Wordpress Blog

Hey Anthony,

Welcome to the group!

I'm Mark a C5/6 quad also but luckily I have use of one arm so I type with a strap and pencil.

I'm 39 now and had a diving accident 5 years ago but it took me 2 1/2 years to put my life back together, since then I've found employment and started raising my family again.

We try to get together on Saturdays in the chat room around 1-2:00 cst so hopefully we'll see you there.

Peace,

Mark

es Geri, neurogenic bladders HAVE to be cathed
and that is where I am at. I posted my dilema on the
new mobility board as well. There was a woman there
who used a Mountain Dew bottle. A guy gave me the
idea of adding an extension to my catheter. That way,
there would be enough tube to tuck underneath me into
the commode and bypass the need for a urinal
altogether. If it was about 18 inches long, it might reach a
commode from a wheelchair. I might start carrying a Dew
bottle just in case.<br
already using "disposable" catheters. But they still cost
money and the doctors (HMO obviously) told me they can
last a month before the plastic starts to break down.
They won't provide me with the six a day (yes I drink
a lot) i would need. Besides, there would be dirty
catheters in the trash and I would receive complaints about
that. I still end up washing things in the
sink.<br
down the drain with hot soapy water. I'm cleaner than
any guy who stands at the commode...

Dear Vicky. I am a C5/6 quadriplegic and have been since 1984. I use the
computer quite a bit, and use a number of chat rooms.
I use a program, called, Dragon NaturallySpeaking preferred edition 5 which
is capable of controlling my whole computer. This program is readily
available throughout the USA. To allow me to have a number of programs
opened at the same time, I have had the memory on my computer increased 158

Hi List!
I friend of mine has a brother who was in a car accident in the
Spring. He is paralized but has some limited use of one hand. He
can use a toggle kind of switch to operate his wheelchair. He is
trying to cope with life. His sister says he lays around, watches TV
and that is about the extent of his existance. He would like to be
able to learn to use the computer. Be able to get on line and "chat"
with others and see the world through a computer. What I'd like to
know is if anyone could tell me what kind of hardware and/or software
he would need and where to find it. Like I said, he can use a toggle
switch. Any help would be greatly appreciated.
Thanks in advance.
Vicky Dudderar
Lexington, KY

f you promise not to tell anyone, I will tell
you what I use instead of a urinal when I am out. An
empty Gatorade Bottle. I feel it is sheer genius on my
part. 1)has a secure lid in case I cannot empty
immediately, and have to put back in my bag (sometimes at
friend's I cannot fit into the bathroom) 2) IF caught
washing it out in a sink, it doesn't draw any attention
3) If observed pulling my car over to the side of
the road and dumping it in the gravel or dirt, OH
WELL! It is JUST GATORADE 4)The color is perfect! If
you need to secure it while cathing, you can wrap a
strap around it AND your leg (I use a velcro strap, to
free up my hands)<br
color, Mountain Dew Bottles! Just let your imagination
run wild. Citra, Squirt (pun intended)<br
question...aren't condom catheters for those with reflexogenic
bladders? (those that spasm when full, and empty
themselves) I thought a neurogenic bladder HAD to be cathed.
Otherwise a neurogenic female could even wear a Depends,
and not cath (yuck) does this make sense to anyone? I
didn't think a person with neurogenic bladder had that
option. Thanks Geri

he also sent me this. Just thought I would pass
it on. <br
happenstance<br
had in his hand a piece of wood.<br
story goes.)<br
need of wood<br
back<br
fire<br
second man searched the gathering<br
from his church<br
to give<br
<br
gave his coat a hitch.<br
I<br
The black man's face was full of revenge<br
the fire was fading from sight.<br
log to punish them all -<br
the white.<br
group<br
to those who gave to him<br
played the game.<br
in death-stilled hands<br
human sin.<br
without,<br

fter much trial and error, My husband uses
condom catheters with a leg bag. This allows him to just
drain it into a urinal without having to deal with all
the equipment. Then he just washes his hands and he
is done. You may want to look into this as an
alternative. One of the other benefits is not having to
monitor how much you drink all day. You might want to
think about it. Many of the medical supply companys
will send you samples to try. He does use the straps
instead of the sock because it is easier to put on and
take off. Hope this helps.<br

friend of mine, who is also a very new injury
sent me this. I thought the rest of you would get a
laugh from it.<br
floor"<br
parlor, a Woman<br
racial prejudice. The story deserves a<br
audience:<br
related, she won a<br
slot machine.<br
for dinner with her husband in
the<br
her room. <br
to eat," she told her husband and she
carried<br
elevator.<br
noticed two men already<br
black.<br
figure. The woman<br
These two are going to rob me. Her next<br
was: Don't be a bigot, they look like perfectly
nice<br
stereotypes are<br
She stood and stared at the
two<br
didn't read her<br
her hesitation about joining them on
the<br
burned. She couldn't just stand there, so with a
mighty<br
forward and followed<br
on the elevator. Avoiding eye contact,
she<br
they closed. A<br
second, and then another. The elevator<br
move. Panic consumed her. "My God", she thought, "I'm
trapped<br
Perspiration poured from<br
pore.<br
told her: "Do what<br
you".<br
her arms and<br
carpet.<br
money and spare me",
she<br
one of
the men say politely, "Ma'am, if you'll just tell
us<br
who said it had<br
the words out. He was trying mightily to hold<br
a<br
looked up at the two men. They reached down
to<br
feet. "When I told my man here to hit<br
floor," one of the men, the average sized one, told her,
"I meant<br
button for our floor. I didn't mean<br
hit the floor, ma'am". He spoke genially. He bit his
lip.<br
laughing.<br
myself". She was<br
wanted to blurt out an apology, but
words<br
respectable
gentlemen for<br
you?" She didn't know.<br
gathered up the strewn quarters and refilled her
bucket.<br
on walking her to<br
little unsteady on her feet, and they were<br
she might not make it down the corridor. At her door
they bid<br
she slipped into her room she could hear them
laughing while they<br
The woman brushed herself off. She pulled
herself<br

Pati,
I am curious as to what you are using or planning on using as a wheelchair
cushion. There is a fine dynamic automatic pressure relief cushion that will
help to prevent pressure sores that maybe you should consider. This way you
can sit longer and have more mobility and freedom. Look into
www.aquilacorp.com to see this cushion.

Hi Anthony,

Welcome to the Group. I was 22 when I had my SCI accident while white-water rafting on the Upper Salt River in AZ. I hope you find the people here as friendly as easy to talk with as I do. I'm a 'little' older now but am still young at heart and mind! This is a fairly new Group so if you have any ideas, thoughts, questions about ways to help it be a better Group, I'm sure we all would love to hear them. Stay strong!

Dave Kelmer,
Wichita Falls, TX

have been wondering how I would handle the same
situation when I return to work. One option that has been
suggested to me is to use disposable catheters.
<br
than I do. To me it seems like it would make things
easier.<br
close minded people can be.

have a work situation. I use a catheter in the
restroom at work. After draining into a urinal, I dump the
contents into the commode and wash out the container and
catheter in the sink with hot soapy water. I clean
everything i need to touch beforehand, and everything I did
touch afterwards.<br
always cleaner than when I found it. This is what the
hospital taught me to do.<br
pack the urinal in my kit bag after washing and left
it in the restroom. I have done this before and my
coworkers and immediate boss are understanding and okay
with it. However one of the owners found it and told
me not to clean up in the restroom anymore. He wants
me to take it outside and flush it with the hose. I
tried to explain but he said he didn't want to hear it
and walked away. I think he is under the impression
that I dump the full urinal in the sink.<br
very angry but held it in to keep my job. This in turn
made me very depressed and so I left. I don't want to
have to deal with people like this the rest of my
life.<br
shoulder. I just wanted to vent a little with someone who
would understand.<br

Hello Anthony,
I know where you are, I recently was in bed most of the summer and fall , it is no fun. I will be thinking of you. I use Dragon and it often does not write what you say. What are you using? I'm not familiar with. Welcome to the group. I'm glad you found us.
Dana (C 4-5, 30 years post, 51)

Quad chat group: sorry I missed you, my aid comes about that time to wash my hair and do lunch, so I often have missed. I really do miss chatting with all of you, Mark, Dave and anyone else. I wanted you all to know.
Dana

)
In a message dated 2/1/2005 6:50:35 P.M. Central Standard Time, lunasicc42@... writes:

[INLINE] [INLINE]

I am a 22 year old I got paralyzed in a car accident a couple years back I am writing this to you on a special computer that I click with my head. I am c-5/6 and I am stuck in bed with horrible pressure sores that I got from the hospital

Anthony Waters

22 yo, c5,c6

Tampa, FL

I am a 22 year old I got paralyzed in a car accident a couple years back I am writing this to you on a special computer that I click with my head. I am c-5/6 and I am stuck in bed with horrible pressure sores that I got from the hospital

Anthony Waters

22 yo, c5,c6

Tampa, FL

Hi Stacy,

Cats do know who feeds them, don't they? It does sound like Marty is a good cat! I have one that was feral that we caught and took in to be fixed and get her shots. The Vet told us to keep her in the house a week or until the stitches weren't red. She hasn't gone back out since then. She knew a good think when she saw it!

Dave Kelmer,
Wichita Falls, TX

i Nancy, I drop so many things now, I can't even
believe it. Have a few ideas. First, when in the house,
cooking, or transporting food, I have a cutting board I
lay on my lap. I can use it for food preparation,
even put the electric mixer on it. I also can carry
four glasses of soda to my guests in the family room
(they are always amazed, cuz' they think they should be
DOING FOR ME!) When I carry in groceries, I have a wire
tray, looks like a spare shelf from a refrigerator,
mine actually came with the clothes dryer, as a flat
drying surface which sets in the dryer. I am able to
pile quite a bit of stuff on it, saving trips. I often
keep my knees strapped together, I tell people it is
more ladylike, but actually it slightly minimizes the
tingling and burning that I have constantly in my lower
legs and feet. I find that when my knees are together
is is easy to carry almost anything on my lap.
Though I do unstrap my legs if I want to wedge a coke
between my legs. I also have a sling under my w/c. I
carry everything in there. Purse, cath bag, keys. While
at home I stick the portable phone, and any thing I
am using in the house. Furniture polish, garden
pruners, bottle of water, whatever. It is easy for me to
reach. They look like a little hammock sell for about
$40. at med supply or w/c shop. As far as the feet,
and shoes: It is important to wear shoes as much as
possible. I met a guy this summer whose feet had not only
dropped (shortening of achilles tendon, and back of calf,
resulting in a foot that will not sit flat) but his toes
and both feet curved downward. Really looked awful,
and the only shoes he could wear looked like
slippers, which made him look more like a "patient". He
even had to use a bungee cord to even keep his feet on
the footrest. I try to wear high top tennis shoes,
which keep my foot in proper position, and I find when
my knees are strapped together,I can put my feet to
the back on the foot rest (against the strap, which I
loosened, so it goes back further) then if I put weight on
my knees it gives the back of my legs a good
stretch. This is important especially if you ever plan on
being ready for "the cure". If your heels are 2 inches
off the ground when you stand up, it will be really
tough to walk.... Take care, geri

Hi Stacy,

I thought your pics were great! Marty looks like he really loves you.

Dave Kelmer,
Wichita Falls, TX

ust wanted to say thanks for the Thanksgiving
wish Jam Jam. I hope yours was enjoyable. I am hopeing
someone has some good ideas as to keeping things on my
lap. I cannot put anything on my lap and start rolling
without it ending up on the floor. I have dumped the back
of my seat and raised the foot pedal up which
wouln't go hardly any higher at all. If I don't have on
shoes my feet are always handing off the front if not
around the bars which I try so hard to pay attention to.
Oh well any ideas let me know.

Nice pics Dave. I added some myself.

Stacy

ust found out about wheelin on and would like to
say hello. It's kind of nice to find a small group. I
don't always believe in quantity, but quality is
certainly important! Hope everyone had a good holiday. Hope
to hear from you.

hope everyone has a wonderful Thanksgiving with their families and loved ones.
Give thanks for what you have, and love yourself for what you
don't.<br

Hello and welcome to the group!
Franklin
http://DisabilityEquipment

his one is more recient and I hope, more
inspirational<br
fun, <br
<br
<br
<br
floor, <br
could soar. <br
saw the curve ahead, <br
I thought that I was dead. <br
alone, with darkness all around, <br
in my ears, enveloped every sound. <br
surrounding me, piercing my skin, <br
something strange, this pain from deep within. <br
tried to breathe but had to strain for each and every
breath, <br
cheated death. <br
body bleeding bad, <br
was the only chance I had. <br
shouting, the atmosphere was tense, <br
these things to aid in my defense. <br
chopper ride, and finally ICU, <br
make it, but your family's here for you." <br
asked to hold my baby girl, she was just 6 months old,
<br
run cold. <br
had to see her grow, <br
for her, for ten years in a row. <br
remember me, the days I used to walk, <br
years old, and still learning to talk. <br
look back on that night each day, and think of it a
lot, <br
really glad I fought. <br
alive, it's another to really live, <br
me so much joy, and I've so much left to give...
<br

I made an album with some photos of my cat and me if anyone is
interested. Houston, your kids are cuties.
Stacy

his is a more recient one than the last one, and
I hope more insparational.<br
like any other, filled with friends and fun, <br
were going to party until we saw the sun. <br
climbed into the Chevy, it's V8 strong and fast, <br
day for me was Friday, my weekend here at last.
<br
floor, <br
could soar. <br
saw the curve ahead, <br
I thought that I was dead. <br
alone, with darkness all around, <br
in my ears, enveloped every sound. <br
surrounding me, piercing my skin, <br
something strange, this pain from deep within. <br
tried to breathe but had to strain for each and every
breath, <br
cheated death. <br
gasoline, my body bleeding bad, <br
conscious was the only chance I had. <br
shouting, the atmosphere was tense, <br
these things to aid in my defense. <br
ambulance, a chopper ride, and finally ICU, <br
"You may not make it, but your family's here for you."
<br
old, <br
blood run cold. <br
fight, I had to see her grow, <br
there for her, for ten years in a row. <br
not remember me, the days I used to walk, <br
only 2 years old, and still learning to talk.
<br
a

I just added a couple of new pics in the Kelmer Folder in Photos! :)
Dave Kelmer,
Wichita Falls, TX

nyone is welcome to send my poem to anywhere
they feel it would be helpful or appropriate. I have a
few more too, some are more depressed, others more
inspirationl. I haven't shared these with many people because
most of my friends are able-bodied and I don't think
they can quite relate. Jam Jam, only 4 months post?
WOW, let me know if you need to talk to someone who's
been there. It's a hard road ahead, but try to see it
as a challenge, you'll get farther faster that way.
:)

Hi QP,

Hey people there's some good pics in the photo section.
I seen Houstons kids some good looking kids Houston!

For live coverage on the 10th Anniversary Celebration
of the ADA on July 25 and 26. Go to www.ican.com
ican.com will be offering live coverage of
the events in Arlington and Washington D.C. on July 25
and 26.
Carol Burgess

don't think I could say it any better than "Wheel35' already has. I am glad
you decided to join.

go for support and talk about issues specific to sci...butis anyone still
posting here?
You bet! What did you want to know?

Hey Dave,
It seems others are having problems also so I'm lost why this is
happening but sometimes aol has problems with it.
I think if you use the Explorer browser instead it might work better.
Mark

ou asked if anyone else felt the same. You
really struck a cord. I am only four and a half months
post. Your poem expressed some feelings I have been
unable to put into words. I am glad you joined
us.<br
your poem to some friends. I think it would effect
them as much as it has me.

Hi QP,

I was trying to get into DOA Chat-room but it just kept bringing up the Login Screen. It did that a week ago Sat. too. Anyone else having any trouble getting into DOA Chat? I'll try to be there around 1-2 CST next Saturday.

Dave Kelmer,
Wichita Falls, TX

Hello,
You have delivered your e-mail to Aquila Corp. We manufacture the airpulse
automatic wheelchair cushion. You probably want to go to an sci news group.
If you want can tell you how to get to them. In the mean time visit our web
site at www.aquilacorp.com.
Let me know
Steve

orry about taking so long to reply, David. I am
away from home doing outpatient rehab. It's not easy
for me to get to a computer. I hope everyone can
forgivee me.<br
inviting personally we will have a decent group of people
here. I know it is slow going, but if it works it will
be worth it. If you get any ideas go for it. <br
have already received e-mails from devotees wanting to
join. Of course my answer was no. If any show up please
contact me. If we have to we can always make the club
unlisted.<br
world.

Hi I am the soon to be wife of a man with a sci. I was looking for aplace to go
for support and talk about issues specific to sci...butis anyone still posting
here?

Dear Friend:
Five years ago my son Roman Reed was injured in a football game. His
neck was broken, and he became paralyzed from the shoulders down. The
doctors gave us no hope, saying he would never walk again, or close his
hands, or father a child.
Were they right? Can there be no cure: for the spinal cord injury
paralysis which struck down my son and 400,000 other Americans, more
than one out of every thousand citizens? Listen to
internationally-renowned neuroscientist Dr. Wise Young: "It is no
longer a question of if , (there can be a cure) but when" The "when"
depends on research funds.
Help us pass Californias Assembly Bill 750: the Roman Reed Spinal Cord
Injury Research Act. We are asking $25 million a year for five years,
spent on research for cure.
And something wonderful. For as researchers battle spinal cord injury
(SCI) paralysis, the knowledge gained will benefit more than five
million Americans, and their families. I am sure you know someone right
now who is struggling with the terrible memory loss of Ahlzheimers, the
crippling slow agony of multiple sclerosis, or the sudden horror of
strokeSCI research helps us fight these terrible conditions. Again, Dr.
Young:
"Spinal cord injury research aims at several targets: neuroprotection,
remyelination, regeneration, and cell replacement: all these targets are
highly relevant to Ahlzheimers, ALS, Parkinsons disease, and nearly 400
other neurological diseases"
If you agree it is time we go after these problems in a systemmatic way,
we ask that you write one letter of support, and copy it to the twelve
Senators and Assemblymembers (addresses enclosed) who will be voting on
our bill.
Years from now, we will look back, and be glad we did this work. As
Roman puts it, "Take a stand with us, supporting research funding. Take
a standso everybody can."
All best,
Don C. Reed
Chairperson, CALIFORNIANS FOR CURE: and Roman Reeds dad.
P.S. If you would like a flier with more information, e-mail me at
divrdon@...
SUGGESTIONS FOR YOUR LETTER
Short personal one page letters carry the most impact. Please give
your personal reason for supporting research for curesay, I have been
in a wheelchair for twelve years, or my best friends son has multiple
sclerosis, or I know someonebe brief, but be personal.
Important: include your PHONE NUMBER (including area code) in your
address block inside the letter. They almost never call you up, but this
verifies your letter is real.
SAMPLE LETTER (we ask that you send a copy to the twelve folks on other
side.)
Dear Assemblymember or Senator

Hi QP,

I couldn't get 'Chat' to work yesterday, and I just missed you there today, too. I hope we all can get together Saturday around 1 CST.

With Love,

CtrlAltDel aka Dave
C4/5 Complete - 28 Years Post
Texas, USA

lad to have you the group, yes support is very
important! Your husband is vrey lucky to have a spouse who
accepted his injuries, most spouses can't handle it and
after a short period of tring they hit the road. So you
let him know he better hang on to ya!......lol, again
glad to have you in our small yet growing group!

I'm looking for some input on how to deal with members of the opposite sex.I am
a T-10 spinal cord injury 4yrs post injuryI had too many things wrong to list
which is what has taken me so long to get right.

i<br
handicapped, but my husband is. We have been married for
sixteen years, nine of which he has been an incomplete
quad in a wheelchair. In that nine years we have
learned a great deal about living with disability. I hope
you let me stay. I believe I have a lot to offer a
club like yours. I have come to believe that one of
the greatest things we can offer each other is
support. I will support my fellow club members as best as
I can, and I hope to get some insights from the
rest of you with regards to my husband. Hope to hear
from you soon.<br

ust wanted to thank you for reading my poem.
I've been reading a lot about this new stem cell
technology, it looks like there could be major improvements
in our lives if they are able to perfect this
technique. NEVER loose hope. We are in our chairs today, and
probably tommorrow, but beyond that, who knows?

Sorry I missed you . Hope everyone is doing well.
Dana

October 1, 1999
Greetings fellow chair dwellers!
I hope this finds you all well. As some of you know, I am involved with a
company that will be an online community for people with disabilities, their
caregivers and the medical community. We plan on launching a prototype in the
next few weeks, and I need your help.
My task at the moment is to put together the Education Channel. As part of
that channel, I will offer information about disability programs in place at
universities. Also, I am going to offer testimonials from students with
disabilities who have attended colleges and universities. The story can be
about a good experience or a bad one. Most, if not all, of us went to
college, and we all have stories to tell!
I would greatly appreciate a brief story or testimonial from each of you. I
will probably use a picture along with the story, so if you could send a
photo too, that would be great.
I will let you all know when we launch so you can see what we are all about.
Hopefully, we will offer something for each of you. We will be relying
heavily on user input, so I look forward to any comments and suggestions you
want to offer.
Thanks in advance,
Angela Cook
858-824-3560 ext. 25
angelac@...
5940 Pacific Mesa Court #204 ( San Diego, CA 92121 ((858) 824-3560
=+==+==+==+==+==+==+==+==+==+==+==+==+==+==+==+==+==+==+==+==+==+==+==+==
When I sent her another e-mail recently, it had trouble being sent. If that
happens use : angelaacook@....
- Elysse

loyd, hi my name is Nancy and I just read your
poem &lt;&lt;wow&gt;&gt; it was incredible. And yes
some of it was my thoughts exactly. Your words hit
home. My struggles at times I feel are mine alone, but
in truth they are ours and everyone else on wheels.
Thanks again for the poem...Nanc'

as anyone had to deal with Medicare for
re-embersment on a power wheel chair, and if so do you have any
tips?....I've been going back and fourth with them almost 2
years now, and they've been dragging thier feet all the
way...the typical we see no medical reason 4 a power chair!
Like duh.,being a quadrepligec doesn't figure
in.....lol..just so much red tape thanx

The 2000 Ms. Wheelchair New York Pageant
will be held on Sunday, January 23, 2000.
Please pass this on to anyone you know who might be interested in attending
or competing.
The MWNY Program is based on achievements and accomplishments, as well as
attitude, not looks. For more information e-mail me or Betty at
slavicek@...
Thanks!
Elysse
MWNY Program Founder & Webpage Manager
Former State Coordinator
MWNY '97

Lets meet in the chatroom today around 1:30 cst.
See you there.
Mark

Hello,
Please do support a worthy cause by ordering a great gift!
Social Issue Film, Ontario non-profit, needs your support for its production
WHY?!,
about the lives of families with developmentally challenged children. We want to
make
society a more inclusive place for such people. Only then will parents of
developmentally
disabled children have the necessary strength to carry on the battle that some
of us lost.
Your support will enable us to make a difference, working in the powerful medium
of
film, which touches human emotion. Then we'll close the cycle by extending
financial
support with funds from the sale of the film to developmentally disabled
individuals.
Our fund raiser is a great gift. Statuette of mother and child, bodies forming a
heart
shape, symbolizing the universal, ever-lasting mother's love for any and all
children of
hers. It's hand painted by individuals with a developmental disability at the
Employment
Training Services of the Toronto Association for Community Living. Comes with
special
"Thank You" tag and sells at $10. See a photo and get ordering info on our web
site at
http://www.sif.ca/fundraising.html
Thank you for your time. We'll appreciate your support.
Sincerely:
Silvia Kovatchev
artistic director
and a mother who lost a child to developmental disability
P.S. Post this message to as many as you can reach.

Hi Mark,

Sorry you haven't been feeling well. It's good to hear you're better. I'll be looking forward to a Chat tomorrow. See you there.

Dave Kelmer,
Wichita Falls, TX

ny ideas for increasing traffic in here without
getting the riff raff you're trying to protect us from?
i've invited one friend who might like it (no word
yet) otherwise we'd have to recruit carefully (guess
that's what i did) and geri did for me. maybe i answered
my own question?<br

know its not quite as satisfying, but i've got
a cyberhug for ya! wish i lived nearby for the real
thing... ; )<br
friend when you needed to have that hug. its important
for people, no matter what their circumstance, to
have friends available. your friend may have needed it
as well and not even was aware of it. take care one
and all...<br

Just wanted to say hi. If you would like to get to know more about me check out
my homepage.
http://members.tripod.com/~Holly_Walker/Hollybrat/Welcome.html
Don't forget to sign my guestbook!!
Take care,Holly

Thanks David,
I've been sick for a week now and just getting up every once in a while but I'm feeling better now cand hope to catch everyone in chat on Saturday say around 1-2 cst!

Mark

i Floyd, Wow! Really well said. Sometimes I feel
like I must have a death wish or something. I often
feel it would be an easy escape. (of course one would
leave all the pain and suffering to loved ones, which
is extremely self centered) Not that I would do
anything to speed it up, but I certainly do not dread
it..... I find myself telling my children that if
something should happen, IT IS OKAY WITH ME, and it should
be OK with them, too. I have gone through ALOT, been
a real good sport and everything, but sometimes I
feel enough is enough! This morning on my way to work,
I thought, this life is F'd! I had to go visit a
dear friend to get a hug, so I could go on with my
day, then I did. I am better now, another day
tomorrow! Thanks for sharing. Geri

Well, here we are starting a new year DOA! I hope everyone has a
year of good health, peacefulness, and happiness!
Dave Kelmer,
Wichita Falls, TX

Hi Dana,

It was a day of peace and joy! I hope yours, and everyone else's, was as nice!

Dave Kelmer,
Wichita Falls, TX

f God and Pain.<br
desire to walk,<br
poor guy.." they say to friends,<br
until the end."<br
right?<br
look down and these legs I see,<br
"Is this really me?"<br
out,<br
wrong,<br
complete."<br
clouded with dispair.<br
dream,<br
bad I sometimes cry,<br
die?<br
get back on my feet.<br
me,<br
touch me,<br
cannot hear me,<br
day soon He'll call me,<br
free...<br
injured,<br
the
club...<br
href=http://members.tripod.com/~FloydPinkerton/
target=new

Pati;
Great sites. Thanks.
In case I'm still out of it when you go in hosp., I'll be thinking of
you and praying for you.
My surgery is Monday. I'm anxious to get it over with.
Love,
Margie

href="http://www.goes.com/billr/html/_spinal_cord_injury__pen_pal_f.html"

--
<HR
<!DOCTYPE HTML PUBLIC "-//W3C//DTD W3 HTML//EN"
<HTML
<HEAD
<META content=text/html;charset=iso-8859-1 http-equiv=Content-Type
<META content='"MSHTML 4.72.2106.6"' name=GENERATOR
</HEAD
<BODY bgColor=#ffffff
<DIV
Jelly
Belly's. Free samples and much more can be found at this
page...Pati</FONT
href="http://www.jellybelly.com/home.html"
==
Reply to Pati at : pati123@...
ICQ # 17906644
AOL IM: pati58

ancy you've surly have the right idea......life
may be different but lifes still life..and lots to do
out there....i'll be coming to my 13th year of a
chaned life and still doing great,.....glad to hear from
you...wheel35

---:
<HR
<!DOCTYPE HTML PUBLIC "-//W3C//DTD W3 HTML//EN"
<HTML
<HEAD
<META content=text/html;charset=iso-8859-1 http-equiv=Content-Type
<META content='"MSHTML 4.72.2106.6"' name=GENERATOR
</HEAD
<BODY bgColor=#ffffff
<DIV
serious possible
post sci complication which i suffer from also. Please
read..Pati</FONT
href="http://www.ozemail.com.au/~aqa/html/adysreflexia.html"
Dysreflexia.url
==
Reply to Pati at : pati123@...
ICQ # 17906644
AOL IM: pati58

ch lad, i got more than wind up me kilt but i canna tell you whose hand it is ;
)<br

hanks Geri for letting me know about this new
web site. I hope I can get answers and maybe answer
some. When i had my accident, it happened last year
nov. 25. At rehab they told me my first year was going
to be a bite. Well in some ways I have to agree. But
my year is soon to be up and I am ready to move on
and get my sh-t together. I hope to find new friends
and new and better challenges this 2nd year.

--
<HR
<!DOCTYPE HTML PUBLIC "-//W3C//DTD W3 HTML//EN"
<HTML
<HEAD
<META content=text/html;charset=iso-8859-1 http-equiv=Content-Type
<META content='"MSHTML 4.72.2106.6"' name=GENERATOR
</HEAD
<BODY bgColor=#ffffff
<DIV
like our
selves. Hope you enjoy...Pati</FONT
href="http://www.goes.com/billr/html/_spinal_cord_injury__pen_pal_f.html"
Pen pal finder.url
==
Reply to Pati at : pati123@...
ICQ # 17906644
AOL IM: pati58

Good page to bookmark
--
a possible complication of a spinal cord injury. i'll be having
surgery feb. 9th to have a shunt put in...pati
<HR
<!DOCTYPE HTML PUBLIC "-//W3C//DTD W3 HTML//EN"
<HTML
<HEAD
<META content=text/html;charset=iso-8859-1 http-equiv=Content-Type
<META content='"MSHTML 4.72.2106.6"' name=GENERATOR
</HEAD
<BODY bgColor=#ffffff
<DIV
syrinx
(ceer-nix) which is a possible complication of a post traumatic spinal
cord
injury. i'll be having surgery feb. 9th to have a shunt put in.
</FONT
Syringomyelia Alliance Project.url
==
Reply to Pati at : pati123@...
ICQ # 17906644
AOL IM: pati58

have received an e-mail stating that there was
smut at this sight. I can only guess that someone
logged onto the wrong sight. I don't feel responsible
for that, but none the less I do offer my apoligies.

Pati;
This is Margie and we have been talking.
love ya
Me 8:)

ye, Laddie, ye've made yer welcome! Now let's
see how a "big Scot" get's the words around... or, is
it as airy as your bagpipe!!! Mwahahaha! :-) Aye,
'Tis DuH!, Laddie! I dynna know ye' as yet, but I hope
there's more than the wind in yer kilt! :-)

owdy,<br
all her fault! they have given me a new id based on

Hi Pati;
What a jerk of a husband!! You're better off without him. It sounds
like you have great kids.
I will be praying for you when you are operated on. Can one of the
kids e-mail me to keep me up to date on your condition?
You've been through so much. How do you handle the depression?
I suffer from severe clinical depression, on soc sec for it, but meds
and therapy keep me stable.
Write when you feel up to it.
And don't forget, when you need to vent, bitch, cry, or just talk, I'm
here.
God Bless,
Margie

hope so too. But only through the help of others will it last. Tell your
freinds about the club. Use the club yourself. Post your thoughts and ideas.

hi margie, it was nice to hear from you.now i'll tell you about me.
i'm 40 yrs old, mom to three sons, ages 19,17,16. i am recently
divorced after 20 yrs of marraige. my husband dumped me while i was
still in the rehab after my accident. he said he didnt want to spend
the rest of his life with someone "disabled" . i gave him a divorce
under my conditions. yes, it would have been cheaper for him to keep
me. enough about him. i have 3 great very supportive kids who have
stuck by me thru all of this. i am now totally dependant on others for
everything. i was an active person prior to my injury and now my life
is basically boring b/c i cant get around. the hardest thing for me to
deal with is be dependant on others for the things i once took for
granite. my weeks are filled with physical and occupational therapy,
lots of drs appts and nurses coming into my home. i'm so tired of it
all. as i told you in my previous letter i'm getting ready to undergo
surgery in feb. i'm really scared b/c this surgery carries huge risk
but is necessary. i need to go for now b/c i cant hold my head up but
for a few min. at a time. do hope to hear back from you and hope the
other members will soon write to share their stories...pati
==
Reply to Pati at : pati123@...
ICQ # 17906644
AOL IM: pati58

t seems to be clubs for sci, seem to fad quickly lets hope this one stays!

hope everyone will come to know this site. To
use this message board to share thoughts and ideas.
You are all welcome as are your thoughts and
opinions. Please feel free to share them with the rest of
us.<br
often.

Hi Pati;
My name is Margie and since I just received your e-mail I guess I
signed up for your list (brain fog), but I'm glad I did.
You sound like you've been through hell and still more to go. My
prayers are with you. I'm going to look up all the medical terminology
and procedure later. You haven't bummed me out, you brought out the
compassionate side of me, and the thankful side of me. Pulled me out
of my pity party 8:)
A little about myself: I'm 46 yrs old and divorced. I live in Central
Florida. In 1994, I herniated a disc (c4/5) at work. My first surgery,
a disectomy, c4/5, was in 1994. My second operation, a disectomy and
laminectomy, c4/5 and c5/d, was in 1995. On Feb 1st, I will have my
third operation. This time they're going in from the front and doing a
two level bone fusion, c5/6 and c6/7. I'm nervous so I know that you
must be terrified. Do you have a good support system? Family, friends?
I'm pretty much alone, but I don't think that I'll have any problems.
Feel free to e-mail through the list or on my private e-mail address.
You can scream, cry, vent, anything. It's good for you.
By the way, who else is on this list?
Your friend,
Margie

hi friends, this is Pati, the owner of this list. I apologise for not
being in touch but I have not been well and unable to sit at the
computer. I suffered a spinal cord injury 2 yrs ago as the result of
an auto accident./ I broke c2-c3, also suffered a brain injury then a
stroke 3 days post injury. As your all aware there are many
complication that can arrise post SCI and I am suffering from many at
this time. The most serious being a post traumatic syrinx (ceer-nix)
which is a fluid filled cavity that develops in the spinal cord at the
sight of injury. In my case it has grown beyond my injury level and my
conditioned as worsened to the point where Ineed surgery. I'm going
intothe hospital Feb. 9th for surgery. The name of the procedure is
called "syringo subacharnoid shunt" I will be in the hospital for
several weeks recoovering. This surgery carries the risk of being
permantly paralized but without surgery the risk is the same. I will
have to go back on a vent b/c the area in which their working on
controls breathing. I will be in a drug induced coma for a week or
more. I'm very scared as you can imagine but feel this is a good
opportunity for me to tell you about this complication. Please let me
know your thoughts on this b/c I certainly dont want to bum anyone
out. I hope to hear from you all soon. Hey, our list has grown to 5
members..Take care...Pati
==
Reply to Pati at : pati123@...
ICQ # 17906644
AOL IM: pati58

Hi Dana,

Thank you. May you have a Merry Christmas and a Healthy Happy New Year!

Dave Kelmer,
Wichita Falls, TX

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In partnership with the drug companies, 22,119,664 prescriptions were filled in the latest year, helping America's families. You've probably seen the television commercials with Montel Williams talking about this. You can now call 1-888-477-2669 to get help to receive free or low cost prescription drugs. There are over 2,500 different drugs available.
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Wendy Sell - You requested email updates about offers on 2007-11-03 from IP address 24.152.254.203.
I have changed my mind and no longer wish to receive these updates.
Postal Address: Global Business Center, 3rd Avenue cor. 28th Street, Global City, MN 1634 Ph.1-800-795-2027.

Is this an unwanted email? Report abuse. Your complaint will be investigated.

Hi, I am Edna. I injured myself in a car accident in 2004. Injured c5-c7, and t4-t7. My left arm has always been week since the surgery because they operated on the t4-t7 by cutting through the left back side of the shoulder down to the rip cage. Anyway, my mean question today is; Did anyone have this similer surgery type and suffered the same problem? Due to the weekness in the left arm I could not manage my manual wheelchair, and I also begin to develope scolioses curving leftsided and left raised shoulder. What I have noticed is that my trunk balance has gotten worst and I am constently in pain. I am now in a powerchair, I balance my trunk movement by resting one hand at a time. Luckily I was right handed. Feel free to contact me as well at Girlafrique63@...............

My name is Shaun Burns, Ph.D. and I am working with James Mahalik, Ph.D., Sigmund Hough, Ph.D., ABPP/rp, and Sunil Sabharwal, M.D. researching issues that affect the health and adjustment of men living with spinal cord injuries. I am writing the listserv to ask for men living with spinal cord injuries to participate in an online research study. I would like to learn something about the factors influencing the adjustment and health of men living with spinal cord injuries.

I am asking all men on this listserv living with a spinal cord injury to participate in this study.

In the study, you will not be asked to give any identifying information; your participation is entirely anonymous. You will not be contacted in any way following your participation in the survey. You will not be asked to buy anything or to sign up for any membership. You are only being asked to complete the on-line survey and nothing else.

If you decide to take part, you will be asked to complete some questions about your adjustment, support available to you, your attitudes about men and masculinity, your physical well-being, and your sexual activity/interest. The survey takes approximately 20-25 minutes to complete. If you agree to participate, I ask that you complete all questionnaire materials, though you may quit and end your participation at any time. The survey can be completed online at: https://www.psychdata.com/s.asp?SID=123822

There will be no cost to you for participating in this study. Although there is no direct benefit to you for participating, I hope that the knowledge you provide during this project may help improve the treatment and education of men living with spinal cord injuries in the future. If you have any questions please feel free to contact me by e-mail at shaun.burns@... if you have any questions about the study.

In closing, thank you for your willingness to consider participating in this survey. I believe that answering these types of questions can give men living with spinal cord injuries a voice in issues affecting their quality of life. Please feel free to share the web-site address of the survey with other men who you think would be willing to help us better understand the health and adjustment of men living with spinal cord injuries.

Shaun Burns, Ph.D.

Post-Doctoral Fellow

VA Boston Healthcare System

Harvard Medical School/Boston University School of Medicine

1400 VFW Parkway

West Roxbury, MA 02132

e-mail: shaun.burns@...

HI

DEAR, I WANT TO ASK A QUIESTION THAT I M FROM PAKISTAN AND AM SUFFRING FROM C7 INJURY, CAN I TAKE ANY KIND OF HELP FROM THESE COMPNIES OR HOSPITALS WHILE I M VERY POOR.

DR INAYAT SAJID

PAKISTAN

0300-756-1987 IS MY CELL
--- On Fri, 6/27/08, Wendy Sell <wps1@...

From: Wendy Sell <wps1@...
Subject: [Spinalcordinjury] 22,119,664 prescriptions filled. Call toll-free number to get yours.

do you need help in finding intimacy and love??
Do you have a physical disability and differences and
think you might never find anyone for a intimate
relationship..If your a man with a disability and
have no feeling below the waist and can't get a
errection,that don't mean anything cause there many
other things to please your partner.If your a man
or woman born with a physical birth defect and also
feel nobody could ever love you thats wrong..All of
this is how your present yourself when out among
people..If your always looking sad and unhappy then
your chances are that you might never find happiness,But
if you feel good about yourself and have good self esteem
then the world is your for the asking..Yes life can be
rought of those with disability,but we can overcome them.
Maybe you have incont problems like me and use diapers
or cath maybe you think this will keep you from fining
intimacy and romance,In general people are understanding
of this problem.
Being disabled later in life,maybe harder for that
person to first except themselves and figure nobody
would want you because your in a wheelchair,or maybe
you lost a leg or arm.If you feel this way it might
be that way for you.,,But if you go into all this
with a positive feeling,then you won the main battle.
This group is for those that are positive about life
and themselves,its not for those that pity themself
24/7 and blame the world for there condition..
This group has been around for over five years and
is very active over the years..If you join we hope
you will be part of the group and have things to
say on the message board...
The main thing I ask of you is to have information
on your profile and not flaming of its members...
Here is the addy to the group if you like to join.As of
today we have over 1,7oo members.
Oh btw I myself am disabled with spina bifida a birth
defect of the spine...

Female participants are needed for a study examining the clothing
issues, needs and preferences of women with all types of physical
disabilities.
Participants must be over 18 years of age, and preferably have worked
or plan to be in the workforce in the future. Participants will be
asked to complete a short (3-page)survey about the issues involving
clothing and your future needs and preferences in design and shopping.
All participants will receive a booklet about clothing assistance and
solutions to common clothing-related problems. The survey can be
emailed or mailed according to participant preference.
If you are interested in participating, or for more information,
please email Dr. Kate Carroll at carrollk@... or call 540-392-
2733.
Many thanks!!

We are seeking individuals with pain following spinal cord injury for a research study of an investigational medication being conducted at Brigham and Women's Hospital.

You may be eligible if you are:
- 18-55 years old
- Have been diagnosed with a Spinal Cord Injury or Disease
- Have had chronic neuropathic pain for at least 3 months

For more information please call 617-525-PAIN (7246), or email paintrials@...

The information transmitted in this electronic communication is intended only
for the person or entity to whom it is addressed and may contain confidential
and/or privileged material. Any review, retransmission, dissemination or other
use of or taking of any action in reliance upon this information by persons or
entities other than the intended recipient is prohibited. If you received this
information in error, please contact the Compliance HelpLine at 800-856-1983 and
properly dispose of this information.

No Pain? Big Gain!

Do you have a Spinal Cord Injury? If so, the Department of Anesthesia at Brigham and Women's Hospital is conducting a research study for individuals with spinal cord injury without pain.

You will receive $75 for completing 1 visit.

For more information, please visit our website at www.brighamandwomens.org/paintrials, contact the Translational Pain Research Group at 617 - 525 - PAIN (7246), or email Paintrials@partners.

The information transmitted in this electronic communication is intended only
for the person or entity to whom it is addressed and may contain confidential
and/or privileged material. Any review, retransmission, dissemination or other
use of or taking of any action in reliance upon this information by persons or
entities other than the intended recipient is prohibited. If you received this
information in error, please contact the Compliance HelpLine at 800-856-1983 and
properly dispose of this information.

I just cracked a 5 $ keeper.

more L8R.

Dave - Good health is merely the slowest possible rate at which one can die.

So you got some nighttraiin huh!!!
I just cracked a 5 $ keeper.
more L8R.

Dave - Good health is merely the slowest possible rate at which one can die.

I'm so sorry I sent to all instead of BCC to all. If you see someone you don't like, please ignore the name. I have many weird friends.
Dave
This was basically a 'name-check' of my address book.