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I'd love that story. Thank you. Dana

I am a new para and am looking for any advice anybody can give me.
This really sucks and I am having a hrd time ajusting. If anybody
can give me any advice about how to cope with all this change in my
life I would appreciate it. I would be interested in emailing people
to ask advice and just to give me support. I appreciate all the help
from others who have already been here.
Thanks.
Jason

Group is growing strong with over 640 members...

NAIROBI (AFP) - A baby hippopotamus that survived the tsunami waves on the Kenyan coast has formed a strong bond with a giant male century-old tortoise, in an animal facility in the port city of Mombassa, officials said.

The hippopotamus, nicknamed Owen and weighing about 300 kilograms (650 pounds), was swept down Sabaki River into the Indian Ocean, then forced back to shore when tsunami waves struck the Kenyan coast on December 26, before wildlife rangers rescued him.

"It is incredible. A-less-than-a-year-old hippo has adopted a male tortoise, about a century old, and the tortoise seems to be very happy with being a 'mother'," ecologist Paula Kahumbu, who is in charge of Lafarge Park, told AFP.

"After it was swept and lost its mother, the hippo was traumatized. It had to look for something to be a surrogate mother. Fortunately, it landed on the tortoise and established a strong bond. They swim, eat and sleep together," the ecologist added.

"The hippo follows the tortoise exactly the way it follows its mother. If somebody approaches the tortoise, the hippo becomes aggressive, as if protecting its biological mother," Kahumbu added.

"The hippo is a young baby, he was left at a very tender age and by nature, hippos are social animals that like to stay with their mothers for four years," he explained.

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Life is not measured by the number of breaths we take, but by the moments that take our breath away.

To join my groups: [INLINE]

Hey ,
Check out this cool Pool game I am playing. My highest score so far is 11,543. Play it and tell me what you score. I bet you can't beat me ;)
Email me your score if you can beat me lol.
Download the free game here: www.phattgames.com

Bye,
Houston

[LINK]
This email was sent by Houston as he thought you would be interested in playing games. If you don't want any emails from Houston about these games, click here. The games can be found on www.phattgames.com 8721 santa monica # 237 LA, CA 90069

ice to meet you Ed! I'm the mom of WmJoe (see
photo album.) Wm was injured May 9, 98 and is T-12
complete.<br
more from the hundreds of web pages and message boards
than they could ever teach us in rehab.<br
long have you been into computers? In the future I
would like to get involved in fund raising to purchase
computers for disabled folks who can't afford to buy
one.<br
has helped him tremendously adjusting to life with a
SCI.<br
often.<br
out enjoying the arrival of spring!<br
visiting for several days...it was great!

ello All...<br
to see a group like this on the Net. I have recently
begun volunteering my services to SCI patients in the
Houston, TX. area. I own a Web Site development company. I
was watching a News story on a local TV station and
was intrigued by the idea of a web page for folks who
were SCI patients. I EMail the reporter and asked if
my services could be of use to others in a similar
situation. So here I am doing research/looking around for
groups such as yourselves.<br
starting a similar group on Tripod.com, but you seem to
have beat me to the punch. GREAT! I hope to be a
positive force with you to get the word out about SCI and
how it's not the end of the world. Just a bump in the
road.<br
feet AND suffer from arthritis. So I know about those
bumps... 8-)<br

Hello to all subscribers,
The University of Nevada, Reno is conducting a study sponsored by CDC
to examine social support in adults with paralysis. People with
paralysis report lower levels of support compared to the general
population. For this study, we are interested in exploring factors
that might explain this difference and how we can improve support.
In order to do this we need to hear from you! Participation in the
study is completely voluntary and all information is strictly
confidential. If you are interested, please visit our website at
www.supportandparalysis.org or call us toll-free at 1-866-317-8431.
Thank you!
Michail Kyriakou

Hi everyone,
My name Michelle, I just finish making an incontinence group for anyone
that would like to join go to

Spina Bifida

WHAT IS IT?

Spina bifida (also called meningocele or myelomeningocele) is a defect that comes from a problem in the very early development of the unborn child. It happens when some of the back bones (vertebrae) do not close over the center tube of nerves (spinal cord). As a result, a soft unprotected area is left, which may bulge through the skin as a dark bag. This 'bag of nerves' is covered by a very thin layer (membrane) which may leak liquid from the spinal cord and brain. Nobody knows what causes it. But 1 of every 250 to 500 babies is born with spina bifida.

If you like to read more please click this link

http://www.dinf.ne.jp/doc/english/global/david/dwe002/dwe00224.htm#part1chap22

Shabbir Qadri

Special World

eslie, Happy Spring Day to you and everyone else
on Wheelin On. We here in Northern Arizona had snow
yesterday and the day before. Today is really nice. Snow
has melted, just a littele breezy outside. Sunny
though. Hope your garden is plentiful this year. If it
does, tell Michael good supervising.<br

ey Everybody!<br
For those of you in snow areas the flowers will be
coming soon! Here in Sunny California it is a brisk 75
today. I put in my vegetable garden yesterday (yes I
played hookey from work) I planted red tomatoes, cherry
tomatoes, yellow tomatoes, green beans, red bell peppers,
yellow bell peppers, green bell pepers, radishes,
carrots, cucumbers and strawberries! It was a great day!
Michael, of course, supervised the whole thing from his
chair telling what I should plant in each row!
LOL<br

Hello to all. It has been a while since I posted. I came across the
following info and thought some of you may be interested in it. There
is a non profit org that is offering to pay you $20.00 to take their
survey. I copied this off the web site where I saw it....
Eligible subjects will receive $20.00 for their time and effort.
Seeking individuals who use wheelchairs or scooters as their primary
means of mobility to participate in a research study conducted by
researchers at the University of Pittsburgh.
This study is designed to investigate different aspects of
transportation use and the risk and nature of injuries to wheelchair
users involved in motor vehicle accidents. However, it is not
necessary to have been involved in an accident to participate.
I did not take the survey so if anyone did or plans to, please let
the group know about it. I copied the info from... http://upwd.net at
the bottom of the page.
by by,
Diane

GREAT WAY TO MAKE MONEY-READ THIS!!!!!!
Monday, 17-Aug-98 01:09:13
130.85.97.152 writes:
HOW TO TURN $6 INTO $6,000!!!!!!
READING THIS COULD CHANGE YOUR LIFE!
I found this on a bulletin board and decided to try it. A
little
while back, I was browsing through newsgroups, just like you
are now,
and came across an article similar to this that said you could
make
thousands of dollars within weeks with only an initial
investment of
$6.00! So I thought, Yeah right, this must be a scam,but
like most of us, I was curious, so I kept reading. Anyway, it
said
that you send $1.00 to each of the 6 names and address stated
in the
article. You then place your own name and address in the
bottom of
the list at #6, and post the article in at least 200
newsgroups.
(There are thousands) No catch, that was it. So after thinking
it
over, and talking to a few people first, I thought about
trying it. I
figured: what have I got to lose except 6 stamps and $6.00,
right? Then I invested the measly $6.00. Well GUESS WHAT!!...
within 7 days, I started getting money in the mail! I was
shocked! I
figured it would end soon, but the money just kept coming in.
In my
first week, I made about $25.00. By the end of the second week
I had
made a total of over $1,000.00! In the third week I had over
$10,000.00 and it's still growing. This is now my fourth week
and I
have made a total of just over $42,000.00 and it's still
coming in
rapidly. It's certainly worth $6.00, and 6 stamps, I have
spent more
than that on the lottery!! Let me tell you how this works and
most
importantly, why it works....Also, make sure you print a copy
of this
article NOW, so you can get the information off of it as you
need it.
I promise you that if you follow the directions exactly, that
you
will start making more money than you thought possible by doing
something so easy!
Suggestion: Read this entire message carefully! (print it out
or
download it.) Follow the simple directions and watch the money
come in!
It's easy. It's legal. And, your investment is only $6.00
(Plus postage)
IMPORTANT: This is not a rip-off; it is not indecent; it is not
illegal; and it is virtually no risk - it really works!!!!
If all of the following instructions are adhered to, you will
receive
extraordinary dividends.
PLEASE NOTE:
Please follow these directions EXACTLY, and $50,000 or more
can be
yours in 20 to 60 days. This program remains successful
because of
the honesty and integrity of the participants. Please continue
its
success by carefully adhering to the instructions.
You will now become part of the Mail Order business. In this
business
your product is not solid and tangible, it's a service. You
are in
the business of developing Mailing Lists. Many large
corporations are
happy to pay big bucks for quality lists. However, the money
made
from the mailing lists is secondary to the income which is
made from
people like you and me asking to be included in that list.
Here are the 4 easy steps to success:
STEP 1: Get 6 separate pieces of paper and write the following
on
each piece of paper;PLEASE PUT ME ON YOUR MAILING LIST. Now
get 6 US $1.00 bills and place ONE inside EACH of the 6 pieces
of
paper so the bill will not be seen through the envelope (to
prevent
thievery). Next, place one paper in each of the 6 envelopes
and seal
them. You should now have 6 sealed envelopes, each with a
piece of
paper stating the above phrase, your name and address, and a
$1.00
bill. What you are doing is creating a service. THIS IS
ABSOLUTELY
LEGAL! You are requesting a legitimate service and you are
paying for
it! Like most of us I was a little skeptical and a little
worried
about the legal aspects of it all. So I checked it out with
the U.S.
Post Office (1-800-725-2161) and they confirmed that it is
indeed
legal! Mail the 6 envelopes to the following addresses:
#1) KEVIN LEE
8377 APT. I MONTGOMERY RUN RD.
ELLICOTT CITY MD 21043
#2) Stephanie Hicks
1283 Evening Canyon
Henderson NV 89014
#3) Matt Madracki
P.O. Box 1529
Sutton West, Ontario
L0E 1R0
#4) Martin Fredrickson
67 Hull Road
Mt Maunganui 3002
New Zealand
#5) J. Batty
9 Collingwood Street
Tauranga 3001
New Zealand
#6) James Vanazia
1858 Shenango Rd
Wampum Pa 16157
STEP 2: Now take the #1 name off the list that you see above,
move
the other names up (6 becomes 5, 5 becomes 4, etc...) and add
YOUR
Name as number 6 on the list.
STEP 3: Change anything you need to, but try to keep this
article as
close to original as possible. Now, post your amended article
to at
least 200 newsgroups. (I think there are close to 24,000
groups) All
you need is 200, but remember, the more you post, the more
money you make!
This is perfectly legal! If you have any doubts, refer to
Title 18
Sec. 1302 & 1341 of the Postal lottery laws.
Keep a copy of these steps for yourself and, whenever you need
money,
you can use it again, and again.
PLEASE REMEMBER that this program remains successful because
of the
honesty and integrity of the participants and by their
carefully
adhering to the directions. Look at it this way. If you are of
integrity, the program will continue and the money that so many
others have received will come your way.
NOTE: You may want to retain every name and address sent to
you,
either on a computer or hard copy and keep the notes people
send you.
This VERIFIES that you are truly providing a service. (Also,
it might
be a good idea to wrap the $1 bill in dark paper to reduce the
risk of mail theft.)
So, as each post is downloaded and the directions carefully
followed,
six members will be reimbursed for their participation as a
List
Developer with one dollar each. Your name will move up the list
geometrically so that when your name reaches the #1 position
you will
be receiving thousands of dollars in CASH!!! What an
opportunity for
only $6.00 ($1.00 for each of the first six people listed
above) Send
it now, add your own name to the list and you're in business!
---DIRECTIONS ----- FOR HOW TO POST TO NEWSGROUPS

ello Laura and Dave,I live about 70 miles north
of Cinci,I used to go down to the riverboat pretty
often,but my luck ran out.Maybe someday we could meet
there.It's about 100 miles for me to the boat at Lawrencburg
IND.Sorry to hear Dave is not feeling well again,gets old
feeling bad.does he self cath or wear a bag?.I have read
the indwelling caths causes problems.I wore on for
about 2 days,amnd went back to cathing every 4-6
hours.I take 2-3 ditropans a day for spastic
bladder,seems to work,also tried Detrol,i like it better for
not causing dry mouth as bad,but it don't seem to
work as well as Ditropan.I also load up on Cranberry
and vitamin c pills each day.I think it helps,if not
a good placebo.I don't know how people can go years
without a UTI.I used to get a least one a yr before my
accident.Well hope Dave gets to feeling better.Email if you
want,maybe we can meet up when this crazy weather calms
down,take care,Randy (rgeese@...)

Please be aware if you order from PREFFERED MEDICAL or the also goes
by the name of MMAR MEDICAL GROUP INC.I purchased a pair of Drew
shoes which are suppose to be good for people who are paralyzed. I
found that the shoes did not have a soft innersole so I wanted to
return them... since I placed my order they revamped their website.
When I called to get a authorization number a very rude man yelled
at me telling me that I could not return them... I can't believe how
rude he was... I ended up hanging up on him and calling the Drew
shoe company, they told me they will take care of it.... how
nice... Preferred Medical sells all kinds of medical supplies along
with wheelchairs.... believe me they are off my list for sure.
MJ Hopper

see you live in southern Ohio. We live in
Northern KY about 45-50 miles from Cincinnati. About
Dave's UTI. He has them CONSTANTLY. They never go away.
As soon as he gets done with an antibiotic another
one comes. He is also very clean with catheters and
now uses a new one each time too. Nothing helps. He's
tried everything. He's only been in the hospital with
them twice. He just got out Sunday and now he's
leaking urine and feeling bad already. We don't know what
to do. It could get dangerous, the germs are already
resistant to many antibiotics and he's allergic to 3
antibiotics. Keep us in mind if you ever come down south. We'd
love to meet you.<br

Hi Debby,

Thank you for the information on your plans to provide a residence for Quads seeking to live independently without giving up their quality of life. I've reviewed your plan and feel it will meet the goals you have set out to fill. I wish you all the best in your project, and will forward your business plan to others that might have a need for your project at this time.

With Love,
CtrlAltDel aka Dave
C4/5 Complete - 29 Years Post
Texas, USA
Debby Colson <debcolson@...

David, I am a mother of a C2 Quad, 21 years old, 18 months post accident. We live in Houston, Texas. We are building a residence for Quads who want to live independently, construction should be complete by the end of this year. Please review the attached plan and let me know your opinions. If you know of anyone who would be interested in becoming a resident please feel free to forward our business plan to them. We hope that this is the start of many such residents offering the technology rescourses to put folks with limitations back to work and financial stability. Your opinions will be appreciated. Thanks, Debby Colson

Debby Colson
debcolson@...
281-851-9284
"David K. Kelmer" <ctrlaltdelakadave@...

Hi Joe,

Welcome to the Quad-List. I love your idea of an information booth at the Popcorn Festival. Getting the public awareness raised concerning the abilities that someone in a chair has to offer is very important.

I just had someone last week ask me if I preferred to be called "handicapped" or "disabled." I told him that if anyone thought that I was ''disabled'' because I was in a chair, they were ''handicapped'' in their thinking. Being able to learn how to succeed in life while in a chair ''enabled'' me to discover insights that anyone ''handicapped'' by their thinking would never understand. He looked at me awhile before he even started to understand what I meant, but there is hope for him, he is beginning to understand! :-)

Unfortunately, I have other plans for the 20th, and I'm living in Texas, but I wish you success with all you're able to do, now, and in the future.

With Love,
CtrlAltDel aka Dave
C4/5 Complete - 29 Years Post
Texas, USA
j white <heyjoewhite@...

Hello all-

This is my first post. I am trying to raise awareness concerning spinal cord injuries. I am organizing an information booth at the Valpariso, Indiana Popcorn Festival(http://www.popcornfest.org/popcorn.html), on September 10, 2005. At this booth I would like to inform the public about; injury prevention, injury levels/function, complete vs incomplete, the daily life of a spinal cord injured person, current programs, therapies, research, and legislation effecting the quality of life and the prospect of a cure for paralysis, and everything in between.

This seems like the next natural step in my life. My neck was broken when I was thrown from a mechanical bull, at the 2003 Porter County fair. I sustained a C6/C7 incomplete spinal cord injury, leaving me with paralysis from the armpits down. I have since started a spinal cord injury support group and gone to Washington DC to rally for the Christopher Reeve Paralysis Act.

Along with the booth, I am still hoping to have a float in the parade. Unfortunately, out of the fifteen or so SCIs that I have met in my area, only five are willing to do the parade route with me. My idea is to show how many SCIs there are in the region and pull them to the information both. This doesn't play well when you only have five people rolling down the road. Would you be interested?... or interested in coming to the support group meetings? We meet on the first Friday of every month at 1pm, in Valparaiso, at Porter Hospital's Education and Rehabilitation Center, 1401 Calumet Ave. If you are interested in any of this I can be reached at heyjoewhite@...

jOE

i Laura,I just got over a UTI myself last
week,lucky i got it early and had no ill effects.Just a lot
od spasms.I had one last fall and had to get a
IV,had a temperature for 4-5 days,your right no fun.I
try to be as Sterile as i can,even use new caths each
time,but still get a UTI at least twice a year.Well hope
Dave continues to improve,take care Randy

i Geri,yes it looks to be a nice group here.NM has gotten out of control as has
Cure Para now board.Thanks for the welcome.Randy

ave was in the hospital all last week with a
bladder infection--he had to have IV meds to kill it this
time. We wish this infection stuff would end!!! He does
everything right with cathing that we know of and he no
longer has kidney stones but he still gets infections.
But he's OK now. That's why we haven't been on for a
while.<br

Here's what you're supposed to do...and DON'T BE LAME and spoil the
fun. DO it. Copy (not forward) this entire e-mail and paste it onto a new
e-mail that you will send. Change all of the answers so that they apply to
you. Then, send this to a whole bunch of people you know INCLUDING the
person who sent it to you. The theory is that you will learn a lot of little
known facts about those who know you. Remember to send it back to the person
who sent it to you. It only takes a few minutes, so DO IT!
1. Who sent this e-mail to you? Katey

2. What time is it? very very late
3. Name as it appears on your birth certificate? David Boyer (It's a family name so back off.)
4. Nickname(s): DAVEOC, dummy, doc
5. Parents' names: Mr & Mrs O'Connell
6. Number of candles that appeared on your last birthday cake: 574, at least
7. Date that you regularly blow them out: I let them burn out. It's a pathetic symbolic futile attempt to hold on to the known, in preference to exploring the incredible unknown.
8. Pets: kids, wife, dogs, humans.... the usual.
9. Hair color: Einstein white. (Every one of them earned.)
10. Tattoos: Mark up the temple?
11. Piercings: Right, just like my Africkeen buddies.
12. Favorite color: Black - so youall stand out better.
13. Hometown: Anywhere I 'hang my hat.' I'm just renting here anyway.
14. Current Residence: Third rock.
15. Favorite food: The substance of life - the nectar of all my ships in the night. THAT'S YOU !
16. Been to Africa? why?
17. Been toilet papering? We did spray-paint in my days.
18. Loved somebody so much it made you cry? Still does.
19. Been in a car accident? A couple - ALL THEIR FAULT !!
20. Croutons or Bacon Bits? Prefer pigs.
21. Current car you drive: Buick ol' fart grocery getter with 195,000 miles.
22. Favorite Movie? Time machine with Rod Taylor and Yvette Memieux - TAKE MATCHES !!
23. Favorite Holiday: All of them - WITH my family.
24. Favorite day of the week:Today. Too late for yesterday, too soon for tomorrow.
25. Favorite word or phrase: All we need to know, we learned in kindergarten.
26. Favorite toothpaste: Bourbon.
27. Favorite Restaurant:The dark, quiet candel lit ones.
28. Favorite Flowers: Rye and white made into my mom's Sweedish rye bread, served toasted with butter and grape jelly.
29. Favorite Drink(s): Heavy dark oak red wine so dry you can't spit after swishing.
30. Favorite sport to watch: Gymnastics (and of course mating)
31. Preferred type of ice cream: Cherry cheesecake
32. Favorite Sesame Street Character: Oscar the grouch.
33. Last book you read? Wayne Dyer - Secrets of Inner Peace.
34. Favorite fast food restaurant? Subway.
35. Why was your last hospital visit? To see my granddaughter's birth. (it was VERY cool.)
36. What color is your bedroom carpet? Wood tile with multi dark colored throw rug.
37. Are you allergic to anything? Stupid people make me crazy.
38. Who is the last person you got email from before this? Chris the jokemeister.
39. Have you ever been convicted of a crime? Only breakin' hearts.
40. Which single store would you choose to max out your credit card? Home Depot - one of everything please.
41. What do you do most often when you are bored? Fill out electronic questionaires.
42. Name the friend that lives farthest away from you: Rekha in miles, Cathy in years, DD and Mix in their own special ways, June spiritually, and Marilou in missed opportunities.
43. Most annoying thing people ask/tell you? I COULDN'T do what you have done.
44. What you are working on now? Realizing I can't do everything for everyone.
45. Who will respond the quickest to this email? Chris - and it will be ugly - (I'll prove it.)
46. Who is the person you sent this to that is least likely to respond? Tom
47. Favorite all time TV shows? Dick Van Dyke, Lucy, Andy Williams.
48. Last person you were out to dinner with? Mah little woman!! :-)
49. What's in your CD player right now? 225 mp3 random uppers. country, neil, frank, chris, beach, CCR, BS&T, everly, carpenters, johnny, nat, sammy, deano, tom, tony, steve, .....
50. PC or Mac? (MACs are sandwiches)

If you can react the same way to winning and losing, that's a big accomplishment. That quality is important because it stays with you the rest of your life, and there's going to be a life after tennis that's a lot longer than your tennis life.~ Chris Evert ~

ou might think you just slipped in, unnoticed.
You didn't. And we are all really open to new people
signing on. We just get busy, and don't remember our
manners. I think you are the same Lisa (?) that I have
conversed with a few times, GIMO 35? If so, Hello again, if
not, it's a small world! Anyway, this is a good mixed
group, some SCI's and also some spouses of SCI's. So it
gives a good balance. Keep posting. <br
questions were about cleaning catheters? Best way I have
heard, wash in soapy water with a little bleach, then
lay between dry towels, until reuse. Putting in
plastic makes a perfect enviroment for bacteria to
multiply. I would try to keep as few as possible in your
"wash and reuse" cycle, so they are not sitting around
too long being damp. If you carry them with you in a
plastic bag, wrap them in a paper towel to absorb the
excess moisture. As far as cathing questions, we are all
doing different types and methods. I personally, am in
sales, and travel all over the city during the day, and
out of town occasionally. The onyl workable thing for
me is a foley (in dwelling)like some of us had in
the hospital when we were first injured. I keep a
plug in the end of it (no bag) and then drain it
occasionally into a container (pop bottle) this also allows me
to drink all I want. I can easily empty in anywhere,
the car, wherever I have privacy. This is especially
good, as many bathrooms are not accessible. At night I
remove it, straight cath overnight, then use a new one
each morning. The risks from them are mainly,
increased infection (I had so many even before that I take
preventative anti-biotics anyway) and the risk of bladder
cancer may be elevated. This is caused by always having
the foreign object (balloon) in the bladder. I figure
by giving the bladder a rest overnight I am reducing
that risk. <br
questions..jump in...<br

Greetings to all fellow members of the spinal community.
I am after a bit of advice from those older and wiser than myself.
I am a T6 complete paraplegic, with a reflex bladder (high residual
so I am also performing morning and evening catheters). Because of
high bladder pressures my specialist has been monitoring my bladder
using video cystometry (forgive the spelling). After my last video,
my specialist said that the pressures were too high and I really need
to do something about them within the next six months. He gave me two
options.
1 Sphincterotomy.
2 Brindley implant.
I would really like to hear from those who have had either of these
procedures carried out.
I guess that option 1 is relative straght forward. I have heard that
the sphincter often heals and the sphincterotomy needs to be repeated
(sometimes up to 6 times). Although leakage can be a problem, this is
probably not serious as I am wearing a urodome most of the time any.
Option 2 has some distinct advantages, but I have some questions.
How big and cumbersome is the device (both the internal and external
device). I am reasonably slim and reasonably active and I am
concerned about the internal device interferring with my lifestyle.
How long do they last? What is the success/failure rate? How
effective are they with bowel function? How effective are they with
sexual function (my specialist tells me that they are often
ineffective in this area)?
I need as much information that I can get in order to make the
correct decision as both of the options are irreversable.
Please post here or e-mail me at pierred@....
thanks for your help.........

ood to see you are still doing well! This is a
small, but close knit group of really good people,
WELCOME!!<br
showed me, and I will try to explain it.<br
chair is against something firm, like the wall, sit in
front of chair, )great to use anything to sit on, phone
book, cushion, place your hands on the sides of your
chair, behind you, and try to muscle yourself up. I got
within an inch or so of doing this. Then had to resort
to a similar approach. The sofa. I sat in front of
it, and with the cushion removed, reached behind me,
and got myself onto it (barely) then I scooted over
onto the cushion that remained and then transferred
into my chair. <br
to call a friend at 10:30 one night (cold November)
and I was out in the backyard mixing mulch for my
winter lawn! (doesn't everyone do that?) My front wheel
went off the edge of the patio, I grabbed the BBQ to
stop myself, and took it over on top of me. Got myself
into the house (scraped ankles as I was barefoot) and
called for help. Anyway, I feel now that if I got myself
and my chair into the living room I could do it.
Regardless, I usually keep my portable phone under my chair
(hammock type thing, is great) much more convenient for me
to answer anyway, and then I have it in case of
emergency. <br
me back in the chair. I lay on my back on the floor,
grasp my knees and hold them up as close to my chin as
possible, she takes the chair, laid down backwards, and
using the seatback like a front end loader, loads my
back end on it. Now I am on the ground, kind of in my
chair,like I just fell straight back. She gets in front of
me, braces her foot on a bar on the bottom of my
chair and then reaches over and pulls it upright by
grabbing on the front of the w/c(by my knees) I just do my
best to lean way forward. It is tricky, but we have
done it. Always remember if you do fall, if you are on
hot pavement, to get your cushion under your butt. I
met a guy who was burned badly, and the helling time
was lengthy, and guess what he couldn't do? SIT IN
HIS CHAIR FOR THREE MONTHS! YUCK! and we thought we
didn't like these darn things, just think what we would
do without them. Spend lots of time in bed.<br
I still like my pump. I guess I am developing a
tolerance to the baclofen, so we have to increase it
occasionally. Recently I put it off, and spasms were getting so
bad agin that is was real tough to get in and out of
the truck. So I had another increase. I was given
Neurontin for the tingling and burning (didn't help) but I
found out, by accident) that it gives me quite a bit of
spasm inhibition. So now I use it in conjunction with
the pump. I have no side effects at all (nothing
noticable, anyway) Might be an option for anyone
else.<br
This weeken I painted all four kitchen chairs (wooden,
used oil based enamel) and I recovered the seats. They
look soooo good, anyway, I just had to tell
somebody!<br

Hi Jack,

Welcome back among the DOA! Is MN feeling any cooler weather yet? I'm ready for a nice Autumn this year. Don't forget we try to meet in the Rollin-On Chat room on Sat. afternoons around 2 P.M. CDT. Hope you can make it there. :-)
http://www.rollin-on.org/

With Love,
CtrlAltDel aka Dave
C4/5 Complete - 29 Years Post
Texas, USA

That was a great story.

ou might want to try your local rehabilitation
facility. That is the kind of thing that they show you how
to do there. Just one word of warning though.
Michael and a few of his other diabled friends tell me it
doesn't matter what they say and show you, once they are
out of the chair the only way that they are getting
back in is to call 911. We found this out the hard way
last year on Memorial day. Michael fell during a
transfer and even though rehab showed him etc, there was
no way we could get him back in his chair. I called
911 and two fireman put him back in. Hope this
helps.<br

i Lisa,I was injured 7/20/97,I feel i learn
something new each day.I have bad pain and spasms also.For
the pain i take 1 Ultrum,2-4 Advils a day.Also have
to take Ditropan and Valium for spastic bladder.I
have tried several meds for the spasms ,but none
worked,my only option tht i know is the Baclofen pump,Geri
loves hers,as do several other people.I think Geri has
some info posted here on the pump.I have been driving
since 3 weeks after my accident,was no big deal for me
learning the handcontrols,probably because i farm and
tractor are handcontrolle except for the Clutch and
Brakes,we made levers to work them.My biggest challenge on
driving was finding a vehicle big enough to put chair
in.I have a S-10 ext cab,with the 3rd door,it's on the
drivers side,makes for a wide opening to transfer.Well
hope this helps,feel free to ask for more help,Randy

First I would like to say thanks to Dana who sent me welcome note.

My sister name is Dano Pearl so your also like her Thanks a lot!!!

If you ( All members )like this interview please contact with me.

This is my email address : - sshq_786@... If you like to

publish your interview like this try to give answers of these

questions. please attached your pretty picture or pictures

with these answers. I will publish your interview in your group

and also in my group. We are all friends so please don't

hesitate to write me.Thanks

Questions

1. Please tell us briefly about you, your education and

background.

2. Tell us about your family. Does anyone else special in your

family.

3. How did you become an accountant/registrar/student/model etc.?

4. Being an accountant/student/saleswoman/model; what are your

responsibilities and how do you execute it.

5. Being an employee, do you have any problem with subordinates

and employer?

6. Your inspiration

7. Any interesting incident ever happened to you.

8. Are you satisfied with your life?

9. How do people react with you being a special person?

10. What is your idea about life?

11. If you are a Prime Minister of a country, what will you do as

a priority?

12. What is your idea to elevate the life of a person with

disability?

13. What is the ratio between luck and success in ones life?

14. Any special message for the youth of disabled person.

This is the spice of life; this is what life is all about; and this is the heart of God.

[INLINE] [INLINE] [INLINE] [INLINE] [INLINE] [INLINE] [INLINE] [INLINE]

[INLINE]

D. O. A. Feature

[INLINE]

[INLINE] [INLINE] [INLINE] [INLINE]

HAYDEE

[INLINE]
Shinning Star

[INLINE] [INLINE] [INLINE] [INLINE]
~*~ Haydee ~*~
She is as gorgeous as her name
speaks.
She is friendly, sincere, honest..
and
very
charming!
Remarkably, she's got charisma.

[INLINE] [INLINE] [INLINE] [INLINE]
[ Group owner of Differently Gorgeous ]

i everyone,i liked the idea of this site so
well,that i started one for disabled Farmers.Everyone is
welcome to look around and leave any help you would like
to.Or if you know some one that has a interest in
farming,send them my way.I will eventally have links to
mobility links for lifts and just about anything.Thanks
for looking

Hi Sarah!
I'm Alex. I'm also a 7 years paraplegic at T1 to T7 level of injury due to a spinal cord condition. What is your level of injury? I invite you to our list called Quad-List with plenty of active, knowledgable members who can answer your every questions sci related. See you there!

Alex

[LINK]

Hello everyone, if you would like to chat tonight then come join us in the spinal cord injury chat room. Even if you have some other type of disability you're more than welcome to join us! Most likely everyone will start going into the chat room around 7:30 p.m. Central Time. We would love to have you join us! The registration for the chat room is separate from the main web site. So if you haven't already registered for the chat room follow the directions below. Hopefully we can start meeting there more frequently. If you have a certain time you would like to chat then let me know because I'm compiling a list.

This is how you register:

This is the link, click on it http://spinalresource.com/index.html/Page/Real-Time+Chat/

Next click on
Please click here to proceed to our real-time chat interface

Then click on register, and fill out the four questions.

That is it you are registered to chat! It will send you an e-mail that you need to click on and you should be able to start chatting . If you have any problems please let me know by sending me an e-mail.

Heather

C5 C7

San Antonio, Texas

To join my groups: [INLINE]

Hi,
My name is Sarah and I'm 19. I broke my back last year resulting in
being a paraplegic. I'm still pretty new to the wgole disabled thing
as I don't know anyone in the same situation as me. I also have a
nerve condition making matters worse.
Sa

i Karen,nice to meet you also.I find it hard to
get back into chair hard myself,i have fell out twice
now.They showed me how in rehab,but there was always some
one to hold the back of the chair down.so almost
impossiable at home by yourself.Well i say impossable,i'm
still a newbie.Yhru showed me to get back on my hands
and knees and walk yoursef back into the seat,well
the chair trys to flip back over on you,is what
happens to me.Lucky there was someone around to help me
and hold the chair,plus maybe help position me.As for
videos,i know of none,but would say ome rehab center
somewhre has one.My opinion a picture says a 1000
words,and believe there should be more videos avaiable for
a variety of things,this way we can watch and
practice at our own pace and privacy,just my
thouhgts,Randy.

Come join the most active group that deal with intimacy and
relationship dealing with the disabled..

mall world isn't it. My husband has his
motorcycle accident on November 8, 1997. Would have been
nicer to meet you under better circumstances but Hi
anyway. Hope you are doing well. This is a great site for
friends and for finding help with things. If I can be of
any help just let me know. <br
well<br

to meet a male paraplegic around my age.
hope to meet someone witty, honest, fun, and silly, knowing when and
how to be sensible.
kimpewter@...
email me.

i guys! sorry to have been gone so long but
looks like I wasn't missed. Alot of new posts to read
and I am finally caught up. Now for the help
part...<br
video, or if any even exist, on how to get back into
your chair if you fall. Chuck took a spill today in
the van. I think he forgot to put the brakes on his
chair. He won't make that mistake again. He is ok,
nothing broke, but is sore as he**. Me too for that
matter. He is not a light man. Plus being in the van, I
could not get in a position to use my legs instead of
my back. The PT people kept disagreeing on how to do
it so he never was taught. Tough way to find out how
to go about it. Needless to say it really set him
back emotionally. Was a tough day. Sorry don't mean to
run on. But kind of helps to get it out. <br
you don't know of a video maybe you have some tricks
that you know that would help. I really would
appreciate any input.<br
site. The New mobility page. But I think I like our
club a bit better. They are nice there but they get
into too much off the wall stuff. Not exactly what I
mean. It is fun to read their stuff but missed everyone
here. So whether you like it or not...I"M
BACK!!!<br
helping.<br

orry it took so long for me to say that. I have
been busy and forgot to check in. My husband is a T-12
complete. So, like you, we have tons of questions. Everyone
here is very nice and helps alot. Without them I would
have been lost. We are new to this too. He had his
accident in November of 97. As for the pain, guess I can't
help you too much there. We still have a lot of that.
But Chuck, my husband, guess I should use his
name...LOL, is on Neuronton and Balcofen right now. It seems
to help but I don't think anything helps all the
way. Chuck does range of motion about every day. At
least some of them. It takes about an hour to do a full
workout. Driving...well, now that is something we are just
getting started in. The things they can do are really
great. You have so many questions it is hard to answer
them all and I am sure some of the others will answer
as well. They probably have but I haven't gotten
that far in reading yet...LOL<br
Florida...oops says that under my name I think..LOL oh well.
Chuck is 49 and I am 47. Will be glad to help anytime.
Just post here or email me and I will do what I can
for you. Hope to hear from you soon. <br
care and God Bless<br

have posted here before but not lately. If
anyone would like to e-mail me my address is
railone@...--I occasionally send out idiotic jokes and would be
glad to do the same for you if you have lots of time
to waste....Betty

and think because of that its hard to
find people of the opposite sex
to see you as a person that crave for
intimacy and love just like
everybody else..
Yes,you and I are just as human and
need intimacy just as much or even
more..It time to show the world we are
sexual being..
I started this group the first of this
year..its quit active with over
500 members..so feel free to join...

i! I guess you some of you might have led one.
The Para-Quad mailing list is part of the "devotee"
group. What, you ask is a "devotee"? Someone who is
attracted to, and sexually aroused by a disability. The
person doesn't really matter, it is the disbility they
are interested in. A while back I did some research,
found some web sites, and that is what I finally found
out.There are "wannabes" (that is what they really call
themselves) they are people who are desirous of having a
disability. Many to the point of becoming "pretenders" to
fulfill this need. One woman in the case study was
attracted to men with leg braces. She finally married one
(polio) and later in life he required a wheelchair. She
would make him put his braces on to have sex. After
much therapy it was discovered that she didn't get
much parental attention. But there was a neighbor girl
with polio, who the parents always admired as she
walked by their house. So this woman was trying to
recapture that attention. I personally, found it repulsive.
Are we to worry when we meet someone, and they act
interested? I have found, as a female in a chair, that the
only men interested are "caregiver" types. I am, and
have always been fiercely independent, mentally and
physically, so I can't walk, big deal! I could not be in that
type of relationship. And men who like an independent
woman take one look at a w/c and turn the other way
(OKay, they WALK the other way!) enough of this, I just
took a quick trip to LAughlin, Kingman area, had to
visit a few golf courses up there, about 5 hours each
way, now I need to chill out... regards, Geri

Hi Jack, Welcome back with us. I'm Stacy. Im 31 and a paraplegic at the T 7/8 level from a rare type of encephalitis. I look forward to reading your posts.

Stacy

hello [INLINE]

aura,<br
one you talked to didn't know and referred you to the
IRS then you need someone more qualified. Be sure to
tell them about everything, there are special tax
credits in certain states for disabled people. If your
state is one of them, you want to be sure to get those
credits. Find a qualified CPA. It will definitely be worth
the cost. Those tax credits here in California add up
to almost $3,000 in additional deductions. That is
considerable. Find someone who will make sure you get all you
are entitled to.<br

I'm MNQuad. I used to be a member but I was not involved. I'm going
to try to be more involved this time around.

i! I subscribed to the paraquad email group. I
am not sure what to tell you...there is some pretty
off the wall stuff. Not quite the typical topics.
<br
distributing pictures of a woman cathing to anyone who asks.
Another one is a woman who has for several years
"pretended" to be paralyzed and has been sucessful. Why? Good
question - no answer.<br
element of perversion than that of a support group.

here was an E-mail group for paras listed under circle of friends. I haven't
tried it yet but will. It's <br
Ya.<br

Hi Michelle,

Thanks for sharing a little about yourself. You sound like a true survivor with the will and determination to go far. May you be blessed in your journey through life. Stay strong in your faith and you will never be alone.

With Love,
CtrlAltDel aka Dave
C4/5 Complete - 29 Years Post
Texas, USA

[INLINE]

Please visit this is your own group.

I want to improve my group but

you must accept my friendship

then please write me email with

your full introduction. I want to

publish your interview in this

group as well as in my group

Special World. I dodn't want

to get any advantage with this

message nothing but to make friendship with you.

My email address is :- sshq_786@...

[INLINE]

Welcome

to

The Special World! We are a global community that integrates information, resources, and communication opportunities on the Internet for persons with special needs, for their families, and for those that provide them services and support.

[INLINE]

Keeping in mind that impolite and uncivilized materials or mails are strictly prohibited

We created this group site so that we can get in touch with each other, Share your views, ideas, feelings and experiences here. This is not a group, it's a Family Channel.

bet it is taxable too. It wasn't awarded in a
lawsuit. They paid me because I was at home and I was
qualified and because I couldn't seem to hold a job because
I was calling in sick to help him too much. I would
have lost my job at the time because of his illness--I
had already used up all my leave of absence and other
sick time, etc and had to quit or be fired. The local
accountant didn't know and said to call the IRS. Maybe I'll
call another accountant.<br

---Hi,
How are you? I hope your doing great. Feel free to instant message me
or email me at singing4joy4god@...

lavil 100 mg at bedtime helps Dave's pain. It's
not gone but is better. Elavil is an antidepressant
that is very useful for chronic pain. Ask your doc.
Also, Dave was very scared of learning how to drive
again. He learned in about 15 minutes and has been
driving ever since. He wasn't injured in a car though, he
fell out of a tree. You will become more independent
as your arms become stronger and you heal a little
more. I had to stay home with Dave for a year. But,
don't let hubby carry you around too much even if it
feels good. Your arms must build up, not his! It is
good you want to do it yourself. It will happen in
time.<br

ou have come to the right place! If possible try
reading through the previous posts - lot of good ideas
out there.<br
complete (supposedly), he is in the photo album. We have
found the internet the best source of information. Some
day I need to start a file of the hundreds of
websites I have found. <br
is in Tampa for the winter anyway. He is coming to
visit next week! Just found out today! I am really
excited!<br
you!

t depends on how Workers Compensation has
classified it, and what state you are in. You should talk to
a local tax person there and show them the 1099.
Usually reimbursement for lost wages is taxable (like you
earned it) but it depends on how it was awarded in the
lawsuit, etc. Just because they did not take out taxes
does not mean it is not taxable. And different states
have different laws as to taxability of benefits. That
is why you need a local accountant to look at the
1099.<br

Heeeeeeee y it's Friday!!!!!

[LINK] [LINK] [LINK] [LINK]

Put your hands in da air and wave 'em like you just don't care cause it's....

[LINK] [LINK] [LINK]

[LINK] [LINK]

[LINK] [LINK] [LINK]

It's Friday BABY!!!!!

WHOO-HOO!

IT'S FRIDAY - SO SHAKE THAT BOOTIE !!!

[LINK]

Have a fantastic weekend!!!!

Groups that I own: [INLINE]

y name is Lisa and Laura gave me this info to
this page. THANK YOU Finally someone to talk to about
my injury. I am 26 and was injured in '97 in a car
accident. I am a T-12/L-1 complete. I live in a small town
in northern WI and have nobody to talk to for advice
or help. I have a 5yr old daughter and was recently
married with 2 more step daughters ages 5 and 8. My
husband and I have been together after my accident, I
have went back to work part time at a bank where I
worked before my SCI, and hopefully plan on having more
children later. I have extreme pains in my legs that no
medication is helping and have so many questions from pain
pills to cleaning catheters to driving again...etc...I
really hope I can get to know you and get some advice. I
can sometimes feel warmth on my left leg but couldn't
feel it if I was burned. My right leg was also
amputated above the knee in my accident. My husband and I
have recently just built a new home and are finishing
the basement now but I still don't have my upstairs
all accessible(like my shower) My husband lifts me
everywhere and I know I need to start being more
independant. I have Herrington rods in my back but it has
healed really well. How often do you do range of motion,
are your muscles tightening up? I hope someone can
offer me some advice on pain. I have what they call
nerve shocks which feel like stabbing or shooting pains
in my long left leg up to my hip. I scream and cry
sometimes it hurts so bad all day every day but there is no
cure just have to learn to deal with it and hope it
lessens later in life. Well I will try and see if anyone
is around Sunday aftenoon sometime.. Have a good
weekend and thank you Laura for contacting me :)

ave has a TENS unit (transcutaneous electrical
stimulation) that he likes for pain in his back and side. The
docs or physical therapists can help him try one out
(PT is more likely to have one he can try). Dave's on
medicines for spasms but he told his doc he didn't want to
take the kind that made him goofy and they gave him
something else. <br

Good day, Luis.
I declare that your disorder is not problem for doctor represented by
me. The only problem for present time, that we have not yet the wide
network of many specialists to treat everyone who need this. So the
price for the patients begins from EUR 100 000 depanding from specific
case. First of all I need the following information about you: age,
case history and the full diagnosis.
We are located in Kiev, Ukraine. So you will have to arrive here, if
you are interested in our service. It is better that you will find the
agent for paper work and send him on a mission to Kiev.
Contact phone/fax: +380 (44) 543-1570.
LT
paralyzed for 10 months will that matter? please answer me back this is too
important!
LT
With best regards,
Al Jurko.

ow Laura - my son is going through the same
thing. He can close his eyes and guess which leg is
being tapped and is right 9 times out of 10. This is a
fairly new experience. His injury was 5/9/98. He just
got with a new doc and he didn't say much about it,
just gave him more drugs. He is hoping to get more
info when he starts up with his therapy
again.<br
with bowel movements. He can tell by how his stomach
feels. Once in a great while he even "toots". Found out
that he had to go caffeine free because it can cause
unexpected bowel movements.<br
when he caths. From the research I've done - odd
sensations can be just that and don't progress. But I've
also heard second hand that the final level of
sensations is not know for up to 2 years after
injury.<br
improvements.<br
medicines or treatments? I worry about all these heavy
drugs they dish out. Heard that long-term accupuncture
works for some.

Hi Stacy,

It was the best site that I found on the topic. I hope Cheryl was able to get a few answers from it because that's all that I know about a laminectomy.

Dave Kelmer,
Wichita Falls, TX

Hey Chyrell,
Welcome to the group.
I'm Mark a C5/6 quad due to diving accident 6 yrs ago.
I don't have knowledge of your situation but I'm sure some one will.
We try to get together in chat on my other site www.rollin-on.org on
Saturdays around 2:00 cst so drop by next week and join in.
Once again welcome,
Mark

so what is this? how expensive? where? I am T5 paraplegic, have been paralyzed for 10 months will that matter? please answer me back this is too important!

Al Jurko <aljosha@...

Good day.
I have the access for the master who treats the praralysis
with success. If you are interested in healing you or close people ask
me for help via e-mail. Expensive.
With best regards,
Al Jurko.

ave can feel when you tap on his knees and he's
been able to feel this ever since he got injured. He's
T 7-8, incomplete. Since the time since he was
injured, he's started feeling hot air blowing on his legs
from an electric heater and some sensation from warm
water hitting him in the shower. It seems like he's
able to feel me touch his back down to about where T
10 is one one side but not the other side. (It used
to be at level T-7, so it's improving some I think).
I'm a nurse so I can assess these things pretty
reliably. Like someone said, the docs won't commit to
anything. Has this ever happened to anyone else? He can
feel a finger in his rectum and sometimes has pain
when he sticks a catheter in. It seems weird that he
can feel these things but not others. He can feel
warm water flowing on his legs but burned himself
badly when he sat a hot dish on his legs. He can't feel
touch at all below about his waist. He did feel it when
they gave him a shot in the hip in the ER one night
though. Can anyone enlighten us on all this? It's
strange. Is it a hopeful sign or will it always be this
way or what? (Injured 11/97).<br

here were two new paras on Circle of Friends and I told them about this site!
Thanks for telling us.<br

Good day.
I have the access for the master who treats the praralysis
with success. If you are interested in healing you or close people ask
me for help via e-mail. Expensive.
With best regards,
Al Jurko.

Hello everybody! If you use intermittent catheters please contact me
for a free info pack and free samples. This system is designed for
people who have had problems with urinary tract infections. I have
contracts with all major manufacturers, Mentor, Rusch,Bard,
Coloplast, Kendall, etc. Transient flora is the main cause of
infections, so learn how to prevent this transfer of bacteria.
Washing your hands is not as affective as believed. It does help but
to make sure you are protected as much as possible, try the sterile
procedure. If you are interested, please reply with a name, physical
mailing address, contact number(not requiered), size of catheters
you use(specify if it is for you or someone else-male or female),
and if you have medicare(special requirments) or a private insurance
carrier. I will send out the info as soon as I recieve the request.
Thank you.

That's great. How much is all of this going to be costing you in the long run? Have you been to see the doctors in China yet? What has the process been for you?

Stacy

Hi, I'm Matt a C-4 Quad since 1989 from and diving accident. I'm
currently scheduled for the China surgery next August 16, 2006. I've
got a web site with helpful links to the different types of surgeries
offered and web sites of some of those that've already had it done.
All have some improved feeling and functions and that's great! Jason
Feazel is from my home town of Battle Creek,MI and he's crawling and
up trying to walk again! Here's my website link:
http://wermbo.friendpages.com/
Thanks-Matt

o you do taxes? I am trying to find out if the
money workmen's comp paid me because I couldn't work
after my husband got hurt is taxable. I got a 1099 form
about it and it was listed under #7, nonemployee
compensation. It was considered to be reimbursement for my lost
wages or for actually doing the physical care he
needed. They didn't deduct any taxes.<br

as begininng to think I had bad breath or
something! Forgot you were an accountant. And I forgot you
went on that trip. Old age maybe. Oops!<br
glad to see you here. I know what you mean about the
posts not showing up. They do seem to disappear. Maybe
we have a computer alien??!! But I am glad you guys
are back. Or at least spoke up...LOL I will be a bit
more patient. That is not my strong suit..or could you
tell? Everything here is going much better. Although we
are having another bout with the pain demon. But
hopefully will get him under control soon. And the weather
has been about perfect. Wish it would stay this way
all the time. But we are getting into the HOT season.
YUK!!! <br
soon<br

Well i can sure relate to what you are going through
Ive been quad for around 3yrs now.
I can
do somethings for myself,but i cant dress myself cant get on the pot
by myself cant bath , i can feed myself,get out of bed ect.
dont let anger blind your sight for the future
YES I AM MAD AS HELL.......

JOHNQUAD [INLINE] [INLINE] [INLINE] [INLINE] [INLINE] [INLINE] [INLINE] [INLINE] [INLINE] [INLINE] [INLINE] [INLINE] [INLINE] [INLINE] [INLINE] [INLINE] [INLINE] [INLINE] [INLINE] [INLINE] [INLINE] [INLINE]

as begininng to think I had bad breath or
something! Forgot you were an accountant. Oops!<br
sure glad to see you here. I know what you mean about
the posts not showing up. They do seem to disappear.
Maybe we have a computer alien??!! But I am glad you
guys are back. Or at least spoke up...LOL I will be a
bit more patient. That is not my strong suit..or
could you tell? Everything here is going much better.
Although we are having another bout with the pain demon.
But hopefully will get him under control soon.
<br

Hi Chyrell,

Welcome to the Group. I am a C4/6 Quad, 29 years post. I broke my neck and severed my spinal cord while white-water rafting on the Upper Salt River in AZ, and now live in Texas. I hope you continue to post with us. This Web Site has a good slide show on a laminectomy. I hope it will help explain the procedure for you. :-)

http://www.spine-health.com/dir/laminectomy.html

Dave Kelmer,
Wichita Falls, TX

i have lots of issues with anger, related to being in my
wheelchair. I'd like to have someone who can relate what its like
so I can talk about it.

ook a long weekend up north. Came down with a
cold. :( <br
Figures huh!<br
his referral for therapy. He is hoping maybe to get
more info out of his therapist. Internet still seems
to remain the best source of
information.<br
Sunday in a snowstorm! One more month of this nasty
weather.

Hi Sarah,

I'm C5-C6 and will try and answer your questions if i can.Do you have the same injury?

Graeme

"Sarah Smith <johnsonk@...

Would like to chat with someone with a C5-C6 injury. Have many
questions.

am here Karen on and off. It is tax season now,
so we are really busy. Plus I have posted stuff
twice in here in the last ten days and it has never
shown up, and I have just been to busy to re-post it.
Michael is doing better, we are also trying to plan our
summer house projects. We are going to put in all new
doors and windows in the house in the hopes of making
the temperature more controllable. Michael is very
hot/cold sensitive and these are thirty year old doors and
windows. Then that leads into other projects, like a new
back patio, oh, and while we are doing that maybe we
could get at fountain....<br
:)<br
check in more.<br

i'm an active c3-4. Dave's USWEST Homepage what kind of questions do you have?
dave
In a message dated 2/23/2003 2:41:33 PM US Mountain Standard Time, johnsonk@... writes:

Would like to chat with someone with a C5-C6 injury. Have many
questions.

It is not necessary to change.
Survival is not mandatory.
â¢W. Edwards Deming

ell, I keep coming in here and I never see
anyone posting. What gives? Everyone must be really
busy. I think I will go and pout now. I miss your
posts. I am getting lonely for some gossip. Or just
plain news of what's going on in your lives. Hope to
hear from you guys soon.<br

ut let us hope it is something good. We have had
a lot of that kind of thing. Has something to do
with the nerves and what they are going through. But
my fingers are crossed for you XXXXXXX. you never
know. The body is a strange place and they don't know
everything...the docs that is. Keep us posted. Are the spasms
still bad? Or was that someone else. Read so much I
forget...LOL<br

Hi Michelle,

I'm Stacy and paralyzed T 7/8 from a rare form of encephalitis 4 years ago. I came home on my own to live alone and found great difficulty in finding services I needed. Moving with my parents wasn't an option for me so I did it on my own. funny, if I had kids, I could get anything I wanted. My social worker was great when it came to paper pushing but when it came to helping me in a way that would require her to pick up the phone she did horribly. I found that I had a talent for finding services
so
I went back to school last year and now 31. I decided to major in social work so I can go back and help others with disabilities. I think it's great that you have that in mind. God knows what's best for you and
will direct you to do the right thing. Good luck with that and jump in for a chat any time.

Stacy

Would like to chat with someone with a C5-C6 injury. Have many
questions.

Hey Dennis. How are you. Where are you from. I am a paraplegic also. Complete. Lets talk I have done a lot of research on spinal cord injury since may 4 2002 the day of my accident. I understand a lot. If you want to chat just write to me I may know some things that may be of some use trust me. My name is Luis I am 20 years old. Our injuries differ. I am a T-5. Ypu should have more use of your trunk that I do but our injury is relatively the same. (paraplegic) Do you have home therapy equipment? Questions about catheterization? sex? spinal cor injury? anything? I know a lot. We are still ver independant. Life is not so bad! This is my story:

In May friend came up (to New York) from college in Florida, to visit his family. He metioned to me that he would be driving his girlfriends parents car back down because she needed a car down there. I told him I woul go with him. We left at 8pm Friday May 3rd. He drove through New Jersey and Maryland. I drove through Virginia and North Carolina. We switched driving at South Carolina because I was tired. I did not buckle up (for whatever reason: trust or tiredness) I fell asleep in the passenger seat. He fell asleep while driving. When he woke up he realized he was going off road. When he steered to go back on he oversteered. The van slid driver first sideways into a lot of trees. The car crashed into the trees at 80mph. I was not buckled up so I bounced around in the van. The police officer told my parents that my head was beneath the dashboard and legs on top of the head rest. I had both lungs collapsed, broken shoulder blades, 3 broken ribs, and broke T-5 T-6 and
T-7 and had a nasty gash on tho top of my head. It was a miracle how I was found. God is good. (My friend is ok he was buckled up)

A passer by saw steam comming up from the side of the road. He pulled to check it out and realized it was a van. He called 911 where the police were 2 minutes away. The miracle is he was an army medic on his way home from work. The second car to pull over was a nurse on her way to work. The right people were there at the right time. I spent 2 months in MUSC until I came back to NY for rehab for 1 month. My life is better than ever. I am happy an grateful.

I can be some help trust me just write back... Take care hope to hear from you soon...

Hi Everyone,
How's is everyone doing today? My name is Michelle, I'm 21 years
old with severe Cerebral Palsy. I know many of you don't know me,
because I only like posted like maybe twice, but a lot of you have
been instant messaging me asking more information to get to know me.
I'm not comfortable with the whole internet and posting thing, that's
why I never post, but since all of you ask to let you all more about
me. Well here it is. I was born 4 month premature doctors said if I
would survive I would be in vagatated state. I had physical
occuppational, and speeh therapy all my life everyday, then my
parents work with me everyday at home. Thanks to my wonderful parents
I graduated high school, and now i'm a sophmore at my unversity,
still not sure what I want to double major in, but I one of my
majorys is theology. I always been a reglious person clse to God ,but
going to Medjugorje, where miracles are taking place there
everyday,and going to Rome to the Vactican just made my faith
stro