Hi Stacy,
As long as you're already getting better, and feeling better, getting the leaking to stop will help you do both faster. I'm glad it's going so well for you. Stay strong.
Dave Kelmer,
Wichita Falls, TX
Is everybody aware that we now have a chat room available to our
group. I have been in here several times and not found
anybody.Hopefully we can get a group of chatters operating in here.
ebbie, it has been 2 1/2 years (May 96) since my
crash. Rollover, ejected, <br
am over it! Getting on with my life. And the worst
is definately behind me!<br
on baclofen, I used to have to break the 20 mg pills
in fourths. Absolutley No relief. But groggy.
Finally got up to 120 mg every day, still very little
relief. My tolerance did increase against the grogginess,
but I would still drop off during a lull in
conversation, or WHILE DRIVING!!!!! That's when I gave in and
got THE PUMP!<br
story!<br
the 60's and a beautiful day!!<br
Please remove me from your list. Thanks.
Hi. My name is Diane. I am a w/c user. I want to make new friends. I
also own a web site called United People With Dis"abilities."
http://upwd.net
We are going to begin airing TV programs on disability subject and
situations. We are looking for program ideas. That is why I want to
join.
United People With Dis"abilities" is currently in the process of
working hard to bring Dis"ability" Television to the Internet. What
would you like to see? What subject would you watch?
You will soon be able to watch TV programs concerning disability
subjects and situations from your computer. Please send us
suggestions on any subjects that would interest you. We are looking
for ideas and need your help!! All suggestions will be considered.
More info for Dis"ability" Television is at: http://UPWD.net
One of our first programs will be on accessible camping and
vacations. We will be featuring a 150 acre property in New York that
offers both camping and vacations. You can go to....
http://CanaanField.com for a sneak peak.
Sincerely,
Diane
Hi Stacy,
Yeah, you would think that, wouldn't you? I am always amazed at just how little the medical community knows, or pretends not to know so they don't have to do the job, about the simple things that go with a SCI. I hope you let them know how you feel. I hope even more it makes a difference in the future.
Dave Kelmer,
Wichita Falls, TX
ope everyone has a very fun weekend. Our weekend
adventure? Setting up a new computer system for a client.
Sounds really exciting doesn't it? :) Karen, I hope the
Baclofen works for Chuck. You might have to play with the
dosage, Michael take 4 to 5 per day. We just sort of kept
playing around with it until the spasticity was better,
and he wasn't so drowsy.<br
Hello,
This email message is a notification to let you know that
a file has been uploaded to the Files area of the Spinalcordinjury
group.
File : / Click Here!
Uploaded by : randybeerguy <randybeerguy@...
Description : No matter what your credit is like ,there is a card here for
you!
You can access this file at the URL
k, I did it!!!.......... i think, Karen, I put you as a friend, but if I dont
answer you, its because I dont know what I am doing yet, not because I am not
answering you!<br
Hi,
I just found this email application, IncrediMail Xe. You've got to check it out. Trust me, I wouldn't have sent this to you if I didn't mean it.
It lets you 'experience' email in so many ways.
www.incredimail.com
Let me know how it goes.
[INLINE] [INLINE]
k that sounds great. DOn't get confused it is
really easy. Just fill out what it says and then you are
set. If you need help just let me know. Always glad to
help out when I can. Hope to see you on it soon.
<br
Balcofen for chuck. He started us at 5mg and the spasms
are still pretty bad. But he said I could take it up
to 10 but to be careful. There sure are a lot of
things to watch for. But if it works it will be worth
it. I have my fingers crossed. The poor guy could use
a good nights sleep. So could his poor wife...LOL
Not complaining mind you.<br
another weekend. Do you know where your adventure is??
Not to sure what ours is yet but going to find one.
Have to keep going and going and going...just like the
rabbit. Hope you all have a good one.<br
care<br
dont have the pager, I looked at it and got
confused about signing up, and I have a little one who was
pulling my hands off the keyboard when I was trying to
figure it out, but I will look at it after he goes to
bed tonite, and sign up if I can do it, I will let
you know!!!!!
Stacy,
I know you're so glad to be home. It is always a nightmare to go to the hospital or ER especially when dealing with bowel preparations for surgery or bowel blockages. Drinking go lightly every hour makes you so sick. And it's sad how you come home with horrible diaper rashes from improper cleaning or skin breakdown.
Dana (C4-5, 30 years post, 51, KC)
You'd think the rehab unit would have it but they went to the OT dept looking for the chair. I was at John's Hopkins and they even went looking to the other buildings looking for the right chair. They found the right one my last day. There was a mess of confusion because the OT dept thought that I was much heavier than I am. They figured I was around 400 lbs and I don't even weigh 200. The physical therapist came to my room telling me that the last day. That didn't do much for my self image for sure. I guess since I'm tall and have a belly that means I'm huge. If they aren't prepared for a paraplegic, they sure aren't for a quad. They will be getting a nice letter from me.
Stacy
Hey everybody I'm home.
Let me tell you that hospitals are not always set up even if you try to prepare early. We need to make sure doubly. When I made the arrangements to be admitted, I let them know what I needed for a commode since I am not able to transfer to a toilet. They assured me that they would have it. Different story when I got there. I should have done my bowel prep at home. I got there at 9 a.m. and let them know what I needed and they told me they didn't even have a drop arm commode. They ended up picking me up to put me on the standard commode they had. I drank the nasty mags citrate and didn't have any results. They gave me a suppository, nothing. They made me drink mineral oil and milk of magnesia, nothing. They then put me back in bed and gave me an enema. I was put on the commode at 9 p.m. and they had security put me back in bed at 4. I was never so humiliated in my life when they did that. I guess the night nurses are too good for lifting. The sad thing is that I
am not that heavy that they shouldn't have been able to do it themselves. If they had the commode I needed, I could have digitally stimulated and been done hours before. They had no compassion about it. I cried the whole entire night and all they kept telling me is that my bowels needed to be emptied for the surgery. Well I knew that but doesn't help when they put me through what they did. I'm glad I didn't have to go back to that floor after surgery but my doctor did say that he went back to them and let them have it. I should have known better than to schedule the surgery on my 4th yr anniversary. It just had a bad vibe all together.
I ended up going to the step down unit of the I.C.U. because they didn't have room anywhere. I spent 2 days there where the care was of course great and then off to a regular floor again where they treated me so well. They were so sympathetic to my pain. It's been a week since the surgery and I am still sore. I feel like I should be back to my old routine as soon as my skin heals and the staples come out. I know all the aggravation will be worth it then. So far my only regret is that I didn't make absolute sure that the hospital had some sort of commode that they arm rest removed so I could do the transfer.
I should be able to use the stoma to cath in a couple of weeks. I'm excited. they left the foley in place until that happens. They lifted my bladder, turned up the ureter (sp?) so I wont leak after they take out the foley. The doctor mentioned a port I could get to hook to my large intestines so I could flush my bowels. It's a tube from my abdomen to my large intestines. I just flush through a mini emema or even warm water when I want to do my bowel prep and I'm done in no time. I don't really have bowel issues aside from sitting there waiting a long time and since they were there doing the stoma anyhow, the doctors seemed to think it was a good idea. If I don't like it then I can get it removed in an office visit.
For those of you that wished me well, thank you, I appreciate it.
Stacy
Hi There,
My name is Luke Bayes, and I am trying to spread the word about
some recent changes to Medicaid payments in Florida. Apparently,
Florida legislators have unilaterally altered their system for
Medicaid compensation to include ONLY 'standard' wheelchair
components. This change has indefinitely disrupted critical
services for countless Children as well as adults with severe
disabilities that require custom components or services.
PLEASE take a look at the following link to find out more, and
help spread the word if you can:
http://www.custommobility.org
Thanks,
Luke Bayes
luke@...
ow, thanks for all the informative
info..............you seem to have been through a lot trying to figure
this all out, I had a heart to heart with the
pediatrician today, and he wants to try without the
antibiotics first, and then, if he runs into trouble, start
treating prophalatically, rotating, trying to avoid the
resistant strains, he already had a uti the one before last
that was resistant to everything but cipro, and he is
too young for cipro, but they used it
anyway.......... it just didnt make sense, he does have discharge,
which I think is like the sediment that youre talking
of when he gets them, and the pain is awful, and he
is not a complainer!<br
doing the estim at night,we are?<br
Shar,
This page was gibberish. Could not understand anything. You may need to send you again.
Thank you. Miss talking to you. How are you? What is new in your life. Nothing here, just congested again.
Your friend,
.
Dana
ichael is a CPA and I am an accountant. It is a
great business to run from our home. The way our house
is set up the Master bedroom is on one side and all
of the other bedrooms are on the other side. So we
converted the other side to offices. We have adapted
Michael's computer for him since he is unable to write, so
he does everything on his computer.<br
n amazing day here in Ohio, I think we will set
a record. Sunny and warm--went outside and up and
down the street of our development with my power
chair. Did NOT want to come home :>)...I tried to
post mine and Ed's picture but it never showed up,
will try again...Geri, I too use a catheter, it is an
indwelling one. Wanted to ask if untreated infections can
lead to kidney stones. Take care, Betty
Sandy,
Toxic Chemicals? Really? please give a few details. i'm going to thinking
before i flush junk down now.
Dave
Hi Dave and Barbara too!
My spinal injury is from toxic chemicals. I am glad to be part of this group
and I'm glad you are here.
Sandy
Hi Dana Wray,
Houston Leek is now your friend!
Thanks for using Ringo. Stay in touch!
--
* This email was sent from a notification-only email address.
Please do not reply to this email.
Add yourself to Houston Leek's address book
Open your invitation
orry I've been away, but I see you have been
doing just fine without me. Go figure. I haven't been
able to find the problem with the message board, but
I'll keep looking. It's probably something the server
will have to handle. I'll see if I can't get it
straigtened out for you.<br
I thank all of the women and men that have served so that we can
enjoy freedom in this Country. I think that this poem echos my
feelings well.
If you are able,
save for them a place
inside of you
and save one backward glance
when you are leaving
for the places they can
no longer go.
Be not ashamed to say
you loved them,
though you may
or may not have always.
Take what they have taught you
with their dying
and keep it with your own.
And in that time
when men decide and feel safe
to call the war insane,
take one moment to embrace
those gentle heroes
you left behind.
Major Michael Davis O'Donnell
1 January 1970
Dak To, Vietnam
The poem was published in Dear America-Letters Home From Vietnam,
which was edited by Bernard Edelman and first published in 1985.
Dave Kelmer,
Wichita Falls, TX
i Debbie, Regarding UTI's. Untreated can cause
trouble! Much higher incidence of bladder cancer. Or it
can move into kidneys, and I think could even become
systemic, instead of localized.If there is an infection,
you need to treat. If you can see floating specs
(sometimes referred to as sediment, but actually "pus" type
flora, floating,then that is defintely a sign. NO need
to wait for severe discomfort, fever or "cloudy". I
had 17 in the first year (back to back) finally got
on preventative antibiotics.. Went through macrobid,
macrodantin, and septra (bactrim, sulfa-meth..) When there is
a bowel incident, even on septra I usually get an
infection. Seems almost unavoidable. Then I need cipro (I
keep a supply of them) Otherwise , I have settled in
with Septra once a day (can check the dosage) and have
been infection free for about three months (world
record) There is always the fear aof building a
resistance to an antibiotic.Actually I think it is the
bacteria who develop the resistance, not the host (person)
I could be wrong, but that is the usual method of
resitance developement. I have a standing order at the lab
for UA/CNS ( urine analysis, plus a culture to check
for what the particular bacteria is susuceptible to
or resistant to.)UA alone in not sufficient. I also
found that using Betadine soap (surgical soap) when I
could, helped. When I am out I carry baby wipes,
sometimes I even squirt them with the betadine. I got an Rx
for it, and my ins pays for it. Are you re-using
caths? If so, may need to review cleaning & storage
process. If they remain moist, even the tiniest of
bacteria will flourish. Some people use a small amount of
chlorine bleach (clorox) in the rinse water, it will casue
thm to dry out and crack a bit sooner, but there will
be less chance of infection. Also, remembering to
use KY. Not only can once cause trauma to the
urethra, it serves and an anti-infective. I am able to use
a new, sterile cath each time (at night) , and
during the day I keep a foley in, with a plug, so I can
easily drain bladder into a container or bottle. Which
requires only privacy, not a bathroom. Very handy since so
many are not accessible. I did try a mega doses of Vit
C for a couple of months, also cranberry juice, and
even acid-based bladder irrigations. (fun!, NOT) None
of these were successful. I did end up staying with
the cranberry pills, just because.. <br
the potty stories. Good night,,geri
I have another website started that has a better chat room for us so
let's start using it.
It's very easy to use just go to www.rollin-on.org click on chat and
enter your name and no need to join or put in a password.
Let's start chatting.
Mark
Hi Barbara,
What is your level of injury? Mine is T11-T12... I was in a car accident where my seatback failed... we are just about ready to settle our lawsuit... after nearly 4 years.
Mary Jane Hopper
"One of the deepest secrets of life is that all that is really worth doing is what we do for others"
Lewis Carroll
Hi QP,
It's the President's first Veto so I think he is playing to his core-base. There are some good Republican Senators like Orin Hatch that think this Bill is sound logic and shouldn't be Vetoed, but getting 60 over-ride votes may be hard this time around. At least this issue is being looked at and I believe most Americans will see the logic behind it, so we are getting closer everyday.
Dave Kelmer,
Wichita Falls, TX
think there is something wrong with this club.
I have noticed that one time I come here and there
are 202 posts and then the next time I come there are
less. Wonder if there is a problem somewhere. Just
thought I would let you know that you are right when you
don't see your posts. Not sure how to go about fixing
it. But maybe one of you so.<br
Care<br
Hi, I'm Barbara, I have SCI and look forward to meeting new friends
and hopefully understanding life a little better :)
Well I'm hoping for the best and just maybe the over-ride will come
through if people would write their reps like we do it could happen.
Mark
t doesn't take too long to get on this thing but
you might not see it right way. Usually only takes a
couple of minutes. My hubby got hurt in a motorcycle
accident November 1997. He has a T-12 injury. But we are
doing great. It just takes time to get used to
everything. Gosh I read so much not sure what to answer
first. Guess I will go back and do one at a time...LOL
Now we'll see if the majority of Americans means anything.
Mark
House Approves a Stem Cell Research Bill Opposed by Bush
WASHINGTON, May 24 - The House passed a bill on Tuesday to expand
federal financing for embryonic stem cell research, defying a veto
threat from President Bush, who appeared at the White House with
babies and toddlers born of test-tube embryos and warned the
measure "would take us across a critical ethical line."
President Bush made his opposition to the stem cell bill known
yesterday at the White House, showing off month-old Trey Jones, who
was born as a result of one couple's donation of frozen embryos to
another.
Susan Walsh/Associated Press
President Bush appeared at the White House with babies and toddlers
born of test-tube embryos, some wearing shirts that read "former
embryo."
The vote, 238 to 194 with 50 Republicans in favor, fell far short of
the two-thirds majority required to overturn a presidential veto,
setting up a possible showdown between Congress and Mr. Bush, who
has never exercised his veto power. An identical bill has broad
bipartisan support in the Senate; moments after the House vote, the
Senate sponsors wrote to the Republican leader, Bill Frist, urging
him to put it on the agenda.
The House action is the first vote on embryonic stem cell research
since August 2001, when Mr. Bush opened the door to taxpayer
financing for the studies, but only with strict limits. The new bill
permits the government to pay for studies involving human embryos
that are in frozen storage at fertility clinics, so long as couples
conceiving the embryos certified that they had made a decision to
discard them.
"The White House cannot ignore this vote," said the bill's chief
Republican backer, Representative Michael N. Castle of Delaware,
adding, "I'm elated."
But opponents also said they were elated. Representative Joseph R.
Pitts, Republican of Pennsylvania, said: "I hate to lose, but I feel
pretty good about this vote. We beat a veto-proof margin by 50
votes."
The big question now is what will happen in the Senate. Dr. Frist, a
heart surgeon from Tennessee who supports the existing policy, is
already facing intense pressure from conservatives over the issue of
Mr. Bush's judicial nominees and does not seem eager to schedule a
vote on stem cell research. He said last week that he wanted to
check with his colleagues before doing so.
The House vote followed an impassioned lobbying campaign by
advocates for patients, including Nancy Reagan. Mrs. Reagan, who
became a strong backer of stem cell research as her husband
struggled with Alzheimer's disease, telephoned fellow Republicans
this week urging a yes vote, Mr. Castle said.
But Mr. Bush countered with a powerful one-two punch, throwing the
full weight of the White House behind the opposition. On Friday, he
issued a rare threat to veto the Castle bill. On Tuesday, just hours
before the vote, he appeared in the East Room of the White House
with families created by a rare but growing practice in which one
couple donates its frozen embryos to another.
"The children here today remind us that there is no such thing as a
spare embryo," Mr. Bush said, amid the squeals and coos of babies
cradled in their mothers' arms. "Every embryo is unique and
genetically complete, like every other human being. And each of us
started out our life this way. These lives are not raw material to
be exploited, but gifts."
The parents, who worked through a Christian adoption agency,
applauded enthusiastically. When Mr. Bush said that "every human
life is a precious gift of matchless love," a mother behind him on
stage mouthed the word "Amen."
The White House event, on what conservative Christians and the
president call an important "culture of life" issue, demonstrated
just how far Mr. Bush is willing to assert himself on policy that
goes to what he considers the moral heart of his presidency. In
another sign of how important the issue is to conservatives, the
House Republican leader, Tom DeLay of Texas, managed the opposition
to the bill, also casting it in stark moral terms.
"An embryo is a person, a distinct internally directed, self-
integrating human organism," Mr. DeLay said, adding, "We were all at
one time embryos ourselves. So was Abraham. So was Muhammad. So was
Jesus of Nazareth."
He went on: "The choice to protect a human embryo from federally
funded destruction is not, ultimately, about the human embryo. It is
about us, and our rejection of the treacherous notion that while all
human lives are sacred, some are more sacred than others."
Human embryonic stem cells, isolated from human embryos for the
first time in 1998, have the potential to grow into any cell or
tissue in the body, and so hold great promise for treatment of
disease. But the embryos are destroyed when the cells are extracted.
So Mr. Bush, intending to discourage further embryo destruction,
insisted in 2001 that federal financing be limited to studies of
those stem cell colonies, or lines, that had already been created.
Skip to next paragraph
Transcript: Bush's Remarks on Bioethics and Stem Cell Research (May
24, 2005)
Vote on Stem Cell Research (May 25, 2005)
Forum: Bioethics
Instead, Mr. Bush is promoting research on adult stem cells, which
are drawn from bone marrow and blood, including umbilical cord
blood, and have narrower implications for medicine than embryonic
stem cells. On Tuesday, the House voted 431 to 1 to approve a
measure that would create umbilical cord blood banks to advance
adult stem cell research.
But it was the embryonic stem cell debate that inflamed the passions
of the House, sounding at various times like a lesson in cell
biology, a theological discourse and a personal confessional.
Lawmaker after lawmaker came to the House well to recount struggles
with conscience and searing personal experiences with death and
disease.
Representative Jim Langevin, Democrat of Rhode Island, rolled to the
microphone in his motorized wheelchair to speak of his spinal cord
injury, which he said could be helped by the research.
Representative Jo Ann Emerson, Republican of Missouri, told of a
young man named Cody, who had been paralyzed in a car accident at
age 16 and asked her to rethink her opposition to embryonic stem
cell studies.
"I later wrote a note to Cody's family telling them that even after
hearing his story, I couldn't do as he asked," Ms. Emerson
said, "and I have regretted writing that letter ever since."
But for every supporter with a compelling personal tale, there was
an opponent like Representative Dan Lungren, Republican of
California, whose brother has Parkinson's disease. "I've learned a
lot of things from my brother," Mr. Lungren said, "But one of the
things I learned most is that there is a difference between right
and wrong."
The backers of the Senate measure, Senators Arlen Specter,
Republican of Pennsylvania, and Tom Harkin, Democrat of Iowa, have
scheduled a news conference for Wednesday to demand quick action. "I
don't understand why Mr. Bush is doing this," Mr. Harkin said,
adding, "I wish he would refrain from drawing lines in the sand."
Hi QP,
I see this bill passing the Senate, getting a Veto from the President, then going back to the Senate for an over-ride vote. I don't think there will be enough votes for the over-ride and the Veto will hold. The American people will see Bush and this Veto for what they really are.
Dave Kelmer,
Wichita Falls, TX
posted several hrs. ago, how long does it take for them to show up?
Hi QP,
It looks like the vote will be next week so everyone should contact their Congressperson to let them know how you feel about this vote! If not US then WHO will speak-up about this issue?
Dave Kelmer,
Wichita Falls, TX
ut I assume they will eventually. Leslie, I'll
bet your place looks gorgeous, redecorating can be
fun--it sometimes is a pain going through it, but the
result is worth it. Right now we have wallpaper that is
peeling and curtains that are falling down. I've was
going to do something about that after Christmas, then
after New Year's--I better get with it before they both
fall down completely. :>)<br
There goes all that hard work!
Bush Vows to Veto Stem Cell Legislation
May 20, 2005 2:21 PM EDT
WASHINGTON - President Bush on Friday said he would veto legislation
intended to loosen restrictions on embryonic stem cell studies and
expressed deep concern about human cloning research in South Korea.
"I'm very concerned about cloning," the president said. "I worry
about a world in which cloning becomes accepted."
White House deputy press secretary Trent Duffy said the work in
South Korea amounted to human cloning for the sole purpose of
scientific research. "The president is opposed to that," Duffy
said. "That represents exactly what we're opposed to."
South Korean researchers, funded by their government, reported
producing human embryos through cloning and then extracting their
stem cells. It is a major advancement in the quest to grow patients'
own replacement tissue to treat diseases.
The president also threatened a veto of legislation that would clear
the way for taxpayer money to be spent on embryonic stem cell
research.
A measure by Reps. Mike Castle, R-Del., and Diana DeGette, D-Colo.,
would lift Bush's 2001 ban on the use of federal dollars for
research using any new embryonic stem cell lines.
"I made very clear to Congress that the use of federal money,
taxpayer's money, to promote science which destroys life in order to
save life - I'm against that," Bush said. "Therefore, if the bill
does that, I would veto it."
But Duffy said the administration looked favorably at a bill to
encourage stem cell research that uses blood from umbilical cords.
That measure is being pushed by House Republican leaders as an
alternate to the Castle-DeGette bill. Duffy stopped short of
endorsing the alternate legislation but said it has promise.
DeGette said in a statement that it was "disappointing that the
president would threaten to use his first veto on a bill that holds
promise for cures to diseases that affect millions of Americans.
Support for expanding federal stem cell research in an ethical
manner remains strong in Congress."
Castle also defended the bill, saying, "Under no circumstances does
this legislation allow for the creation of embryos for research nor
does it fund the destruction of embryos."
Bush, in his fifth year in office, has not yet exercised his first
veto. The White House also promised a veto this week of a highway
bill if it exceeded the administration's spending limits.
Bush began the day at the National Catholic Prayer Breakfast where
he was cheered for urging people to "pray that America uses the gift
of freedom to build a culture of life."
The remark was a public reaffirmation of his position on sensitive
issues such as abortion and stem cell research.
Bush recalled the legacy of the late Pope John Paul II and
said, "The best way to honor this great champion of human freedom is
to continue to build a culture of life where the strong protect the
weak."
Bush won 52 percent of the Roman Catholic vote in last year's
election and got the support of 56 percent of white Catholics,
defeating the first Catholic presidential candidate from a major
party since John F. Kennedy. In 2000, Bush narrowly lost the
Catholic vote.
eth, I was telling Ed that you were from Grand
Rapids and that I'd asked you if you knew someone from
Rockford, and he rolled his eyes and said Yeah that's like
asking someone from Columbus--Ohio--if they know someone
from Lancaster--a bunch of miles away. lol I expect
everyone I know to know everyone else of course!...Don't
know if you know, I have an undiagnosed neuro-muscular
disease--have had it since l978. I've been to the Mayo Clinic
twice with no diagnosis. Having a disease with no name
presents its own set of problems, but I have found so much
support on the computer sites, and even a couple of
others with an undiagnosed disease! There is a lot of
help here.<br
Cloning of Human Stem Cells Speeds Up
Scientists have created nearly a dozen new lines of human embryonic
stem (ES) cells that for the first time carry the genetic signature
of diseased or injured patients. The breakthrough represents a
dramatic increase in the efficiency of creating such lines and may
eventually pave the way for treating conditions such as spinal cord
injury with stem cell transplants.
Eggs-perts. Through practice with cow eggs (above) and other means,
Korean researchers have increased their efficiency at cloning human
embryos to create stem cells (inset).
CREDIT: Lee Jin-man/AP; (inset) Hwang et al.
Last year, a group led by veterinarian Woo Suk Hwang and
gynecologist Shin Yong Moon at Seoul National University reported
the first derivation of ES cells from human nuclear transfer
(Science, 12 March 2004, p. 1669)--a process that involves replacing
an oocyte's nucleus with one from a different cell, and then
chemically kick-starting development of the egg. But those efforts
yielded just one cell line from more than 200 tries.
In the new study, reported online today in Science (article is free
with registration), the same team increased their efficiency more
than 10-fold and can now derive cell lines in more than 1 in 20
tries. Part of the secret is that they used freshly-harvested
oocytes from young, fertile women instead of oocytes left over from
fertility treatments. In nine cases, it took only a single donation
of oocytes from a woman to produce a new line. Nine of the 11 cell
lines are derived from patients who have suffered spinal cord
injuries, ranging in age from 10 to 56. The other lines are derived
from 2-year-old boy with a genetic immune disorder and a 6-year-old
girl with Type-1 diabetes.
Hwang cautions that his team remains years away from transplanting
the cells into people. "We have to be over-convinced" that the cells
are safe, he says. However, the cell line derived from the diabetes
patient should be of great interest to scientists.
"The possibility of being able to study disease in a culture dish is
very exciting," says Douglas Melton, who has recently received
permission from a university ethics committee to derive ES cells
from diabetes patients in his laboratory at Harvard. "For the first
time, we will have a chance to study the root causes of the disease."
The new results may also influence the ongoing political debate over
whether research with human embryonic stem cells, cloned or not, is
ethically justified. "Some people will hate it, others will love
it," says Rudolf Jaenisch of the Massachusetts Institute of
Technology. "But it puts the discussion on a very firm footing now.
People will have to rethink the argument that it's not efficient."
aren, I think I know what Chuck feels like in
Sears, at least for me the clothes are so close together
you can't really get up to them without knocking
something over. I have stood out in the aisle while Ed
looked for me but it is very fustrating when you can't
get right up to it. And this may not get better with
time cause non-thinking people are everywhere and they
don't seem like they're going away--they keep on
non-thinking!--only who knows, your letter just might be the thing
that does make a difference. I used to write an
occasional letter about various things, and you know what,
they surprisingly did make a difference, so go for it!
Take care, Betty
I used to post a lot here. Never got any responses... curious don't you think?
There is an active SCI group over at: http://www.makoa.org/quadlist.htm
Put on your 'flack' jacket and come on over.
Dave
=============
In a message dated Mon, 11 Mar 2002 11:58:48 AM Eastern Standard Time,
"a_delicate_rosebud" <delicate_rosebud@...
am praying that this doesnt turn into a double
post, but I really think I messed it up the first time,
thank you for all of your nice welcomes, I look forward
to getting to know everyone!!!!! Adam is ten, and
was injured well, it will be 2 yrs in March. We were
hit head on on a highway while going to the grocery
store, my baby and myself were also pretty seriously
injured, but hey, we are all still alive, I am sure
everyone has their stories to tell!!!! <br
thankfully doesnt have the spasms, I hear they are just
horrible, hope the new medication helps William! We are
having a lot of UTI problems, any info on this would be
much appreciated, the urologist is now saying that the
urine will always come back postive when cathing,and
that the pediatrican should stop treating with
antibiotics, and start using peridiem or something like that,
but wouldnt the pain be because of infection? It
clears up with the antibiotic, the last time, he was in
terrible pain on the sulfa, till the culture came through,
and they started cipro, hope that someone has some
experience with this!<br
how was your husband injured? You must still be
adjusting to everything.What is his level of
injury?<br
he was a serious hockey player, since age four, and
he skiied on a monoski this weekend, and loved it,
but we live 4 hrs away from where he skiis, so we
cant do it as much as he would like:( well, look
forward to talking with all of you.<br
hope that my other post shows up eventually, it
may turn into a double post, I am kind of computer
illiterate still, anyway, I am Adams mom, and I saw the
picture of William, and I see that he is standing without
holding on, when was his injury? Adam has both long and
short leg braces, but he tires very easily, he goes
somewhat long distances, several hundred feet, but takes a
lot of breaks.If he can stand without holding on, can
he walk at all without the walker?
Hello everyone!! Did this group die or something? Sheesh, not
amessage in over a month. So unnatural. Anyways, does anyone here
live in Canada?? I need information about the canadian health system.
liz
House Bill to Ease Stem Cell Curbs Gains Momentum
By Ceci Connolly and Rick Weiss
Washington Post Staff Writers
Thursday, May 19, 2005; Page A02
Emboldened advocates of lifting current limits on embryonic stem
cell research appear within reach of a breakthrough victory in the
House as early as next week, a vote that would put fresh pressure on
the Senate and White House to funnel significant federal money into
the emerging field.
House backers of legislation that would loosen restrictions imposed
by President Bush in 2001 say they have 201 co-sponsors and enough
private commitments to put them at or over the 218 votes needed to
pass -- a prospect that has so bitterly divided the GOP that two
Republicans nearly came to blows on the House floor Monday night.
Rep. Michael N. Castle (R-Del.), a co-sponsor of the measure, said
that if the vote on the bill were held today, it would pass. Nearly
four years after Bush used his first nationally televised address to
announce a decision limiting federal research to previously existing
embryonic stem cell lines, some opponents speculate that the
congressional showdown could lead to the first veto of his
presidency.
But as lawmakers prepare to cast their first votes on the sensitive
issue of broadening the research with taxpayer money, opponents have
begun a vigorous eleventh-hour campaign to defeat the legislation.
Cardinal William H. Keeler of Baltimore condemned the legislation on
Tuesday as "destructive and morally offensive."
"Government has no business forcing taxpayers to become complicit in
the direct destruction of human life at any stage," wrote Keeler,
chairman of the Committee for Pro-Life Activities of the U.S.
Conference of Catholic Bishops. "Nor is there any point in denying
the scientific fact that human life is exactly what is at stake
here."
Both sides are mobilizing for the high-profile vote, with proponents
using ads that invoke the words of Nancy Reagan and opponents
organizing a Capitol Hill appearance by babies who were "adopted" as
embryos.
The Stem Cell Research Enhancement Act of 2005 would permit federal
money to fund research on stem cells taken from days-old embryos
stored in freezers at fertility clinics and donated by couples who
no longer need them. The cells show great promise in treating a
variety of diseases and injuries because they are able to morph into
all kinds of tissues, but they are controversial because the embryos
must be destroyed to retrieve the cells.
Scientists and patient advocacy groups say the Bush policy limits
federally funded work to about two dozen embryonic stem cell
colonies, or lines, while scores of more promising cell lines remain
off limits.
The upcoming vote has created a rare split in the Republican Party.
Rep. David Joseph Weldon (R-Fla.), a physician who opposes the bill,
said his moderate colleagues paid for polling in some GOP
congressional districts to show that opposing the bill may not go
over well with constituents.
"It doesn't get much uglier than that," he said. "My background is
in science, and I know human life begins at the moment of
conception."
The poll so infuriated Rep. Rick Renzi (R-Ariz.) that colleagues had
to pull him away from "a heated discussion" with Rep. Mark S. Kirk
(R-Ill.), who supports the bill, according to Hill staff members and
a report in the newspaper Roll Call.
Advocates are winning support from some antiabortion leaders with
the argument that "cells in a Petri dish" that would otherwise be
discarded are not comparable to a fetus that "would become a person
in the normal course of events," said John C. Danforth, an ordained
minister and former Republican senator who served as Bush's
ambassador to the United Nations.
"There is only one argument against stem cell research, and that is
meeting the demands of the religious right," he said in an interview.
James C. Greenwood, a moderate Republican who retired from Congress
last year to become president of the Biotechnology Industry
Organization (BIO), said he is "cautiously optimistic" that, given
the large number of co-sponsors, the House will pass the bill.
"There's always a fair assumption that some members don't want to
have their names on the bill because they don't want to draw fire
but will vote for it," he said, adding that BIO, which supports the
bill "100 percent," has identified at least 218 votes for it.
If the vote is blocked -- or, as some proponents fear, the bill is
modified with language they object to -- sponsors have a backup plan.
Rep. Diana DeGette (D-Colo.), who has teamed up with Castle to push
the issue, said she is prepared to attach the stem cell language to
appropriations bills or legislation reauthorizing the National
Institutes of Health. "They know I've got the votes," she said.
In the Senate, where Majority Leader Bill Frist (R-Tenn.) is under
pressure to schedule a floor vote on an identical bill, proponents
have warned that they may have the 60 votes needed to kill a
filibuster. "Whether he brings it to the floor or not, I think we're
going to get it to the floor," said Sen. Orrin G. Hatch (R-Utah).
With a House vote expected before the Memorial Day weekend recess,
advocates on both sides have released dueling poll results and plan
a series of publicity events. Today, four physician-lawmakers will
highlight treatments they say are as good as or better than those
involving embryonic stem cells. Next week, parents of children who
were "adopted" as embryos will lobby against the Castle-DeGette bill.
Weldon predicted Bush would veto the legislation, but Hatch and
others said that is not certain. Michael Manganiello, senior vice
president of the Christopher Reeve Paralysis Foundation, said
advocates are scrutinizing Bush's previous comments "to see if there
is room for the president to allow a compromise to his initial
policy."
Opponents, with the support of House Majority Leader Tom DeLay (R-
Tex.), are hoping to persuade undecided Republicans to vote instead
for a bill sponsored by Rep. Christopher H. Smith (R-N.J.) that
would create a national umbilical cord blood bank. Cord blood cells
display some of the same traits as embryonic stem cells but are more
limited in the types of tissues they can become.
nd thanks to all of you for your warm welcomes
to us!!!! Adam is 10, he was injured at age 8, it
will be 2 yrs in March. He doesnt have the spasms that
I hear so much about, that must be so hard to deal
with!!!! We are having a lot of UTI problems, but now the
urologist says that the urine will always be positve when
someone is cathing, and to stop treating with antibiotics
everytime, but he has such pain, but he said to do the
peridiem route(?) Any experience with this? Does William
play sports at all? How old was he when he was
injured? Adam has gotten into the hockey, as he was a
serious hockey player since age 4. He also skiied this
weekend on a mono ski!!!! He loved it! Unfortunately we
live about 4 hrs away, and he wants to do it every
weekend!!! Well, I look forward to talking more with all of
you, I am so glad I found you!<br
hi and welcome to the group! i myself am very new at it also. just being a recent para, about 6 months post now, and just exploring the computer. i am sorry to hear about your spinal stroke! i my self was injured in a terrible fall, about 25 feet, and suffered burst fractures of the spine resulting in my paraplegia. however, i am a nurse and can also understand your experience so, i thought i would write to you. and what was that about the group you wrote about? i am not familiar with it! well, if you would like to continue communicating, please respond. well wishes to you! marla
Hi Heather,
Thanks for the info on the chat room. I'm a member now so I'll drop in and say hi.
Dave Kelmer,
Wichita Falls, TX
Okay ... "Hi!"
My name's Bob, though most folks call me "Bobber," (or, in my absence,
"daBobber," as in "Where did we leave daBobber?"
I've been a paraplegic since 11/00 when I had what is politely
referred to as a "spinal infarct." It amounts to having a stroke in
one's spinal cord, which in my way of thinking ought to be against the
rules and I should get a "do over," cuz I'd never HEARD of such a
thing until I had it!
I ended my 17-year career in radio/newspaper journalism in '95 after
my 3rd spinal fusion. In '97, the pain got so bad, they slapped a
Meditronics transthecal narcotic infusion pump into me belly and ran a
cath back into my spinal fluid. It worked very well, until late '00
when my pain shot up to an "11" and I was hospitalized. Three days
later, I woke up to discover I couldn't feel or move anything below my
belly button! Rude awakening!
Five weeks in the hospital, five weeks in the nursing home for rehab,
then home to a non-handicap-accessible apartment in a small town where
the only accessible apartments require you to be handicapped AND low
income, and we are over the posted greed limit. (That means we make it
from paycheck to paycheck with soc. sec, workers comp and my wife's
job.) So I have this nice, swanky hospital bed in my living room ...
I'm looking forward to meeting folks and making friends ... and can't
BELIEVE there's a NEWSGROUP FOR PEOPLE WHO PRETEND TO BE WHEELCHAIR
BOUND???
Why???
The old adage comes to mind ... "Be careful what you wish for."
Talk atcha later
=daBobber=
subscribe join
t sure is fun to come to this board and read all
the messages. Welcome Debbie and Beth (Wm's mom). I
love the pictures. I have a scanner but have not
installed it yet, because my PC's CD-ROM drive is not
working, and Windows 98 plug 'n play install didn't detect
the scanner. So I am getting a new drive in the next
couple of days.<br
situation. What kind of business Leslie? So will you take a
picture of the house so we can ooh and aah ?<br
see a new doctor today, and I think I found someone
who does not have his head up where the sun don't
shine. I want to take less medications but not to the
point of being in pain. So we are starting to look at
eliminating some and increasing the dosage of others.<br
anybody else have a assistance dog ? My Gunar still needs
to do some training and I have found a dog trainer
who is in a wheelchair. I have some difficulty with
heeling; he wants to pull which is great in a way, but I
don't have a harness for him so it's not distributing
the weight well. Also he is so BIG (About 85 lbs) and
more to come, that when he lays down he takes a lot of
room: people have to climb over him which is not really
too cool.<br
was online last night and talked to Bill for a
bit. I managed to get him over to this page. Now all
he has to do is post and join in. Glad I could help.
Not sure what he was doing wrong but he has it now.
Think the address wasn't right. Hope to see him soon.
Take care<br
I just wanted to let everyone know that the chat room on the web site
is finished. If you get a chance check it out. If you have any
questions you can instant message me at heathersci.
If you have not seen my web site, it is for people with spinal cord
injury, their friends and family. The web site has been open about a
month and we now have 131 members! There are member profiles, true
stories, photos, and information. Under the meet friends section you
can search by state or country to find others close to you. We also
have an in-depth forum where you can post questions, reply to other
comments, or read other posts.
http://spinalresource.com/
Heather
C5-C7
San Antonio, Texas
I'm trying desperately to remember the BAD things that happened 35 years ago as
I lay half dead in the care of the medical profession's competent few.....
Thoughts of being turned in my circle bed before they un-pinned my nose tube
from the sheet, or dropping my neck traction on the floor as they turned me too
far - they picked it up by reversing the motor and hitting the switch - WOW what
a jolt, or my tongs popping out and flying across the room, or of 'Ducky'
tripping on my bed post every freeking time she walked by - I gave the head
nurse my fruit basket to keep Ducky out of my room. The worse thing that comes
to mind was giving the new aide the job of giving me an enema while lying on my
back in my circle bed - now WHAT moron would generate such an order? The
results were as expected - a brown nurse's outfit and a mess. Other than the
fact that they didn't really FIX my damaged cord, I feel pretty fortunate after
hearing some of the other horror stories. Hard to imagine getting FU'ed by the
care gi
vers and NOT killing them for it.
Dave <-- one lucky boy (?) (everything's relative)
ill was Mr. Speedy. Most people have a variety
of injuries to recover from in addition to their
sci...Bill took a fall and landed right square on his
back...no other injuries. He spent 6 days in the hospital
and 3 weeks in rehab.<br
98. He went back to work part time about the end of
July and full time about the end of September. He
worked in a factory and his job was not real physically
demanding. He did, and still does tire easily but he also
takes ditropan which causes drowsiness. They also
tended to give him jobs which no one else wanted to
do...they put him on a welder that constantly broke down.
When it was down they had him threading nuts onto
bolts. He was bored to death. They were really good to
him by giving him two months disability pay but when
he came back to work I don't think they took the
time to find something challenging for him to
do.<br
his dad and try to decide what to do with his life.
He is torn between two things. Music or counseling.
He has played drums and guitar since he was little.
There is an excellent school in Florida where he could
become an audio engineer. But since his accident he has
spent hours online talking to people across the country
about sci and really enjoys counseling. So only time
will tell.
Just a thought to ponder.
('Cuz I like you guys.)
http://www.users.qwest.net/~daveoc/1000marbles.html
Have a great day.
Dave
i everyone, and welcome to Debbie and Beth. It
was cool to get home from work and find so many
posts! I have been having particularly long days, seems
I can't see enough people during the day, so many
of my customers (who are also friends) have been
able to meet me later in the day, tonight and last
night ended up being dinners,I ended up home at 8 last
tnight, and 9:30 tonight. So I guess my endurance is
getting up (tell Chuck) I get up at 6 a.m. usually head
for bed about 10, maybe take in the news, and asleep
by 11. I find the busier I am the more content and
calm I am. With lots of free time, I get restless and
anxious. Have never been a tv person, so can only do so
much gardening, watering, and cleaning. Then there is
shopping, but I keep running out of $$$$! I may have set a
record,, on working....I went back to work part time at 5
months post injury (3 months in hospital) but I was
still doing some therapy then. I got my drivers license
at 5 months post (exactly 5 months to the day I was
transferred from ICU in FL to rehab in AZ) Then at 8 months I
went full-time in the office, (I did go in a bit
later, 8:30) then at one year I was back on the road,
covering all of AZ, southern CA, and Nevada. ROAD TRIPS
CROSS COUNTRY ALONE IN THE SUMMER IN THE DESERT! Talk
about a confidence builder! It was the best thing that
I ever did. That is why I suggested to you Karen,
to let Chuck go and drive on his own, as soon, and
as much as possible. That feeling of independece is
irreplaceable. My trips were 3-4 days, 6-7 hour drive, get a
hotel, then visit chemical distibutors who sold my
product. After 6 months of that I decided it was no fun
anymore! I used to feel a little awkward and conspicuous
when I was at a hotel alone while traveling,(when I
Could WALK) maybe sat in the lounge for a few hours in
the evening, or at the pool,or spa, or exercise room.
Talk about conspicuous! Try sitting in a wheelchair!!
O my God! ALONE, no less! Way to uncomfortable. So
I would end up in my room with room service (always
the worst food, and overpriced!) With TV (yuck) and a
lap top that I usually couldn't manage to get dialed
out on! I was usually in a lovely place. Newport
Beach, Mission Beach, Palm Springs, Las VEgas. (couldn't
exactly go for walks on the beach) The first trip to
Vegas I figured God was going to make everything up to
me, so I lost $300, trying to give Him that
opportunity. (my usual is $20-40, tops) guess he figured he
let me live, so he didn't owe me! ANyway, I have many
contacts in the turf distribution business (selling
fertilzer, chemical, and seed to golf course, etc) so my
friends in So Cal had just started a new company,Turf
PArtners, and they coerced me into opeing a branch in AZ.
Took 5 months of planning, permits, and "leg work"(pun
intended), but we opened in Apil, have a great team, 4 sales
men,and 4 support people. We all work really well
together. Did 4 million in 98, actually in the black the
first year, which is unusual. I was going to go back to
my old employer, had been with them for 11 years,
was so worried about it that I went to a counselor.
His advice "take the challenge, you always liked a
challenge" I guess that's true, I love what I am doing. The
biggest challenge of my life has been this darn SCI,
though. I am determined not to let in own OR define me.
Good night! Geri
Hello,
This email message is a notification to let you know that
a file has been uploaded to the Files area of the DisabledOfAmerica
group.
File : /ssa-545.pdf
Uploaded by : quadpirate <quadpirate@...
Description : Plan to achieve self sufficiency
You can access this file at the URL:
Hi Dan,
I had a speech class once - in the secondary education dept at Arizona State
Univ. We were all supposed to 'challenge' the speaker as typical HS studendt
would. (Just to prepare the speaker - a potential teacher - for the worst).
WWEELLLL.... I'm a pretty good heckler, so I led the charge through all 20 of
my clasmates. Then .... it was MY turn.. Woah... they promised to "kill"
me - make me beg for release....
I drew a ball on the board about the size of my head and a bunch of little
rectangles stacked up under it like vertabrae. I drew an arrow to C3/4 and
proceeded to give an anotomy lesson. Described paralisys, telephones and phone
wires, hospital stays, wheelchairs, nurses, aides... getting around in public.
Asked them if they knew how much their heads weighed... and how smart was it to
set it on top of a bunch of delicate little interlocking bones. My 5 minute
speech turned to a 20 minute disertation in a very quiet and well mannered room.
Teacher asked them why they didn't heckle me.... they said they couldn't. My
topic was too fastinating and I was too informative to interrupt.
I know, nothing to do with your request. I just get started and can't stop..
Yaknowwhatimean?
OK, one example. I burned the HECK outta my legs one time boiling chicken in a
pot. I lifted the pot down into the CokaCola box in my lap, touched my hand to
the pot (accidently), arm jumped, pot sloshed, water spilled, legs jumped, pot
sloshed more, water spilled more, legs jumped again....... I put the pot back
on the stove and got some ice for my legs AND my little buddy. Sure glad I
couldn't feel THAT.
Best o' luck,
Dave
PS. I cc'd a few very cool groups who might help you as well.
In a message dated Mon, 14 Jan 2002 1:49:27 AM Eastern Standard Time, "D.A.
Booker" <booker20012002@...
ey, it is good to meet you. This place is really
neat. The people are friendly and very very helpful.
Don't know how I got along without them for a whole
year. <br
year ago. He is kind of shy so won't come here and
post. But I sure do. Hopw old is your son? Since you
are 35 he can't be too old...LOL <br
forward to talking with you one of these times. I don't
think we ever had a time set for chats. We just kind of
post. Maybe we should think about a time to get
together. But then with everyone from different parts of
the country it would be really hard. Alot of us use
ok.... just one more story. one new year's eve - out at a night spot (Bobby McGee's for those Phoenicians) we were all in for the evening - you know, one price pays all, dinner & drinks. SSSoooo... after a few, I started flirting with this cutie at the next table... smiling.. winking... blowing kisses... all evening. After 12:00 when the main celebration was done and we headed for the door, this cutie - who evidently had too much cheer - came running over, hugged me and said to the mrs, "Excuse me but I've just GOT to kiss this guy happy new years." WWEEELLLL... I claimed innocent to the whole thing - said I just didn't know WHAT got into her - "Probably too much cheer..." HA - the helpless quad strikes again. Life IS good.
Dave
In a message dated 1/11/2002 7:00:25 PM US Mountain Standard Time, tojo@... writes:
hey there! what an inspirational
story . i love hearing things like that. good luck! marla
couldn't believe all the things that went with
the injury. So many things I never thought of. And I
have come to realize that there are way too many
people out there that need to be educated about SCI or
for that matter handicaps in general. Like putting
that little blue wheelchair on a bathroom and saying
it is accessable. Well, most the time they aren't.
You would think they would have the brains to take a
chair in there and see if it fit in so you could close
the door. I have complained alot since this happened
and will keep complaining. And stores are awful. Like
Sears. Took Chuck there to do some clothes shopping. He
couldn't even get to the clothes. They had tables all over
the place. It really depressed him and we had to
leave. He felt like he was in the way the whole time and
got very upset. So a strong letter is going out to
them.<br
SEE everyone. And even greater that we are getting
new members. Welcome one and all. <br
have a great day and take care<br
ey about time we saw you back here. Playing
hookey. Glad you are getting back into the swing of
things. Chuck goes to work everyday and works about 8
hours. He is exhausted by 7 every night. But it has kept
him going. Keep at it it will get better with time. I
bet you are tired of hearing that. I know chuck is.
Every time one of the docs say "it will get better in
time" he says "Don't swear at me". He considers that
word, TIME, as a four letter word. He is a very
impatient man. Wants everything to be fixed right now.
<br
just has to get used to it. Plus they put the ball at
the bottom of the steering wheel and he would rather
have it at the top. So I will break out the tools and
move it. I did get the gate belt and wrapped it around
him and the seat. Seems to help alot. And the nice
thing is, there isn't a buckle. It uses velcroe so he
can do it himself. One of the medical stores
suggested I call the car dealer to see if they make some
kind of harness. Going to check it out. Can't
hurt.<br
here once in a while and post. We miss you.
<br
hey there! what an inspirational story . i love hearing things like that. good luck! marla -- Original Message -----
From: dave0c@...
i Everybody! Sorry I haven't been on posting.
The painters finished today and my house looks
beautiful! As for working after injury, Michael and I owned
our own business. He did not work the first fourteen
months after his sci. I moved the business into the
house and ran it. When he did go back to work, he built
up to full time. The business is still in our house,
and it works out really well for both of us. I can
work and take care of him.<br
Hi Dana,
Group,I used to get to my workplace rather early - like b/4 6:30 am and got
myself in from the parking lot, up the short but steep ramp and in the badge
operated front door without many problems. The basic problems are cold fingers
in the winter time that don't grip wheels worth a sh%$. So lately I have
shifted to a later schedule like arriving at 7:30 or 8:00 when there is a lot of
pedestrian traffif. I'm thinking, "there's probably a lot of thoughtful people
more than willing to lend a hand coming up the sidewalk." There are indeed such
people, the non-english speaking cleaning lady always drops her front patio
chores to give me a silent but friendly boost. I always thank her - and she
always smiles. HOWEVER... there are a handfull of 'mouthbreathers' (if I can
borrow a phrase) who go out of their way cutting through bushes, taking the long
way around the fountain, diverting an extra hundred yards to the side employee
door in order to avoid me. My 1st instinct is to wonder what's up with these
cree
ps, my
3rd instinct is my own awe that I weild such unspoken power as to divert these
mouthbreathing drones (the front door i use not only has the smaller ramp - it
is also closer to the executive offices where these drones are headed) so far
out of their normal path with just my sitting 'aura'. Makes me feel like Zeus.
:-) I especially like it when a 'MBD' passes me only to find out that the front
door is locked and requires a coded badge to open it - like mine - and then pass
me again as they head around the building to the employee's entrance by ther
guard desk. I always greet them with a smily, "Good morning." as I continue to
my door. Sometimes they get around in time to see me coming through the front
door as they drone on into their oak-doored office. Does anyone else get these
'Zeus-ish' feelings while out there with the mbd John Q's of the planet? Zeus
on, oh mighty quads.
Dave
etty...I don't know too many people from
Rockland and don't get up that way to shop at all. It
isn't far from here though, about 15 miles north of
us.<br
lower injury - T-12. He has straight leg braces and a
walker also. Is trying to get his spasms under control
so he can use them more. He just got a prescription
for baclofen yesterday, so hopefully it will work
without too many side effects. How old is Adam? Wm is 23.
<br
that really surprised me concerning paralysis. So many
things we take for granted til they aren't there
anymore.<br
House of Representatives to Vote on Expanding the President's
Stem
Cell Policy by the Memorial Day Recess -- Perhaps as Early as Next
Week
We're pulling out all the stops. We've been working for
almost four
years to get a vote in the Congress. And this is our chance. The
House Republican leadership has agreed to allow a floor vote on The
Stem Cell Research Enhancement Act, H.R. 810.
The Stem Cell Research Enhancemement Act, H.R. 810, is a bi-partisan
bill sponsored by Representatives Mike Castle (R-DE) and Diana
DeGette (D-CO) that will expand Federal research funding to the use
of embryonic stem cells derived after August 9, 2001.
What does this bill do? Fundamentally, it removes the arbitrary
date of August 9, 2001 from the current federal funding
regulations. The bill would allow embryonic stem cell lines derived
from unused, donated embryos from in-vitro fertilization that would
otherwise be discarded to be eligible for federal funding. All of
the current regulations and oversight put in place by President Bush
would remain intact.
With both Democrats and Republicans working to support this bill, we
already have 198 co-sponsors, and have additional verbal pledges
from Members to vote for the bill. We need 218 votes to win.
We have every reason to think the floor vote will be extremely
close. With your help, we can win this vote. Contact your Member
of Congress and urge a YES vote on Castle-DeGette, H.R. 810.
This bill may be brought to the House of Representatives for a vote
as early as next week.
When President Bush announced his stem cell policy in August 2001,
we did not foresee that the 78 lines available for research at that
time would not be sufficient. Tell your Representative the
challenges with the current policy are the following:
While it originally appeared that 78 embryonic stem cell lines
would be available for research under the federal policy, now,
almost four years after August 9, 2001, only 22-23 lines are
available to researchers.
All of those lines are contaminated with mouse feeder cells,
making their therapeutic use for humans uncertain.
Scientists are reporting that it is increasingly difficult to
attract new scientists to this area of research because of concerns
that funding restrictions will keep this research from being
successful.
This promising field of research is moving overseas. We have
already seen researchers move to countries such as the United
Kingdom, Singapore, Israel, Sweden, and Australia, which have more
supportive policies.
Talking Points on H.R 810:
** Note: When you call, ask for the health aide, and if the aide is
not there, leave a detailed voicemail for him/her and request a
return call. Try to avoid leaving a message with the front desk.
As a constituent, I am calling to urge Representative _______
to
vote YES on H.R. 810, the "Stem Cell Research Enhancement Act of
2005" introduced by Representatives Castle and DeGette.
This bill would expand the current federal policy on embryonic
stem cell research to allow for federal funding on stem cell lines
that meet clear ethical guidelines, which is needed for scientists
to explore the full promise of this research.
Explain your personal connection to this legislation.
Embryonic stem cells have the potential to be used to treat and
better understand a multitude of diseases and injuries.
I strongly urge Representative ______ to vote YES H.R. 810 to
move
this important field of research forward.
Please call, write, or visit your representative and urge them to
vote YES on H.R. 810, The Stem Cell Research Enhancement Act -
expanding the federal embryonic stem cell policy and offering hope
to over 128 million Americans.
This is our best opportunity to enhance President Bush's
restrictive
policy. Now is the time to be active and apply pressure! The
opposition to this is well-organized and very vocal. It is
extremely important that the House of Representatives hear loud and
clear from the majority supporters of embryonic stem cell
research.
Once again, your efforts will be crucial to the success of this
vote. There is no time to waste. Take Action Now, and encourage
your Members of Congress to vote YES on H.R.810.
The Christopher Reeve Action Network
GO FORWARD.
Christopher Reeve imagined living in a world where politics would
never get in the way of hope!
He supported embryonic stem cell research and SCNT, not for his own
benefit, but for the millions of Americans who could live better
lives through the advancement of research.
Hi all,
My jr. hi math teacher sent me a card this Christmas in which she said she
has a bunch of old letters and diaries of her uncle who was hurt in World War
I ( one - you see correctly - 1917 ) She is interested in getting them
published maybe even as a documentary as to how w/c life was back then and
how far we've come since. Does anybody have an idea as to who she might
contact for such a venture?
(She's a real sweetie - I was her student in 1961.. WOW !! )
Thx,
Dave
went to the picture place and I think I did
everything right but my picture hasn't appeared yet. Will
try again if it doesn't appear. Karen, thank uou for
the $10--want any other reviews??? lol...Hi Debbie,
welcome!!...Beth, you have a very good-looking son! Beth, do you
happen to know A Mike and Debbie Boyer by any chance,
they own a store in Rockford, MI called Sarah's
Songbirds on Belding Road...Hi Dominique, keep having fun
and FREEDOM!!!...Thanks all for the pictures, Take
care, Betty
CMS NEWS: MEDICARE IMPROVES ACCESS TO POWER WHEELCHAIRS AND
SCOOTERSIt Sounds better....
am so glad to see everyone posting. I have been
a bad girl! Now I can get in and out of the house
at will. YEAHHHHHHHHHHHHHHHH. <br
driving, I also have trouble taking turns (especially to
the left). I have a suicide knob which helps
some.<br
although I am building endurance, it takes time. Geri,
what kind of sales are you in ? How long did it take
you to not get exhausted all the time ?<br
anybody else work ? I read a terrible statistic the other
day: that less than one half of one percent of people
whoc become disabled return to work. Of course it has
to do with the health insurance. I was lucky, since
I had Kaiser through my work, and feel good enough
to go back. Well gotta go back to work. Talk to you
all soon.<br
and me with my clicker...........
Dave
If you're having problems with the chat room in this group please
contact me and I can help you. My instant messenger name is
heathersci.
For the new members that have not seen my web site, it is for people
with spinal cord injury. It has member profiles, pictures, stories,
information, items of interest, and an in-depth forum. In the forum
you can post questions, information, read other posts, etc.. Once
you join you can go to the meet friends page and do a search by
State or country to find people in your area. We will be having a
chat room within two to three weeks. In approximately three weeks
we have already gotten 109 members. It's a great way to meet people
and post in a forum. When you sign up if you need any help please
let me know. Also after you sign up if you would like to add photos
to your profile you can do that or I can do it for you.
http://spinalresource.com/
Heather
C5 C7
San Antonio, Texas
am new here, my son was injured almost 2 yrs
ago in a car accident, he has a low injury, and walks
for short periods with braces and a walker, cant wait
to tell him about this club when he gets home from
school, his name is Adam, and mine is Debbie!<br
the chats?
Here's my #1 walking buddy............
i everyone! Posted a pic of my son. He
absolutely loves his straight leg braces. Took Geri's advise
on the baclofen, hopefully will calm the spasms so
he can use his braces more. He finally got in to see
his new doc.<br
daughters wedding? I will have to look around for a picture
of me to post.<br
able to get to this message board. Have to keep
trying.
Well... lookie here. these sick pukes ARE doing something for us.
(They practice working out so they don't get 'stuck' in a vulnerable position
- GOD forbid. - They really HATE having to get up and walk out of a
difficult situation you know!)
Dave
From "Eddie"....
(Six years of stories to contribute... I like legal intimidation of
non-accessible places. The real users don't seem to do enough<g
Hi,
did anyone else have trouble getting into you chat today.
Thanks, maybe tomorrow.
Dana (C 4-5, 30 years post)
would be glad to send my picture to anyone who
wants it--just say so. I feel I must warn you that I am
often mistaken for Liz Taylor in Cat On A Hot Tin Roof,
so be careful you don't get us mixed up! lol...
aw the new photo album and decided to be brave.
Thought it would be neat if we could see who we are
talking to. Come on, let's all post a pic. I would love
to SEE everyone.<br
the left and I am NOT the one in the wedding
gown...LOL<br
Actually - mornings after don't do my legs too bad. They're a little jumpy but
that keeps them toned and cuts down on pressure problems. It was my stomach
actually that didn't feel so hot - this getting old crap is for the birds. I
remember the day when I could..... Blah blah - you know the story. :-)
As a matter of fact.... one puff of weed usually knocks out all spasms for
about 6 to 8 hours. (Two or three puffs turns everything pretty much to jelly.)
Sure wish that stuff was legal. (Pothead drivers are much safer than drunks
anyday as well.)
Dave
In a message dated Thu, 3 Jan 2002 1:49:11 AM Eastern Standard Time,
KEJones130@... writes:
i killed my spasms 2nite. can the drugs - hail the alcohol. i know, i
know.... bad 4 me, habit forming..., kidneys... liver.... screw it.
sometimes prescription rxx just can't match a good buzz. my legs feel
sssoooooo good. :-)
dave
(i know 2 guys and 3 girls on here who will back me up)
ey, I saw the new photo thing and got brave and put one up. Let's all do it so
we can see who we are talking to. Think it is a great idea. Don't be shy. GO FOR
IT!!!!!<br
esof course I will be glad to review
movies--that will be $10 a review of course and I'll be happy
to see lots and lots of films--may even review some
twice! lol Thanks for the note, I hear the knock and
want to say Come In! but sometimes I can't. :>)
Hope to chat again soon. Sounds like the driving is
coming along and you're working on the balance problem.
You will get the kinks worked out but it will be
slowly, kink by kink. It seems it takes us foreve to
figure out how to do things the best way, but we always
come around to it. Now transfering out of the bed to
the chair is becoming a problem, Ed lifts me but of
course he won't be able to do that forever....Take
care,Betty
hi guys,
i'm still a member in this (pretenders) group mostly out of curiosity, and
partly because i m now a moderator - which means i can dump every user in the
group should the urge strike. :-) mostly i guess i just don't understand
there guys - and partly, i'm curious. could there be a pluss to playing
crippled or blind? do these ppl really sympathyse with us? do they want
sympathy? what the hell motivates them? i remember my daughter (me too)
playing with big brother's crutches - needed to see what it was, how hard,
how easy, what do ppl say???? the curiosity i understand - but these guys
.... well maybe that's their motivation...??? i'm in a chair 35 yeas now -
the curiosity factor is gone... what are these ppl doing?? pretending
blind?? wow... please help me understand these guys.....
Dave
p.s. God bless you guys in iron lungs, and dependant on on others... i feel
so un-dependant. these groups have certainly awakened my inner justice
system. a simple partial-c3-4 is nothing(me). i'm humbled by you guys. God
bless you all - i definately want to see you-all on the other side. don't
think you won't be there either!!!
Hi Kathy,
Welcome to the Group. It's very nice to meet you. I am a 51 year old Grandpa enjoying life with a SCI. Thanks for sharing the Link to the Health Listings Site with us. Stay strong and stay well.
Dave Kelmer,
Wichita Falls, TX
In a message dated 12/20/01 11:04:12 AM US Mountain Standard Time,
Karen_Q@... writes:
<< During the holidays many people's thoughts turn to their faith. There has
been a rebirth of people searching for answers in faith since the 9-11
attacks. I was wondering how disabilty has been effected your faith? Or how
your faith has been effected by disability?
There are some great aticles in the Dec issues of NewMobilty magazine on
this topic if anyone is interested.
Karen,
i'm so glad you brought up this topic. as 'we' sit around endlessly,
wondering of things that might have been ( a very bad practice to get into )
'we' ponder all sorts of things - faith being only one of them. i too get
serious every once in a while... i know - it's hard to believe... i have
written some of my ponderings down and put them where i can re-ponder and
even share so ppl can find out what i'm all about.
please view my special page at <A
HREF="http://www.users.qwest.net/~daveoc/dbocphol.html"
and feel free to share comments here or in my guestbook.
dave
will hope that you get your way...LOL I think
we should make you our resident movie critic. I
haven't been to a movie in years. We wait for the video
to come out. Chuck says he doesn't like to sit still
that long. Brat. Hey, just a note to let you know
something I found out with the pager. It will knock
whenever someone on your list comes on. You don't have to
answer the knock. It is just a way to let you know
someone is there. Kinda like AOL. When it says you have
company or whatever you have it say. So don't worry about
messaging me when you are on. If you want to talk then send
me a message. Or I will send you one and see if you
are busy. Hope to chat with you again soon. Warmer up
there now? Nice down here. But some rain coming in.
<br
Hello,
I am new to this group and thought I'll share the Health Listing of
hi-fiweb.
To get the complete health listing you may go to
http://www.hi-fiweb.com/health
Good day!
Kathy
aaaawwww banned. how sad.
gotta play nice with these creeps.
tell them what they wanna hear. :-)
dave
Hi Amelia,
Whatever is the best for you. We get together to chat about a lot of different things. Stop by just to say ''hi'' or stay and chat awhile. We'll be glad to see you either way. :)
Dave Kelmer,
Wichita Falls, TX
i Karen, I get a little off balance sometimes,
too. Isn't Chuck about a mid level T? Iam T8. I have
found that the bucket seat tends to wrap around me a
bit. I keep the seat VERY UPRIGHT (nobody else can
stand it) and shoulder belt firmly buckled. I also have
a fairly high arm rest on my right side, so it sort
of holds me up.(and I rest my elbow on it, alot) A
pillow might be good, you may even look for something
more firm. Like a solid piece of dense form rubber. If
it works you could cover it. Otherwise a pillow case
might do to cover it. It will probably feel like one
more thing in his way when getting in and out, all the
b/s invloved. I find even emptying my trash, along
with all work stuff I carry out every day, is alot to
juggle. And being in sales, I am in the car all day,
therefore PRODUCE a lot of trash. I am considering a split
bench seat in my next truck, as then I could scoot
across if necessary. Also the flip down console/armrest
would give me a good writng/work surface. There is
really not any room in my little S10.<br
wheeling to CHUCK!<br
aren, don't know if I can weelzle my way into
another movie today or not, saw three during the past
week! Went to see Stepmom yesterday--if you go take at
least three boxes of Kleenex, you will need them all!
Shakespeare In Love was good too, very romantic with a lot of
quoting from Romeo & Juliet, not that I understood it all
exactly, but it was romantic and costumy and VERY
enjoyable. We're going out today and I don't think I can
whine my way into another movie, but you never know,
have my whining machine primed and ready!! :>) Take
care, Betty
i'm thinking we've been thru some shit these pussies couldn't think of. all
i gotta do is make it sound like fun. i'll pretend a bit myself.
dave
In a message dated 12/13/01 3:23:45 PM US Mountain Standard Time, HobbitGTM
writes:
<< In a message dated 01-12-13 11:37:45 EST, you write:
<<
i hope you're being square with me here kris... you are inspiring me to do
the same thing. maybe we can give them a little 'shock' therapy.
dave
i'll include or exclude the QLIST as you guys wish.
Exactly what are you thinking of Dave? < eg
Jerry :-)
Sending mail to
ell, another driving lesson and I am still here
to tell you about it. Chuck is doing really well.
But I have a question. He is having trouble with
balancing when he turns. Can you guys give me any tips on
how to remedy that? I have thought about putting a
pillow between him and the door to give him some
support. Any help would be greatly appreciated.
<br
ours had her 50th birthday. We were invited to her
party. Going to other peoples houses is always an
adventure now. We weren't going to go but said hey we have
to try. Well, we managed to get there