with Chuck and you.<br
Betty, where are you guys?<br

Hi Everyone,
My name is Michelle, I'm 21 yrs old and I have cp. I find it hard to
find others with cp and other disablities around my age. One of most
embrassing things my cp affected was my bladder so I'm completely
incontinence so I started a group for people with all disablities that
have incontinence problems if any of you care to join Just go

Picture of the Year-
Read the article FIRST-This is absolutely awesome!
A picture began circulating in November. It should be "The Picture of the Year," or perhaps, "Picture of the Decade" It won't be. In fact, unless you obtained a copy of the USpaper which published it, you probably would never have seen it.
The picture is that of a 21-week-old unborn baby named Samuel Alexander Armas, who is being operated on by surgeon named Joseph Bruner.
The baby was diagnosed with spina bifida and would not survive if removed from his mother's womb. Little Samuel's mother, Julie Armas, is an obstetrics nurse in Atlanta. She knew of Dr. Bruner's remarkable surgical procedure. Practicing at VanderbiltUniversityMedicalCenterin Nashville, he performs these special operations while the baby is still in the womb.
During the procedure, the doctor removes the uterus via C-section and makes a small incision to operate on the baby.
As Dr. Bruner completed the surgery on Samuel, the little guy reached his tiny, but fully developed hand through the incision and firmly grasped the surgeon's finger. Dr. Bruner was reported as saying that when his finger was grasped, it was the most emotional moment of his life, and that for an instant during the procedure he was just frozen, totally immobile.
The photograph captures this amazing event with perfect clarity. The editors titled the picture, "Hand of Hope." The text explaining the picture begins, "The tiny hand of 21-week-old fetus Samuel Alexander Armas emerges from the mother's uterus to grasp the finger of Dr. Joseph Bruner as if thanking the doctor for the gift of life." Little Samuel's mother said they "wept for days" when they saw the picture. She said, "The photo reminds us pregnancy isn't about disability or an illness, it's about a little person."
Samuel was born in perfect health, the operation 100 percent successful.
Now see the actual picture, and it is awesome...incredible....and pass it on. The world needs to see this one!

To join my groups: [INLINE]

i Everyone, I joined a while back but am new at
putering and seem to have a hard time learning. I have
been reading all the posts and it is very heartwarming
to know others have the same issues that my daughter
and I face. My daughter, Lezlie, is a C-5/6 injured
in an auto accident 17 years ago this July. She
drives a lift equiped van and is living in an apartment.
Our main problem is finding care givers. She was
injured one month after graduating from high school and
has strongly fought for independence from the family.
She was in Rehab for 5 months and at our home nine
months. She attended college and attained her BFA and MA.
I have appreciated hearing of others trials and
successes. My constant worry is her difficulty finding good
dependable caregivers, Many times she has to return to our
home for care. We enjoy her visits but she is not
happy to be dependent on her parents. Does anyone know
of living facilities with personal cares provided
which still allow independent living. The only ones
we've found relatively close are for the elderly only.
Thanks for the support.

Disabled Peoples' International Asia Pacific Region And Pakistan
Disabled Peoples' International is a network of national organizations or assemblies of disabled people, established to promote human rights of disabled people through full participation, equalization of opportunity and development.
Contact Person in Pakistan :
Mr. Ghulam Nabi Nizamani,
Phone: (92-235) 542571
Fax: (92-235) 543531
Email: gnn_sgr@...,
Address : DPI-Pakistan
Rizwan Clinic, Bakhoro Rd.
Sanghar Siudh , PAKISTAN
http://www.freewebs.com/shabbirqadri/disabled_peoples.htm

Shabbir Qadri

Special World

i! I guess I had better e-mail you all, and let
you know how things are going before Geri gets after
me. I got mt baclofen pump installed on April 1st. It
went well. Went home on April 2nd. Had to stay in a
hotel over night. The roads to my home were closed due
to a snow storm. It dumped 24 inches. Felt really
good. Went back on Monday and had my stitches out. When
I got home to slid board into the bed I coudn't
move. My shorts were soaked, so was my shirt and the
chunk that I was sitting on. I got into bed. Changed
clothes at 10:00, and at 11:00 my shirt was soaked again.
The next morning was fine. Got up on Tuesday abd same
thing happened when I got into bed. So I decided to
stay in the bed on Wednesday. Called Dr. Shetter and
he said he wanted to see me in Phoenix the next day.
I was losing spinal fluid from where they had
stitched me. So They put about 15 butterfly taped to hold
it shut where they had done the spinal tap and
sugrey. Go home and stay in bed for the next two days. So
I am finally up today. Go to Phoenix again on
Monday for my first dose of liguid baclofen. My back is
no longer stiff. Now I'm waiting for my legs to
lossen up and be able to swing my feet again. Will keep
you up to date.<br

Women and Girls in Sports

http://www.feminist.org/sports/disability.html

Sports and the Disabled logo

Women with disabilities face double discrimination--discrimination based on gender and

discrimination based disability. Women of color who are disabled face yet a third type of

discrimination...The limited available statistics suggest that economically, socially, and

psychologically, women with disabilities fare considerably worse than either women who are

nondisabled or men who are disabled. (Women and Disability Awareness Project, 1989).

For more detail :-

http://www.feminist.org/sports/disability_new.asp

I hope you like this Thanks

Shabbir Qadri

Special World

walls down; putting 3 beams up to support the
sdtructure (in progress).<br
another corner of the living room (done).<br
master bath to make it a rolling shower (95% done)<br
Build a wood deck with a ramp in the backyard
(done)<br
done)<br
(done).<br
the house (done).<br
another (in progress)<br
accessible (done).<br
enough to accommodate adapted van (Done enough I can use
it).<br
sneeze all the time. But it's going to look great. I'll
have to post pictures once it's done.<br
all later.<br

Jason, Hi!
I emailed you privately...please email me back.
Take care and keep in touch...
Teena

ay! I joined your club! Very cool. I like it!

Hi Dana,

It was my pleasure to send birthday wishes to a lady of a young age like myself. I turned 52 in June! ;-)

Have a great Birthday!

With Love,
Dave Kelmer,
Wichita Falls, TX

I've been paralyzed for 5 years and I have two low profile Roho's... they are excellent... no pressure sores..they are a bit pricey but if you have good insurance they will pay.

MJ

Since I am new to the chair I need some advice. This may sound like
a stupid request, but I have been trying to find a backpack that I
could use for the back of my chair, and am not having much luck.
They are either too big, have too many straps, etc. Could anybody
send me any ideas and where to get them. I don;t want a real big
one. Just one to carry some of my Urological supplies, etc. Also, I
am getting my own chair (finally) and need some advice on a cushion.
I get so much advice from people at rehab who aren't in chairs, I
need some advice from some people who are. I am leaning toward a
Roho, but any advice on this would be appreciated also (I'm a para)
Thanks for helping me get through all this. I would appreciate any
replies ASAP.

ee, I knew naming names would get you back in
here! Sounds like you are busy though. So, what are you
remodeling now? Tell us about it. We are going to be doing
some come May. All of the doors and windows are being
taken out and replaced with new ones that have dual
glazed glass. I am hoping we can keep the house a more
consistent temperature since Michael is so sensitive to the
fluctuations. Especially when it is cold.<br
on your progress! We miss you!<br

Hey Michelle, I want to say I can not give you what you ask. I am a
t7 para and have been for the last 24 years and use a chair. I do
want to appoligize for the disabled who have given you the impression,
that because you walk your issues are not real. I can only say they
do not have a real understanding of disability. Most people will
sometime in their life be faced with some sort of disability. In some
cases it may be temporary and in many other it will be for a life
time. It is only through this understading we can all help each other.
So Michelle I would welcome you to bring your issues to this forum, I
would welcome you to feel as a part. Though we may be differnet
Michelle, both you and I (and others who may not realize it) have more
in common then we know.
Don't let the words of a few shape what you feel and think Michelle.
If there any areas of concern you feel like sharing Michelle we can
all learn from each other.
God Bless you Michelle,
Doug

ey guys, where is everyone? Karen, Muffy, Betty, Dominque, JamJam?<br
happened to we will post once a day?<br
LOL<br

onf time no talk. How are you ? I sit all day in
my chair because I work at a computer, and never
have had a sore. However on my foot, it's a different
story. I bought some new shoes, and got a big sore in
the back of my heel. It's been there a good 3 months,
and I can't seem to get rid ot it. Well, nice to hear
about you. Talk to you soon.

elcome to the board,I'm pretty new here
myself,just found it about a month ago.I'm a<br
Ohio,T/6 from a Harley accident in <br
just thought i would intoduce myself,take care Randy

I also have a spinal tumor removed which caused my incomplete paralysis since 7
years ago and I can't walk even in with crutches. It is in T1 to T7 levels. But
I never experienced those 'hot flashes', but I do have those spasms which I got
used to.
Alex, 37 y.o.

Hi Heather,

I thought I say it sounds like you have a great attitude, and are doing really great for 4 years post SCI. Keep up the good work, and I hope to get the time to drop-in on your chat sometime! :-)

Dave Kelmer,
Wichita Falls, TX

elcome to our club! Usually our board is busier,
but I think everyone has spring fever!
LOL<br
anyway they can.<br
you are, but if you know me I assume it is from one
of the Beanie Baby Clubs. I know you aren't a member
in my beanie club, however, 'cause I know all of my
members by name, even if I haven't spoken to
them!<br

Hi all,
My boyfriend had a spinal tumor removed when he was 15, then
a further operation to support his spine, which was a case of
medical misadventure, and caused his spine a lot of damage.
He now has weakness and spasms in his right side, and can
get around very slowly and with difficulty on crutches. Am not
sure the precise location of the injury- it is between his shoulder
blades. Anyway, he is now 23 and suffers from things we called
"hot flashes", no doctor knew what they were and caused him a
lot of trouble, as he feels hot and sweaty,like he wants to pass
out. I found some info on the net that sounds like what he has,
its called Autonomic Dysreflexia and is due to a sudden increase
in blood pressure. Does anyone else suffer from this, or have
any experience with it? I think it is common in people with
injuries above T4-T6.

Your spinal cord anniversary is almost the same day as my 53rd birthday, which is the 14th. I hope you have a great day. What do you usually do on your anniversary? I couldn't go to chat because my aid comes late to feed me and wash my hair. Her other job interferes so that ties my evening and instead of afternoon. Which is really a drag. I hope the chat goes well and you have a lot of attendance. What time did the chat get started and end?
Dana (C4-5, 31 years post, 51, KC)

go see my surgeon Monday.I am in pain almost
all the time.Have heard that taking the rods helps
relieve some pain in the back out?.I'm a T-6 para,20
months post.Has anyone else had there rods taken out?.I
think my rods run from T-9 to T-3.To me it feels like
there working against my natural back shape.Also while
there i'm going to get more info on the Pump,may try
the injection out and see how it works on my
spasms.<br
hours of work,setting out today,found a red mark on my
butt cheek.Don't know if it's a sore or not,so taking
it easy today.It was almost gone this morning.I had
never had any trouble before driving the tractor for
that long or longer.It could of been there from the a
couple days before?.don't know for sure.Well Thanks for
any imput on the rod removal,Randy

ow that was a scary ordeal Geri,can't imagine
laying there with no chair and a smelling smoke.sure
glad i changed my smoke detector batteries.Hope your
friends surgery goes well.I go see my surgeon in about a
week,going to ask more about the pump,may try the injection
out.Also just noticed i have a rather large knot on my
hip,it's like my hip is protruding out,other side feels
fine to the touch.Can't imagine what i have doen to
break my hip or pop it out.Spasms are no worse and it
don't cause spasms to rub the area.Guess i will find
out at my Dr's appt.Well Happy Easter everyone,Randy

Hello everyone, we are getting together in the chat room tonight and every night this week! For those of you who are from other countries please let me know when you want to chat. This also includes people who like to chat during the day, I've had several members contact me about doing this. These get-togethers are for anyone with a disability or their family members.

The chat room is a separate registration from my main web site. If you have not registered there are directions on how to do that on the bottom of this e-mail. If you have already registered we will see you there. If you have any problems registering just let me know by contact information is at the bottom of this e-mail.

1. At Lunch Time, Sit In Your Parked Car With
Sunglasses On And Point A Hair Dryer At Passing Cars. See If They Slow Down.

2. Page Yourself Over The Intercom. Don't Disguise
Your Voice.

3. Every Time Someone Asks You To Do Something,
Ask If They Want Fries with That.

4.Put Your Garbage Can On Your Desk And Label It
"In."

5.Put Decaf In The Coffee Maker For 3 Weeks. Once
Everyone Has Gotten Over Their Caffeine Addictions, Switch To Espresso.

6.In The Memo Field Of All Your Checks, Write "For Smuggling Diamonds"

7.Finish All Your sentences with "In Accordance With The Prophecy."

8.Don't Use Any Punctuation

9.As Often As Possible, Skip Rather Than Walk.

10. Order a diet water whenever you go out to eat with a serious face.

11. Specify That Your Drive-through Order Is "To Go."

12. Sing Along At The Opera.

13. Go To A Poetry Recital And Ask Why The Poems Don't Rhyme

14. Put Mosquito Netting Around Your Work Area And
Play Tropical Sounds All Day.

15. Five Days In Advance, Tell Your Friends You
Can't Attend Their Party Because You're Not In The Mood.

16. Have Your Co-workers Address You By Your Wrestling Name, Rock Bottom.

17. When The Money Comes Out The ATM, Scream "I Won!, I Won!"

18. When Leaving The Zoo, Start Running Towards The Parking Lot,
Yelling "Run For Your Lives, They're Loose!!"

19. Tell Your Children Over Dinner. "Due To The Economy, We Are Going To Have To Let One Of You Go."

20. And The Final Way To Keep A Healthy Level Of Insanity.......
Send This E-mail To Someone To Make Them Smile.
Its Called therapy.

To join my groups: [INLINE]

Jason,
One very important thing to watch out for are pressure sores from sitting.
You must have pressure relief about every 20 minutes to keep circulation
going in compressed tissue to avoid these sores. If you are interested there
is a cushion on the market that will give you excellent pressure relief
automatically by inflating and deflating by itself. Its called the airpulse
PK and its sold by Aquila Corp. The website is www.aquilacorp.com They aslo
have a manually inflated cushion.